Re: Chat Rooms & Story Link

[Guest guest]

Rose, I think who Kim is talking about is Marla.

-- Re: Chat Rooms & Story Link

Hi Rose,

I AM COMING FORWARD! That was me that offered to do the website. However, there was another member who's son (or nephew I think) was interested in doing one and would be able to use it for his portfolio. Of course, I cannot remember who the member was... love this memory loss.

Anyhow, I am still available to do the website or could hand it over to the other member's family member needing an addition to the portfolio.

Keep me posted!

Kim PellettRose wrote:

I think we need to just hold our breath & jump in to this chat room business. I'm sure there will be bugs to work out. We have this room 24/7, so those of you who volunteered to host just pick a couple of times, maybe one am & one pm, once or twice a week, announce it to the list & remind us again that day or day before. After a week or two, you can survey the group & see if you need to change times or days. As far as the faith-based chat, we can use the same room or get our own. It seems to me that we could just use the same one. So what do the rest of you think? Let's get this thing started!

Regarding the story link, I can't remember who offered to set up a website for that. Come forth, whoever you are! I can write up a list of questions that members can use as a start, if they want. Photos would be optional; actually, it's all optional. This is just for those of us who tell the story of our sarc journey repeatedly and it would be nice to write it once & new members, or old ones who forget, could hit the link & read.

Hasta la vista, baby!

Ramblin' Rose

Moderator

Find just what you're after with the new, more precise MSN Search - try it now!

[Guest guest]

Rose, I think who Kim is talking about is Marla.

-- Re: Chat Rooms & Story Link

Hi Rose,

I AM COMING FORWARD! That was me that offered to do the website. However, there was another member who's son (or nephew I think) was interested in doing one and would be able to use it for his portfolio. Of course, I cannot remember who the member was... love this memory loss.

Anyhow, I am still available to do the website or could hand it over to the other member's family member needing an addition to the portfolio.

Keep me posted!

Kim PellettRose wrote:

I think we need to just hold our breath & jump in to this chat room business. I'm sure there will be bugs to work out. We have this room 24/7, so those of you who volunteered to host just pick a couple of times, maybe one am & one pm, once or twice a week, announce it to the list & remind us again that day or day before. After a week or two, you can survey the group & see if you need to change times or days. As far as the faith-based chat, we can use the same room or get our own. It seems to me that we could just use the same one. So what do the rest of you think? Let's get this thing started!

Regarding the story link, I can't remember who offered to set up a website for that. Come forth, whoever you are! I can write up a list of questions that members can use as a start, if they want. Photos would be optional; actually, it's all optional. This is just for those of us who tell the story of our sarc journey repeatedly and it would be nice to write it once & new members, or old ones who forget, could hit the link & read.

Hasta la vista, baby!

Ramblin' Rose

Moderator

Find just what you're after with the new, more precise MSN Search - try it now!

[Guest guest]

Rose, I think who Kim is talking about is Marla.

-- Re: Chat Rooms & Story Link

Hi Rose,

I AM COMING FORWARD! That was me that offered to do the website. However, there was another member who's son (or nephew I think) was interested in doing one and would be able to use it for his portfolio. Of course, I cannot remember who the member was... love this memory loss.

Anyhow, I am still available to do the website or could hand it over to the other member's family member needing an addition to the portfolio.

Keep me posted!

Kim PellettRose wrote:

I think we need to just hold our breath & jump in to this chat room business. I'm sure there will be bugs to work out. We have this room 24/7, so those of you who volunteered to host just pick a couple of times, maybe one am & one pm, once or twice a week, announce it to the list & remind us again that day or day before. After a week or two, you can survey the group & see if you need to change times or days. As far as the faith-based chat, we can use the same room or get our own. It seems to me that we could just use the same one. So what do the rest of you think? Let's get this thing started!

Regarding the story link, I can't remember who offered to set up a website for that. Come forth, whoever you are! I can write up a list of questions that members can use as a start, if they want. Photos would be optional; actually, it's all optional. This is just for those of us who tell the story of our sarc journey repeatedly and it would be nice to write it once & new members, or old ones who forget, could hit the link & read.

Hasta la vista, baby!

Ramblin' Rose

Moderator

Find just what you're after with the new, more precise MSN Search - try it now!

[Guest guest]

Kim I do believe it was you that offered to do a step by step directions f0r the MIRC Program, if I may ask you to please do that, maybe we can get that thing rolling, just know we have a few that use the Macintosh system and a few that do web TV. Thank you,

-- Re: Chat Rooms & Story Link

Hi Rose,

I AM COMING FORWARD! That was me that offered to do the website. However, there was another member who's son (or nephew I think) was interested in doing one and would be able to use it for his portfolio. Of course, I cannot remember who the member was... love this memory loss.

