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Holly 24 (mother of Cheyenne, 4 1/2 years w/o CF and Kennedy, 8 months w/

CF)

Since you guys are talking about eating I have a very NOT important

question. Since CFers need lots of calories and fat, do you as parents find

yourself eating and gaining weight as well? It seems like all of that food

in the house would be so tempting........

>

>Reply-To: cfparents

>To: cfparents

>Subject: Re: Todays Oprah showHOLLY

>Date: Fri, 18 Oct 2002 03:03:10 -0000

>

>The line in your email " I did most of the eating.... " was great!

>That is so true. It is so easy to " eat " for comfort. I have to

>fight not to do this myself. I find jelly bellies especially

>satisfying. Thanks for the laugh.

>

>Take care,

>Gale

>

>

> > Let her watch cartoons and eat popcorn if thats what it takes to

>keep your

> > baby out of the Hospital. I am so sorry that you have no one

>around to help

> > you. That SUCKS!!!

> >

> > When my kids were little and stuck in because another child was

>sick we would

> > eat, take baths and eat. I did most of the eating....

> >

> > Hang in there.........

> >

> >

> >

> > Rosemary in New York with 3 children with CF - they are 12, 9.8,

>5.9...I

> > coined the phrase " BREATHE DAMMIT " ; and now we have a dog named -

>are you

> > ready for this - TOBI after their medication!

> >

> >

> >

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Holly,

YES YES YES. I've gained about 10kg since Eilish was born. Those Mars

Bars are to nice to resist.

Re: Todays Oprah showHOLLY

>Date: Fri, 18 Oct 2002 03:03:10 -0000

>

>The line in your email " I did most of the eating.... " was great!

>That is so true. It is so easy to " eat " for comfort. I have to

>fight not to do this myself. I find jelly bellies especially

>satisfying. Thanks for the laugh.

>

>Take care,

>Gale

>

>

> > Let her watch cartoons and eat popcorn if thats what it takes to

>keep your

> > baby out of the Hospital. I am so sorry that you have no one

>around to help

> > you. That SUCKS!!!

> >

> > When my kids were little and stuck in because another child was

>sick we would

> > eat, take baths and eat. I did most of the eating....

> >

> > Hang in there.........

> >

> >

> >

> > Rosemary in New York with 3 children with CF - they are 12, 9.8,

>5.9...I

> > coined the phrase " BREATHE DAMMIT " ; and now we have a dog named -

>are you

> > ready for this - TOBI after their medication!

> >

> >

> >

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Not yet, because Abby is still on formula (Yuk!). However, I no

longer feel guilty about using too much salt and I have started to

collect high callorie recipes. I found some of the best recipes on

sites for people living with Aids. Aids patients have problems

with " wasting " and must also eat high calorie diets. One of the best

pieces of advice that I read, was to go for the high calorie, high

protein foods, i.e. peanut butter, cheese, quiche, you get the

picture.

It will be hard to make all of the high calorie foods and still stay

in good enough shape to participate in the excercise that is so

important for our children wcf.

When I get stressed, I eat. Some days are very " filling " .

Gale

> > > Let her watch cartoons and eat popcorn if thats what it takes to

> >keep your

> > > baby out of the Hospital. I am so sorry that you have no one

> >around to help

> > > you. That SUCKS!!!

> > >

> > > When my kids were little and stuck in because another child was

> >sick we would

> > > eat, take baths and eat. I did most of the eating....

> > >

> > > Hang in there.........

> > >

> > >

> > >

> > > Rosemary in New York with 3 children with CF - they are 12, 9.8,

> >5.9...I

> > > coined the phrase " BREATHE DAMMIT " ; and now we have a dog

named -

> >are you

> > > ready for this - TOBI after their medication!

> > >

> > >

> > >

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Share on other sites

I think this is especially hard when the kids are younger and you are still

trying to figure out what they will eat. I'll make Mycah a big bowl of high-fat

pudding and then she won't like it. Well, I can't just let it go to waste,

right?

