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Re: MAW suggestions

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hi seanne,

my daughter, anna grace, was granted a wish at age 2 1/2 (once she

was dx with leighs) and she is nonverbal. however, the MAW staff

was great in letting us decide what anna grace would want most. we

too choose disney, being that anna grace loves rides, music, people

and that our family had never been to disney.

don't worry about how far away you live....you know best what gaby

likes and would want to do or ask for

please feel free to email with any specific questions.

bethany

mom to brennan 6, palmer & anna grace (leighs) 4

>

> I live in Australia, and we are about to approach MAW on Gaby's

behalf. I

> would appreciate any help from parents of children who are

intellectually

> impaired, and little to no speach, who have made a wish on their

child's

> behalf.

> Our wish for her has always been to take her to Disneyland, but I

don't feel

> comfortable saying this when we live so far away. Gaby absolutely

loves any

> type of theme park ride..the faster and more musical..the better.

She loves

> life, loves activity, loves to sing and giggle.. and is such a

delight to us

> all, but we don't want to wait forever,,as we all know what the

future may

> hold..

>

> Any suggestions would be greatly appreciated

>

> ne, mum To Gaby, aged 8 1/2 years, PDH in Australia

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My son ,almost 8, is considered to have MR and has no speech except for "Hi"... I have written to Make a wish twice on 's behalf and have gotten no response either time. I've always wondered if it was because he couldn't verbalize his wish for himself.... so I say ask for the world if Gaby's been granted a wish!!! :)

(Mama to ,Mito Comlpex IV,autistic traits,MR,etc..etc....)

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If MAW didn't respond to you, you should give them a call an ask them why.

On their website it says most wishes are granted within 8 weeks and I would

assume many children can't really verbalize their wish considering their

situation. Maybe the letters are getting to the right place or something.

wrote:

My son ,almost 8, is considered

to have MR and has no speech except for "Hi"... I have written to Make a

wish twice on 's behalf and have gotten no response either time. I've

always wondered if it was because he couldn't verbalize his wish for himself....

so I say ask for the world if Gaby's been granted a wish!!! :)

(Mama to ,Mito Comlpex IV,autistic

traits,MR,etc..etc....)

Please contact mito-owner with any problems or questions.

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Share on other sites

If MAW didn't respond to you, you should give them a call an ask them why.

On their website it says most wishes are granted within 8 weeks and I would

assume many children can't really verbalize their wish considering their

situation. Maybe the letters are getting to the right place or something.

wrote:

My son ,almost 8, is considered

to have MR and has no speech except for "Hi"... I have written to Make a

wish twice on 's behalf and have gotten no response either time. I've

always wondered if it was because he couldn't verbalize his wish for himself....

so I say ask for the world if Gaby's been granted a wish!!! :)

(Mama to ,Mito Comlpex IV,autistic

traits,MR,etc..etc....)

Please contact mito-owner with any problems or questions.

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