Re: Anybody walk very late?

January 20, 2004

When he falls does he put his arms out to attempt to break the fall? If not, this is an issue that can be addressed by an ot. My kids had the same problem. Matt didnt walk until about 17 months and was always falling, but the ot really helped. Jill, Matts mom, scad

January 20, 2004

Lori,

Lucas is suspected mito and started walking when he was 4. I never thought I would see him walk but I learned how technical things can be. Right now Lucas who will be 8 in March is working on going up and down stairs with assistance. His bedroom is on the second floor and he is currently 55 to 56 lbs and about 49 inches tall. We had a few setbacks including a buckle fracture in one of the bones in his leg (tibia) about 3 months after learning to walk. It was so neat counting the steps. Good luck!

Loriann

January 20, 2004

Lori,

Lucas is suspected mito and started walking when he was 4. I never thought I would see him walk but I learned how technical things can be. Right now Lucas who will be 8 in March is working on going up and down stairs with assistance. His bedroom is on the second floor and he is currently 55 to 56 lbs and about 49 inches tall. We had a few setbacks including a buckle fracture in one of the bones in his leg (tibia) about 3 months after learning to walk. It was so neat counting the steps. Good luck!

Loriann

January 20, 2004

Hi Lori. What great news! It sounds like will be on the move

soon! We had a similar experience with Abbey. We had little hope that

Abbey would walk without braces or a walker. She had severe low-tone.

She started crawling at 14 mo; pulling up around 18 mo; and then

nothing until her 3rd birthday when she took 5 independent steps. She

started taking more and more and then she was off. (We started swim

therapy this past summer). She still wobbles a lot but can usually

catch her balance before falling. Walking has really opened the world

up to her. She loves to go to the grocery store and walk around,

looking at what she wants to look at! Let us know how the hippotherapy

goes!

, mom to Abbey (3 w/ Mito Complex I)

> Hi all, My mito baby is 4 1/2 and severely developmentally

impaired--otherwise, fairly healthy. He has been weight-bearing and

could stand for very brief periods with AFO's and knee immobilizers.

But, I had pretty much given up on walking. The PT said she was

hopeful that he would one day be able to make transitions in and out

of wheelchair or maybe take a few steps. Well, the last two days, he

has shocked everyone by pulling up to stand on a routine basis!!! Now,

I find myself getting my hopes up that even though it is late, his

development is following the normal pattern---he started pushing up to

sit about a year ago, and started crawling all over the place (not

just commando) about 6 or 7 months ago.

>

> Anybody have any experience like this? Also, has been on a

plateau now for some time. And, the only difference recently in his

treatment is we started hippotherapy! Two Saturdays in a row of

riding a horse and he starts pulling to stand. Is it a coincidence?

>

> Thanks! Lori, mom to

January 20, 2004

Lori,

never really had any interest in crawling and didn't

cruise like " normal children " . I had given up hope too, by the time

she was 1 1/2. We got her ankle supports (afos??) and she finally

took a couple of steps by her 2nd birthday. She still couldn't get

from a sitting to a standing position on her own for months. Now she

is going to be four in march, and she walks independently, climbs

the stairs with help (up and down). These children just go at their

own pace. Never give up! What great accopmlishments he has made

already!

Dawn

January 20, 2004

Lori,

never really had any interest in crawling and didn't

cruise like " normal children " . I had given up hope too, by the time

she was 1 1/2. We got her ankle supports (afos??) and she finally

took a couple of steps by her 2nd birthday. She still couldn't get

from a sitting to a standing position on her own for months. Now she

is going to be four in march, and she walks independently, climbs

the stairs with help (up and down). These children just go at their

own pace. Never give up! What great accopmlishments he has made

already!

Dawn

January 20, 2004

Lori,

never really had any interest in crawling and didn't

cruise like " normal children " . I had given up hope too, by the time

she was 1 1/2. We got her ankle supports (afos??) and she finally

took a couple of steps by her 2nd birthday. She still couldn't get

from a sitting to a standing position on her own for months. Now she

is going to be four in march, and she walks independently, climbs

the stairs with help (up and down). These children just go at their

own pace. Never give up! What great accopmlishments he has made

already!

Dawn

January 20, 2004

Hello Lori,

Wow, this is exciting news....I don't blame you for feeling

encouraged and hopeful. (I've always called it " guarded

encouragement " ). Anyway, my 6.5yr. old daughter did not walk

until age 4 and that was with mafo's and a pediatric walker. She

continues to have very low tone but has been an independent walker

for about 1.5yrs. now. Her endurance has made a remarkable

improvement since she started carnitor last August--however she still

struggles with poor balance and cannot go down steps and tires easily

going up steps. We still us her pediatric stroller for very long

ventures. Its interesting to hear how s progress conincided

with horse riding. We would love to do this with Jess but she is

frightened of horses.

Hope continues to reach milestones at his own pace and keeps

surprising you.

Randee Bates mom to age 6.5yrs (clinically diagnosed with BRR

syndrome)carnitine def., hypontonia, PDD, mild MR, avid fan of

Cinderella, Belle and Snow White

> Hi all, My mito baby is 4 1/2 and severely developmentally impaired-

-otherwise, fairly healthy. He has been weight-bearing and could

stand for very brief periods with AFO's and knee immobilizers. But,

I had pretty much given up on walking. The PT said she was hopeful

that he would one day be able to make transitions in and out of

wheelchair or maybe take a few steps. Well, the last two days, he

has shocked everyone by pulling up to stand on a routine basis!!!

Now, I find myself getting my hopes up that even though it is late,

his development is following the normal pattern---he started pushing

up to sit about a year ago, and started crawling all over the place

(not just commando) about 6 or 7 months ago.

>

> Anybody have any experience like this? Also, has been on a

plateau now for some time. And, the only difference recently in his

treatment is we started hippotherapy! Two Saturdays in a row of

riding a horse and he starts pulling to stand. Is it a coincidence?

>

> Thanks! Lori, mom to

January 20, 2004

Loriann and everybody: Thanks so much for the info and encouragement! Good to hear others' experiences. I definitely have renewed hope and will work with as much as possible. I'm encouraged by the fact that something in his brain is changing and guiding him to the next step in the developmental ladder. Gosh, if he continues to improve, he just might get there even if it's 8 or 9 years of age!