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RE: Matt in Seattle

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Matt, I feel the say way about my doctors, bless them all, but it is so draining going from one doctor to the next and the next each day of the month or so it seems. And, I'm sorry to read about both your medical procedures. I'll keep you in my prayers, Marge. belltown_mac wrote: I found out today that i have to have kidney surgery on the 9th of March to go with my cataracs on march 23- i am so tired of being in a doctors office, i feel i should bring mmy bed and live at my docs office- one nice thing will be my trip with my mom to cal in april- i just hope i will be able to go and dont have any major medical problems MATT

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  • 2 weeks later...
Guest guest

Hi Rose- to get to my moms u take a ferry for 35

minutes or u can drive around the backside for a

bridge but that take over 2 hours- My mom has a real

big house so anyone visiting Seattle would be most

welcome to come stay or visit- Matt

--- Rose mamadogrose@...> wrote:

---------------------------------

That's great, Matt. Boy, I hope that's the end of the

kidney stone problems for awhile. Now just the

cataract surgery, then vacation time! Do you have to

ride the ferry to get to your mom's, or is there a

bridge? I've only been to Seattle once, five years

ago. I went to Port Angeles with a friend who grew up

there. What a wonderful place! Mountains & water

just minutes apart. Here is a photo of me at Port

Angeles. I would love to live there.

Ramblin' Rose

Moderator

---------------------------------

Reply-To: Neurosarcoidosis

To: Neurosarcoidosis

Subject: matt in Seattle

Date: Mon, 13 Mar 2006 05:59:07 -0000

hi= had my surgery on thursday- still in a lot of pain

but doc said i did well- no problems

devoloped-Thy were able to smash the kidney stone and

said it should be all gone w/in a few

days- stayed at my moms house out on one of the

islands off Seattle untill tonite- may move

out there with her next summer-will just tke it easy

the next few days MATT

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Neurosarcoidosis Community

NS CHAT:- Has been cancelled for now.

Message Archives:-

http://groups.yahoo.com/group/Neurosarcoidosis/messages

Members Database:-

Listings of locations, phone numbers, and instant

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Hi Terri- My mom lives on Bainbridge Island- it is the

closest island to Seattle and is basicly a suburb of

Seattle-It really is pretty with the snow capped

mountans and all the water- Matt

--- mosaicgirl1 mosaicgirl1@...> wrote:

>

> Matt,

>

> So glad to hear you are doing well. Which island

> does your Mom live on?

> I have seen some footage of the islands around there

> and I think it is

> sooooo beautiful.

>

> Terri G.

>

> >

> > hi= had my surgery on thursday- still in a lot of

> pain but doc said i

> did well- no problems

> > devoloped-Thy were able to smash the kidney stone

> and said it should

> be all gone w/in a few

> > days- stayed at my moms house out on one of the

> islands off Seattle

> untill tonite- may move

> > out there with her next summer-will just tke it

> easy the next few days

> MATT

> >

>

>

>

>

>

>

>

__________________________________________________

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Guest guest

Hi Terri- My mom lives on Bainbridge Island- it is the

closest island to Seattle and is basicly a suburb of

Seattle-It really is pretty with the snow capped

mountans and all the water- Matt

--- mosaicgirl1 mosaicgirl1@...> wrote:

>

> Matt,

>

> So glad to hear you are doing well. Which island

> does your Mom live on?

> I have seen some footage of the islands around there

> and I think it is

> sooooo beautiful.

>

> Terri G.

>

> >

> > hi= had my surgery on thursday- still in a lot of

> pain but doc said i

> did well- no problems

> > devoloped-Thy were able to smash the kidney stone

> and said it should

> be all gone w/in a few

> > days- stayed at my moms house out on one of the

> islands off Seattle

> untill tonite- may move

> > out there with her next summer-will just tke it

> easy the next few days

> MATT

> >

>

>

>

>

>

>

>

__________________________________________________

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Thanks Darlene--- Matt

--- Darlene darlene@...> wrote:

> Great news, Matt! So glad things went well for

> you. Take care

> of yourself......

> Sending lots of hugs, prayers, and well wishes,

> Darlene

> NS Co-Owner/Moderator

>

> >

> >

> >

> >

> > hi= had my surgery on thursday- still in a lot of

> pain but doc said i did

> > well- no problems

> > MATT

>

>

__________________________________________________

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Thanks Darlene--- Matt

--- Darlene darlene@...> wrote:

> Great news, Matt! So glad things went well for

> you. Take care

> of yourself......

