Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 Hi , I have recently been searching for alternative treatments for OCD since my thirteen y/o son w/Aspergers has suffered with it since the age of nine and been on Zoloft since then. I have found some interesting information on a B vitamin called Inositol. If you plug it in to a search engine (espcially with OCD) you will find some information. There is a book about OCD by Fred Penzel, Ph.D that first brought this to my attention. He also has some articles on the internet. One in particular seems to have dosing info that you could take to your doctor. It's called Inositol and Trichotillomania (that's where people can't stop pulling their hair out). Anyway, it has a lot of good general info on OCD and testing done with Inositol. I haven't tried it yet since I've just recently discovered this info. Good Luck! I wish I'd had options like this when my son was first diagnosed. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 Dear Laurie, Is your son on the Houston enzymes? My daughter, now 13, had a terrible time this past summer with habitually gagging herself and picking at her gum and was actually put on Luvox to see if it would help. Although it seemed to take the edge of the obsession, she actually got better the longer she was on the enzymes and we were able to successfully wean her off Luvox without the gagging or gum picking returning. [ ] --OCD > Hi , > > I have recently been searching for alternative treatments for OCD > since my thirteen y/o son w/Aspergers has suffered with it since the > age of nine and been on Zoloft since then. I have found some > interesting information on a B vitamin called Inositol. If you plug > it in to a search engine (espcially with OCD) you will find some > information. There is a book about OCD by Fred Penzel, Ph.D that > first brought this to my attention. He also has some articles on the > internet. One in particular seems to have dosing info that you could > take to your doctor. It's called Inositol and Trichotillomania > (that's where people can't stop pulling their hair out). Anyway, it > has a lot of good general info on OCD and testing done with > Inositol. I haven't tried it yet since I've just recently discovered > this info. Good Luck! I wish I'd had options like this when my son > was first diagnosed. > > Laurie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 , Yes, my son has been on enzymes (Houston) for nearly 3 months now and I have reduced his Zoloft gradually over the last month from 250 mg to 50 mg daily. I'm holding my breath waiting for the OCD to return. We stopped the Zoloft way back when he had been on it for a year just to see if his symptoms were still there and they came back as bad as before meds. It's been 5 years now and I am nervous. I did start adding TMG at the same time I started reducing his Zoloft. I was searching for alternatives so that I have a back-up plan. It'll be interesting to see how this all pans out. Laurie > Dear Laurie, > Is your son on the Houston enzymes? My daughter, now 13, had a terrible > time this past summer with habitually gagging herself and picking at her gum > and was actually put on Luvox to see if it would help. Although it seemed to > take the edge of the obsession, she actually got better the longer she was > on the enzymes and we were able to successfully wean her off Luvox without > the gagging or gum picking returning. > > [ ] --OCD > > > > Hi , > > > > I have recently been searching for alternative treatments for OCD > > since my thirteen y/o son w/Aspergers has suffered with it since the > > age of nine and been on Zoloft since then. I have found some > > interesting information on a B vitamin called Inositol. If you plug > > it in to a search engine (espcially with OCD) you will find some > > information. There is a book about OCD by Fred Penzel, Ph.D that > > first brought this to my attention. He also has some articles on the > > internet. One in particular seems to have dosing info that you could > > take to your doctor. It's called Inositol and Trichotillomania > > (that's where people can't stop pulling their hair out). Anyway, it > > has a lot of good general info on OCD and testing done with > > Inositol. I haven't tried it yet since I've just recently discovered > > this info. Good Luck! I wish I'd had options like this when my son > > was first diagnosed. > > > > Laurie > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Have you tried GABA? Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Hi Laurie, Thanks for the info. I have known about inositol for a while but my son has a terrible reaction to it. It figures..........doesn't it . I guess our kids sometimes react to what it is that would help them the most. He also reacts to choline. These are so important for brain function. I will see a psychiatrist this week and relunctantly try a med . He is in great distress right now with his OCDs . I feel they have swallowed our family whole. How is Zoloft working for your son? I am seeing an environmental Doc too ( she is an MD but she uses alternative methods) but for now my son needs something to help him with this. He has missed 2 weeks of school because he simply cannot sit and needs to touch and touch again everything in sight. If his routine is interrupted he goes NUTS. He is so anxious now . He will get so upset that he will begin to harm himself. My son is high functioning............. I can not for the life of me figure out what could be happening to him. He has resorted to peeing his pants when he feels very angry. He is ten ..............he was toilet trained at 3 .......he has never ever ever done this . He does not have a bladder infection ...........he is not doing this by accident. He is doing it when he is angry and feels threatened somehow. It is his way of gaining control over the situation. He tells me he wants the OCDs to go away and continuously asks me for a pill that will calm him down. I have tried Passion flower, valerian and even Kava but they seem to make matters worse ............he continues with his OCDs but he is tired so then he gets mad because he is exhausted. The OCDs take a great deal of energy to perform. The Doc has requisitioned a number of blood tests to do. His hair analysis looks really good except for a couple of minerals that are out of range. One being very low lithium. So the Doc gave me a lithium supplement. He got worse. He is on stuff to help with Candida now. We will be doing food testing ( EPD) with him. His situation is clearly out of control but one