Guest guest Posted March 24, 2001 Report Share Posted March 24, 2001 In a message dated 3/24/01 4:42:57 PM Central Standard Time, lizwizz2000@... writes: << I remember how badly you used to feel!! >> Lets try to forget! LOL love, kp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2001 Report Share Posted March 24, 2001 --- Idigflower@... wrote: > I am very curios have any of you had a bad rash or > skin thingy (lol) that the > DR has biopsies? (I am not talking about cartlidge), > just skin. > > I would like to know and compare some notes if you > have the pathology report. > > And also how many of you get sores, rashes, or am > sun sensitive from the sun. > > Also would like to know how many of you have skin > manifestation related to > the RP (I think my skin problem is not the RP, but > maybe discoid Lupus). > > My " skin " biopsy was POS for Lupus but my blood > was NEG so they say my skin > problems are all part of my RP, I have a very hard > time believing that > although we do have antibodies to collagen and skin > is made of collagen > right? any one out there that can help me on this > one? > P > , I had an awful rash on my leg for about a year before my dx and the rheumy sent me to a dermatologist, they checked for lupus which I don't have, fortunately, and they said the skin rash was 'allergic' but I haven't had it back since I started the rp meds. Who knows?... Love Liz PS So glad you are feeling so much better, I remember how badly you used to feel!! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2001 Report Share Posted March 24, 2001 --- Idigflower@... wrote: > I am very curios have any of you had a bad rash or > skin thingy (lol) that the > DR has biopsies? (I am not talking about cartlidge), > just skin. > > I would like to know and compare some notes if you > have the pathology report. > > And also how many of you get sores, rashes, or am > sun sensitive from the sun. > > Also would like to know how many of you have skin > manifestation related to > the RP (I think my skin problem is not the RP, but > maybe discoid Lupus). > > My " skin " biopsy was POS for Lupus but my blood > was NEG so they say my skin > problems are all part of my RP, I have a very hard > time believing that > although we do have antibodies to collagen and skin > is made of collagen > right? any one out there that can help me on this > one? > P > , I had an awful rash on my leg for about a year before my dx and the rheumy sent me to a dermatologist, they checked for lupus which I don't have, fortunately, and they said the skin rash was 'allergic' but I haven't had it back since I started the rp meds. Who knows?... Love Liz PS So glad you are feeling so much better, I remember how badly you used to feel!! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2001 Report Share Posted March 24, 2001 --- Idigflower@... wrote: > I am very curios have any of you had a bad rash or > skin thingy (lol) that the > DR has biopsies? (I am not talking about cartlidge), > just skin. > > I would like to know and compare some notes if you > have the pathology report. > > And also how many of you get sores, rashes, or am > sun sensitive from the sun. > > Also would like to know how many of you have skin > manifestation related to > the RP (I think my skin problem is not the RP, but > maybe discoid Lupus). > > My " skin " biopsy was POS for Lupus but my blood > was NEG so they say my skin > problems are all part of my RP, I have a very hard > time believing that > although we do have antibodies to collagen and skin > is made of collagen > right? any one out there that can help me on this > one? > P > , I had an awful rash on my leg for about a year before my dx and the rheumy sent me to a dermatologist, they checked for lupus which I don't have, fortunately, and they said the skin rash was 'allergic' but I haven't had it back since I started the rp meds. Who knows?... Love Liz PS So glad you are feeling so much better, I remember how badly you used to feel!! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 , I had a skin biopsy done about 12 years ago for growths on the back of my hands. The report was inconclusive. All they could tell me was the growths were not malignant. Also had a severe skin rash back then that they thought was Lupus but I tested negative. I now have disc shaped growths on all my finger joints that flare. They get red and burn. My Rheumy said they are Gottron Patches and indicate connective tissue disease. Sandy > I am very curios have any of you had a bad rash or skin thingy (lol) that the > DR has biopsies? (I am not talking about cartlidge), just skin. > > I would like to know and compare some notes if you have the pathology report. > > And also how many of you get sores, rashes, or am sun sensitive from the sun. > > Also would like to know how many of you have skin manifestation related to > the RP (I think my skin problem is not the RP, but maybe discoid Lupus). > > My " skin " biopsy was POS for Lupus but my blood was NEG so they say my skin > problems are all part of my RP, I have a very hard time believing that > although we do have antibodies to collagen and skin is made of collagen > right? any one out there that can help me on this one? > P > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 , I had a skin biopsy done about 12 years ago for growths on the back of my hands. The report was inconclusive. All they could tell me was the growths were not malignant. Also had a severe skin rash back then that they thought was Lupus but I tested negative. I now have disc shaped growths on all my finger joints that flare. They get red and burn. My Rheumy said they are Gottron Patches and indicate connective tissue disease. Sandy > I am very curios have any of you had a bad rash or skin thingy (lol) that the > DR has biopsies? (I am not talking about cartlidge), just skin. > > I would like to know and compare some notes if you have the pathology report. > > And also how many of you get sores, rashes, or am sun sensitive from the sun. > > Also would like to know how many of you have skin manifestation related to > the RP (I think my skin problem is not the RP, but maybe discoid Lupus). > > My " skin " biopsy was POS for Lupus but my blood was NEG so they say my skin > problems are all part of my RP, I have a very hard time believing that > although we do have antibodies to collagen and skin is made of collagen > right? any one out there that can help me on this one? > P > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 , I had a skin biopsy done about 12 years ago for growths on the back of my hands. The report was inconclusive. All they could tell me was the growths were not malignant. Also had a severe skin rash back then that they thought was Lupus but I tested negative. I now have disc shaped growths on all my finger joints that flare. They get red and burn. My Rheumy said they are Gottron Patches and indicate connective tissue disease. Sandy > I am very curios have any of you had a bad rash or skin thingy (lol) that the > DR