Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Lynne, I'd have to say that the muscle issues are usually the same, although, at times, they've seemed to get progressively worse (although at a steady even pace) b/c he also has had very serious problems with his appetite and lack of weight gain. That seems to be sporadic - and is very scary as he lost weight this year and almost had to be on a g-tube. He's had sensory integration issues as well, but most of those have resolved except those related to feeding. He really doesn't seem to have much interest in eating and that changes over time. But, yes, the muscle issues seem to remain fairly constant. Annr R Quote Link to comment Share on other sites More sharing options...
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