> Sending lots of hugs, prayers, and well wishes,

> Darlene

> NS Co-Owner/Moderator

>

> >

> >

> >

> >

> > hi= had my surgery on thursday- still in a lot of

> pain but doc said i did

> > well- no problems

> > MATT

>

>

__________________________________________________

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  • 1 month later...
Guest guest

Matt, they seem to include it in the differential diagnosis pretty often. Once House told them to start treatment with cyclosporine (isn't that Cytoxan?) while running other tests. No steroids. Maybe some episode the patient will actually have NS! Pity the poor thing. The patients always get a lot worse, to the brink of death or worse, before House comes up with the right diagnosis.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Matt in SeattleDate: Wed, 12 Apr 2006 05:10:00 -0000hi- just watched House on tv and they again talked about Sarc- its nice that they bring it up often as hopefully others will become more familiar with it. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

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  • 4 weeks later...
Guest guest

Thanks Clair- I willcheck my eye to see if i see any

changes MATT

--- clair morgan clamor1979@...> wrote:

> Hi Matt

> Does the pain intensify on moving the eye ?

> Please be aware of any changes in vision (close your

> left eye as the good eye will over compensate) in my

> experience with optic neuritis the colour is one of

> the first things I notice going and just because the

> doctors and scans cant see the nerve swelling doesnt

> mean its not.

> Clair

>

> Matt in Seattle

>

> Hi- i am still having a lot of pain in my right eye

> and was wondering if anyone else was

> having severe eye pain- i went back to he eye doc

> and they cant find a reason why so if

> anyone is having similar type problems i would

> appreciate any info you have - thanks Matt

>

>

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> NS CHAT:- Has been cancelled for now.

>

> Message Archives:-

>

http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant

> messengers.

>

http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

>

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Guest guest

Hi Rose- thats how my eye feels- like someone stabing

me i the eye- It tends to came eeryday sometimes for a

short time sometimes as long as an hour- it drives me

crazy when it is hurting then all of a sudden the

pain goes away i also wondered if i had a tumor but

they said i didnt- they just dont know what is causing

it MATT

--- Rose mamadogrose@...> wrote:

---------------------------------

Matt, I've had pain in my left eye since a bout of

trigeminal neuralgia (5th cranial nerve) several years

ago. It's a chronic ache that every few days worsens

to feeling like someone stabbing the back of my eye.

The first few months I had it, I went to 2 different

opthamologists because I was just sure I had a tumor

behind my eye. They both assured me, after thorough

exams, that I " didn't have a tumor " (everyone who saw

Arnold S. in Kindergarten Cop will know how to

pronounce that). They said it was residual nerve

damage. I don't know if this is any-thing like your

situation.

Ramblin' Rose

Moderator

---------------------------------

Reply-To: Neurosarcoidosis

To: Neurosarcoidosis

Subject: Matt in Seattle

Date: Mon, 15 May 2006 18:28:37 -0000

Hi- i am still having a lot of pain in my right eye

and was wondering if anyone else was

having severe eye pain- i went back to he eye doc and

they cant find a reason why so if

anyone is having similar type problems i would

appreciate any info you have - thanks Matt

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Neurosarcoidosis Community

NS CHAT:- Has been cancelled for now.

Message Archives:-

http://groups.yahoo.com/group/Neurosarcoidosis/messages

Members Database:-

Listings of locations, phone numbers, and instant

messengers.

http://groups.yahoo.com/group/Neurosarcoidosis/database

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Guest guest

Hi Rose- thats how my eye feels- like someone stabing

me i the eye- It tends to came eeryday sometimes for a

short time sometimes as long as an hour- it drives me

crazy when it is hurting then all of a sudden the

pain goes away i also wondered if i had a tumor but

they said i didnt- they just dont know what is causing

it MATT

--- Rose mamadogrose@...> wrote:

---------------------------------

Matt, I've had pain in my left eye since a bout of

trigeminal neuralgia (5th cranial nerve) several years

ago. It's a chronic ache that every few days worsens

to feeling like someone stabbing the back of my eye.

The first few months I had it, I went to 2 different

opthamologists because I was just sure I had a tumor

behind my eye. They both assured me, after thorough

exams, that I " didn't have a tumor " (everyone who saw

Arnold S. in Kindergarten Cop will know how to

pronounce that). They said it was residual nerve

damage. I don't know if this is any-thing like your

situation.

Ramblin' Rose

Moderator

---------------------------------

Reply-To: Neurosarcoidosis

To: Neurosarcoidosis

Subject: Matt in Seattle

Date: Mon, 15 May 2006 18:28:37 -0000

Hi- i am still having a lot of pain in my right eye

and was wondering if anyone else was

having severe eye pain- i went back to he eye doc and

they cant find a reason why so if

anyone is having similar type problems i would

appreciate any info you have - thanks Matt

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Neurosarcoidosis Community

NS CHAT:- Has been cancelled for now.