Lori in Florida

Re: Todays Oprah showHOLLY

>Date: Fri, 18 Oct 2002 03:03:10 -0000

>

>The line in your email " I did most of the eating.... " was great!

>That is so true. It is so easy to " eat " for comfort. I have to

>fight not to do this myself. I find jelly bellies especially

>satisfying. Thanks for the laugh.

>

>Take care,

>Gale

>

>

> > Let her watch cartoons and eat popcorn if thats what it takes to

>keep your

> > baby out of the Hospital. I am so sorry that you have no one

>around to help

> > you. That SUCKS!!!

> >

> > When my kids were little and stuck in because another child was

>sick we would

> > eat, take baths and eat. I did most of the eating....

> >

> > Hang in there.........

> >

> >

> >

> > Rosemary in New York with 3 children with CF - they are 12, 9.8,

>5.9...I

> > coined the phrase " BREATHE DAMMIT " ; and now we have a dog named -

>are you

> > ready for this - TOBI after their medication!

> >

> >

> >

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Share on other sites

I think this is especially hard when the kids are younger and you are still

trying to figure out what they will eat. I'll make Mycah a big bowl of high-fat

pudding and then she won't like it. Well, I can't just let it go to waste,

right?

Lori in Florida

Re: Todays Oprah showHOLLY

>Date: Fri, 18 Oct 2002 03:03:10 -0000

>

>The line in your email " I did most of the eating.... " was great!

>That is so true. It is so easy to " eat " for comfort. I have to

>fight not to do this myself. I find jelly bellies especially

>satisfying. Thanks for the laugh.

>

>Take care,

>Gale

>

>

> > Let her watch cartoons and eat popcorn if thats what it takes to

>keep your

> > baby out of the Hospital. I am so sorry that you have no one

>around to help

> > you. That SUCKS!!!

> >

> > When my kids were little and stuck in because another child was

>sick we would

> > eat, take baths and eat. I did most of the eating....

> >

> > Hang in there.........

> >

> >

> >

> > Rosemary in New York with 3 children with CF - they are 12, 9.8,

>5.9...I

> > coined the phrase " BREATHE DAMMIT " ; and now we have a dog named -

>are you

> > ready for this - TOBI after their medication!

> >

> >

> >

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Share on other sites

I think this is especially hard when the kids are younger and you are still

trying to figure out what they will eat. I'll make Mycah a big bowl of high-fat

pudding and then she won't like it. Well, I can't just let it go to waste,

right?

Lori in Florida

Re: Todays Oprah showHOLLY

>Date: Fri, 18 Oct 2002 03:03:10 -0000

>

>The line in your email " I did most of the eating.... " was great!

>That is so true. It is so easy to " eat " for comfort. I have to

>fight not to do this myself. I find jelly bellies especially

>satisfying. Thanks for the laugh.

>

>Take care,

>Gale

>

>

> > Let her watch cartoons and eat popcorn if thats what it takes to

>keep your

> > baby out of the Hospital. I am so sorry that you have no one

>around to help

> > you. That SUCKS!!!

> >

> > When my kids were little and stuck in because another child was

>sick we would

> > eat, take baths and eat. I did most of the eating....

> >

> > Hang in there.........

> >

> >

> >

> > Rosemary in New York with 3 children with CF - they are 12, 9.8,

>5.9...I

> > coined the phrase " BREATHE DAMMIT " ; and now we have a dog named -

>are you

> > ready for this - TOBI after their medication!

> >

> >

> >

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Share on other sites

Hi everyone, I generally lurk, but never leave. I have been reading the post

regarding the high cal diets and such. Our CF center has done at least two

nights out sponsored by Genotech for the parents. These nights out are with

several dieticians who are helping to problem solve etc. ways around this. We

did not get to attend, but I heard great things, I have asked them to consider

doing a newletter with some of the ideas.