has biopsies? (I am not talking about cartlidge), just skin. > > I would like to know and compare some notes if you have the pathology report. > > And also how many of you get sores, rashes, or am sun sensitive from the sun. > > Also would like to know how many of you have skin manifestation related to > the RP (I think my skin problem is not the RP, but maybe discoid Lupus). > > My " skin " biopsy was POS for Lupus but my blood was NEG so they say my skin > problems are all part of my RP, I have a very hard time believing that > although we do have antibodies to collagen and skin is made of collagen > right? any one out there that can help me on this one? > P > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 In a message dated 3/25/01 4:59:40 PM Central Standard Time, biglou5685@... writes: << They get red and burn. My Rheumy said they are Gottron Patches and indicate connective tissue disease. Sandy >> Thank you sandy, I also get the red, burning rashes also and they told me also I have in addition to RP an connective tissue disorder, but I dont know what, all my skin is ugly and distoyed and it all hapened in the last 2 years. karen p Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 In a message dated 3/25/01 4:59:40 PM Central Standard Time, biglou5685@... writes: << They get red and burn. My Rheumy said they are Gottron Patches and indicate connective tissue disease. Sandy >> Thank you sandy, I also get the red, burning rashes also and they told me also I have in addition to RP an connective tissue disorder, but I dont know what, all my skin is ugly and distoyed and it all hapened in the last 2 years. karen p Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 In a message dated 3/25/01 8:57:25 PM Pacific Standard Time, Idigflower@... writes: << I have in addition to RP an connective tissue disorder, but I dont know what, all my skin is ugly and distoyed and it all hapened in the last 2 years. >> , this is what is happening to me now. They say mixed connective tissue disease, but don't know what. Does anyone know what the test for MCTD is called? My dr told me and I forgot......of course he didn't run the test. LOL that would be asking too much.LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 In a message dated 3/25/01 8:57:25 PM Pacific Standard Time, Idigflower@... writes: << I have in addition to RP an connective tissue disorder, but I dont know what, all my skin is ugly and distoyed and it all hapened in the last 2 years. >> , this is what is happening to me now. They say mixed connective tissue disease, but don't know what. Does anyone know what the test for MCTD is called? My dr told me and I forgot......of course he didn't run the test. LOL that would be asking too much.LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 In a message dated 3/25/01 8:57:25 PM Pacific Standard Time, Idigflower@... writes: << I have in addition to RP an connective tissue disorder, but I dont know what, all my skin is ugly and distoyed and it all hapened in the last 2 years. >> , this is what is happening to me now. They say mixed connective tissue disease, but don't know what. Does anyone know what the test for MCTD is called? My dr told me and I forgot......of course he didn't run the test. LOL that would be asking too much.LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 In a message dated 3/25/01 11:13:19 PM Central Standard Time, RCColloran@... writes: << , this is what is happening to me now. They say mixed connective tissue disease, but don't know what. Does anyone know what the test for MCTD is called? My dr told me and I forgot.... >> My Biopsy of the rashes showed grannural deposits/? KP Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 , since I had third degree sunburn last summer, I'd say I'm sun sensitive!!!!! I think I always have been, just gotten worse the past couple of years! Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 , Are the tests Ana and Anti-RNP? > >> > , this is what is happening to me now. They say mixed connective > tissue disease, but don't know what. Does anyone know what the test for MCTD > is called? My dr told me and I forgot......of course he didn't run the test. > LOL that would be asking too much.LOL > > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 In a message dated 3/26/01 7:27:00 AM Pacific Standard Time, biglou5685@... writes: << , Are the tests Ana and Anti-RNP? >> Sandy, no.... I had those done a few years ago. I think it had a number in it like ... blah blah blbah 17...LOL Boy shows how much I listen. LOL I'm going to see him tomorrow, I will ask. Thanks though... How are you doing. Are you still flaring? You know I'm always thinking of you girl.... Pray things get better. Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 Thats next for me too....I truly feel its Lupus and will follow through on that. Will let you know...... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 Thats next for me too....I truly feel its Lupus and will follow through on that. Will let you know...... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 I also have a very high ANA, damn why can't doctors get it together????Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 I also have a very high ANA, damn why can't doctors get it together????Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 > , > Yep, I'm still flaring. I've got doc appointments all day Friday so I'll see what my docs will do next. Love Ya, Sandy > >> > Sandy, no.... I had those done a few years ago. I think it had a number in > it like ... > blah blah blbah 17...LOL Boy shows how much I listen. LOL I'm going to > see him tomorrow, I will ask. Thanks though... How are you doing. Are you > still flaring? You know I'm always thinking of you girl.... Pray things get > better. > > Hugs > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 Sue, Don't you want to give those Docs a swift kick in the butt sometimes!! They treat the symptoms but they tend to overlook the big picture. Sandy > I also have a very high ANA, damn why can't doctors get it together????Sue > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2001 Report Share Posted March 29, 2001 Sandy, I pray the doctor finds something to help your flares. With everythng else going on in your life, you just don't need to be flaring! Attached are prayers and a wish for good luck! Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2001 Report Share Posted March 29, 2001 Ssandy/Sue, makes you wonder why we continur to bring in the lists of all our meds, since they don't seem to pay much attention to it unless it is something THEY prescribed! Frustrating. Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2001 Report Share Posted March 29, 2001 Ssandy/Sue, makes you wonder why we continur to bring in the lists of all our meds, since they don't seem to pay much attention to it unless it is something THEY prescribed! Frustrating. Love, Judy Quote Link to comment Share on other sites More sharing options...
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