Guest guest Posted March 23, 2001 Report Share Posted March 23, 2001 In a message dated 3/23/01 10:04:35 PM Central Standard Time, SkyfireRanch@... writes: << The Support Report is working with several doctors to help them understand the RP patient. Only the number of participants and the results will be given out. Your Name and identification WILL NOT BE RELEASED! Please, only fill this out if you have RP. >> Who are these Dr's, and what do they plan on doing with these results? KP Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2001 Report Share Posted March 23, 2001 In a message dated 3/23/01 10:04:35 PM Central Standard Time, SkyfireRanch@... writes: << Are you taking any of the following medications? a.. Prednisone (have for almost 3 years 90-5 mgs X's 3 years) Off now after a 3000mg pulse in Oct of 2000. b.. NSAID's (anti-inflammatory) Ralefen c.. Plaque (hydroxycloroquine) In the past, did not work! d.. Dapson In the Past did not work! e.. Methotrexate In the past, had to stop due to sores f.. Imuran (azathioprine) In the past, did not work! g.. Arava (liflunamide In the past, worked a bit but did not cut it. h.. Cyclosporine (cyclophophamide) i.. Gold j.. Embrel (etancercept) Yes! And worked the best out of all the Meds I had to take but I became Immune to the Enbrel after 6 months and also became ANA Pos, due to the Enbrel (Great Drug)! k.. Cellcept (mycophenylatemophetil) In the past, Made me VERY ill to my stomach had to go off. l.. none m.. other. , I hope this helps Love, P Thank You R. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2001 Report Share Posted March 23, 2001 In a message dated 3/23/01 10:04:35 PM Central Standard Time, SkyfireRanch@... writes: << Are you taking any of the following medications? a.. Prednisone (have for almost 3 years 90-5 mgs X's 3 years) Off now after a 3000mg pulse in Oct of 2000. b.. NSAID's (anti-inflammatory) Ralefen c.. Plaque (hydroxycloroquine) In the past, did not work! d.. Dapson In the Past did not work! e.. Methotrexate In the past, had to stop due to sores f.. Imuran (azathioprine) In the past, did not work! g.. Arava (liflunamide In the past, worked a bit but did not cut it. h.. Cyclosporine (cyclophophamide) i.. Gold j.. Embrel (etancercept) Yes! And worked the best out of all the Meds I had to take but I became Immune to the Enbrel after 6 months and also became ANA Pos, due to the Enbrel (Great Drug)! k.. Cellcept (mycophenylatemophetil) In the past, Made me VERY ill to my stomach had to go off. l.. none m.. other. , I hope this helps Love, P Thank You R. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2001 Report Share Posted March 23, 2001 In a message dated 3/23/01 10:04:35 PM Central Standard Time, SkyfireRanch@... writes: << Are you taking any of the following medications? a.. Prednisone (have for almost 3 years 90-5 mgs X's 3 years) Off now after a 3000mg pulse in Oct of 2000. b.. NSAID's (anti-inflammatory) Ralefen c.. Plaque (hydroxycloroquine) In the past, did not work! d.. Dapson In the Past did not work! e.. Methotrexate In the past, had to stop due to sores f.. Imuran (azathioprine) In the past, did not work! g.. Arava (liflunamide In the past, worked a bit but did not cut it. h.. Cyclosporine (cyclophophamide) i.. Gold j.. Embrel (etancercept) Yes! And worked the best out of all the Meds I had to take but I became Immune to the Enbrel after 6 months and also became ANA Pos, due to the Enbrel (Great Drug)! k.. Cellcept (mycophenylatemophetil) In the past, Made me VERY ill to my stomach had to go off. l.. none m.. other. , I hope this helps Love, P Thank You R. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2001 Report Share Posted March 23, 2001 Return to Skyfireranch@... Please take a moment to fill out the following information. The Support Report is working with several doctors to help them understand the RP patient. Only the number of participants and the results will be given out. Your Name and identification WILL NOT BE RELEASED! Please, only fill this out if you have RP. Are you taking any of the following medications? Prednisone NSAID's (anti-inflammatory) Plaque (hydroxycloroquine) Dapson Methotrexate Imuran (azathioprine) Arava (liflunamide Cyclosporine (cyclophophamide) Gold Embrel (etancercept) Cellcept (mycophenylatemophetil) none other. Thank You R. