Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 Hi Kate, If I can put your mind at ease in any way, you are very welcome. Nothing about revision is easy but it is worth it! I am truly in a good place physically, despite having most of my spine fused. WOW! I am surprised they are starting a fusion at C1 - why? Who is your surgeon? If returning to work is your goal, I hope and pray it works for you but remember, sometimes when one goal doesn't work out - it isn't necessarily a failure as a " new " goal will pop up. Change - it's the basis of life. One thing I have learned through the last year is that although it may be a difficult lesson to learn, learning to just " go with it " is so much better than fretting about things!! Good luck!! D > > , Thank you so much for posting. I am about to have fusions that will make me fused from T10-S1 and C1-T1 so it is very good to hear how well you are doing with most of your spine fused. I wish you all the best with the divorce and your work. I dream of being able to work again. You are truly an inspiration. Wishing you the Best, Kate > > From: valerie_delaney > Sent: Saturday, May 14, 2011 8:32 PM > > Subject: [ ] Hi everyone! > > > Hi everyone! > > I have not posted in a very long time, but most of you know me. I have decided to stop by for a " visit " and give an update on my current status. As most of you know, I had a 3-stage revision last year - March, April and May of 2010. A year ago today, I was brought to rehabilitation whereby my recovery began. A whole year ago!! > > I recently saw Dr. Glazer (whom I ADORE!) for my one year follow-up and all is good! > > This is where things stand for me: > > I am now fused from C4-7 and T3 to the sacrum. I am standing straight. I can walk for long distances with no significant back pain or discomfort. Sitting can be more problematic, depending on the chair. I have yet to find a chair that I find comfortable as I feel better sitting on the backs of my thighs than I do actually sitting on my butt! So, slightly leaning forward I guess? I think the real issue is that if I sit leaning back at all, my tailbone hurts. Hence, I cannot sit on a sofa for any length of time or recline in a recliner or sit in a soft chair. It doesn't' hurt my back, but it does hurt my tailbone and my lumbar region will get achy. So I can't recline in bed at all either. So basically, sitting straight up or laying flat is what works best for me. I " mourn " the notion of " snuggling " up on the couch to say, read a book or magazine. Maybe one day? > > I returned to work part-time in November, 6 months after my 3rd surgery last May and returned full-time in 2 1/2 months later in January of this year. I have a 82 mile round trip commute each day, 45 min each way. My car is very comfortable and the ride is seldom an issue. I do still get tired easily but my strength improves all the time. I lost 35 lbs with my surgeries and have had no difficulty keeping it off even though I do no exercise other than simple walking. I think just being able to move in the slightest has helped me, as many of you that knew me before my surgeries knew that I was quite debilitated by my Flatback. I literally got to the point where I could no longer function at all. > > My surgeries were a traumatic, yet humbling experience and life has changed significantly for me during the past year. There are a lot of changes - my youngest graduated from High School three weeks after I got home from rehabilitation and then I sent him off to college 2 1/2 months later, I started working full-time for the first time in more than 23 years, I am currently in the process of a divorce after being married for 29 years and I am turning 50 next month! > > Some may wonder if I have anything to be happy about? The answer is YES!! Dr. Glazer gave me back what I had lost a very long time ago. I was in such pain for so, so long and sadly, I didn't even realize it! I just took on more and more pain. I feel so badly for that woman as it is as if she was someone different and not actually me!?! It definitely was a horrifying experience to endure but one that I would do again to gain what I now have. And that is a relatively pain-free existence. I hope and pray that we all have enduring success with these surgeries. > > My only regret is that I waited so long. I put everything, and I mean everything, on hold trying to wait for the " right " time to do it. As many of you know, I hemmed and hawed about it for 6 years before doing it and making that decision was the best thing I ever did. Yes, I have some residual issues - I have a recurring SI issue on my right hip, my knees are in rough shape despite having bilateral arthroscopy 2 years ago, one leg is shorter than the other and I have some neuropathy in my right leg and foot that has not improved unfortunately. But overall?? I am great! I am hopeful for a great future. I am relatively pain free. I am thrilled that I found Dr. Glazer and received fabulous care and support from this man whom I now consider a friend and more than anything, I GRATEFUL! So very, very grateful!! > > This group is filled with so many supportive, knowledgeable and wonderful people. To ALL that have supported me and helped me along the way - although I may not keep in touch, please know that you are all in my heart and I think of you often! With love and appreciation and I pray that all of you are feeling well!! God bless each and every one of you!! > > Fondly, > D (RI) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 Hi , I’m already fused from C1-T1. They were done one at a time over many years. The C1 fusion has been a major problem as it hasn’t taken and has had to be done 4 X’s. They’ve tried and removed screws and I just have to live with it as it is as I can’t go through another surgery at that level. It is solid enough that if I keep my head in the right position I’m ok. Dr. Donlin Long (neurosurg) and Randy (ortho) at Hopkins have been my surgeons for all but one operation. (Once my C1-2 fusion came apart in a move and I had a neurosurgeon at UNC put screws in which later broke and failed miserably). It’s apparently very hard to get a solid fusion at C1. I was fused at C7-T1 about 6 wks ago so it isn’t solid yet. I’m also fused from L2-S1 so this time I’m just having a PSO at L3 with an extension of my fussions through T11. This is being done as I have 2 badly herniated discs and flatback. I have had flatback for 25+ years and it may have caused the cervical deterioration, according to Dr. Kebiash at Hopkins who is going to do this big surgery, (though I broke a windshield with my head which my C1-2 instability can be attributed to.) I haven’t been able to work most of my life despite having an RN and JD. I’m on a bucketload of pain meds and can manage walking but have to lie down most of the time. Dr. Kebaish thinks correcting my flatback will make a huge difference for me and I am hoping this is true. Because of having failed fusions in the past I am scared and the PSO is a scary thing but I’m mostly optomistic. Your attitude is impressive indeed with