I still find it very difficult so at our house while I was researching the

Atkins diet, very high calorie and fat and protein, great for a child with CF if

you keep adding the carbs, not too bad for mom and dad if you follow the plan.

We just eat the " allowed " sweet things, and give the kids the real thing. I am

not selling the program to any one, the dieticians absolutely hate it! but it

has been very good for my husband and me as we have each lost weight and I feel

that my stress/energy (they are the same right? :) are much more stable, not

gone though.) and our 21/2 year old is finally gaining 11/2 pound in 5 months.

The down side is it is very hard to stick to it when we are in the hospital with

one of the kids, but we somehow manage to get back to it if need be. Anyway

just my thoughts on it.

Kris in Idaho

Mo and Eme bwcf

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Hi everyone, I generally lurk, but never leave. I have been reading the post

regarding the high cal diets and such. Our CF center has done at least two

nights out sponsored by Genotech for the parents. These nights out are with

several dieticians who are helping to problem solve etc. ways around this. We

did not get to attend, but I heard great things, I have asked them to consider

doing a newletter with some of the ideas.

I still find it very difficult so at our house while I was researching the

Atkins diet, very high calorie and fat and protein, great for a child with CF if

you keep adding the carbs, not too bad for mom and dad if you follow the plan.

We just eat the " allowed " sweet things, and give the kids the real thing. I am

not selling the program to any one, the dieticians absolutely hate it! but it

has been very good for my husband and me as we have each lost weight and I feel

that my stress/energy (they are the same right? :) are much more stable, not

gone though.) and our 21/2 year old is finally gaining 11/2 pound in 5 months.

The down side is it is very hard to stick to it when we are in the hospital with

one of the kids, but we somehow manage to get back to it if need be. Anyway

just my thoughts on it.

Kris in Idaho

Mo and Eme bwcf

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Share on other sites

Hi everyone, I generally lurk, but never leave. I have been reading the post

regarding the high cal diets and such. Our CF center has done at least two

nights out sponsored by Genotech for the parents. These nights out are with

several dieticians who are helping to problem solve etc. ways around this. We

did not get to attend, but I heard great things, I have asked them to consider

doing a newletter with some of the ideas.

I still find it very difficult so at our house while I was researching the

Atkins diet, very high calorie and fat and protein, great for a child with CF if

you keep adding the carbs, not too bad for mom and dad if you follow the plan.

We just eat the " allowed " sweet things, and give the kids the real thing. I am

not selling the program to any one, the dieticians absolutely hate it! but it

has been very good for my husband and me as we have each lost weight and I feel

that my stress/energy (they are the same right? :) are much more stable, not

gone though.) and our 21/2 year old is finally gaining 11/2 pound in 5 months.

The down side is it is very hard to stick to it when we are in the hospital with

one of the kids, but we somehow manage to get back to it if need be. Anyway

just my thoughts on it.

Kris in Idaho

Mo and Eme bwcf

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Idaho - the potato state

I'll bet the Atkin's diet is really tabu there! Just kidding.

Gale

> Hi everyone, I generally lurk, but never leave. I have been

reading the post regarding the high cal diets and such. Our CF

center has done at least two nights out sponsored by Genotech for the

parents. These nights out are with several dieticians who are

helping to problem solve etc. ways around this. We did not get to

attend, but I heard great things, I have asked them to consider doing

a newletter with some of the ideas.

> I still find it very difficult so at our house while I was

researching the Atkins diet, very high calorie and fat and protein,

great for a child with CF if you keep adding the carbs, not too bad

for mom and dad if you follow the plan. We just eat the " allowed "

sweet things, and give the kids the real thing. I am not selling the

program to any one, the dieticians absolutely hate it! but it has

been very good for my husband and me as we have each lost weight and

I feel that my stress/energy (they are the same right? :) are much

more stable, not gone though.) and our 21/2 year old is finally

gaining 11/2 pound in 5 months. The down side is it is very hard to

stick to it when we are in the hospital with one of the kids, but we

somehow manage to get back to it if need be. Anyway just my

thoughts on it.

