Re: numbness five months after SARPE

[Guest guest]

Sorry you're having such a long time of trouble with the numbness.

That pretty much echoes everything I've heard about damage to the

nerves. It may come; it may not. It may go; it may not. And nobody

knows when. Not encouraging, and I am sorry not to be able to offer

something more reassuring.

I can tell you that my neurologist (whom I see for some other

troubles, also related to damaged nerves, but in other places) indeed

advised plenty of the Bs, in a balanced pill, as well as being sure

to get at least three servings a weak of the Omega oils found in deep

water fishes. For me, that usually means oysters in season, or salmon

(which I love) or tuna.

What does your OS say about it? Given that the doc and neurologist

didn't know anything about the procedure, your os might well give you

more specifically learned counsel on the matter.

Cammie

> Hello everybody,

>

> I am five months post SARPE, and I have been distressed over the

> lingering numbness in my face, specifically the left side of my

upper

> lip.

>

> Last week I told my primary care physician about all of this, and

he

> referred me to a neurologist. (Neither my physician nor the

> neurologist had ever heard of the SARPE.) The nerve doctor

examined

> me very thoroughly, and said there is nothing he or anyone else can

> do about the numbness in my face. He was very nice, but he said

> bluntly that it will either go away or it won't. He said he can't

> tell me when or if it will improve.

>

> The only suggestion he offered was for me to be sure to get 100 mg

of

> vitamin B6 every day.

>

> Fred

[Guest guest]

Sorry you're having such a long time of trouble with the numbness.

That pretty much echoes everything I've heard about damage to the

nerves. It may come; it may not. It may go; it may not. And nobody

knows when. Not encouraging, and I am sorry not to be able to offer

something more reassuring.

I can tell you that my neurologist (whom I see for some other

troubles, also related to damaged nerves, but in other places) indeed

advised plenty of the Bs, in a balanced pill, as well as being sure

to get at least three servings a weak of the Omega oils found in deep

water fishes. For me, that usually means oysters in season, or salmon

(which I love) or tuna.

What does your OS say about it? Given that the doc and neurologist

didn't know anything about the procedure, your os might well give you

more specifically learned counsel on the matter.

Cammie

> Hello everybody,

>

> I am five months post SARPE, and I have been distressed over the

> lingering numbness in my face, specifically the left side of my

upper

> lip.

>

> Last week I told my primary care physician about all of this, and

he

> referred me to a neurologist. (Neither my physician nor the

> neurologist had ever heard of the SARPE.) The nerve doctor

examined

> me very thoroughly, and said there is nothing he or anyone else can

> do about the numbness in my face. He was very nice, but he said

> bluntly that it will either go away or it won't. He said he can't

> tell me when or if it will improve.

>

> The only suggestion he offered was for me to be sure to get 100 mg

of

> vitamin B6 every day.

>

> Fred

[Guest guest]

Sorry you're having such a long time of trouble with the numbness.

That pretty much echoes everything I've heard about damage to the

nerves. It may come; it may not. It may go; it may not. And nobody

knows when. Not encouraging, and I am sorry not to be able to offer

something more reassuring.

I can tell you that my neurologist (whom I see for some other

troubles, also related to damaged nerves, but in other places) indeed

advised plenty of the Bs, in a balanced pill, as well as being sure

to get at least three servings a weak of the Omega oils found in deep

water fishes. For me, that usually means oysters in season, or salmon

(which I love) or tuna.

What does your OS say about it? Given that the doc and neurologist

didn't know anything about the procedure, your os might well give you

more specifically learned counsel on the matter.

Cammie

> Hello everybody,

>

> I am five months post SARPE, and I have been distressed over the

> lingering numbness in my face, specifically the left side of my

upper

> lip.

>

> Last week I told my primary care physician about all of this, and

he

> referred me to a neurologist. (Neither my physician nor the

> neurologist had ever heard of the SARPE.) The nerve doctor

examined

> me very thoroughly, and said there is nothing he or anyone else can

> do about the numbness in my face. He was very nice, but he said

> bluntly that it will either go away or it won't. He said he can't

> tell me when or if it will improve.

>

> The only suggestion he offered was for me to be sure to get 100 mg

of

> vitamin B6 every day.

>

> Fred

[Guest guest]

My OS has said the numbness will go away over time, but that it will

take a while. My primary care physician said " there's definitely

something wrong. "

> > Hello everybody,

> >

> > I am five months post SARPE, and I have been distressed over the

> > lingering numbness in my face, specifically the left side of my

> upper

> > lip.

> >

> > Last week I told my primary care physician about all of this, and

> he

> > referred me to a neurologist. (Neither my physician nor the

> > neurologist had ever heard of the SARPE.) The nerve doctor

> examined

> > me very thoroughly, and said there is nothing he or anyone else

can

> > do about the numbness in my face. He was very nice, but he said

> > bluntly that it will either go away or it won't. He said he

can't

> > tell me when or if it will improve.

> >

> > The only suggestion he offered was for me to be sure to get 100

mg

> of

> > vitamin B6 every day.

> >

> > Fred

[Guest guest]

Just one thought, which may offer you some encouragement.

I think that everyone would agree that " something is wrong. " That

something is that your os had to rearrange your face, and in the

process, some of those nerves apparently suffered at least a bit.

But some folks take a long, long time for the nerves to heal. I'm

certainly not saying that I know more than any of your docs, nor even

as much. Just that for sure I would not give up on it at this point.

I have one friend who had really extensive work on both jaws and

still had numbness well over a year later. She was still hoping for

improvement when last I communicated with her, and was thinking of

trying acupuncture....

So don't give up!

Cammie

>

>

> My OS has said the numbness will go away over time, but that it

will

> take a while. My primary care physician said " there's definitely

> something wrong. "