all the changes you’re going through. I so appreciate your sharing what you are going through and wish you all the best. Kate From: valerie_delaney Sent: Sunday, May 15, 2011 9:15 AM Subject: [ ] Re: Hi everyone! Hi Kate,If I can put your mind at ease in any way, you are very welcome. Nothing about revision is easy but it is worth it! I am truly in a good place physically, despite having most of my spine fused. WOW! I am surprised they are starting a fusion at C1 - why? Who is your surgeon? If returning to work is your goal, I hope and pray it works for you but remember, sometimes when one goal doesn't work out - it isn't necessarily a failure as a "new" goal will pop up. Change - it's the basis of life. One thing I have learned through the last year is that although it may be a difficult lesson to learn, learning to just "go with it" is so much better than fretting about things!! Good luck!! D>> , Thank you so much for posting. I am about to have fusions that will make me fused from T10-S1 and C1-T1 so it is very good to hear how well you are doing with most of your spine fused. I wish you all the best with the divorce and your work. I dream of being able to work again. You are truly an inspiration. Wishing you the Best, Kate> > From: valerie_delaney > Sent: Saturday, May 14, 2011 8:32 PM> mailto: %40 > Subject: [ ] Hi everyone!> > > Hi everyone!> > I have not posted in a very long time, but most of you know me. I have decided to stop by for a "visit" and give an update on my current status. As most of you know, I had a 3-stage revision last year - March, April and May of 2010. A year ago today, I was brought to rehabilitation whereby my recovery began. A whole year ago!!> > I recently saw Dr. Glazer (whom I ADORE!) for my one year follow-up and all is good! > > This is where things stand for me:> > I am now fused from C4-7 and T3 to the sacrum. I am standing straight. I can walk for long distances with no significant back pain or discomfort. Sitting can be more problematic, depending on the chair. I have yet to find a chair that I find comfortable as I feel better sitting on the backs of my thighs than I do actually sitting on my butt! So, slightly leaning forward I guess? I think the real issue is that if I sit leaning back at all, my tailbone hurts. Hence, I cannot sit on a sofa for any length of time or recline in a recliner or sit in a soft chair. It doesn't' hurt my back, but it does hurt my tailbone and my lumbar region will get achy. So I can't recline in bed at all either. So basically, sitting straight up or laying flat is what works best for me. I "mourn" the notion of "snuggling" up on the couch to say, read a book or magazine. Maybe one day? > > I returned to work part-time in November, 6 months after my 3rd surgery last May and returned full-time in 2 1/2 months later in January of this year. I have a 82 mile round trip commute each day, 45 min each way. My car is very comfortable and the ride is seldom an issue. I do still get tired easily but my strength improves all the time. I lost 35 lbs with my surgeries and have had no difficulty keeping it off even though I do no exercise other than simple walking. I think just being able to move in the slightest has helped me, as many of you that knew me before my surgeries knew that I was quite debilitated by my Flatback. I literally got to the point where I could no longer function at all. > > My surgeries were a traumatic, yet humbling experience and life has changed significantly for me during the past year. There are a lot of changes - my youngest graduated from High School three weeks after I got home from rehabilitation and then I sent him off to college 2 1/2 months later, I started working full-time for the first time in more than 23 years, I am currently in the process of a divorce after being married for 29 years and I am turning 50 next month! > > Some may wonder if I have anything to be happy about? The answer is YES!! Dr. Glazer gave me back what I had lost a very long time ago. I was in such pain for so, so long and sadly, I didn't even realize it! I just took on more and more pain. I feel so badly for that woman as it is as if she was someone different and not actually me!?! It definitely was a horrifying experience to endure but one that I would do again to gain what I now have. And that is a relatively pain-free existence. I hope and pray that we all have enduring success with these surgeries. > > My only regret is that I waited so long. I put everything, and I mean everything, on hold trying to wait for the "right" time to do it. As many of you know, I hemmed and hawed about it for 6 years before doing it and making that decision was the best thing I ever did. Yes, I have some residual issues - I have a recurring SI issue on my right hip, my knees are in rough shape despite having bilateral arthroscopy 2 years ago, one leg is shorter than the other and I have some neuropathy in my right leg and foot that has not improved unfortunately. But overall?? I am great! I am hopeful for a great future. I am relatively pain free. I am thrilled that I found Dr. Glazer and received fabulous care and support from this man whom I now consider a friend and more than anything, I GRATEFUL! So very, very grateful!!> > This group is filled with so many supportive, knowledgeable and wonderful people. To ALL that have supported me and helped me along the way - although I may not keep in touch, please know that you are all in my heart and I think of you often! With love and appreciation and I pray that all of you are feeling well!! God bless each and every one of you!!> > Fondly, > D (RI)> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 Thanks, Bonnie! I try to stay positive. It's not always easy, but it is always worth it. Negativity just brings you and everybody around you down anyway and then you've got nothing but yourself an depression! Thanks for touching base and I hope you are doing well! D. > > Hi , > > So good to hear from you and even better to hear that you are doing so > well. I am so happy for you! You went through so much to get to this > good place. I remember that it took you a very long time to decide to > have revision surgery, but once you did, you went at it with a very > positive attitude, a factor that I think is very important in recovery > and in " reinventing " your life. I think we all do a bit of > " reinventing " our lives because of the huge change in our bodies and > the long length of recovery time and, often, some residual issues as > well. On top of that, as if it weren't enough to deal with, you've > had to send your son off to college and are going through a divorce. > You are a strong person and it sounds like you're handling all these > changes so well. I'm routing for you and I just know you'll deal with > everything and wind up with a very positive outcome. The fifties are > a great decade - you have a lot to look forward to. > > Best, > > Bonnie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 Glad to hear that you are doing better! and have so much going on in your life! Your update encouraged me to continue looking for a doctor to "fix" me! I'm not surprised that it took you so long to decide on revision surgery. I've been dragging my feet about another surgery.. This would be my 4th in about 10 yrs. My last surgery to remove broken Harrington rods was 12/05 and now I have what they are calling "dextroscoliosis at the thoracic-lumbar junction measuring aprox. 