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RE: Matt in Seattle

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Matt, they seem to include it in the differential diagnosis pretty often. Once House told them to start treatment with cyclosporine (isn't that Cytoxan?) while running other tests. No steroids. Maybe some episode the patient will actually have NS! Pity the poor thing. The patients always get a lot worse, to the brink of death or worse, before House comes up with the right diagnosis.

Ramblin' Rose

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Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Matt in SeattleDate: Wed, 12 Apr 2006 05:10:00 -0000hi- just watched House on tv and they again talked about Sarc- its nice that they bring it up often as hopefully others will become more familiar with it. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

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Matt, when is your surgery? Are you & your mom still planning your trip?

Ramblin' Rose

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Reply-To: Neurosarcoidosis To: <Neurosarcoidosis >Subject: RE: Re: Matt in SeattleDate: Wed, 17 May 2006 11:07:44 -0600Matt, I will be praying for you surgery to do the trick. Take care my friend. Hugs, Marla Re: Matt in Seattle> > > Matt,> > I have eye pain quite a bit. I had a bout with optic neuritis and now > I have eye pain off and on. I am assuming it is nerve pain there is > nothing else to do for it other than the meds I take for nerve pain.> Some times I put a light amount of heat on my eye (bed buddy heated on > low in microwave) and it is soothing.> > Sorry that you have this but glad your eye doc said he doesn't see > anything.> Just watch for decreasing vision in that eye in the event you are > getting ready to have a bout of optic neuritis.> > Terri G.> > >> > Hi- i am still having a lot of pain in my right> eye and was wondering> if anyone else was> > having severe eye pain- i went back to he eye doc> and they cant find a> reason why so if> > anyone is having similar type problems i would> appreciate any info you> have - thanks Matt> >> > > > > > > > >

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Matt, when is your surgery? Are you & your mom still planning your trip?

Ramblin' Rose

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Reply-To: Neurosarcoidosis To: <Neurosarcoidosis >Subject: RE: Re: Matt in SeattleDate: Wed, 17 May 2006 11:07:44 -0600Matt, I will be praying for you surgery to do the trick. Take care my friend. Hugs, Marla Re: Matt in Seattle> > > Matt,> > I have eye pain quite a bit. I had a bout with optic neuritis and now > I have eye pain off and on. I am assuming it is nerve pain there is > nothing else to do for it other than the meds I take for nerve pain.> Some times I put a light amount of heat on my eye (bed buddy heated on > low in microwave) and it is soothing.> > Sorry that you have this but glad your eye doc said he doesn't see > anything.> Just watch for decreasing vision in that eye in the event you are > getting ready to have a bout of optic neuritis.> > Terri G.> > >> > Hi- i am still having a lot of pain in my right> eye and was wondering> if anyone else was> > having severe eye pain- i went back to he eye doc> and they cant find a> reason why so if> > anyone is having similar type problems i would> appreciate any info you> have - thanks Matt> >> > > > > > > > >

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