Re: Jeff Maciejewski

[Guest guest]

Thanks for the encouragement. We've been to enough MD's to realize that

there's doctors and then there's DOCTORS, if you know what I mean. Thank

God for Jeff's PCP's! They are totally supportive, and have the integrity

to admit that they don't know what they don't know, but are willing to find

out. Just as an example, Jeff saw them on Friday, told them what happened,

and what the doctor's recommendation was for a sleep study, and he's going

in tonight to have it done!! They have actually organized a study group

with the neuro's in town to analyze Jeff's case. San Angelo is probably

the biggest " small town " in the USA. Everywhere we go, people know about

Jeff and what's happening. We are on a first name basis with the entire

pharmacy staff at Eckerd. The doctors keep in close contact with the

pharmacist to make sure the drugs Jeff's getting are not in conflict with

each other. I could go on, but really we feel very blessed that we have

such great support here.

Re: Jeff Maciejewski

,

You hang in there, be as supportive as you can be. You are both in my

prayers. Concerning the 'Doctor " , and I use this word loosely his behavior

was totally uncalled for and unethical in his profession. I agree with what

others have said that you should not let this pass without reporting him.

*****If Dr. Baser is reading this, please respond as a doctor who

cares about her patient. Please give some advise as to the proper

procedure to follow.*****

, Dr. Baser is 's doctor and she is wonderful.....

Tell Jeff that he didn't deserve the treatment he received. He deserves so

much MORE from a DOCTOR.

Joan

Re: Jeff Maciejewski

>

> ,

> Wondering how Jeff made out with his doctor's visit?.

> Jean & Chrissie

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

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> shydrager-unsubscribe

>

>

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>

[Guest guest]

Hi ,

Jeff had his sleep study done last night. As you forewarned us, he was

hooked up every which way but to the ceiling! He was there from about 8:30

to 5:00 AM. The technician on duty said that he had multiple " events "

during his deep sleep phase. She said that most of them were obstructive,

but some were " central " . She is supposed to do some analyzing and then the

results are to be sent off to a disorder clinic for review. She's been

doing these tests for 7 years and said she's never seen a " central " event.

What does that mean? We should get the full report in about 2 weeks.

They did a preliminary fitting for a CPAP. I've just gotten through

printing up the sleep disorder info from the links you sent. Thanks for

all your help again!!! M.

RE: Jeff Maciejewski

Greetings and Jeff!

Jeff, I'm really writing this to you. You're wife just happens to be the

courier for this note. But it's just me to you, okay?

First, let's pretend you are at work and face this type of problem. It's

overwhelming. Where do you start? By trying to tackle the whole thing at

once? Nope. You find one corner of the puzzle that you can solve, work on

it, step back, and see if you can solve other pieces. So, let me suggest a

way to do just that.

First of all, it is EXTREMELY important that you resolve your sleep

problems. Severe sleep apnea (or other sleep problems) causes a severe

strain on your central nervous system. Believe me. I know. I've used a

CPAP / BiPAP unit for more than six years now. I would NOT be alive

without

it. And my symptoms get MUCH worse if I sleep poorly.

Let's see if that is a corner of the whole puzzle we can solve. I hope

that

if you can get your sleep problems under control, you will be better able

to

work through the other problems.

How to get started on solving this? First of all, your PCP should be able

to refer you for a sleep study. Sometimes they are reluctant to do so,

because of the cost. If your PCP heads down that path, be insistent, and

note that it is now impacting your ability to drive, and worry that it will

result in a serious accident, even death. If you PCP doesn't listen to

that, then change PCPs. If they are not worried about the resulting

litigation they should not be in the practice of medicine - or anything

else, for that matter.

How can getting the sleep test help? It's quite likely from what you

describe you are suffering SEVERE sleep deprivation. This is WAY beyond

just missing a little bit of sleep. Remember, there is a reason that sleep

deprivation is used as a form of torture throughout the world. It is

effective. It is simple. And it will destroy the person being tortured.

All without leaving a mark on that person.

Here are a couple of site that discuss sleep apnea:

http://health.yahoo.com/health/dc/000811/0.html

http://www.cpapman.com/disorder.htm

Please get on this immediately! It is that important to your health and to

your family.

Regards,

=jbf=

B. Fisher

If you do not wish to belong to shydrager, you may

unsubscribe by sending a blank email to

shydrager-unsubscribe

[Guest guest]

Hi ,

Jeff had his sleep study done last night. As you forewarned us, he was

hooked up every which way but to the ceiling! He was there from about 8:30

to 5:00 AM. The technician on duty said that he had multiple " events "

during his deep sleep phase. She said that most of them were obstructive,

but some were " central " . She is supposed to do some analyzing and then the

results are to be sent off to a disorder clinic for review. She's been

doing these tests for 7 years and said she's never seen a " central " event.