25 degrees with increased thoracic kyphosis". I started out leaning forward a little and now I am actually slumping forward terribly! I'm actually a "hunchback" and have gone from 6'1" to 5' '7" List members suggested that I contact Dr. Rand in Boston and also Dr. Kabaish in Baltimore. I wanted to ask about your Dr. Glazer. Is he in Boston near Dr. Rand? I called Dr. Rand's office and also Dr. Kabaish's for appts-more like second and third opinions. Both doctors along with Sr. Ludwig (Univ of MD Spine Ctr) know my surgeon Dr. Errico(NYC). Seems that some of the docs trained together. Both Dr. Rand's and Dr. Kabaish's admins wanted me to wait until after I see Dr. Errico to make the appointments. Understand, that Dr.Errico stated that he was afraid to operate on me again due to previous mid torso radiation treatments in 1981. That's why I have gone to other specialists. I will see Dr. Errico this next Friday for an annual checkup. I'll have had a CT scan by then and plan to take the results to him along with the results of yet another scoliosis (long) x-ray that clearly shows the collapsed vertebrae above the fusion. I'll also have a detailed list of my limitations and complaints. I've been on this list for several years and have recently joined the scoliosis forum. I'm still gathering information and I do appreciate your update! I'm sorry if this is running on but I am in severe pain today and am extrememly frustrated by my situation!! Thanks for listening! June -NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 I went through Legal Aid when I tried to get my order of protection. They wouldn't represent...I think it's because I had already moved 3 hours away. Everyone I talked to there said they do not assist with divorces, not even in domestic violence cases. Being near Raleigh you would think I would be able to find someone pro bono. I have a consult set up with an attorney that has worked at shelters and understands my issues. I will see her when I come up with $200 for the hour consult. I am hoping she will cut me a break. Right now my main concern is getting the rest of my belongings. PeggySent from my Verizon Wireless BlackBerryFrom: "valerie_delaney" <vad61@...>Sender: Date: Sun, 15 May 2011 20:41:42 -0000< >Reply Subject: [ ] Re: Hi everyone! Peggy,Bonnie is absolutely correct. Lawyers are commited to providing a certain amount of pro bono work and many work along with these sites. Check out these sites:www.legalaidnc.org 1-877-903-2100www.usattorneylegalservices.com/free-legal-aid-North-Carolina.htmlwww.lawhelp.org/NCAs a last resort, I know of a woman who couldn't afford an attorney either and you know what she did? She called the most expensive lawyer she could find and guess what he did it pro bono for her!! I have a co-worker who took the same route - that guy didn't take on her case BUT.....he led her to a female attorney who did it for free!! Ask, ask, ask - at the very least the answer will be no and you'll be no worse for the wear than where you are right now. Good luck, let us know how you make out! D>> Peggy,> > My sister is going though a divorce in California. She has money > issues and can't afford an attorney right now, but she has found good > legal help through the Legal Aide Society. Maybe you can find > something like that in North Carolina.> > Good luck.> > Bonnie> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 I hadn't realized that you'd already moved out, Peggy. yes, that can be an issue. Well, hopefully whom you will be seeing may be able to help you out. I'll keep my fingers crossed as I know what an expensive feat this process can be. Good luck! D > > > > Peggy, > > > > My sister is going though a divorce in California. She has money > > issues and can't afford an attorney right now, but she has found good > > legal help through the Legal Aide Society. Maybe you can find > > something like that in North Carolina. > > > > Good luck. > > > > Bonnie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 June, Dr. Glazer is located in Boston, and his office is within approximately a mile of Dr. Rand's office. He did my surgery in March. If you have any questions about him, I'd be happy to help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 HI D, I am glad your doing so great and am glad you posted. Though not everything is perfect you had a great outcome and it is important to share the uplifting results despite the hicups. Howe encouraging? Kudos... C > > Hi , > > So good to hear from you and even better to hear that you are doing so > well. I am so happy for you! You went through so much to get to this > good place. I remember that it took you a very long time to decide to > have revision surgery, but once you did, you went at it with a very > positive attitude, a factor that I think is very important in recovery > and in " reinventing " your life. I think we all do a bit of > " reinventing " our lives because of the huge change in our bodies and > the long length of recovery time and, often, some residual issues as > well. On top of that, as if it weren't enough to deal with, you've > had to send your son off to college and are going through a divorce. > You are a strong person and it sounds like you're handling all these > changes so well. I'm routing for you and I just know you'll deal with > everything and wind up with a very positive outcome. The fifties are > a great decade - you have a lot to look forward to. > > Best, > > Bonnie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 Dear Val D,I read your account, and am amazed and happy for you, and your surgeries outcome. The big picture is good, hiccups, but good, and I'm glad you have things back in your life that pain took away. I'm sorry about the marriage, dealing with a huge physical event can often show cracks in a married life, and I'm so sorry that happened for you. A lot to deal with in a years time frame. Ah sitting, still my least favorite thing to do, I really believe my revised body was made for walking. Hopefully you will find what I found that time away from surgery, it will get better, it did for me, but it took time. Here I am, 9 years from fusion to the sacrum, and still finding slight improvements in movement, so have hope. Mine took three surgeries to get me to the promised land, and worth every one, to get me where I am, grateful, and glad the pain is gone and function is back. Your story will inspire others, and I'm glad you shared the realness of it, perfection no, but pretty damned good, thats how I feel about my own story.Happy anniversary, it's a big milestone. YEAH!!!Colorado SpringsOn Sat, May 14, 2011 at 6:32 PM, valerie_delaney <vad61@...