Anyhow, I am still available to do the website or could hand it over to the other member's family member needing an addition to the portfolio.

Keep me posted!

Kim PellettRose wrote:

I think we need to just hold our breath & jump in to this chat room business. I'm sure there will be bugs to work out. We have this room 24/7, so those of you who volunteered to host just pick a couple of times, maybe one am & one pm, once or twice a week, announce it to the list & remind us again that day or day before. After a week or two, you can survey the group & see if you need to change times or days. As far as the faith-based chat, we can use the same room or get our own. It seems to me that we could just use the same one. So what do the rest of you think? Let's get this thing started!

Regarding the story link, I can't remember who offered to set up a website for that. Come forth, whoever you are! I can write up a list of questions that members can use as a start, if they want. Photos would be optional; actually, it's all optional. This is just for those of us who tell the story of our sarc journey repeatedly and it would be nice to write it once & new members, or old ones who forget, could hit the link & read.

Hasta la vista, baby!

Ramblin' Rose

Moderator

Find just what you're after with the new, more precise MSN Search - try it now!

[Guest guest]

Kim I do believe it was you that offered to do a step by step directions f0r the MIRC Program, if I may ask you to please do that, maybe we can get that thing rolling, just know we have a few that use the Macintosh system and a few that do web TV. Thank you,

-- Re: Chat Rooms & Story Link

Hi Rose,

I AM COMING FORWARD! That was me that offered to do the website. However, there was another member who's son (or nephew I think) was interested in doing one and would be able to use it for his portfolio. Of course, I cannot remember who the member was... love this memory loss.

Anyhow, I am still available to do the website or could hand it over to the other member's family member needing an addition to the portfolio.

Keep me posted!

Kim PellettRose wrote:

I think we need to just hold our breath & jump in to this chat room business. I'm sure there will be bugs to work out. We have this room 24/7, so those of you who volunteered to host just pick a couple of times, maybe one am & one pm, once or twice a week, announce it to the list & remind us again that day or day before. After a week or two, you can survey the group & see if you need to change times or days. As far as the faith-based chat, we can use the same room or get our own. It seems to me that we could just use the same one. So what do the rest of you think? Let's get this thing started!

Regarding the story link, I can't remember who offered to set up a website for that. Come forth, whoever you are! I can write up a list of questions that members can use as a start, if they want. Photos would be optional; actually, it's all optional. This is just for those of us who tell the story of our sarc journey repeatedly and it would be nice to write it once & new members, or old ones who forget, could hit the link & read.

Hasta la vista, baby!

Ramblin' Rose

Moderator

Find just what you're after with the new, more precise MSN Search - try it now!

[Guest guest]

Kim I do believe it was you that offered to do a step by step directions f0r the MIRC Program, if I may ask you to please do that, maybe we can get that thing rolling, just know we have a few that use the Macintosh system and a few that do web TV. Thank you,

-- Re: Chat Rooms & Story Link

Hi Rose,

I AM COMING FORWARD! That was me that offered to do the website. However, there was another member who's son (or nephew I think) was interested in doing one and would be able to use it for his portfolio. Of course, I cannot remember who the member was... love this memory loss.

Anyhow, I am still available to do the website or could hand it over to the other member's family member needing an addition to the portfolio.

Keep me posted!

Kim PellettRose wrote:

I think we need to just hold our breath & jump in to this chat room business. I'm sure there will be bugs to work out. We have this room 24/7, so those of you who volunteered to host just pick a couple of times, maybe one am & one pm, once or twice a week, announce it to the list & remind us again that day or day before. After a week or two, you can survey the group & see if you need to change times or days. As far as the faith-based chat, we can use the same room or get our own. It seems to me that we could just use the same one. So what do the rest of you think? Let's get this thing started!

Regarding the story link, I can't remember who offered to set up a website for that. Come forth, whoever you are! I can write up a list of questions that members can use as a start, if they want. Photos would be optional; actually, it's all optional. This is just for those of us who tell the story of our sarc journey repeatedly and it would be nice to write it once & new members, or old ones who forget, could hit the link & read.

Hasta la vista, baby!

Ramblin' Rose

Moderator

Find just what you're after with the new, more precise MSN Search - try it now!

[Guest guest]

Count me in for the chat room..I'd do my best to figure out how to log

on....

Ruth

[Guest guest]

Count me in for the chat room..I'd do my best to figure out how to log

on....

Ruth

[Guest guest]

Count me in for the chat room..I'd do my best to figure out how to log

on....

Ruth

[Guest guest]

I AM STILL INTERESTED!

