Re: How many Drs does it take....

[Guest guest]

Don't you just love insurance companies? As far as the SSI, I don't think you really need the diagnosis, just be able to prove a disability. We are in the process of applying for Grace, even though it's hopeless. If she even qualifies for a disability they will tell us we make too much money. I wish they would look at the fact that I used to work full time, before Gracie started getting sick. Now I am a stay at home mom. I certainly do not regret it, but it does affect us financially. Yes, we still eat and have clothing, but we are far from rich. We are unable to have any decent savings, which you really need with a kid like this. We worry all the time about what if something happens. Keep persistent with them, they will try to make it as hard as possible.

Best of luck!

[Guest guest]

;

Have you ever called your insurance company and asked for a personal case

manager? These are people whose job, as I understand it, is to advocate

for the client (YOU) and help you negotiate their system! Many Mito folk

have found that these people have helped them through the insurance maze!

Personally, being a Canadian, I have never had to use these folk, but I am

sure there are others on this list who can help you with what exactly to

ask for.

Jean

wrote:

I know this sounds like the lead in to a joke, but honestly how many

Drs

does it take who say "We suspect this is Mito" for something to get done?

We met with a new Neuro yesterday, and without me even mentioning what our

suspicions for Will are he told me it is probably Mitochondrial

Encephalomyopathy. We just have to get to a Metabolic clinic to confirm

it.

This is the 4th Dr to suggest this and still our insurance company says

the

Metabolic clinic is unnecessary, and his entire file has to be reviewed,

again. Sorry for the rant it's just frustrating.

For those of you who have applied for SSI, for your kids, do you think this

is enough or do we have to have a definitive diagnosis. We have an appt

in

2 weeks to start the paper work, so I was just wondering.

Please contact mito-owner with any problems or questions.

[Guest guest]

;

Have you ever called your insurance company and asked for a personal case

manager? These are people whose job, as I understand it, is to advocate

for the client (YOU) and help you negotiate their system! Many Mito folk

have found that these people have helped them through the insurance maze!

Personally, being a Canadian, I have never had to use these folk, but I am

sure there are others on this list who can help you with what exactly to

ask for.

Jean

wrote:

I know this sounds like the lead in to a joke, but honestly how many

Drs

does it take who say "We suspect this is Mito" for something to get done?

We met with a new Neuro yesterday, and without me even mentioning what our

suspicions for Will are he told me it is probably Mitochondrial

Encephalomyopathy. We just have to get to a Metabolic clinic to confirm

it.

This is the 4th Dr to suggest this and still our insurance company says

the

Metabolic clinic is unnecessary, and his entire file has to be reviewed,

again. Sorry for the rant it's just frustrating.

For those of you who have applied for SSI, for your kids, do you think this

is enough or do we have to have a definitive diagnosis. We have an appt

in

2 weeks to start the paper work, so I was just wondering.

Please contact mito-owner with any problems or questions.

[Guest guest]

;

Have you ever called your insurance company and asked for a personal case

manager? These are people whose job, as I understand it, is to advocate

for the client (YOU) and help you negotiate their system! Many Mito folk

have found that these people have helped them through the insurance maze!

Personally, being a Canadian, I have never had to use these folk, but I am

sure there are others on this list who can help you with what exactly to

ask for.

Jean

wrote:

I know this sounds like the lead in to a joke, but honestly how many

Drs

does it take who say "We suspect this is Mito" for something to get done?

We met with a new Neuro yesterday, and without me even mentioning what our

suspicions for Will are he told me it is probably Mitochondrial

Encephalomyopathy. We just have to get to a Metabolic clinic to confirm

it.

This is the 4th Dr to suggest this and still our insurance company says

the

Metabolic clinic is unnecessary, and his entire file has to be reviewed,

again. Sorry for the rant it's just frustrating.

For those of you who have applied for SSI, for your kids, do you think this

is enough or do we have to have a definitive diagnosis. We have an appt

in

2 weeks to start the paper work, so I was just wondering.

Please contact mito-owner with any problems or questions.

[Guest guest]

Have you put in an appeal through your ins to cover testing? My ins.

didn't want to pay but we appealed their decision and won after months but

you have to be persistent. Most ins. co. will deny first and second

attempts hoping that you just give up. Just don't accept their first

denial. Yes it is a pain and alot of work and phone calls on your part but

hopefully in the end it will be worth it.

>

>Reply-To: Mito

>To: mito mito >

>Subject: How many Drs does it take....

>Date: Wed, 28 Jan 2004 10:10:51 -0700

>

>I know this sounds like the lead in to a joke, but honestly how many Drs

>does it take who say " We suspect this is Mito " for something to get done?

>We met with a new Neuro yesterday, and without me even mentioning what our

>suspicions for Will are he told me it is probably Mitochondrial

>Encephalomyopathy. We just have to get to a Metabolic clinic to confirm

>it.

>This is the 4th Dr to suggest this and still our insurance company says the

>Metabolic clinic is unnecessary, and his entire file has to be reviewed,

>again. Sorry for the rant it's just frustrating.

>For those of you who have applied for SSI, for your kids, do you think this

>is enough or do we have to have a definitive diagnosis. We have an appt in

>2 weeks to start the paper work, so I was just wondering.

>

>

>

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