> wrote: Hi everyone! I have not posted in a very long time, but most of you know me. I have decided to stop by for a " visit " and give an update on my current status. As most of you know, I had a 3-stage revision last year - March, April and May of 2010. A year ago today, I was brought to rehabilitation whereby my recovery began. A whole year ago!! I recently saw Dr. Glazer (whom I ADORE!) for my one year follow-up and all is good! This is where things stand for me: I am now fused from C4-7 and T3 to the sacrum. I am standing straight. I can walk for long distances with no significant back pain or discomfort. Sitting can be more problematic, depending on the chair. I have yet to find a chair that I find comfortable as I feel better sitting on the backs of my thighs than I do actually sitting on my butt! So, slightly leaning forward I guess? I think the real issue is that if I sit leaning back at all, my tailbone hurts. Hence, I cannot sit on a sofa for any length of time or recline in a recliner or sit in a soft chair. It doesn't' hurt my back, but it does hurt my tailbone and my lumbar region will get achy. So I can't recline in bed at all either. So basically, sitting straight up or laying flat is what works best for me. I " mourn " the notion of " snuggling " up on the couch to say, read a book or magazine. Maybe one day? I returned to work part-time in November, 6 months after my 3rd surgery last May and returned full-time in 2 1/2 months later in January of this year. I have a 82 mile round trip commute each day, 45 min each way. My car is very comfortable and the ride is seldom an issue. I do still get tired easily but my strength improves all the time. I lost 35 lbs with my surgeries and have had no difficulty keeping it off even though I do no exercise other than simple walking. I think just being able to move in the slightest has helped me, as many of you that knew me before my surgeries knew that I was quite debilitated by my Flatback. I literally got to the point where I could no longer function at all. My surgeries were a traumatic, yet humbling experience and life has changed significantly for me during the past year. There are a lot of changes - my youngest graduated from High School three weeks after I got home from rehabilitation and then I sent him off to college 2 1/2 months later, I started working full-time for the first time in more than 23 years, I am currently in the process of a divorce after being married for 29 years and I am turning 50 next month! Some may wonder if I have anything to be happy about? The answer is YES!! Dr. Glazer gave me back what I had lost a very long time ago. I was in such pain for so, so long and sadly, I didn't even realize it! I just took on more and more pain. I feel so badly for that woman as it is as if she was someone different and not actually me!?! It definitely was a horrifying experience to endure but one that I would do again to gain what I now have. And that is a relatively pain-free existence. I hope and pray that we all have enduring success with these surgeries. My only regret is that I waited so long. I put everything, and I mean everything, on hold trying to wait for the " right " time to do it. As many of you know, I hemmed and hawed about it for 6 years before doing it and making that decision was the best thing I ever did. Yes, I have some residual issues - I have a recurring SI issue on my right hip, my knees are in rough shape despite having bilateral arthroscopy 2 years ago, one leg is shorter than the other and I have some neuropathy in my right leg and foot that has not improved unfortunately. But overall?? I am great! I am hopeful for a great future. I am relatively pain free. I am thrilled that I found Dr. Glazer and received fabulous care and support from this man whom I now consider a friend and more than anything, I GRATEFUL! So very, very grateful!! This group is filled with so many supportive, knowledgeable and wonderful people. To ALL that have supported me and helped me along the way - although I may not keep in touch, please know that you are all in my heart and I think of you often! With love and appreciation and I pray that all of you are feeling well!! God bless each and every one of you!! Fondly, D (RI) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 I wonder if those seat cushions that have the section cut out for the tailbone would help, especially in memory foam? LlweynSent from my BlackBerry device on the Wireless NetworkFrom: Kirkaldie <susan.kirkaldie@...>Sender: Date: Mon, 16 May 2011 07:47:31 -0600< >Reply Subject: Re: [ ] Hi everyone! Dear Val D,I read your account, and am amazed and happy for you, and your surgeries outcome. The big picture is good, hiccups, but good, and I'm glad you have things back in your life that pain took away. I'm sorry about the marriage, dealing with a huge physical event can often show cracks in a married life, and I'm so sorry that happened for you. A lot to deal with in a years time frame.Ah sitting, still my least favorite thing to do, I really believe my revised body was made for walking. Hopefully you will find what I found that time away from surgery, it will get better, it did for me, but it took time. Here I am, 9 years from fusion to the sacrum, and still finding slight improvements in movement, so have hope. Mine took three surgeries to get me to the promised land, and worth every one, to get me where I am, grateful, and glad the pain is gone and function is back.Your story will inspire others, and I'm glad you shared the realness of it, perfection no, but pretty damned good, thats how I feel about my own story.Happy anniversary, it's a big milestone.YEAH!!!Colorado SpringsOn Sat, May 14, 2011 at 6:32 PM, valerie_delaney <vad61@...> wrote: Hi everyone!I have not posted in a very long time, but most of you know me. I have decided to stop by for a " visit " and give an update on my current status. As most of you know, I had a 3-stage revision last year - March, April and May of 2010. A year ago today, I was brought to rehabilitation whereby my recovery began. A whole year ago!!I recently saw Dr. Glazer (whom I ADORE!) for my one year follow-up and all is good! This is where things stand for me:I am now fused from C4-7 and T3 to the sacrum. I am standing straight. I can walk for long distances with no significant back pain or discomfort. Sitting can be more problematic, depending on the chair. I have yet to find a chair that I find comfortable as I feel better sitting on the backs of my thighs than I do actually sitting on my butt! So, slightly leaning forward I guess? I think the real issue is that if I sit leaning back at all, my tailbone hurts. Hence, I cannot sit on a sofa for any length of time or recline in a recliner or sit in a soft chair. It doesn't' hurt my back, but it does hurt my tailbone and my lumbar region will get achy. So I can't recline in bed at all either. So basically, sitting straight up or laying flat is what works best for me. I " mourn " the notion of " snuggling " up on the couch to say, read a book or magazine. Maybe one day? I returned to work part-time in November, 6 months