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In a message dated 3/23/01 10:04:35 PM Central Standard Time,

SkyfireRanch@... writes:

<< The Support Report is working with several doctors to help them understand

the RP patient. Only the number of participants and the results will be given

out. Your Name and identification WILL NOT BE RELEASED! Please, only fill

this out if you have RP. >>

Who are these Dr's, and what do they plan on doing with these results?

KP

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The Support Report is working with several doctors to help them understand the RP patient. Only the number of participants and the results will be given out. Your Name and identification WILL NOT BE RELEASED! Please, only fill this out if you have RP. >>

Who are these Dr's, and what do they plan on doing with these results?

KP

I also would like to know this. Thanks!

Lu

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The Support Report is working with several doctors to help them understand the RP patient. Only the number of participants and the results will be given out. Your Name and identification WILL NOT BE RELEASED! Please, only fill this out if you have RP. >>

Who are these Dr's, and what do they plan on doing with these results?

KP

I also would like to know this. Thanks!

Lu

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The Support Report is working with several doctors to help them understand the RP patient. Only the number of participants and the results will be given out. Your Name and identification WILL NOT BE RELEASED! Please, only fill this out if you have RP. >>

Who are these Dr's, and what do they plan on doing with these results?

KP

I also would like to know this. Thanks!

Lu

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Return to Skyfireranch@...

Please take a moment to fill out the following information. The Support Report is working with several doctors to help them understand the RP patient. Only the number of participants and the results will be given out. Your Name and identification WILL NOT BE RELEASED! Please, only fill this out if you have RP.

Are you taking any of the following medications?

Prednisone NSAID's (anti-inflammatory) Plaque (hydroxycloroquine) Dapson Methotrexate Imuran (azathioprine) Arava (liflunamide Cyclosporine (cyclophophamide) Gold Embrel (etancercept) Cellcept (mycophenylatemophetil) none other.

Thank You

R.

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>

>Reply-To: Rpolychondritis

>To: Rpolychondritis >

>Subject: survey

>Date: Fri, 23 Mar 2001 20:57:18 -0700

>

>Return to Skyfireranch@...

>

>Please take a moment to fill out the following information. The Support

>Report is working with several doctors to help them understand the RP

>patient. Only the number of participants and the results will be given out.

>Your Name and identification WILL NOT BE RELEASED! Please, only fill this

>out if you have RP.

>

>Are you taking any of the following medications?

> a.. Prednisone

Yes

> b.. NSAID's (anti-inflammatory)

Yes

> c.. Plaque (hydroxycloroquine)

> d.. Dapson

> e.. Methotrexate

Yes

> f.. Imuran (azathioprine)

> g.. Arava (liflunamide

> h.. Cyclosporine (cyclophophamide)

> i.. Gold

> j.. Embrel (etancercept)

> k.. Cellcept (mycophenylatemophetil)

> l.. none

> m.. other.

>

>Thank You

> R.

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

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DIANE HOPE I DID THIS RIGHT SENT MY ANSWER UNDER

SEPARATE MAIL DAWN

--- anne colman colmananne@...> wrote:

>

>

>

> >

> >Reply-To: Rpolychondritis

> >To: Rpolychondritis >

> >Subject: survey

> >Date: Fri, 23 Mar 2001 20:57:18 -0700

> >

> >Return to Skyfireranch@...

> >

> >Please take a moment to fill out the following

> information. The Support

> >Report is working with several doctors to help them

> understand the RP

> >patient. Only the number of participants and the

> results will be given out.

> >Your Name and identification WILL NOT BE RELEASED!

> Please, only fill this

> >out if you have RP.

> >

> >Are you taking any of the following medications?

> > a.. Prednisone

> Yes

> > b.. NSAID's (anti-inflammatory)

> Yes

> > c.. Plaque (hydroxycloroquine)

> > d.. Dapson

> > e.. Methotrexate

> Yes

> > f.. Imuran (azathioprine)

> > g.. Arava (liflunamide

> > h.. Cyclosporine (cyclophophamide)

> > i.. Gold

> > j.. Embrel (etancercept)

> > k.. Cellcept (mycophenylatemophetil)

> > l.. none

> > m.. other.

> >

> >Thank You

> > R.

>

>

_________________________________________________________________________

> Get Your Private, Free E-mail from MSN Hotmail at

> http://www.hotmail.com.

>

>

__________________________________________________

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Guest guest

DIANE HOPE I DID THIS RIGHT SENT MY ANSWER UNDER

SEPARATE MAIL DAWN

--- anne colman colmananne@...> wrote:

>

>

>

> >

> >Reply-To: Rpolychondritis

> >To: Rpolychondritis >

> >Subject: survey

> >Date: Fri, 23 Mar 2001 20:57:18 -0700

> >

> >Return to Skyfireranch@...

> >

> >Please take a moment to fill out the following

> information. The Support

> >Report is working with several doctors to help them

> understand the RP

> >patient. Only the number of participants and the

> results will be given out.

> >Your Name and identification WILL NOT BE RELEASED!

> Please, only fill this

> >out if you have RP.

> >

> >Are you taking any of the following medications?

> > a.. Prednisone

> Yes

> > b.. NSAID's (anti-inflammatory)

> Yes

> > c.. Plaque (hydroxycloroquine)

> > d.. Dapson

> > e.. Methotrexate

> Yes

> > f.. Imuran (azathioprine)

> > g.. Arava (liflunamide

> > h.. Cyclosporine (cyclophophamide)

> > i.. Gold

> > j.. Embrel (etancercept)

> > k.. Cellcept (mycophenylatemophetil)

> > l.. none

> > m.. other.

> >

> >Thank You

> > R.

>

>

_________________________________________________________________________

> Get Your Private, Free E-mail from MSN Hotmail at

> http://www.hotmail.com.

>

>

__________________________________________________

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Guest guest

DIANE HOPE I DID THIS RIGHT SENT MY ANSWER UNDER

SEPARATE MAIL DAWN

--- anne colman colmananne@...> wrote:

>

>

>

> >

> >Reply-To: Rpolychondritis

> >To: Rpolychondritis >

> >Subject: survey

> >Date: Fri, 23 Mar 2001 20:57:18 -0700

> >

> >Return to Skyfireranch@...

> >

> >Please take a moment to fill out the following

> information. The Support

> >Report is working with several doctors to help them

> understand the RP

> >patient. Only the number of participants and the

> results will be given out.

> >Your Name and identification WILL NOT BE RELEASED!

> Please, only fill this

> >out if you have RP.

> >

> >Are you taking any of the following medications?

> > a.. Prednisone

> Yes

> > b.. NSAID's (anti-inflammatory)

> Yes

> > c.. Plaque (hydroxycloroquine)

> > d.. Dapson

> > e.. Methotrexate

> Yes

> > f.. Imuran (azathioprine)

> > g.. Arava (liflunamide

> > h.. Cyclosporine (cyclophophamide)

> > i.. Gold

> > j.. Embrel (etancercept)

> > k.. Cellcept (mycophenylatemophetil)

> > l.. none

> > m.. other.

> >

> >Thank You

> > R.

>

>

_________________________________________________________________________

> Get Your Private, Free E-mail from MSN Hotmail at

> http://www.hotmail.com.

>

>

__________________________________________________

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Thank you for filling out the survey and sending to skyfireranch@...

I have to keep a running record of each persons answers. AND I'm on a digest format with this group. So it makes it quite difficult when you post back to the group.

If anyone else would like to send the survey in please do so it is still open.

Thank you.

R.

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