Guest guest Posted February 22, 2004 Report Share Posted February 22, 2004 Tamara, My kids love the water. We have a pool, we just make sure that there are plenty of floats in the water with them that if they tire they can reach one. When they were little we used the bathing suit that had a float built into it. Dr. Boles had told us that it was great exercise and because it was non weight bearing it wasn't as hard on the muscle. HUGS! O and crew - Kira,, and Krisalynn Mitochondrial Myopathy-MIDS Maternally Inherited Dysautonomia and dad Enrique Visit our web page: WWW. caringbridge.org/ca/mitooggo Help support my sister in her new business at : Come and see what's NEW! http://www.youravon.com/elleenmiller Your AVON representative (Sign in passcode: ElleensAVON if you are signing in for the first time :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2004 Report Share Posted February 22, 2004 Tamara, My kids love the water. We have a pool, we just make sure that there are plenty of floats in the water with them that if they tire they can reach one. When they were little we used the bathing suit that had a float built into it. Dr. Boles had told us that it was great exercise and because it was non weight bearing it wasn't as hard on the muscle. HUGS! O and crew - Kira,, and Krisalynn Mitochondrial Myopathy-MIDS Maternally Inherited Dysautonomia and dad Enrique Visit our web page: WWW. caringbridge.org/ca/mitooggo Help support my sister in her new business at : Come and see what's NEW! http://www.youravon.com/elleenmiller Your AVON representative (Sign in passcode: ElleensAVON if you are signing in for the first time :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2004 Report Share Posted February 22, 2004 Tamara, My kids love the water. We have a pool, we just make sure that there are plenty of floats in the water with them that if they tire they can reach one. When they were little we used the bathing suit that had a float built into it. Dr. Boles had told us that it was great exercise and because it was non weight bearing it wasn't as hard on the muscle. HUGS! O and crew - Kira,, and Krisalynn Mitochondrial Myopathy-MIDS Maternally Inherited Dysautonomia and dad Enrique Visit our web page: WWW. caringbridge.org/ca/mitooggo Help support my sister in her new business at : Come and see what's NEW! http://www.youravon.com/elleenmiller Your AVON representative (Sign in passcode: ElleensAVON if you are signing in for the first time :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2004 Report Share Posted February 22, 2004 Tamara, Emilie did have trouble with pool therapy, but it was because the therapy center where she went kept their pool very warm (over 90 degrees F, I think), and Emilie's mito makes her intolerant of heat. -- Mom to: Emilie (17), mito--complex IV, cp, ld Kaitlin (17), cp, asthma, a few autonomic symptoms Ian (22) migraines ....and wife to Tim, who has a heart of gold Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2004 Report Share Posted February 22, 2004 Tamara, Emilie did have trouble with pool therapy, but it was because the therapy center where she went kept their pool very warm (over 90 degrees F, I think), and Emilie's mito makes her intolerant of heat. -- Mom to: Emilie (17), mito--complex IV, cp, ld Kaitlin (17), cp, asthma, a few autonomic symptoms Ian (22) migraines ....and wife to Tim, who has a heart of gold Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2004 Report Share Posted February 22, 2004 hi tamara, just to let you know our experience...my daughter's physical therapist use to do water therapy with her once a week and it was great! (anna grace is nonambulatory, and therefore it was very theraputic....so our situation may differ from yours) it did tire her out, but a good tiring out! also, we joined our community pool last season, b/c anna grace loves water so much.....it is much more tiring on me than her. so, our water experiences have been very positive. hope this helps. bethany mom to brennan 7, palmer & anna grace (leighs) 4 > We have been setting up our activities for the summer to come, it > will be here before we know it. My husband and I were wondering if > water therapy helps or harms our Mito babies. I know how tiring > swimming gets, even just wading around. We were afraid it would take > too much energy. Which he already does not have alot of. > I know some of you would know whether it was a good or bad thing. > Thanks for your help. > Tamara(mommy of , who turns 5 on March 22, unspecific Mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 did very well with pool therapy when she was not in a pool that was to warm. If it was to warm she only lasted a few minutes. But she did very well and loved it. She gets in so much pain doing land exercises but in the pool you are weightless and it really cuts the pain issues. Best of luck to you and yours, Horsley Re: Swimming lesson??? Tamara,Emilie did have trouble with pool therapy, but it was because the therapy center where she went kept their pool very warm (over 90 degrees F, I think), and Emilie's mito makes her intolerant of heat. -- Mom to:Emilie (17), mito--complex IV, cp, ld Kaitlin (17), cp, asthma, a few autonomic symptomsIan (22) migraines...and wife to Tim, who has a heart of goldPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 did very well with pool therapy when she was not in a pool that was to warm. If it was to warm she only lasted a few minutes. But she did very well and loved it. She gets in so much pain doing land exercises but in the pool you are weightless and it really cuts the pain issues. Best of luck to you and yours, Horsley Re: Swimming lesson??? Tamara,Emilie did have trouble with pool therapy, but it was because the therapy center where she went kept their pool very warm (over 90 degrees F, I think), and Emilie's mito makes her intolerant of heat. -- Mom to:Emilie (17), mito--complex IV, cp, ld Kaitlin (17), cp, asthma, a few autonomic symptomsIan (22) migraines...and wife to Tim, who has a heart of goldPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 did very well with pool therapy when she was not in a pool that was to warm. If it was to warm she only lasted a few minutes. But she did very well and loved it. She gets in so much pain doing land exercises but in the pool you are weightless and it really cuts the pain issues. Best of luck to you and yours, Horsley Re: Swimming lesson??? Tamara,Emilie did have trouble with pool therapy, but it was because the therapy center where she went kept their pool very warm (over 90 degrees F, I think), and Emilie's mito makes her intolerant of heat. -- Mom to:Emilie (17), mito--complex IV, cp, ld Kaitlin (17), cp, asthma, a few autonomic symptomsIan (22) migraines...and wife to Tim, who has a heart of goldPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2004 Report Share Posted February 29, 2004 Tamara, Water activity is great for people with muscle and tone issues. The water provides stability and support. My daughter is very sedentary and has a mixture of low and high tone, she also does not bear weight and has trouble reaching to midline. When we put her in a pool, she straightens her legs and attempts to bear weight and even tries to make walking motions, she also will pull her hands to midline and make paddling motions. The only danger is if your child has temp regulation problems, being exposed to water can cause the body temperature to drop dramatically. Some use wet or dry suits to help. This subject has been discussed a lot in the past, it might be worth looking in the archives. HTH e, Chelsea's mom(nopnspecific mito) Quote Link to comment Share on other sites More sharing options...
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