Message Archives:-

http://groups.yahoo.com/group/Neurosarcoidosis/messages

Members Database:-

Listings of locations, phone numbers, and instant

messengers.

http://groups.yahoo.com/group/Neurosarcoidosis/database

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Guest guest

Thanks for the info- I will look into this

MATT

--- Dugger csedugger@...> wrote:

> Hi, my mom suffers from the eye pain with her NS

> too. She has some eye

> drops that the Optometrist gave her. I think they

> are called Acular...they

> are supposed to contain an anti-inflammatory

> Toradol. They are the only

> thing that helps her. Hope this helps some.

>

> Dugger

> Have a blessed day!

>

> Matt in Seattle

>

>

> Hi- i am still having a lot of pain in my right

> eye and was wondering if

> anyone else was

> having severe eye pain- i went back to he eye doc

> and they cant find a

> reason why so if

> anyone is having similar type problems i would

> appreciate any info you

> have - thanks Matt

>

>

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> NS CHAT:- Has been cancelled for now.

>

> Message Archives:-

>

>

http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant

> messengers.

>

>

http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

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Guest guest

Thanks for the info- I will look into this

MATT

--- Dugger csedugger@...> wrote:

> Hi, my mom suffers from the eye pain with her NS

> too. She has some eye

> drops that the Optometrist gave her. I think they

> are called Acular...they

> are supposed to contain an anti-inflammatory

> Toradol. They are the only

> thing that helps her. Hope this helps some.

>

> Dugger

> Have a blessed day!

>

> Matt in Seattle

>

>

> Hi- i am still having a lot of pain in my right

> eye and was wondering if

> anyone else was

> having severe eye pain- i went back to he eye doc

> and they cant find a

> reason why so if

> anyone is having similar type problems i would

> appreciate any info you

> have - thanks Matt

>

>

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> NS CHAT:- Has been cancelled for now.

>

> Message Archives:-

>

>

http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant

> messengers.

>

>

http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

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Guest guest

Thanks for the info- I will look into this

MATT

--- Dugger csedugger@...> wrote:

> Hi, my mom suffers from the eye pain with her NS

> too. She has some eye

> drops that the Optometrist gave her. I think they

> are called Acular...they

> are supposed to contain an anti-inflammatory

> Toradol. They are the only

> thing that helps her. Hope this helps some.

>

> Dugger

> Have a blessed day!

>

> Matt in Seattle

>

>

> Hi- i am still having a lot of pain in my right

> eye and was wondering if

> anyone else was

> having severe eye pain- i went back to he eye doc

> and they cant find a

> reason why so if

> anyone is having similar type problems i would

> appreciate any info you

> have - thanks Matt

>

>

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> NS CHAT:- Has been cancelled for now.

>

> Message Archives:-

>

>

http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant

> messengers.

>

>

http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

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Guest guest

Matt,

I will be praying for you surgery to do the trick. Take care my friend.

Hugs,

Marla

Re: Matt in Seattle

>

>

> Matt,

>

> I have eye pain quite a bit. I had a bout with optic neuritis and now

> I have eye pain off and on. I am assuming it is nerve pain there is

> nothing else to do for it other than the meds I take for nerve pain.

> Some times I put a light amount of heat on my eye (bed buddy heated on

> low in microwave) and it is soothing.

>

> Sorry that you have this but glad your eye doc said he doesn't see

> anything.

> Just watch for decreasing vision in that eye in the event you are

> getting ready to have a bout of optic neuritis.

>

> Terri G.

>

> >

> > Hi- i am still having a lot of pain in my right

> eye and was wondering

> if anyone else was

> > having severe eye pain- i went back to he eye doc

> and they cant find a

> reason why so if

> > anyone is having similar type problems i would

> appreciate any info you

> have - thanks Matt

> >

>

>

>

>

>

>

>

>

>

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  • 2 weeks later...
Guest guest

Matt, you deserve a break. You have paid your dues.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: RE: matt in SeattleDate: Sat, 27 May 2006 20:46:28 -0700 (PDT)Hi Marla -thanks i feel that things are begining toget better for me MATT--- Marla Bramer wrote:> Matt I am so glad to hear that you have been pain> free for a few days that's> great! I'm glad you have someone to help you move> too. > Marla > > matt in Seattle> > > > Hi went to uroligist yesterday and found out i> have> > 2 kidney stones- they> > have given me some medication that they say should> help me pass them- > > if this doesnt work they will need to operate> again- I have been > > trying to stick to a diet and have been doing well> my first two> > weeks- i lost about 4 pounds- I have also been> moving things out to my> > moms- it is somewhat costly as it is 14 dollors> every time i take the > > ferry to her house- all for now i> > Seattle > > > > > > > > > > > > > >