Although I have had difficulty downloading and connecting the MIRC I

will not let this discourage me from trying harder.

It is clear that we want this and there are benefits in having this,

so count me in!

I will try again tomorrow to run the program and see how it turns out.

If all goes well, I will post a couple of times for scheduled chats

and monitor the responses, then share them with the group. I will

also contact Marla, my co-chat host to confer on how we can work

together on making this a huge success for all.

I do not know if it is necessary to have two chat rooms. I don't

think one will " contaminate " the other. (Smiling, just kidding). But

the floor is always open for suggestions.

Love ya,

Ronnie B

[Guest guest]

Ron I do not know how to download the program at all, if you tell how to get

to it, I can have my son help me?

Marla

Re: Chat Rooms & Story Link

I AM STILL INTERESTED!

Although I have had difficulty downloading and connecting the MIRC I will

not let this discourage me from trying harder.

It is clear that we want this and there are benefits in having this, so

count me in!

I will try again tomorrow to run the program and see how it turns out.

If all goes well, I will post a couple of times for scheduled chats and

monitor the responses, then share them with the group. I will also contact

Marla, my co-chat host to confer on how we can work together on making this

a huge success for all.

I do not know if it is necessary to have two chat rooms. I don't think one

will " contaminate " the other. (Smiling, just kidding). But the floor is

always open for suggestions.

Love ya,

Ronnie B

[Guest guest]

Ron I do not know how to download the program at all, if you tell how to get

to it, I can have my son help me?

Marla

Re: Chat Rooms & Story Link

I AM STILL INTERESTED!

Although I have had difficulty downloading and connecting the MIRC I will

not let this discourage me from trying harder.

It is clear that we want this and there are benefits in having this, so

count me in!

I will try again tomorrow to run the program and see how it turns out.

If all goes well, I will post a couple of times for scheduled chats and

monitor the responses, then share them with the group. I will also contact

Marla, my co-chat host to confer on how we can work together on making this

a huge success for all.

I do not know if it is necessary to have two chat rooms. I don't think one

will " contaminate " the other. (Smiling, just kidding). But the floor is

always open for suggestions.

Love ya,

Ronnie B

[Guest guest]

Ron I do not know how to download the program at all, if you tell how to get

to it, I can have my son help me?

Marla

Re: Chat Rooms & Story Link

I AM STILL INTERESTED!

Although I have had difficulty downloading and connecting the MIRC I will

not let this discourage me from trying harder.

It is clear that we want this and there are benefits in having this, so

count me in!

I will try again tomorrow to run the program and see how it turns out.

If all goes well, I will post a couple of times for scheduled chats and

monitor the responses, then share them with the group. I will also contact

Marla, my co-chat host to confer on how we can work together on making this

a huge success for all.

I do not know if it is necessary to have two chat rooms. I don't think one

will " contaminate " the other. (Smiling, just kidding). But the floor is

always open for suggestions.

Love ya,

Ronnie B

[Guest guest]

Yes it is my son who does websites, it doesn’t matter

to me if you want to do it Kim. He does some pretty cool stuff, here is

his own website, check it out, and if you use it his site like you would Google

he gets paid whenever someone uses it, which is very cool too. Its http://www.emxpc.net it’s really

cute right now. Let me know what you think, he keeps asking me to share

this with my friends and then give him some feedback, and I keep forgetting, so

let me know what you all think?

Thanks,

Marla

From:

Neurosarcoidosis [mailto:Neurosarcoidosis ] On

Behalf Of

Sent: Friday, May 26, 2006 8:37 PM

To: Neurosarcoidosis

Subject: Re: Chat Rooms & Story Link

Rose, I think who Kim is talking about is Marla.

--

Re: Chat Rooms & Story Link

Hi Rose,

I AM COMING FORWARD! That was me that offered to

do the website. However, there was another member who's son (or nephew

I think) was interested in doing one and would be able to use it for his

portfolio. Of course, I cannot remember who the member was... love this

memory loss.

Anyhow, I am still available to do the website or

could hand it over to the other member's family member needing an addition to

the portfolio.

Keep me posted!

Kim Pellett

Rose wrote:

I think we need

to just hold our breath & jump in to this chat room business. I'm

sure there will be bugs to work out. We have this room 24/7, so those

of you who volunteered to host just pick a couple of times, maybe one am

& one pm, once or twice a week, announce it to the list & remind us

again that day or day before. After a week or two, you can survey the

group & see if you need to change times or days. As far as the

faith-based chat, we can use the same room or get our own. It seems to

me that we could just use the same one. So what do the rest of you

think? Let's get this thing started!

