RE: Help with Behavior and Communication

[Guest guest]

You may want to consider an evaluation for autism/Asperger's. Those

characteristics fit the diagnosis. My son has Asperger's and was recently

been evaluated at the Mayo for mito disease. No official dx yet. Mom to

(5)

>

>Reply-To: Mito

>To: Mito

>Subject: Help with Behavior and Communication

>Date: Mon, 12 Jan 2004 12:40:04 -0000

>

>Hi all! I am new to this group, but desperately need some advice. My

>son (almost 7) was diagnosed almost 2 years ago with a complex 1

>defect. He is my oldest of 4 children. He is completely non-verbal,

>ambulatory with a clumbsy gate, poor fine motor skills (ie - uses a

>raking motion with his fingers to pick things up), tube fed due to

>aspiration and failure to thrive and unexplained vomitting (daily).

>

>He is very frustrated because he can't communicate, but makes no

>attempt to use PECS, signs, etc. We think he can't organize and

>motor plan enough to do so without hand-over-hand support. He does

>seem to comprehend most of what we say.

>

>He spends his time at home putting his siblings in a choke-hold,

>pulling his sisters hair, wrestling them, etc. He also has gotten

>incredibly obsessed with lining up or piling everything in our house.

>If I leave the pantry open he will empty the shelves and I'll find a

>mound somewhere. He constantly steels the pillows off every bed in

>the house and puts them on his brothers bunk (then goes totally nuts

>when we try to reclaim them at bedtime). He lines the shoes up at

>the back door, our glasses at dinner, the kitchen chairs and stools.

>I can't take it anymore. I want a peaceful house that doesn't look

>like it has been ransacked. I love my son soooo much, but find

>myself feeling very angry at him for being so disruptive. I hate how

>I am feeling. How can I help him?

>

>I am sorry this is so long, but as you can see, I need help! Any

>advice would be greatly appreciated.

>

>Thank you all for listening!

>

>

>

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[Guest guest]

I know I am late in the discussion here so I am sure someone has mentioned the link to mito and autistic spec disorders. I dont' know if you have a firm mito diagnosis yet but I wondered if you had him tested for fragile X syndrome yet or maybe even Sotos...I know both my boys were tdsted for these b/c fo thier beharioral issues.

deb...mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 4 with Aspergers Syndrome and Bliss age 2 with very very mild Cerebral Palsy.www.HeartLiftersGallery.comhttp://health.groups.yahoo.com/group/NurturingHeavensKids/

[Guest guest]

I know I am late in the discussion here so I am sure someone has mentioned the link to mito and autistic spec disorders. I dont' know if you have a firm mito diagnosis yet but I wondered if you had him tested for fragile X syndrome yet or maybe even Sotos...I know both my boys were tdsted for these b/c fo thier beharioral issues.

deb...mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 4 with Aspergers Syndrome and Bliss age 2 with very very mild Cerebral Palsy.www.HeartLiftersGallery.comhttp://health.groups.yahoo.com/group/NurturingHeavensKids/