after my 3rd surgery last May and returned full-time in 2 1/2 months later in January of this year. I have a 82 mile round trip commute each day, 45 min each way. My car is very comfortable and the ride is seldom an issue. I do still get tired easily but my strength improves all the time. I lost 35 lbs with my surgeries and have had no difficulty keeping it off even though I do no exercise other than simple walking. I think just being able to move in the slightest has helped me, as many of you that knew me before my surgeries knew that I was quite debilitated by my Flatback. I literally got to the point where I could no longer function at all. My surgeries were a traumatic, yet humbling experience and life has changed significantly for me during the past year. There are a lot of changes - my youngest graduated from High School three weeks after I got home from rehabilitation and then I sent him off to college 2 1/2 months later, I started working full-time for the first time in more than 23 years, I am currently in the process of a divorce after being married for 29 years and I am turning 50 next month! Some may wonder if I have anything to be happy about? The answer is YES!! Dr. Glazer gave me back what I had lost a very long time ago. I was in such pain for so, so long and sadly, I didn't even realize it! I just took on more and more pain. I feel so badly for that woman as it is as if she was someone different and not actually me!?! It definitely was a horrifying experience to endure but one that I would do again to gain what I now have. And that is a relatively pain-free existence. I hope and pray that we all have enduring success with these surgeries. My only regret is that I waited so long. I put everything, and I mean everything, on hold trying to wait for the " right " time to do it. As many of you know, I hemmed and hawed about it for 6 years before doing it and making that decision was the best thing I ever did. Yes, I have some residual issues - I have a recurring SI issue on my right hip, my knees are in rough shape despite having bilateral arthroscopy 2 years ago, one leg is shorter than the other and I have some neuropathy in my right leg and foot that has not improved unfortunately. But overall?? I am great! I am hopeful for a great future. I am relatively pain free. I am thrilled that I found Dr. Glazer and received fabulous care and support from this man whom I now consider a friend and more than anything, I GRATEFUL! So very, very grateful!!This group is filled with so many supportive, knowledgeable and wonderful people. To ALL that have supported me and helped me along the way - although I may not keep in touch, please know that you are all in my heart and I think of you often! With love and appreciation and I pray that all of you are feeling well!! God bless each and every one of you!!Fondly, D (RI) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 Thanks, Val C! And your weekend is encouraging to all of us! D > > > > Hi , > > > > So good to hear from you and even better to hear that you are doing so > > well. I am so happy for you! You went through so much to get to this > > good place. I remember that it took you a very long time to decide to > > have revision surgery, but once you did, you went at it with a very > > positive attitude, a factor that I think is very important in recovery > > and in " reinventing " your life. I think we all do a bit of > > " reinventing " our lives because of the huge change in our bodies and > > the long length of recovery time and, often, some residual issues as > > well. On top of that, as if it weren't enough to deal with, you've > > had to send your son off to college and are going through a divorce. > > You are a strong person and it sounds like you're handling all these > > changes so well. I'm routing for you and I just know you'll deal with > > everything and wind up with a very positive outcome. The fifties are > > a great decade - you have a lot to look forward to. > > > > Best, > > > > Bonnie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 Thanks, !! It is a milestone! As you say, not a perfect one, but a damn fine one! D > > > > > > > Hi everyone! > > > > I have not posted in a very long time, but most of you know me. I have > > decided to stop by for a " visit " and give an update on my current status. As > > most of you know, I had a 3-stage revision last year - March, April and May > > of 2010. A year ago today, I was brought to rehabilitation whereby my > > recovery began. A whole year ago!! > > > > I recently saw Dr. Glazer (whom I ADORE!) for my one year follow-up and all > > is good! > > > > This is where things stand for me: > > > > I am now fused from C4-7 and T3 to the sacrum. I am standing straight. I > > can walk for long distances with no significant back pain or discomfort. > > Sitting can be more problematic, depending on the chair. I have yet to find > > a chair that I find comfortable as I feel better sitting on the backs of my > > thighs than I do actually sitting on my butt! So, slightly leaning forward I > > guess? I think the real issue is that if I sit leaning back at all, my > > tailbone hurts. Hence, I cannot sit on a sofa for any length of time or > > recline in a recliner or sit in a soft chair. It doesn't' hurt my back, but > > it does hurt my tailbone and my lumbar region will get achy. So I can't > > recline in bed at all either. So basically, sitting straight up or laying > > flat is what works best for me. I " mourn " the notion of " snuggling " up on > > the couch to say, read a book or magazine. Maybe one day? > > > > I returned to work part-time in November, 6 months after my 3rd surgery > > last May and returned full-time in 2 1/2 months later in January of this > > year. I have a 82 mile round trip commute each day, 45 min each way. My car > > is very comfortable and the ride is seldom an issue. I do still get tired > > easily but my strength improves all the time. I lost 35 lbs with my > > surgeries and have had no difficulty keeping it off even though I do no > > exercise other than simple walking. I think just being able to move in the > > slightest has helped me, as many of you that knew me before my surgeries > > knew that I was quite debilitated by my Flatback. I literally got to the > > point where I could no longer function at all. > > > > My surgeries were a traumatic, yet humbling experience and life has changed > > significantly for me during the past year. There are a lot of changes - my > > youngest graduated from High School three weeks after I got home from > > rehabilitation and then I sent him off to college 2 1/2 months later, I > > started working full-time for the first time in more than 23 years, I am > > currently in the process of a divorce after being married for 29 years and I > > am turning 50 next month! > > > > Some may wonder if I have anything to be happy about? The answer is YES!! > > Dr. Glazer gave me back what I had lost a very long time ago. I was in such > > pain for so, so long and sadly, I didn't even realize it! I just took on > > more and more