would have to be a stone not to be saddened and frazzled by his behavior . I am sorry to go on ............. I guess that I am at a very low point myself. I think I will most likely end up on some med myself. Thank you for writing . . :21 20/04/2002 +0000, you wrote: >Hi , > >I have recently been searching for alternative treatments for OCD >since my thirteen y/o son w/Aspergers has suffered with it since the >age of nine and been on Zoloft since then. I have found some >interesting information on a B vitamin called Inositol. If you plug >it in to a search engine (espcially with OCD) you will find some >information. There is a book about OCD by Fred Penzel, Ph.D that >first brought this to my attention. He also has some articles on the >internet. One in particular seems to have dosing info that you could >take to your doctor. It's called Inositol and Trichotillomania >(that's where people can't stop pulling their hair out). Anyway, it >has a lot of good general info on OCD and testing done with >Inositol. I haven't tried it yet since I've just recently discovered >this info. Good Luck! I wish I'd had options like this when my son >was first diagnosed. > >Laurie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 , I really feel for you (and your son). It's tough to see your child suffer so much. In answer to your question: Yes, the Zoloft did help a great deal. The doctor told me it could be weeks before we saw results, but I could tell a difference the very first day. One thing that told me something was happening was that the first night on meds he told me about these very vivid dreams he'd had. I think I read that as a possible side-effect. He had never mentioned dreams before so it seemed strange. My son still remembers the day his OCD started. Being HFA or PDD/NOS or Aspergers (depending on the doctor), he'd always had obsessions and compulsions, but this was definitely different. He remembers when he was nine walking down the hallway at school and feeling he had to touch the walls a certain number of times. Things had to be symmetrical and odd-numbered. I didn't get that at first, but a number in the middle and then one on each side for symmetry will always end up an odd number of touches. Anyway, the Zoloft helped and we never experienced bad side effects except for intense tiredness in the late afternoon (so we changed to taking it at night instead of a.m.). I'm grateful it helped. My concern now is that it doesn't feel like he should be on this his whole life. Maybe he will--then so be it, but right now it looks promising that he won't. Good luck to you. Let us know how the meds work if you do use them. I think OCD kicking in around 9 or 10 is not that unusual. I was surprised since I'd never heard of it but my doctor said it happens in these kids. Laurie > >Hi , > > > >I have recently been searching for alternative treatments for OCD > >since my thirteen y/o son w/Aspergers has suffered with it since the > >age of nine and been on Zoloft since then. I have found some > >interesting information on a B vitamin called Inositol. If you plug > >it in to a search engine (espcially with OCD) you will find some > >information. There is a book about OCD by Fred Penzel, Ph.D that > >first brought this to my attention. He also has some articles on the > >internet. One in particular seems to have dosing info that you could > >take to your doctor. It's called Inositol and Trichotillomania > >(that's where people can't stop pulling their hair out). Anyway, it > >has a lot of good general info on OCD and testing done with > >Inositol. I haven't tried it yet since I've just recently discovered > >this info. Good Luck! I wish I'd had options like this when my son > >was first diagnosed. > > > >Laurie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Hello Ann yes I have tried that too. He has some odd reaction to GABA. Black circles under the eyes and aggression. The first day I though it was something he ate. The second day I again found it odd..........this stuff is supposed to mellow people out. The third day it became apparent it was the Gaba he was reacting to. Thank you for your suggestion, . At 12:45 21/04/2002 -0400, you wrote: >Have you tried GABA? > >Ann > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Laurie, My friend has a 2 1/2 year old autistic child and her doctor just put him on GABA last week. It is to calm the child and help with any anxiety. It is a nonessential amino acid that is a neurotransmitter. GABA is the brain's natural calming agent. I will try to find out in a week or two if it helps the child. Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Ann, I have not tried GABA with my son. Have you? What exactly is it and what is it supposed to do? Laurie > Have you tried GABA? > > Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Let me share my expereience with GABA. I tried it with my 16 yr old son to help him sleep at night. He was up all hours of the night and it was getting maddening. This is what happened. First when we started the GABA, he began falling asleep nicely. Then after a while, every night when i gave it to him he fell asleep earlier and earlier. Finally after that stage he began being up again crazy late. When i took him off he began to normalize again, until he was up late again. So we'd start the GABA again and go around in this circle again and again. I couldnt figure it out until someone enlightened me as to what was happening. The GABA was accumulating (sp) in his body. Each night we gave it to him it was building up more and more. That is why he was falling asleep earlier and earlier. Then as I kept giving it to him, it got to a level where it was making him hyper. When i took him off it slowly left his body, and that is when we got the normal sleep again, until it was ALL gone from his body, and that is when he got hyper again. What we finally did, is I give him GABA until I see he is falling asleep pretty early. At that point I stop the GABA and dont give him more GABA until I see he needs again. This arrangement so far has worked out nicely. I thought i'd share this with everyone so anyone who is thinking of trying GABA will look out for this possible acumulative effect and consider using GABA on a fluctuating basis. Rivky [ ] Re: --OCD > > Ann, > > I have not tried GABA with my son. Have you? What exactly is it and > what is it supposed to do? > > Laurie > > > > > Have you tried GABA? > > > > Ann > > > > Quote Link to comment Share on other sites More sharing options...
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