Regarding the

story link, I can't remember who offered to set up a website for that.

Come forth, whoever you are! I can write up a list of questions that

members can use as a start, if they want. Photos would be optional;

actually, it's all optional. This is just for those of us who tell the

story of our sarc journey repeatedly and it would be nice to write it once

& new members, or old ones who forget, could hit the link & read.

Hasta la vista,

baby!

Ramblin' Rose

Moderator

Find just what you're after with the new, more precise MSN

Search - try it now!

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Neurosarcoidosis Community

NS CHAT:- Has been cancelled for now.

Message Archives:-

http://groups.yahoo.com/group/Neurosarcoidosis/messages

Members Database:-

Listings of locations, phone numbers, and instant messengers.

http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Rose,

This may be a stupid question but,

is the chat room with yahoo or msn? Or am I way off base?

Marla

From: Neurosarcoidosis

[mailto:Neurosarcoidosis ] On Behalf Of Rose

Sent: Friday, May 26, 2006 6:42 PM

To: Neurosarcoidosis

Subject: Chat Rooms & Story Link

I think we need to just hold our breath & jump in to this chat room

business. I'm sure there will be bugs to work out. We have this

room 24/7, so those of you who volunteered to host just pick a couple of times,

maybe one am & one pm, once or twice a week, announce it to the list &

remind us again that day or day before. After a week or two, you can

survey the group & see if you need to change times or days. As far as

the faith-based chat, we can use the same room or get our own. It seems to

me that we could just use the same one. So what do the rest of you

think? Let's get this thing started!

Regarding the story link, I can't remember who offered to set up a website

for that. Come forth, whoever you are! I can write up a list of

questions that members can use as a start, if they want. Photos would be

optional; actually, it's all optional. This is just for those of us who

tell the story of our sarc journey repeatedly and it would be nice to write it

once & new members, or old ones who forget, could hit the link & read.

Hasta la vista, baby!

Ramblin' Rose

Moderator

Find just what

you're after with the new, more precise MSN Search - try it now!

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Neurosarcoidosis Community

NS CHAT:- Has been cancelled for now.

Message Archives:-

http://groups.yahoo.com/group/Neurosarcoidosis/messages

Members Database:-

Listings of locations, phone numbers, and instant messengers.

http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Rose,

This may be a stupid question but,

is the chat room with yahoo or msn? Or am I way off base?

Marla

From: Neurosarcoidosis

[mailto:Neurosarcoidosis ] On Behalf Of Rose

Sent: Friday, May 26, 2006 6:42 PM

To: Neurosarcoidosis

Subject: Chat Rooms & Story Link

I think we need to just hold our breath & jump in to this chat room

business. I'm sure there will be bugs to work out. We have this

room 24/7, so those of you who volunteered to host just pick a couple of times,

maybe one am & one pm, once or twice a week, announce it to the list &

remind us again that day or day before. After a week or two, you can

survey the group & see if you need to change times or days. As far as

the faith-based chat, we can use the same room or get our own. It seems to

me that we could just use the same one. So what do the rest of you

think? Let's get this thing started!

Regarding the story link, I can't remember who offered to set up a website

for that. Come forth, whoever you are! I can write up a list of

questions that members can use as a start, if they want. Photos would be

optional; actually, it's all optional. This is just for those of us who

tell the story of our sarc journey repeatedly and it would be nice to write it

once & new members, or old ones who forget, could hit the link & read.

Hasta la vista, baby!

Ramblin' Rose

Moderator

Find just what

you're after with the new, more precise MSN Search - try it now!

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Neurosarcoidosis Community

NS CHAT:- Has been cancelled for now.

Message Archives:-

http://groups.yahoo.com/group/Neurosarcoidosis/messages

Members Database:-

Listings of locations, phone numbers, and instant messengers.

http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

I think Kim P. is going to help with that. Further information will be forthcoming.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: <Neurosarcoidosis >Subject: RE: Re: Chat Rooms & Story LinkDate: Sat, 27 May 2006 12:41:00 -0600Ron I do not know how to download the program at all, if you tell how to getto it, I can have my son help me? Marla-----Original Message-----From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of J. BlanchettSent: Saturday, May 27, 2006 1:33 AMTo: Neurosarcoidosis Subject: Re: Chat Rooms & Story LinkI AM STILL INTERESTED! Although I have had difficulty downloading and connecting the MIRC I willnot let this discourage me from trying harder.It is clear that we want this and there are benefits in having this, socount me in!I will try again tomorrow to run the program and see how it turns out.If all goes well, I will post a couple of times for scheduled chats andmonitor the responses, then share them with the group. I will also contactMarla, my co-chat host to confer on how we can work together on making thisa huge success for all.I do not know if it is necessary to have two chat rooms. I don't think onewill "contaminate" the other. (Smiling, just kidding). But the floor isalways open for suggestions.Love ya,Ronnie B