>

> Kris in Idaho

> Mo and Eme bwcf

>

>

>

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Idaho - the potato state

I'll bet the Atkin's diet is really tabu there! Just kidding.

Gale

> Hi everyone, I generally lurk, but never leave. I have been

reading the post regarding the high cal diets and such. Our CF

center has done at least two nights out sponsored by Genotech for the

parents. These nights out are with several dieticians who are

helping to problem solve etc. ways around this. We did not get to

attend, but I heard great things, I have asked them to consider doing

a newletter with some of the ideas.

> I still find it very difficult so at our house while I was

researching the Atkins diet, very high calorie and fat and protein,

great for a child with CF if you keep adding the carbs, not too bad

for mom and dad if you follow the plan. We just eat the " allowed "

sweet things, and give the kids the real thing. I am not selling the

program to any one, the dieticians absolutely hate it! but it has

been very good for my husband and me as we have each lost weight and

I feel that my stress/energy (they are the same right? :) are much

more stable, not gone though.) and our 21/2 year old is finally

gaining 11/2 pound in 5 months. The down side is it is very hard to

stick to it when we are in the hospital with one of the kids, but we

somehow manage to get back to it if need be. Anyway just my

thoughts on it.

>

> Kris in Idaho

> Mo and Eme bwcf

>

>

>

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I was going to say I didn't have much trouble with gaining weight when Sian

was little, 'cause I was breastfeeding her. Then I looked carefully at what

happened weight wise:

Cate (wocf) breastfed until 17 months. I weighed 72 kilos when she was

conceived. I weighed 60 kilos on her first birthday. (My doctor prefers

that my weight sit between 70-73 kilos.)

Sian (wcf) breastfed until 18 months. I weighed about 72-73 kilos when she

was conceived. I weighed about the same on her first birthday. Does that

mean that I effectively gained about 12 kilos in her first year?

I know I am exercising a lot more now to stay in the weight range than I

used to before my cupboards contained microwave popcorn, packet of chippies,

and chocolate biscuits!!!

Much love from the somewhat rounder than previously,

Mum to Cate 10yrs wocf and Sian 6yrs wcf, asthma, GERD and ADD?

Canberra Australia

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I was going to say I didn't have much trouble with gaining weight when Sian

was little, 'cause I was breastfeeding her. Then I looked carefully at what

happened weight wise:

Cate (wocf) breastfed until 17 months. I weighed 72 kilos when she was

conceived. I weighed 60 kilos on her first birthday. (My doctor prefers

that my weight sit between 70-73 kilos.)

Sian (wcf) breastfed until 18 months. I weighed about 72-73 kilos when she

was conceived. I weighed about the same on her first birthday. Does that

mean that I effectively gained about 12 kilos in her first year?

I know I am exercising a lot more now to stay in the weight range than I

used to before my cupboards contained microwave popcorn, packet of chippies,

and chocolate biscuits!!!

Much love from the somewhat rounder than previously,

Mum to Cate 10yrs wocf and Sian 6yrs wcf, asthma, GERD and ADD?

Canberra Australia

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I was going to say I didn't have much trouble with gaining weight when Sian

was little, 'cause I was breastfeeding her. Then I looked carefully at what

happened weight wise:

Cate (wocf) breastfed until 17 months. I weighed 72 kilos when she was

conceived. I weighed 60 kilos on her first birthday. (My doctor prefers

that my weight sit between 70-73 kilos.)

Sian (wcf) breastfed until 18 months. I weighed about 72-73 kilos when she

was conceived. I weighed about the same on her first birthday. Does that

mean that I effectively gained about 12 kilos in her first year?

I know I am exercising a lot more now to stay in the weight range than I

used to before my cupboards contained microwave popcorn, packet of chippies,

and chocolate biscuits!!!

Much love from the somewhat rounder than previously,

Mum to Cate 10yrs wocf and Sian 6yrs wcf, asthma, GERD and ADD?

Canberra Australia

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