Re: Chat Rooms & Story Link

[Guest guest]

I guess it was a little more spectactular than I had expected! We could probably do with something a little simpler. I know the fewer choices I have, the better. Uh, this is a little awkward, but this would be free, right?

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: <Neurosarcoidosis >Subject: RE: Chat Rooms & Story LinkDate: Sat, 27 May 2006 18:41:46 -0600

Yes Rose that is the right one, he changes the into box, so there’s always something new to see. Did you click on any of the other links? He’s done a website for a guy that sales insurance billing system for prosthetics, does the IT for the website and does monthly updates. He’s just getting started and has self taught most of what he knows. (OK so I’m a little proud of him). But it’s not a problem is you want someone else to do a website either, but you can use his as a search engine, just like Google, in fact it’s Google that pays him, figure that out?

Thanks for checking it out Rose,

Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Saturday, May 27, 2006 3:38 PMTo: Neurosarcoidosis Subject: RE: Chat Rooms & Story Link

Marla, did I get the right website? I got one with movie previews.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: <Neurosarcoidosis >Subject: RE: Chat Rooms & Story LinkDate: Sat, 27 May 2006 14:05:08 -0600Error! Filename not specified.

Yes it is my son who does websites, it doesn’t matter to me if you want to do it Kim. He does some pretty cool stuff, here is his own website, check it out, and if you use it his site like you would Google he gets paid whenever someone uses it, which is very cool too. Its http://www.emxpc.net it’s really cute right now. Let me know what you think, he keeps asking me to share this with my friends and then give him some feedback, and I keep forgetting, so let me know what you all think?

Thanks,

Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Sent: Friday, May 26, 2006 8:37 PMTo: Neurosarcoidosis Subject: Re: Chat Rooms & Story Link

Rose, I think who Kim is talking about is Marla.

-- Re: Chat Rooms & Story Link

Hi Rose,

I AM COMING FORWARD! That was me that offered to do the website. However, there was another member who's son (or nephew I think) was interested in doing one and would be able to use it for his portfolio. Of course, I cannot remember who the member was... love this memory loss.

Anyhow, I am still available to do the website or could hand it over to the other member's family member needing an addition to the portfolio.

Keep me posted!

Kim PellettRose wrote:

I think we need to just hold our breath & jump in to this chat room business. I'm sure there will be bugs to work out. We have this room 24/7, so those of you who volunteered to host just pick a couple of times, maybe one am & one pm, once or twice a week, announce it to the list & remind us again that day or day before. After a week or two, you can survey the group & see if you need to change times or days. As far as the faith-based chat, we can use the same room or get our own. It seems to me that we could just use the same one. So what do the rest of you think? Let's get this thing started!

Regarding the story link, I can't remember who offered to set up a website for that. Come forth, whoever you are! I can write up a list of questions that members can use as a start, if they want. Photos would be optional; actually, it's all optional. This is just for those of us who tell the story of our sarc journey repeatedly and it would be nice to write it once & new members, or old ones who forget, could hit the link & read.

Hasta la vista, baby!

Error! Filename not specified.Ramblin' Rose

Moderator

Find just what you're after with the new, more precise MSN Search - try it now!

~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

I'm with you//Connieolehomepla wrote: Count me in for the chat room..I'd do my best to figure out how to log on....Ruth

Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously low rates.

[Guest guest]

I'm with you//Connieolehomepla wrote: Count me in for the chat room..I'd do my best to figure out how to log on....Ruth

Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously low rates.

[Guest guest]

Who were our volunteers to host the regular chat room? I know Marla & Ron were going to host the faith-based chat.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Re: Chat Rooms & Story LinkDate: Tue, 30 May 2006 14:08:31 -0700 (PDT)I'm with you//Connieolehomepla wrote:

Count me in for the chat room..I'd do my best to figure out how to log on....Ruth

Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously low rates. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Who were our volunteers to host the regular chat room? I know Marla & Ron were going to host the faith-based chat.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Re: Chat Rooms & Story LinkDate: Tue, 30 May 2006 14:08:31 -0700 (PDT)I'm with you//Connieolehomepla wrote:

Count me in for the chat room..I'd do my best to figure out how to log on....Ruth

Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously low rates. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

That would be me, Matt and ..

-- Re: Re: Chat Rooms & Story Link

Who were our volunteers to host the regular chat room? I know Marla & Ron were going to host the faith-based chat.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Re: Chat Rooms & Story LinkDate: Tue, 30 May 2006 14:08:31 -0700 (PDT)I'm with you//Connieolehomepla wrote: Count me in for the chat room..I'd do my best to figure out how to log on....Ruth

Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously low rates. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

That would be me, Matt and ..

-- Re: Re: Chat Rooms & Story Link

Who were our volunteers to host the regular chat room? I know Marla & Ron were going to host the faith-based chat.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Re: Chat Rooms & Story LinkDate: Tue, 30 May 2006 14:08:31 -0700 (PDT)I'm with you//Connieolehomepla wrote: Count me in for the chat room..I'd do my best to figure out how to log on....Ruth

Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously low rates. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

That would be me, Matt and ..

-- Re: Re: Chat Rooms & Story Link

Who were our volunteers to host the regular chat room? I know Marla & Ron were going to host the faith-based chat.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Re: Chat Rooms & Story LinkDate: Tue, 30 May 2006 14:08:31 -0700 (PDT)I'm with you//Connieolehomepla wrote: Count me in for the chat room..I'd do my best to figure out how to log on....Ruth

Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously low rates. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Who were our volunteers to host the regular chat room? I know Marla & Ron were going to host the faith-based chat

Matt, and have volunteered for the regular chats.

Hugs,

Tracie

[Guest guest]

Who were our volunteers to host the regular chat room? I know Marla & Ron were going to host the faith-based chat

Matt, and have volunteered for the regular chats.

Hugs,

Tracie

[Guest guest]

Who were our volunteers to host the regular chat room? I know Marla & Ron were going to host the faith-based chat

Matt, and have volunteered for the regular chats.

Hugs,

Tracie