[Guest guest]

I think Kim P. is going to help with that. Further information will be forthcoming.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: <Neurosarcoidosis >Subject: RE: Re: Chat Rooms & Story LinkDate: Sat, 27 May 2006 12:41:00 -0600Ron I do not know how to download the program at all, if you tell how to getto it, I can have my son help me? Marla-----Original Message-----From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of J. BlanchettSent: Saturday, May 27, 2006 1:33 AMTo: Neurosarcoidosis Subject: Re: Chat Rooms & Story LinkI AM STILL INTERESTED! Although I have had difficulty downloading and connecting the MIRC I willnot let this discourage me from trying harder.It is clear that we want this and there are benefits in having this, socount me in!I will try again tomorrow to run the program and see how it turns out.If all goes well, I will post a couple of times for scheduled chats andmonitor the responses, then share them with the group. I will also contactMarla, my co-chat host to confer on how we can work together on making thisa huge success for all.I do not know if it is necessary to have two chat rooms. I don't think onewill "contaminate" the other. (Smiling, just kidding). But the floor isalways open for suggestions.Love ya,Ronnie B

[Guest guest]

I think Kim P. is going to help with that. Further information will be forthcoming.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: <Neurosarcoidosis >Subject: RE: Re: Chat Rooms & Story LinkDate: Sat, 27 May 2006 12:41:00 -0600Ron I do not know how to download the program at all, if you tell how to getto it, I can have my son help me? Marla-----Original Message-----From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of J. BlanchettSent: Saturday, May 27, 2006 1:33 AMTo: Neurosarcoidosis Subject: Re: Chat Rooms & Story LinkI AM STILL INTERESTED! Although I have had difficulty downloading and connecting the MIRC I willnot let this discourage me from trying harder.It is clear that we want this and there are benefits in having this, socount me in!I will try again tomorrow to run the program and see how it turns out.If all goes well, I will post a couple of times for scheduled chats andmonitor the responses, then share them with the group. I will also contactMarla, my co-chat host to confer on how we can work together on making thisa huge success for all.I do not know if it is necessary to have two chat rooms. I don't think onewill "contaminate" the other. (Smiling, just kidding). But the floor isalways open for suggestions.Love ya,Ronnie B

[Guest guest]

Marla, did I get the right website? I got one with movie previews.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: <Neurosarcoidosis >Subject: RE: Chat Rooms & Story LinkDate: Sat, 27 May 2006 14:05:08 -0600

Yes it is my son who does websites, it doesn’t matter to me if you want to do it Kim. He does some pretty cool stuff, here is his own website, check it out, and if you use it his site like you would Google he gets paid whenever someone uses it, which is very cool too. Its http://www.emxpc.net it’s really cute right now. Let me know what you think, he keeps asking me to share this with my friends and then give him some feedback, and I keep forgetting, so let me know what you all think?

Thanks,

Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Sent: Friday, May 26, 2006 8:37 PMTo: Neurosarcoidosis Subject: Re: Chat Rooms & Story Link

Rose, I think who Kim is talking about is Marla.

-- Re: Chat Rooms & Story Link

Hi Rose,

I AM COMING FORWARD! That was me that offered to do the website. However, there was another member who's son (or nephew I think) was interested in doing one and would be able to use it for his portfolio. Of course, I cannot remember who the member was... love this memory loss.

Anyhow, I am still available to do the website or could hand it over to the other member's family member needing an addition to the portfolio.

Keep me posted!

Kim PellettRose wrote:

I think we need to just hold our breath & jump in to this chat room business. I'm sure there will be bugs to work out. We have this room 24/7, so those of you who volunteered to host just pick a couple of times, maybe one am & one pm, once or twice a week, announce it to the list & remind us again that day or day before. After a week or two, you can survey the group & see if you need to change times or days. As far as the faith-based chat, we can use the same room or get our own. It seems to me that we could just use the same one. So what do the rest of you think? Let's get this thing started!

Regarding the story link, I can't remember who offered to set up a website for that. Come forth, whoever you are! I can write up a list of questions that members can use as a start, if they want. Photos would be optional; actually, it's all optional. This is just for those of us who tell the story of our sarc journey repeatedly and it would be nice to write it once & new members, or old ones who forget, could hit the link & read.

Hasta la vista, baby!

Ramblin' Rose

Moderator

Find just what you're after with the new, more precise MSN Search - try it now!