pain. I feel so badly for that woman as it is as if she was > > someone different and not actually me!?! It definitely was a horrifying > > experience to endure but one that I would do again to gain what I now have. > > And that is a relatively pain-free existence. I hope and pray that we all > > have enduring success with these surgeries. > > > > My only regret is that I waited so long. I put everything, and I mean > > everything, on hold trying to wait for the " right " time to do it. As many of > > you know, I hemmed and hawed about it for 6 years before doing it and making > > that decision was the best thing I ever did. Yes, I have some residual > > issues - I have a recurring SI issue on my right hip, my knees are in rough > > shape despite having bilateral arthroscopy 2 years ago, one leg is shorter > > than the other and I have some neuropathy in my right leg and foot that has > > not improved unfortunately. But overall?? I am great! I am hopeful for a > > great future. I am relatively pain free. I am thrilled that I found Dr. > > Glazer and received fabulous care and support from this man whom I now > > consider a friend and more than anything, I GRATEFUL! So very, very > > grateful!! > > > > This group is filled with so many supportive, knowledgeable and wonderful > > people. To ALL that have supported me and helped me along the way - although > > I may not keep in touch, please know that you are all in my heart and I > > think of you often! With love and appreciation and I pray that all of you > > are feeling well!! God bless each and every one of you!! > > > > Fondly, > > D (RI) > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 I bought one a few weeks ago. I used it for about a week and gave up on it. If anyone wants it, let me know. -- > > > > > > > Hi everyone! > > > > I have not posted in a very long time, but most of you know me. I have > > decided to stop by for a " visit " and give an update on my current status. As > > most of you know, I had a 3-stage revision last year - March, April and May > > of 2010. A year ago today, I was brought to rehabilitation whereby my > > recovery began. A whole year ago!! > > > > I recently saw Dr. Glazer (whom I ADORE!) for my one year follow-up and all > > is good! > > > > This is where things stand for me: > > > > I am now fused from C4-7 and T3 to the sacrum. I am standing straight. I > > can walk for long distances with no significant back pain or discomfort. > > Sitting can be more problematic, depending on the chair. I have yet to find > > a chair that I find comfortable as I feel better sitting on the backs of my > > thighs than I do actually sitting on my butt! So, slightly leaning forward I > > guess? I think the real issue is that if I sit leaning back at all, my > > tailbone hurts. Hence, I cannot sit on a sofa for any length of time or > > recline in a recliner or sit in a soft chair. It doesn't' hurt my back, but > > it does hurt my tailbone and my lumbar region will get achy. So I can't > > recline in bed at all either. So basically, sitting straight up or laying > > flat is what works best for me. I " mourn " the notion of " snuggling " up on > > the couch to say, read a book or magazine. Maybe one day? > > > > I returned to work part-time in November, 6 months after my 3rd surgery > > last May and returned full-time in 2 1/2 months later in January of this > > year. I have a 82 mile round trip commute each day, 45 min each way. My car > > is very comfortable and the ride is seldom an issue. I do still get tired > > easily but my strength improves all the time. I lost 35 lbs with my > > surgeries and have had no difficulty keeping it off even though I do no > > exercise other than simple walking. I think just being able to move in the > > slightest has helped me, as many of you that knew me before my surgeries > > knew that I was quite debilitated by my Flatback. I literally got to the > > point where I could no longer function at all. > > > > My surgeries were a traumatic, yet humbling experience and life has changed > > significantly for me during the past year. There are a lot of changes - my > > youngest graduated from High School three weeks after I got home from > > rehabilitation and then I sent him off to college 2 1/2 months later, I > > started working full-time for the first time in more than 23 years, I am > > currently in the process of a divorce after being married for 29 years and I > > am turning 50 next month! > > > > Some may wonder if I have anything to be happy about? The answer is YES!! > > Dr. Glazer gave me back what I had lost a very long time ago. I was in such > > pain for so, so long and sadly, I didn't even realize it! I just took on > > more and more pain. I feel so badly for that woman as it is as if she was > > someone different and not actually me!?! It definitely was a horrifying > > experience to endure but one that I would do again to gain what I now have. > > And that is a relatively pain-free existence. I hope and pray that we all > > have enduring success with these surgeries. > > > > My only regret is that I waited so long. I put everything, and I mean > > everything, on hold trying to wait for the " right " time to do it. As many of > > you know, I hemmed and hawed about it for 6 years before doing it and making > > that decision was the best thing I ever did. Yes, I have some residual > > issues - I have a recurring SI issue on my right hip, my knees are in rough > > shape despite having bilateral arthroscopy 2 years ago, one leg is shorter > > than the other and I have some neuropathy in my right leg and foot that has > > not improved unfortunately. But overall?? I am great! I am hopeful for a > > great future. I am relatively pain free. I am thrilled that I found Dr. > > Glazer and received fabulous care and support from this man whom I now > > consider a friend and more than anything, I GRATEFUL! So very, very > > grateful!! > > > > This group is filled with so many supportive, knowledgeable and wonderful > > people. To ALL that have supported me and helped me along the way - although > > I may not keep in touch, please know that you are all in my heart and I > > think of you often! With love and appreciation and I pray that all of you > > are feeling well!! God bless each and every one of you!! > > > > Fondly, > > D (RI) > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 , I have been wanting to try one of those cushions. I would gladly send you the money for shipping.DerondaFrom: <linda.racine@...