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2001 Report Share Posted March 24, 2001 > >Reply-To: Rpolychondritis >To: Rpolychondritis > >Subject: survey >Date: Fri, 23 Mar 2001 20:57:18 -0700 > >Return to Skyfireranch@... > >Please take a moment to fill out the following information. The Support >Report is working with several doctors to help them understand the RP >patient. Only the number of participants and the results will be given out. >Your Name and identification WILL NOT BE RELEASED! Please, only fill this >out if you have RP. > >Are you taking any of the following medications? > a.. Prednisone Yes > b.. NSAID's (anti-inflammatory) Yes > c.. Plaque (hydroxycloroquine) > d.. Dapson > e.. Methotrexate Yes > f.. Imuran (azathioprine) > g.. Arava (liflunamide > h.. Cyclosporine (cyclophophamide) > i.. Gold > j.. Embrel (etancercept) > k.. Cellcept (mycophenylatemophetil) > l.. none > m.. other. > >Thank You > R. _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2001 Report Share Posted March 24, 2001 > >Reply-To: Rpolychondritis >To: Rpolychondritis > >Subject: survey >Date: Fri, 23 Mar 2001 20:57:18 -0700 > >Return to Skyfireranch@... > >Please take a moment to fill out the following information. The Support >Report is working with several doctors to help them understand the RP >patient. Only the number of participants and the results will be given out. >Your Name and identification WILL NOT BE RELEASED! Please, only fill this >out if you have RP. > >Are you taking any of the following medications? > a.. Prednisone Yes > b.. NSAID's (anti-inflammatory) Yes > c.. Plaque (hydroxycloroquine) > d.. Dapson > e.. Methotrexate Yes > f.. Imuran (azathioprine) > g.. Arava (liflunamide > h.. Cyclosporine (cyclophophamide) > i.. Gold > j.. Embrel (etancercept) > k.. Cellcept (mycophenylatemophetil) > l.. none > m.. other. > >Thank You > R. _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2002 Report Share Posted September 5, 2002 1. If you could build a house any where, where would it be? Somewhere warm with lots of land around me so I can " nest " away from others. 2. Whats your favourite article of clothing? My nightie 3. Favourite physical feature of the opposite sex? Tough question! I guess I have to see/know the whole person. 4. What is the last cd you bought? Dixie Chicks " Home " 5. Whats your favourite place to be? Floating in the pool. 6. Wheres your least favourite place to be? LAX Airport 7. What is your favourite place to be massaged? My feet 8. What more important strong in mind or strong in body? Strong in spirit! 9. What time do u wake in the mornings? 8:00 10. Whats your favourite kitchen appliance? Oven - cookies, bread, pies...Yum!!! 11. What makes u really angry? Being lied to 12. If you could play any instrument what would it be? Hmmm. I already play piano, guitar, ukelele, banjo, flute, clarinet, mandolin. Not well but enuf. 13. Favourite colour? Black 14. Which do u prefer, sports car or suv? SUV 15. Do u believe in afterlife ? Eternal Life with Christ 16. Favourite childrens book? Love You Forever (makes me cry!) 17. What is your favourite season? Summer 18. What is your least favourite household chore? Cleaning the Bathroom! 19. If you could have one super power what would it be? Ability to fly 20. If you have a tattoo what is it? A wooden cross entwined with flowers and a heart with a banner across it with my husband's name and " property of " written above it. 21. Can u juggle? Nope, never tried 22. The one person from your past you wish u could talk to? An old boyfriend who was murdered 23. What is your favourite day? Christmas 24. What is in the boot of your car? Nothing, I drive a large van (to fit all my kids) 25. What do u prefer shushi or hamburger? Of this choice hamburger. Otherwise steak! 26. From the people you will email this to who is most likely to respond? 27. Who is least likely to respond? 28. Do you visit other Christians/friends houses, especially new friends? Why? Quote Link to comment Share on other sites More sharing options...
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