~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Marla, did I get the right website? I got one with movie previews.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: <Neurosarcoidosis >Subject: RE: Chat Rooms & Story LinkDate: Sat, 27 May 2006 14:05:08 -0600

Yes it is my son who does websites, it doesn’t matter to me if you want to do it Kim. He does some pretty cool stuff, here is his own website, check it out, and if you use it his site like you would Google he gets paid whenever someone uses it, which is very cool too. Its http://www.emxpc.net it’s really cute right now. Let me know what you think, he keeps asking me to share this with my friends and then give him some feedback, and I keep forgetting, so let me know what you all think?

Thanks,

Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Sent: Friday, May 26, 2006 8:37 PMTo: Neurosarcoidosis Subject: Re: Chat Rooms & Story Link

Rose, I think who Kim is talking about is Marla.

-- Re: Chat Rooms & Story Link

Hi Rose,

I AM COMING FORWARD! That was me that offered to do the website. However, there was another member who's son (or nephew I think) was interested in doing one and would be able to use it for his portfolio. Of course, I cannot remember who the member was... love this memory loss.

Anyhow, I am still available to do the website or could hand it over to the other member's family member needing an addition to the portfolio.

Keep me posted!

Kim PellettRose wrote:

I think we need to just hold our breath & jump in to this chat room business. I'm sure there will be bugs to work out. We have this room 24/7, so those of you who volunteered to host just pick a couple of times, maybe one am & one pm, once or twice a week, announce it to the list & remind us again that day or day before. After a week or two, you can survey the group & see if you need to change times or days. As far as the faith-based chat, we can use the same room or get our own. It seems to me that we could just use the same one. So what do the rest of you think? Let's get this thing started!

Regarding the story link, I can't remember who offered to set up a website for that. Come forth, whoever you are! I can write up a list of questions that members can use as a start, if they want. Photos would be optional; actually, it's all optional. This is just for those of us who tell the story of our sarc journey repeatedly and it would be nice to write it once & new members, or old ones who forget, could hit the link & read.

Hasta la vista, baby!

Ramblin' Rose

Moderator

Find just what you're after with the new, more precise MSN Search - try it now!

~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Marla, did I get the right website? I got one with movie previews.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: <Neurosarcoidosis >Subject: RE: Chat Rooms & Story LinkDate: Sat, 27 May 2006 14:05:08 -0600

Yes it is my son who does websites, it doesn’t matter to me if you want to do it Kim. He does some pretty cool stuff, here is his own website, check it out, and if you use it his site like you would Google he gets paid whenever someone uses it, which is very cool too. Its http://www.emxpc.net it’s really cute right now. Let me know what you think, he keeps asking me to share this with my friends and then give him some feedback, and I keep forgetting, so let me know what you all think?

Thanks,

Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Sent: Friday, May 26, 2006 8:37 PMTo: Neurosarcoidosis Subject: Re: Chat Rooms & Story Link

Rose, I think who Kim is talking about is Marla.

-- Re: Chat Rooms & Story Link

Hi Rose,

I AM COMING FORWARD! That was me that offered to do the website. However, there was another member who's son (or nephew I think) was interested in doing one and would be able to use it for his portfolio. Of course, I cannot remember who the member was... love this memory loss.

Anyhow, I am still available to do the website or could hand it over to the other member's family member needing an addition to the portfolio.

Keep me posted!

Kim PellettRose wrote:

I think we need to just hold our breath & jump in to this chat room business. I'm sure there will be bugs to work out. We have this room 24/7, so those of you who volunteered to host just pick a couple of times, maybe one am & one pm, once or twice a week, announce it to the list & remind us again that day or day before. After a week or two, you can survey the group & see if you need to change times or days. As far as the faith-based chat, we can use the same room or get our own. It seems to me that we could just use the same one. So what do the rest of you think? Let's get this thing started!

Regarding the story link, I can't remember who offered to set up a website for that. Come forth, whoever you are! I can write up a list of questions that members can use as a start, if they want. Photos would be optional; actually, it's all optional. This is just for those of us who tell the story of our sarc journey repeatedly and it would be nice to write it once & new members, or old ones who forget, could hit the link & read.

Hasta la vista, baby!

Ramblin' Rose

Moderator

Find just what you're after with the new, more precise MSN Search - try it now!

~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Yes Rose that is the right one, he changes the into box, so

there’s always something new to see. Did you click on any of the

other links? He’s done a website for a guy that sales insurance

billing system for prosthetics, does the IT for the website and does monthly

updates. He’s just getting started and has self taught most of what

he knows. (OK so I’m a little proud of him). But it’s

not a problem is you want someone else to do a website either, but you can use

his as a search engine, just like Google, in fact it’s Google that pays

him, figure that out?