>Subject: [ ] Re: Hi everyone! Date: Tuesday, May 17, 2011, 5:19 PM I bought one a few weeks ago. I used it for about a week and gave up on it. If anyone wants it, let me know. -- > > > > > > > Hi everyone! > > > > I have not posted in a very long time, but most of you know me. I have > > decided to stop by for a "visit" and give an update on my current status. As > > most of you know, I had a 3-stage revision last year - March, April and May > > of 2010. A year ago today, I was brought to rehabilitation whereby my > > recovery began. A whole year ago!! > > > > I recently saw Dr. Glazer (whom I ADORE!) for my one year follow-up and all > > is good! > > > > This is where things stand for me: > > > > I am now fused from C4-7 and T3 to the sacrum. I am standing straight. I > > can walk for long distances with no significant back pain or discomfort. > > Sitting can be more problematic, depending on the chair. I have yet to find > > a chair that I find comfortable as I feel better sitting on the backs of my > > thighs than I do actually sitting on my butt! So, slightly leaning forward I > > guess? I think the real issue is that if I sit leaning back at all, my > > tailbone hurts. Hence, I cannot sit on a sofa for any length of time or > > recline in a recliner or sit in a soft chair. It doesn't' hurt my back, but > > it does hurt my tailbone and my lumbar region will get achy. So I can't > > recline in bed at all either. So basically, sitting straight up or laying > > flat is what works best for me. I "mourn" the notion of "snuggling" up on > > the couch to say, read a book or magazine. Maybe one day? > > > > I returned to work part-time in November, 6 months after my 3rd surgery > > last May and returned full-time in 2 1/2 months later in January of this > > year. I have a 82 mile round trip commute each day, 45 min each way. My car > > is very comfortable and the ride is seldom an issue. I do still get tired > > easily but my strength improves all the time. I lost 35 lbs with my > > surgeries and have had no difficulty keeping it off even though I do no > > exercise other than simple walking. I think just being able to move in the > > slightest has helped me, as many of you that knew me before my surgeries > > knew that I was quite debilitated by my Flatback. I literally got to the > > point where I could no longer function at all. > > > > My surgeries were a traumatic, yet humbling experience and life has changed > > significantly for me during the past year. There are a lot of changes - my > > youngest graduated from High School three weeks after I got home from > > rehabilitation and then I sent him off to college 2 1/2 months later, I > > started working full-time for the first time in more than 23 years, I am > > currently in the process of a divorce after being married for 29 years and I > > am turning 50 next month! > > > > Some may wonder if I have anything to be happy about? The answer is YES!! > > Dr. Glazer gave me back what I had lost a very long time ago. I was in such > > pain for so, so long and sadly, I didn't even realize it! I just took on > > more and more pain. I feel so badly for that woman as it is as if she was > > someone different and not actually me!?! It definitely was a horrifying > > experience to endure but one that I would do again to gain what I now have. > > And that is a relatively pain-free existence. I hope and pray that we all > > have enduring success with these surgeries. > > > > My only regret is that I waited so long. I put everything, and I mean > > everything, on hold trying to wait for the "right" time to do it. As many of > > you know, I hemmed and hawed about it for 6 years before doing it and making > > that decision was the best thing I ever did. Yes, I have some residual > > issues - I have a recurring SI issue on my right hip, my knees are in rough > > shape despite having bilateral arthroscopy 2 years ago, one leg is shorter > > than the other and I have some neuropathy in my right leg and foot that has > > not improved unfortunately. But overall?? I am great! I am hopeful for a > > great future. I am relatively pain free. I am thrilled that I found Dr. > > Glazer and received fabulous care and support from this man whom I now > > consider a friend and more than anything, I GRATEFUL! So very, very > > grateful!! > > > > This group is filled with so many supportive, knowledgeable and wonderful > > people. To ALL that have supported me and helped me along the way - although > > I may not keep in touch, please know that you are all in my heart and I > > think of you often! With love and appreciation and I pray that all of you > > are feeling well!! God bless each and every one of you!! > > > > Fondly, > > D (RI) > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2011 Report Share Posted May 18, 2011 Hi Deronda... No problem. Send your full name and address to me at lindaracine @ earthlink.net (without the spaces). -- > > > > > > > > > > > > > > > Hi everyone! > > > > > > > > I have not posted in a very long time, but most of you know me. I have > > > > decided to stop by for a " visit " and give an update on my current status. As > > > > most of you know, I had a 3-stage revision last year - March, April and May > > > > of 2010. A year ago today, I was brought to rehabilitation whereby my > > > > recovery began. A whole year ago!! > > > > > > > > I recently saw Dr. Glazer (whom I ADORE!) for my one year follow-up and all > > > > is good! > > > > > > > > This is where things stand for me: > > > > > > > > I am now fused from C4-7 and T3 to the sacrum. I am standing straight. I > > > > can walk for long distances with no significant back pain or discomfort. > > > > Sitting can be more problematic, depending on the chair. I have yet to find > > > > a chair that I find comfortable as I feel better sitting on the backs of my > > > > thighs than I do actually sitting on my butt! So, slightly leaning forward I > > > > guess? I think the real issue is that if I sit leaning back at all, my > > > > tailbone hurts. Hence, I cannot sit on a sofa for any length of time or > > > > recline in a recliner or sit in a soft chair. It doesn't' hurt my back, but > > > > it does hurt my tailbone and my lumbar region will get achy. So I can't > > > > recline in bed at all either. So basically, sitting straight up or laying > > > > flat is what works best for me. I " mourn " the notion of " snuggling " up on > > > > the couch to say, read a book or magazine. Maybe one day? > > > > > > > > I returned to work part-time in November, 6 months after my 3rd surgery > > > > last May and returned full-time in 2 1/2 months later in January of this > > > > year. I have a 82 mile round trip commute each day, 45 min each way. My car > > > > is very comfortable and the ride is seldom an issue. I do still get tired > > > > easily but my strength improves all the time. I lost 35 lbs with my > > > > surgeries and have had no difficulty keeping it off even though I do no > > > > exercise other than simple walking. I think just being able to move in the > > > > slightest has helped me, as many of you that knew me before my surgeries > > > > knew that I was quite debilitated by my Flatback. I literally got to the > > > > point where I could no longer function at all. > > > > > > > > My surgeries were a traumatic, yet humbling experience and life has changed > > > > significantly for me during the past year. There are a lot of changes - my > > > > youngest graduated from High School three weeks after I got home from > > > > rehabilitation and then I sent him off to college 2 1/2 months later, I > > > > started working full-time for the first time in more than 23 