Adding ZP & other questions

[Guest guest]

I enjoy reading the posts here (though can't keep up) but I feel like

I need the " Dummies " version to understand everything! (Sally has

helped me alot & got me to this point!) We started Peptizide over a

month ago. DD is 5, not gfcf, AS. I was adding it to liquids, which

she took reluctantly. We saw some reactive behaviors (crawling under

the table, sitting naked in her closet), but nothing so drastically

different and no huge changes after 3 weeks. I've started putting the

Pep. in chocolate that I make in a candy mold shaped like a heart. She

will take that in a heartbeat. I was giving it to her only w/ foods I

knew had gluten or casein in them. Then I started adding them w/ more

foods (though I still gave her some juice & some fruit without them).

We have seen more aggressive behavior w/ enzymes & also since adding

more, we are getting more of the " screeching/screaming " when

frustrated. She can't get a dress on a doll & instead of words will

just screech, say, " Mama, I can't...(screech) " If I try to answer her

w/ words, I get the screech. Not always, but frequently.

From what I've read, it sounds like adding the ZP sometimes helps w/

this type reaction? Also, from what I've read here, there is nothing

to help w/ phenols, right? On the Houston site it seemed like I read

something about the ZP helping w/ Phenols?? I'm confused!

Do you give the enzymes ONLY with foods w/ gluten/casein? Do you give

them w/ ALL foods?

I am totally lost when it comes to metals, yeast, etc. We don't have a

dr. who is helping us w/ any of this yet. We got a dx at a center that

works w/ all kinds of special needs kids. They just have a rotation of

dr's who normally work elsewhere & none seemed too terribly versed in

AS. Just enough to give a dx & list off the meds we might try in the

future. I haven't made a follow-up appt. What kind of dr. did you find

to help w/ these issues? I read about taking samples & sending them to

these places for testing, but our dr. is much like 's PDD-NOS

description---- " Pediatrician Didn't Decide-Neurologically Odd Son. "

Our pediatrician still really thinks she's just strong willed. Well,

she is, but I didn't need a dx for that! There's so much more.

Thanks!

Lori

[Guest guest]

--- In @y..., " benaphlag " <phlag@s...> wrote, in part:

> I am totally lost when it comes to metals, yeast, etc. We don't have

a

> dr. who is helping us w/ any of this yet. We got a dx at a center

that

> works w/ all kinds of special needs kids. They just have a rotation

of

> dr's who normally work elsewhere & none seemed too terribly versed

in

> AS. Just enough to give a dx & list off the meds we might try in the

> future. I haven't made a follow-up appt. What kind of dr. did you

find

> to help w/ these issues? I read about taking samples & sending them

to

> these places for testing, but our dr. is much like 's PDD-NOS

> description---- " Pediatrician Didn't Decide-Neurologically Odd Son. "

> Our pediatrician still really thinks she's just strong willed. Well,

> she is, but I didn't need a dx for that! There's so much more.

>

> Thanks!

>

> Lori

Hello Lori,

Well, your situation-- both with not knowing this stuff, and

with not finding much " help " from your doctors -- sounds very

usual. Luckily, however, there are lots of other folks who

have been working on this stuff and are willing to share.

My impressions about this come from reading the autism treatment

list: My impression is that there are darned few doctors who

know very much about chelation. There is also a lot of

controversy about how to do chelation. It can be pretty confusing

but I think it is worth putting your mind to for a while.

Expect it to take a bit of time to understand -- as you

said about enzymes.

As for sending samples to places, IF you decide you want to

do this, here is some advice on how to do so, with or without

a cooperative doctor:

/files/HOW_TO_hair_test

/files/Counting%2BRules

Some additional URLs follow my signature-- this text should

be getting boring by now for some readers -- I just copy

the same text with URLs and description about the list.

oh-- I liked the PDD-NOS definition. I wonder if there are

similar definitions for other dx's. I'm on a list about mercury

poisoning where people have been making up answers for this

question:

Q: how many mercury toxic people does it take to screw in a light

bulb?