Thanks for checking it out Rose,

Marla

From:

Neurosarcoidosis [mailto:Neurosarcoidosis ] On

Behalf Of Rose

Sent: Saturday, May 27, 2006 3:38 PM

To: Neurosarcoidosis

Subject: RE: Chat Rooms & Story Link

Marla, did I get the right website? I

got one with movie previews.

Ramblin' Rose

Moderator

From: Marla Bramer

Reply-To: Neurosarcoidosis

To: <Neurosarcoidosis >

Subject: RE: Chat Rooms & Story Link

Date: Sat, 27 May 2006 14:05:08 -0600

Error!

Filename not specified.

Yes it is my son who does websites, it doesn’t matter

to me if you want to do it Kim. He does some pretty cool stuff, here is

his own website, check it out, and if you use it his site like you would Google

he gets paid whenever someone uses it, which is very cool too. Its

http://www.emxpc.net it’s really cute right now. Let me know

what you think, he keeps asking me to share this with my friends and then give

him some feedback, and I keep forgetting, so let me know what you all think?

Thanks,

Marla

From:

Neurosarcoidosis [mailto:Neurosarcoidosis ] On

Behalf Of

Sent: Friday, May 26, 2006 8:37 PM

To: Neurosarcoidosis

Subject: Re: Chat Rooms & Story Link

Rose, I think who Kim is talking about is Marla.

--

Re: Chat Rooms & Story Link

Hi Rose,

I AM COMING FORWARD! That was me that offered to

do the website. However, there was another member who's son (or nephew

I think) was interested in doing one and would be able to use it for his

portfolio. Of course, I cannot remember who the member was... love this

memory loss.

Anyhow, I am still available to do the website or

could hand it over to the other member's family member needing an addition to

the portfolio.

Keep me posted!

Kim Pellett

Rose wrote:

I think we need

to just hold our breath & jump in to this chat room business. I'm

sure there will be bugs to work out. We have this room 24/7, so those

of you who volunteered to host just pick a couple of times, maybe one am

& one pm, once or twice a week, announce it to the list & remind us

again that day or day before. After a week or two, you can survey the

group & see if you need to change times or days. As far as the

faith-based chat, we can use the same room or get our own. It seems to

me that we could just use the same one. So what do the rest of you

think? Let's get this thing started!

Regarding the

story link, I can't remember who offered to set up a website for that.

Come forth, whoever you are! I can write up a list of questions that

members can use as a start, if they want. Photos would be optional;

actually, it's all optional. This is just for those of us who tell the

story of our sarc journey repeatedly and it would be nice to write it once

& new members, or old ones who forget, could hit the link & read.

Hasta la vista,

baby!

Error! Filename not specified.Ramblin' Rose

Moderator

Find

just what you're after with the new, more precise MSN Search - try it now!

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Neurosarcoidosis Community

NS CHAT:- Has been cancelled for now.

Message Archives:-

http://groups.yahoo.com/group/Neurosarcoidosis/messages

Members Database:-

Listings of locations, phone numbers, and instant messengers.

http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

I guess it was a little more spectactular than I had expected! We could probably do with something a little simpler. I know the fewer choices I have, the better. Uh, this is a little awkward, but this would be free, right?

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: <Neurosarcoidosis >Subject: RE: Chat Rooms & Story LinkDate: Sat, 27 May 2006 18:41:46 -0600

Yes Rose that is the right one, he changes the into box, so there’s always something new to see. Did you click on any of the other links? He’s done a website for a guy that sales insurance billing system for prosthetics, does the IT for the website and does monthly updates. He’s just getting started and has self taught most of what he knows. (OK so I’m a little proud of him). But it’s not a problem is you want someone else to do a website either, but you can use his as a search engine, just like Google, in fact it’s Google that pays him, figure that out?

Thanks for checking it out Rose,

Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Saturday, May 27, 2006 3:38 PMTo: Neurosarcoidosis Subject: RE: Chat Rooms & Story Link

Marla, did I get the right website? I got one with movie previews.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: <Neurosarcoidosis >Subject: RE: Chat Rooms & Story LinkDate: Sat, 27 May 2006 14:05:08 -0600Error! Filename not specified.

Yes it is my son who does websites, it doesn’t matter to me if you want to do it Kim. He does some pretty cool stuff, here is his own website, check it out, and if you use it his site like you would Google he gets paid whenever someone uses it, which is very cool too. Its http://www.emxpc.net it’s really cute right now. Let me know what you think, he keeps asking me to share this with my friends and then give him some feedback, and I keep forgetting, so let me know what you all think?

