Are airway issues common???

[Guest guest]

My son who is 4 1/2, unspecific Mito disease has airway issues.

At age 6 weeks he was rushed to the P.I.C.U, with severe stridor.

They did a Broc scope and said he has a floppy voice box

(Laryngiamalacia), sent us home on a apnea monitor. They said it

would stiffen up and he would grow out of it in a year. 4 1/2 years

later, he still stridor. Only at night, or in the day hour if he is

really hot. It gets really bad if he gets the slightest cold or even

just a runny nose.

They did another Bronc Scope this summer and said his airway may be

collapsing because of week muscles in the chest.

Has anyone ever heard of this with Mito Disease???

Please let me know if you have!!!

[Guest guest]

Hello, we have air way problems but of a different degree, Hailee is 5 and

is starting to have to go on oxygen at night cause her sats drop in the low

80s and she makes a barking noise when she breathes, she is also having a

hard time with her blood gasses

>

>Reply-To: Mito

>To: Mito

>Subject: Are airway issues common???

>Date: Tue, 20 Jan 2004 12:29:15 -0000

>

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My son who is 4 1/2, unspecific Mito disease has airway issues.

At age 6 weeks he was rushed to the P.I.C.U, with severe stridor.

They did a Broc scope and said he has a floppy voice box

(Laryngiamalacia), sent us home on a apnea monitor. They said it

would stiffen up and he would grow out of it in a year. 4 1/2 years

later, he still stridor. Only at night, or in the day hour if he is

really hot. It gets really bad if he gets the slightest cold or even

just a runny nose.

They did another Bronc Scope this summer and said his airway may be

collapsing because of week muscles in the chest.

Has anyone ever heard of this with Mito Disease???

Please let me know if you have!!!

Please contact mito-owner with any problems or questions.

[Guest guest]

Hello, we have air way problems but of a different degree, Hailee is 5 and

is starting to have to go on oxygen at night cause her sats drop in the low

80s and she makes a barking noise when she breathes, she is also having a

hard time with her blood gasses

>

>Reply-To: Mito

>To: Mito

>Subject: Are airway issues common???

>Date: Tue, 20 Jan 2004 12:29:15 -0000

>

_________________________________________________________________

There are now three new levels of MSN Hotmail Extra Storage! Learn more.

http://join.msn.com/?pgmarket=en-us&page=hotmail/es2&ST=1

My son who is 4 1/2, unspecific Mito disease has airway issues.

At age 6 weeks he was rushed to the P.I.C.U, with severe stridor.

They did a Broc scope and said he has a floppy voice box

(Laryngiamalacia), sent us home on a apnea monitor. They said it

would stiffen up and he would grow out of it in a year. 4 1/2 years

later, he still stridor. Only at night, or in the day hour if he is

really hot. It gets really bad if he gets the slightest cold or even

just a runny nose.

They did another Bronc Scope this summer and said his airway may be

collapsing because of week muscles in the chest.

Has anyone ever heard of this with Mito Disease???

Please let me know if you have!!!

Please contact mito-owner with any problems or questions.

[Guest guest]

Hello, we have air way problems but of a different degree, Hailee is 5 and

is starting to have to go on oxygen at night cause her sats drop in the low

80s and she makes a barking noise when she breathes, she is also having a

hard time with her blood gasses

>

>Reply-To: Mito

>To: Mito

>Subject: Are airway issues common???

>Date: Tue, 20 Jan 2004 12:29:15 -0000

>

_________________________________________________________________

There are now three new levels of MSN Hotmail Extra Storage! Learn more.

http://join.msn.com/?pgmarket=en-us&page=hotmail/es2&ST=1

My son who is 4 1/2, unspecific Mito disease has airway issues.

At age 6 weeks he was rushed to the P.I.C.U, with severe stridor.

They did a Broc scope and said he has a floppy voice box

(Laryngiamalacia), sent us home on a apnea monitor. They said it

would stiffen up and he would grow out of it in a year. 4 1/2 years

later, he still stridor. Only at night, or in the day hour if he is

really hot. It gets really bad if he gets the slightest cold or even

just a runny nose.

They did another Bronc Scope this summer and said his airway may be

collapsing because of week muscles in the chest.

Has anyone ever heard of this with Mito Disease???

Please let me know if you have!!!

Please contact mito-owner with any problems or questions.

[Guest guest]

I tried to email you earlier but it didn't go thru. Yes!!! My son has suffered laryngospasms and stridor hi entire life. We have almost lost him numerous times. He is 14 years old and has not gotten any better, in fact the weaker he gets the worse he is. His growth is severely stunted so maybe your little one will grow and the airway with it.

Good Luck

mom to Colby, COX IV, LCHAD, Hypothroidism, osteopenia, Possible Prader Willie syndrome, ACC and ADHD

Are airway issues common???

My son who is 4 1/2, unspecific Mito disease has airway issues.At age 6 weeks he was rushed to the P.I.C.U, with severe stridor. They did a Broc scope and said he has a floppy voice box(Laryngiamalacia), sent us home on a apnea monitor. They said it would stiffen up and he would grow out of it in a year. 4 1/2 years later, he still stridor. Only at night, or in the day hour if he is really hot. It gets really bad if he gets the slightest cold or even just a runny nose.They did another Bronc Scope this summer and said his airway may be collapsing because of week muscles in the chest.Has anyone ever heard of this with Mito Disease???Please let me know if you have!!!Please contact mito-owner with any problems or questions.