A couple of answers I liked are:

A: I don't remember

A: a mercury toxic person couldn't handle something this complicated.

best wishes,

Moria

[i am a mercury toxic adult, chelating mySELF; I have no kids]

================

The autism treatment list is an email list for parents of children with

ASD and related conditions. It is about the connections between

mercury poisoning, autism, and vaccines. Dozens of parents on the

list are working to detoxify their children from mercury posioning,

most with great results. How to do mercury detoxification

( " chelation " )

is discussed on the list in great detail. The list has over 1000

members,

and currently runs between 1000 and 2000 messages a month. The

material at the following URLs can be read without " joining " the

group.

This is a great resource for anyone interested in mercury poisoning

and detoxification.

This is the main page for the autism treatment list. From here, click

on " messages " to get to a list of the latest messages. You can also

" join " the list from this page.

/files/Mercury-Autism%20FA

Q

Frequently Asked Questions file. Covers some basics about autism

and mercury poisoning, determining whether a child (or adult) is

toxic,

and the process of mercury detoxification.

/files/LOVE_LETTERS

This file is a list of links. Each of the links goes to a post on the

list

which includes a " progress report " . Many of these posts are very

inspiring.

Together, these posts are quite a large collection of material on the

results

of chelation.

/files/ANDY_INDEX

An index to some informative posts written by Andy Cutler. Andy is

something like a local expert on the list. The information indexed

includes

mercury poisoning, determining whether a child (or adult) is toxic,

and

the process of mercury detoxification.

[Guest guest]

> I enjoy reading the posts here (though can't keep up) but I feel

like

> I need the " Dummies " version to understand everything!

The highly technical stuff goes way over my head also LOL

> I was giving it to her only w/ foods

I

> knew had gluten or casein in them. Then I started adding them w/

more

> foods (though I still gave her some juice & some fruit without

them).

> We have seen more aggressive behavior w/ enzymes & also since adding

> more, we are getting more of the " screeching/screaming " when

> frustrated. She can't get a dress on a doll & instead of words will

> just screech, say, " Mama, I can't...(screech) " If I try to answer

her

> w/ words, I get the screech. Not always, but frequently.

My son is more highly reactive to some foods more than gluten or

casein, so it is possible that this is also the case for your

daughter. That because you are giving enzymes with more foods, they

are " catching " other foods to which she also has a reaction.

>

> From what I've read, it sounds like adding the ZP sometimes helps w/

> this type reaction? Also, from what I've read here, there is nothing

> to help w/ phenols, right? On the Houston site it seemed like I read

> something about the ZP helping w/ Phenols?? I'm confused!

ZP helps some kids with some phenols, but not all kids with all

phenols. So you can try it with your child and see if it helps her.

Also, the ZP will help with carbohydrates and fats, while the

Peptizyde is for mostly proteins, so adding the ZP will help with more

foods, which may be your child's problem.

>

> Do you give the enzymes ONLY with foods w/ gluten/casein? Do you

give

> them w/ ALL foods?

I give Pep and ZP with ALL foods, because my son basically does not

tolerate ANY foods.

>

> I am totally lost when it comes to metals, yeast, etc. We don't have

a

> dr. who is helping us w/ any of this yet. We got a dx at a center

that

> works w/ all kinds of special needs kids. They just have a rotation

of

> dr's who normally work elsewhere & none seemed too terribly versed

in

> AS. Just enough to give a dx & list off the meds we might try in the

> future. I haven't made a follow-up appt. What kind of dr. did you

find

> to help w/ these issues?

Just me, Dr. Mom. Here is my son's story, including all the

interventions I have done which have NOT required any doctor

intervention. Not the most recommended way to do it, but I do what I

can.

http://home.pacbell.net/cscomp/myson.htm

Dana