Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 Hi , how have you been? Thing are finally getting back to normal around here. I have not been able to keep up with my emails because i have been so busy. I made my second trip to UCSD in Ca. This last trip i was out there on March 7-9. I had my stent changed. My first stent had scar tissue forming around it. It was a wire mesh stent. The stent that i have now is a silicone stent. This doctor dialated the area where he replaced the old stent. I feel so much better. I am so glad that my problem was not because i had active RP. I am down to 25mgs or pred and tapering very slowly. My Rhuemy is droppin my Metho as well. So i am just praying my RP i Quieting down or gone into remission. We'll see. Hello to the group Take care love veronica Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2001 Report Share Posted March 23, 2001 Congratulations, !!!!!!!!!!!!!!!! Keep it going! Love, Judy O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2001 Report Share Posted April 20, 2001 Oh , I have missed hearing from you. Hope you are doing well. Gosh I wish I lived closer to San Diego,(It's a 9 hr drive) then I could get to meet you. Can't wait til Sept. You are coming to Ok right??? Don't worry, I just know everything in San Diego will turn out just fine. How long have you had your trach? You have a safe trip and be sure to let me know what you find out when you get home. Know I'm thinking about you. Lots of love & hugs C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2001 Report Share Posted April 20, 2001 I've had this trach since Jan 99. Yes, I am coming to OK in sept Re: veronica Oh , I have missed hearing from you. Hope you are doing well. Gosh I wish I lived closer to San Diego,(It's a 9 hr drive) then I could get to meet you. Can't wait til Sept. You are coming to Ok right???Don't worry, I just know everything in San Diego will turn out just fine. How long have you had your trach? You have a safe trip and be sure to let me know what you find out when you get home. Know I'm thinking about you. Lots of love & hugs CDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 In a message dated 04/23/2001 2:28:40 PM Central Daylight Time, Ronnielyn27@... writes: << My neck was tender to touch, it hurt to swallow. This was back in Oct 97. >> Veronic, that's the weird thing, my throat doesn't hurt. I just get really, really hoarse and sometimes lose my voice altogther. Rheumy insisted the ENT go down my throat with the scope. ENT says my throat is fine. Weird, huh? Love, Judy Quote Link to comment Share on other sites More sharing options...
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