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Guest guest

Matt, you deserve a break. You have paid your dues.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: RE: matt in SeattleDate: Sat, 27 May 2006 20:46:28 -0700 (PDT)Hi Marla -thanks i feel that things are begining toget better for me MATT--- Marla Bramer wrote:> Matt I am so glad to hear that you have been pain> free for a few days that's> great! I'm glad you have someone to help you move> too. > Marla > > matt in Seattle> > > > Hi went to uroligist yesterday and found out i> have> > 2 kidney stones- they> > have given me some medication that they say should> help me pass them- > > if this doesnt work they will need to operate> again- I have been > > trying to stick to a diet and have been doing well> my first two> > weeks- i lost about 4 pounds- I have also been> moving things out to my> > moms- it is somewhat costly as it is 14 dollors> every time i take the > > ferry to her house- all for now i> > Seattle > > > > > > > > > > > > > >

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Guest guest

Hi Rose- right now i am in to much pain again- went to

the doc and they uped my prednisone to see if thast

would help- having a lot o pain in my knees right now

but the pain seekms to moe on a daily bases- hopefully

the new dose of prednisone will make the difference,

will try to gpo to Vancouver on Sunday or monday

MATT

--- Rose mamadogrose@...> wrote:

---------------------------------

Oh, Matt, I hope you feel like going. It's so

beautiful. I suppose you've been a lot. I've only

been to Vancouver once, to a midwifery conference. I

went to Busch Gardens, took a ferry ride. It was in

May, but it was just like summer (except on the

ferry!) Hugs & good vibes coming to you.

Ramblin' Rose

Moderator

---------------------------------

Reply-To: Neurosarcoidosis

To: Neurosarcoidosis

Subject: RE: matt in Seattle

Date: Wed, 31 May 2006 14:59:39 -0700 (PDT)

thanks Connie-Today has been a rough day again- a lot

of pain so i am just staying in bed hoping it will go

away -i see the doc tomorrow, and am supposed to go

to Vancouver Canada this weekend so i will have to see

how i feel before we go- MATT

--- Connie Griffis conaugusta@...> wrote:

> Matt, I wish for you a beautiful sunset with perfect

> weather, a soft chair and hours of actually feeling

> what could be called " good " . Please take care, your

> in my prayers..Connie

>

> Rose mamadogrose@...> wrote:

> Matt, you deserve a break. You have paid your dues.

>

> Ramblin' Rose

> Moderator

>

>

> ---------------------------------

>

> Reply-To: Neurosarcoidosis

> To: Neurosarcoidosis

> Subject: RE: matt in Seattle

> Date: Sat, 27 May 2006 20:46:28 -0700 (PDT)

>

> Hi Marla -thanks i feel that things are begining to

> get better for me MATT

>

> --- Marla Bramer mebramer@...> wrote:

>

> > Matt I am so glad to hear that you have been pain

> > free for a few days that's

> > great! I'm glad you have someone to help you move

> > too.

> > Marla

> >

> > matt in Seattle

> > >

> > > Hi went to uroligist yesterday and found out i

> > have

> > > 2 kidney stones- they

> > > have given me some medication that they say

> should

> > help me pass them-

> > > if this doesnt work they will need to operate

> > again- I have been

> > > trying to stick to a diet and have been doing

> well

> > my first two

> > > weeks- i lost about 4 pounds- I have also been

> > moving things out to my

> > > moms- it is somewhat costly as it is 14 dollors

> > every time i take the

> > > ferry to her house- all for now i

> > > Seattle

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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Guest guest

Hi Rose- right now i am in to much pain again- went to

the doc and they uped my prednisone to see if thast

would help- having a lot o pain in my knees right now

but the pain seekms to moe on a daily bases- hopefully

the new dose of prednisone will make the difference,

will try to gpo to Vancouver on Sunday or monday

MATT

--- Rose mamadogrose@...> wrote:

---------------------------------

Oh, Matt, I hope you feel like going. It's so

beautiful. I suppose you've been a lot. I've only

been to Vancouver once, to a midwifery conference. I

went to Busch Gardens, took a ferry ride. It was in

May, but it was just like summer (except on the

ferry!) Hugs & good vibes coming to you.