Thanks,

Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Sent: Friday, May 26, 2006 8:37 PMTo: Neurosarcoidosis Subject: Re: Chat Rooms & Story Link

Rose, I think who Kim is talking about is Marla.

-- Re: Chat Rooms & Story Link

Hi Rose,

I AM COMING FORWARD! That was me that offered to do the website. However, there was another member who's son (or nephew I think) was interested in doing one and would be able to use it for his portfolio. Of course, I cannot remember who the member was... love this memory loss.

Anyhow, I am still available to do the website or could hand it over to the other member's family member needing an addition to the portfolio.

Keep me posted!

Kim PellettRose wrote:

I think we need to just hold our breath & jump in to this chat room business. I'm sure there will be bugs to work out. We have this room 24/7, so those of you who volunteered to host just pick a couple of times, maybe one am & one pm, once or twice a week, announce it to the list & remind us again that day or day before. After a week or two, you can survey the group & see if you need to change times or days. As far as the faith-based chat, we can use the same room or get our own. It seems to me that we could just use the same one. So what do the rest of you think? Let's get this thing started!

Regarding the story link, I can't remember who offered to set up a website for that. Come forth, whoever you are! I can write up a list of questions that members can use as a start, if they want. Photos would be optional; actually, it's all optional. This is just for those of us who tell the story of our sarc journey repeatedly and it would be nice to write it once & new members, or old ones who forget, could hit the link & read.

Hasta la vista, baby!

Error! Filename not specified.Ramblin' Rose

Moderator

Find just what you're after with the new, more precise MSN Search - try it now!

~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

I guess it was a little more spectactular than I had expected! We could probably do with something a little simpler. I know the fewer choices I have, the better. Uh, this is a little awkward, but this would be free, right?

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: <Neurosarcoidosis >Subject: RE: Chat Rooms & Story LinkDate: Sat, 27 May 2006 18:41:46 -0600

Yes Rose that is the right one, he changes the into box, so there’s always something new to see. Did you click on any of the other links? He’s done a website for a guy that sales insurance billing system for prosthetics, does the IT for the website and does monthly updates. He’s just getting started and has self taught most of what he knows. (OK so I’m a little proud of him). But it’s not a problem is you want someone else to do a website either, but you can use his as a search engine, just like Google, in fact it’s Google that pays him, figure that out?

Thanks for checking it out Rose,

Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Saturday, May 27, 2006 3:38 PMTo: Neurosarcoidosis Subject: RE: Chat Rooms & Story Link

Marla, did I get the right website? I got one with movie previews.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: <Neurosarcoidosis >Subject: RE: Chat Rooms & Story LinkDate: Sat, 27 May 2006 14:05:08 -0600Error! Filename not specified.

Yes it is my son who does websites, it doesn’t matter to me if you want to do it Kim. He does some pretty cool stuff, here is his own website, check it out, and if you use it his site like you would Google he gets paid whenever someone uses it, which is very cool too. Its http://www.emxpc.net it’s really cute right now. Let me know what you think, he keeps asking me to share this with my friends and then give him some feedback, and I keep forgetting, so let me know what you all think?

Thanks,

Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Sent: Friday, May 26, 2006 8:37 PMTo: Neurosarcoidosis Subject: Re: Chat Rooms & Story Link

Rose, I think who Kim is talking about is Marla.

-- Re: Chat Rooms & Story Link

Hi Rose,

I AM COMING FORWARD! That was me that offered to do the website. However, there was another member who's son (or nephew I think) was interested in doing one and would be able to use it for his portfolio. Of course, I cannot remember who the member was... love this memory loss.

Anyhow, I am still available to do the website or could hand it over to the other member's family member needing an addition to the portfolio.

Keep me posted!

Kim PellettRose wrote:

I think we need to just hold our breath & jump in to this chat room business. I'm sure there will be bugs to work out. We have this room 24/7, so those of you who volunteered to host just pick a couple of times, maybe one am & one pm, once or twice a week, announce it to the list & remind us again that day or day before. After a week or two, you can survey the group & see if you need to change times or days. As far as the faith-based chat, we can use the same room or get our own. It seems to me that we could just use the same one. So what do the rest of you think? Let's get this thing started!

Regarding the story link, I can't remember who offered to set up a website for that. Come forth, whoever you are! I can write up a list of questions that members can use as a start, if they want. Photos would be optional; actually, it's all optional. This is just for those of us who tell the story of our sarc journey repeatedly and it would be nice to write it once & new members, or old ones who forget, could hit the link & read.

Hasta la vista, baby!

Error! Filename not specified.Ramblin' Rose

Moderator

Find just what you're after with the new, more precise MSN Search - try it now!

~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database