years, I am > > > > currently in the process of a divorce after being married for 29 years and I > > > > am turning 50 next month! > > > > > > > > Some may wonder if I have anything to be happy about? The answer is YES!! > > > > Dr. Glazer gave me back what I had lost a very long time ago. I was in such > > > > pain for so, so long and sadly, I didn't even realize it! I just took on > > > > more and more pain. I feel so badly for that woman as it is as if she was > > > > someone different and not actually me!?! It definitely was a horrifying > > > > experience to endure but one that I would do again to gain what I now have. > > > > And that is a relatively pain-free existence. I hope and pray that we all > > > > have enduring success with these surgeries. > > > > > > > > My only regret is that I waited so long. I put everything, and I mean > > > > everything, on hold trying to wait for the " right " time to do it. As many of > > > > you know, I hemmed and hawed about it for 6 years before doing it and making > > > > that decision was the best thing I ever did. Yes, I have some residual > > > > issues - I have a recurring SI issue on my right hip, my knees are in rough > > > > shape despite having bilateral arthroscopy 2 years ago, one leg is shorter > > > > than the other and I have some neuropathy in my right leg and foot that has > > > > not improved unfortunately. But overall?? I am great! I am hopeful for a > > > > great future. I am relatively pain free. I am thrilled that I found Dr. > > > > Glazer and received fabulous care and support from this man whom I now > > > > consider a friend and more than anything, I GRATEFUL! So very, very > > > > grateful!! > > > > > > > > This group is filled with so many supportive, knowledgeable and wonderful > > > > people. To ALL that have supported me and helped me along the way - although > > > > I may not keep in touch, please know that you are all in my heart and I > > > > think of you often! With love and appreciation and I pray that all of you > > > > are feeling well!! God bless each and every one of you!! > > > > > > > > Fondly, > > > > D (RI) > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011 Thanks I sent you an email from netzero From: <linda.racine@...>Subject: [ ] Re: Hi everyone! Date: Tuesday, May 17, 2011, 5:19 PM I bought one a few weeks ago. I used it for about a week and gave up on it. If anyone wants it, let me know. -- > > > > > > > Hi everyone! > > > > I have not posted in a very long time, but most of you know me. I have > > decided to stop by for a "visit" and give an update on my current status. As > > most of you know, I had a 3-stage revision last year - March, April and May > > of 2010. A year ago today, I was brought to rehabilitation whereby my > > recovery began. A whole year ago!! > > > > I recently saw Dr. Glazer (whom I ADORE!) for my one year follow-up and all > > is good! > > > > This is where things stand for me: > > > > I am now fused from C4-7 and T3 to the sacrum. I am standing straight. I > > can walk for long distances with no significant back pain or discomfort. > > Sitting can be more problematic, depending on the chair. I have yet to find > > a chair that I find comfortable as I feel better sitting on the backs of my > > thighs than I do actually sitting on my butt! So, slightly leaning forward I > > guess? I think the real issue is that if I sit leaning back at all, my > > tailbone hurts. Hence, I cannot sit on a sofa for any length of time or > > recline in a recliner or sit in a soft chair. It doesn't' hurt my back, but > > it does hurt my tailbone and my lumbar region will get achy. So I can't > > recline in bed at all either. So basically, sitting straight up or laying > > flat is what works best for me. I "mourn" the notion of "snuggling" up on > > the couch to say, read a book or magazine. Maybe one day? > > > > I returned to work part-time in November, 6 months after my 3rd surgery > > last May and returned full-time in 2 1/2 months later in January of this > > year. I have a 82 mile round trip commute each day, 45 min each way. My car > > is very comfortable and the ride is seldom an issue. I do still get tired > > easily but my strength improves all the time. I lost 35 lbs with my > > surgeries and have had no difficulty keeping it off even though I do no > > exercise other than simple walking. I think just being able to move in the > > slightest has helped me, as many of you that knew me before my surgeries > > knew that I was quite debilitated by my Flatback. I literally got to the > > point where I could no longer function at all. > > > > My surgeries were a traumatic, yet humbling experience and life has changed > > significantly for me during the past year. There are a lot of changes - my > > youngest graduated from High School three weeks after I got home from > > rehabilitation and then I sent him off to college 2 1/2 months later, I > > started working full-time for the first time in more than 23 years, I am > > currently in the process of a divorce after being married for 29 years and I > > am turning 50 next month! > > > > Some may wonder if I have anything to be happy about? The answer is YES!! > > Dr. Glazer gave me back what I had lost a very long time ago. I was in such > > pain for so, so long and sadly, I didn't even realize it! I just took on > > more and more pain. I feel so badly for that woman as it is as if she was > > someone different and not actually me!?! It definitely was a horrifying > > experience to endure but one that I would do again to gain what I now have. > > And that is a relatively pain-free existence. I hope and pray that we all > > have enduring success with these surgeries. > > > > My only regret is that I waited so long. I put everything, and I mean > > everything, on hold trying to wait for the "right" time to do it. As many of > > you know, I hemmed and hawed about it for 6 years before doing it and making > > that decision was the best thing I ever did. Yes, I have some residual > > issues - I have a recurring SI issue on my right hip, my knees are in rough > > shape despite having bilateral arthroscopy 2 years ago, one leg is shorter > > than the other and I have some neuropathy in my right leg and foot that has > > not improved unfortunately. But overall?? I am great! I am hopeful for a > > great future. I am relatively pain free. I am thrilled that I found Dr. > > Glazer and received fabulous care and support from this man whom I now > > consider a friend and more than anything, I GRATEFUL! So very, very > > grateful!! > > > > This group is filled with so many supportive, knowledgeable and wonderful > > people. To ALL that have supported me and helped me along the way - although > > I may not keep in touch, please know that you are all in my heart and I > > think of you often! With love and appreciation and I pray that all of you > > are feeling well!! God bless each and every one of you!! > > > > Fondly, > > D (RI) > > > > > > > Quote Link to comment Share on other sites More sharing options...
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