Ramblin' Rose

Moderator

---------------------------------

Reply-To: Neurosarcoidosis

To: Neurosarcoidosis

Subject: RE: matt in Seattle

Date: Wed, 31 May 2006 14:59:39 -0700 (PDT)

thanks Connie-Today has been a rough day again- a lot

of pain so i am just staying in bed hoping it will go

away -i see the doc tomorrow, and am supposed to go

to Vancouver Canada this weekend so i will have to see

how i feel before we go- MATT

--- Connie Griffis conaugusta@...> wrote:

> Matt, I wish for you a beautiful sunset with perfect

> weather, a soft chair and hours of actually feeling

> what could be called " good " . Please take care, your

> in my prayers..Connie

>

> Rose mamadogrose@...> wrote:

> Matt, you deserve a break. You have paid your dues.

>

> Ramblin' Rose

> Moderator

>

>

> ---------------------------------

>

> Reply-To: Neurosarcoidosis

> To: Neurosarcoidosis

> Subject: RE: matt in Seattle

> Date: Sat, 27 May 2006 20:46:28 -0700 (PDT)

>

> Hi Marla -thanks i feel that things are begining to

> get better for me MATT

>

> --- Marla Bramer mebramer@...> wrote:

>

> > Matt I am so glad to hear that you have been pain

> > free for a few days that's

> > great! I'm glad you have someone to help you move

> > too.

> > Marla

> >

> > matt in Seattle

> > >

> > > Hi went to uroligist yesterday and found out i

> > have

> > > 2 kidney stones- they

> > > have given me some medication that they say

> should

> > help me pass them-

> > > if this doesnt work they will need to operate

> > again- I have been

> > > trying to stick to a diet and have been doing

> well

> > my first two

> > > weeks- i lost about 4 pounds- I have also been

> > moving things out to my

> > > moms- it is somewhat costly as it is 14 dollors

> > every time i take the

> > > ferry to her house- all for now i

> > > Seattle

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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Guest guest

Hi Rose- right now i am in to much pain again- went to

the doc and they uped my prednisone to see if thast

would help- having a lot o pain in my knees right now

but the pain seekms to moe on a daily bases- hopefully

the new dose of prednisone will make the difference,

will try to gpo to Vancouver on Sunday or monday

MATT

--- Rose mamadogrose@...> wrote:

---------------------------------

Oh, Matt, I hope you feel like going. It's so

beautiful. I suppose you've been a lot. I've only

been to Vancouver once, to a midwifery conference. I

went to Busch Gardens, took a ferry ride. It was in

May, but it was just like summer (except on the

ferry!) Hugs & good vibes coming to you.

Ramblin' Rose

Moderator

---------------------------------

Reply-To: Neurosarcoidosis

To: Neurosarcoidosis

Subject: RE: matt in Seattle

Date: Wed, 31 May 2006 14:59:39 -0700 (PDT)

thanks Connie-Today has been a rough day again- a lot

of pain so i am just staying in bed hoping it will go

away -i see the doc tomorrow, and am supposed to go

to Vancouver Canada this weekend so i will have to see

how i feel before we go- MATT

--- Connie Griffis conaugusta@...> wrote:

> Matt, I wish for you a beautiful sunset with perfect

> weather, a soft chair and hours of actually feeling

> what could be called " good " . Please take care, your

> in my prayers..Connie

>

> Rose mamadogrose@...> wrote:

> Matt, you deserve a break. You have paid your dues.

>

> Ramblin' Rose

> Moderator

>

>

> ---------------------------------

>

> Reply-To: Neurosarcoidosis

> To: Neurosarcoidosis

> Subject: RE: matt in Seattle

> Date: Sat, 27 May 2006 20:46:28 -0700 (PDT)

>

> Hi Marla -thanks i feel that things are begining to

> get better for me MATT

>

> --- Marla Bramer mebramer@...> wrote:

>

> > Matt I am so glad to hear that you have been pain

> > free for a few days that's

> > great! I'm glad you have someone to help you move

> > too.

> > Marla

> >

> > matt in Seattle

> > >

> > > Hi went to uroligist yesterday and found out i

> > have

> > > 2 kidney stones- they

> > > have given me some medication that they say

> should

> > help me pass them-

> > > if this doesnt work they will need to operate

> > again- I have been

> > > trying to stick to a diet and have been doing

> well

> > my first two

> > > weeks- i lost about 4 pounds- I have also been

> > moving things out to my

> > > moms- it is somewhat costly as it is 14 dollors

> > every time i take the

> > > ferry to her house- all for now i

> > > Seattle

> > >

> > >

> > >

> > >

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