What does that mean? We should get the full report in about 2 weeks.

They did a preliminary fitting for a CPAP. I've just gotten through

printing up the sleep disorder info from the links you sent. Thanks for

all your help again!!! M.

RE: Jeff Maciejewski

Greetings and Jeff!

Jeff, I'm really writing this to you. You're wife just happens to be the

courier for this note. But it's just me to you, okay?

First, let's pretend you are at work and face this type of problem. It's

overwhelming. Where do you start? By trying to tackle the whole thing at

once? Nope. You find one corner of the puzzle that you can solve, work on

it, step back, and see if you can solve other pieces. So, let me suggest a

way to do just that.

First of all, it is EXTREMELY important that you resolve your sleep

problems. Severe sleep apnea (or other sleep problems) causes a severe

strain on your central nervous system. Believe me. I know. I've used a

CPAP / BiPAP unit for more than six years now. I would NOT be alive

without

it. And my symptoms get MUCH worse if I sleep poorly.

Let's see if that is a corner of the whole puzzle we can solve. I hope

that

if you can get your sleep problems under control, you will be better able

to

work through the other problems.

How to get started on solving this? First of all, your PCP should be able

to refer you for a sleep study. Sometimes they are reluctant to do so,

because of the cost. If your PCP heads down that path, be insistent, and

note that it is now impacting your ability to drive, and worry that it will

result in a serious accident, even death. If you PCP doesn't listen to

that, then change PCPs. If they are not worried about the resulting

litigation they should not be in the practice of medicine - or anything

else, for that matter.

How can getting the sleep test help? It's quite likely from what you

describe you are suffering SEVERE sleep deprivation. This is WAY beyond

just missing a little bit of sleep. Remember, there is a reason that sleep

deprivation is used as a form of torture throughout the world. It is

effective. It is simple. And it will destroy the person being tortured.

All without leaving a mark on that person.

Here are a couple of site that discuss sleep apnea:

http://health.yahoo.com/health/dc/000811/0.html

http://www.cpapman.com/disorder.htm

Please get on this immediately! It is that important to your health and to

your family.

Regards,

=jbf=

B. Fisher

If you do not wish to belong to shydrager, you may

unsubscribe by sending a blank email to

shydrager-unsubscribe

[Guest guest]

Beth,

I took my brother to two sleeps studies in two different facilities, and

neither would permit family to stay after the patient was settled in. I am

sure though that arrangements can be made to accommodate any special

circumstances your husband has, including wheel chair use and incontenence

issues. I'm sure others on the list such as jbf will tell you how important

it is that he deal with the sleep apnea issues. Also, if he is a loud

snorer my sister-in-law would tell you that you will be amazed at how much

more peaceful your nights will be after he starts on CPAP or BiPap if they

are prescribed for him.

Jerry Cash

RE: Jeff Maciejewski

Greetings and Jeff!

Jeff, I'm really writing this to you. You're wife just happens to be the

courier for this note. But it's just me to you, okay?

First, let's pretend you are at work and face this type of problem. It's

overwhelming. Where do you start? By trying to tackle the whole thing at

once? Nope. You find one corner of the puzzle that you can solve, work on

it, step back, and see if you can solve other pieces. So, let me suggest a

way to do just that.

First of all, it is EXTREMELY important that you resolve your sleep

problems. Severe sleep apnea (or other sleep problems) causes a severe

strain on your central nervous system. Believe me. I know. I've used a

CPAP / BiPAP unit for more than six years now. I would NOT be alive

without

it. And my symptoms get MUCH worse if I sleep poorly.

Let's see if that is a corner of the whole puzzle we can solve. I hope

that

if you can get your sleep problems under control, you will be better able

to

work through the other problems.

How to get started on solving this? First of all, your PCP should be able

to refer you for a sleep study. Sometimes they are reluctant to do so,

because of the cost. If your PCP heads down that path, be insistent, and

note that it is now impacting your ability to drive, and worry that it will

result in a serious accident, even death. If you PCP doesn't listen to

that, then change PCPs. If they are not worried about the resulting

litigation they should not be in the practice of medicine - or anything

else, for that matter.

How can getting the sleep test help? It's quite likely from what you

describe you are suffering SEVERE sleep deprivation. This is WAY beyond

just missing a little bit of sleep. Remember, there is a reason that sleep

deprivation is used as a form of torture throughout the world. It is

effective. It is simple. And it will destroy the person being tortured.

All without leaving a mark on that person.

Here are a couple of site that discuss sleep apnea:

http://health.yahoo.com/health/dc/000811/0.html

http://www.cpapman.com/disorder.htm

Please get on this immediately! It is that important to your health and to

your family.

Regards,

=jbf=

B. Fisher

If you do not wish to belong to shydrager, you may

unsubscribe by sending a blank email to

shydrager-unsubscribe