Re: RE:[MSA]RE:question to you

[Guest guest]

Hi Vera,

I am not Mike, but my youngest son had asthma and we have a nebulizer.

It worked better than the inhalers. The medicine gets into the lungs

better. My dr. has had me use his neb. when I have had pneumonia. My

mom has COPD, and just got medicare, so her dr. is going to put her on

one. She uses my son's right now. Hope this helps

wanda

[Guest guest]

Hi Vera,

I am not Mike, but my youngest son had asthma and we have a nebulizer.

It worked better than the inhalers. The medicine gets into the lungs

better. My dr. has had me use his neb. when I have had pneumonia. My

mom has COPD, and just got medicare, so her dr. is going to put her on

one. She uses my son's right now. Hope this helps

wanda

[Guest guest]

Hi Vera,

I am not Mike, but my youngest son had asthma and we have a nebulizer.

It worked better than the inhalers. The medicine gets into the lungs

better. My dr. has had me use his neb. when I have had pneumonia. My

mom has COPD, and just got medicare, so her dr. is going to put her on

one. She uses my son's right now. Hope this helps

wanda

[Guest guest]

Hi Vera, We have a nebulizer but ony use it when the nurse notices sound in the lungs, you put on a mask and put meds (liquid) in a cup attached to the mask, turn it on and it steams for about 5-10 min. This gets the meds into the lungs. Hope that explains it. Ginger

RE: RE: question to youVera,The strap and the cpap together help. Without the strap i would open my mouth and mess up the airflow. Before I started the Parkinson.s meds I had days when breathing was hard, I think because my right side was so rigid even my chest muscles were into the act. I don't have trouble per se breathing in the evenings. The one thing the cpap machine did though was stir up my allergies. So I take claritin intermittently otherwise I would sneeze all day. And just to keep with the right sided theme only the right side of my nose wanted to sneeze.But when I use the cpap, the strap and drink enough water I wake up in a lot better shape dry mouth wise. Before I had the cpap I used to take amitriptyline to help me sleep. Now that really gave me dry mouth throughout the day. I would be talking at work and literally get so dry I couldn't talk. I don't miss it. The cpap took a little getting used to but I can really tell the difference. Mike Plunkett

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[Guest guest]

Hi Vera, We have a nebulizer but ony use it when the nurse notices sound in the lungs, you put on a mask and put meds (liquid) in a cup attached to the mask, turn it on and it steams for about 5-10 min. This gets the meds into the lungs. Hope that explains it. Ginger

RE: RE: question to youVera,The strap and the cpap together help. Without the strap i would open my mouth and mess up the airflow. Before I started the Parkinson.s meds I had days when breathing was hard, I think because my right side was so rigid even my chest muscles were into the act. I don't have trouble per se breathing in the evenings. The one thing the cpap machine did though was stir up my allergies. So I take claritin intermittently otherwise I would sneeze all day. And just to keep with the right sided theme only the right side of my nose wanted to sneeze.But when I use the cpap, the strap and drink enough water I wake up in a lot better shape dry mouth wise. Before I had the cpap I used to take amitriptyline to help me sleep. Now that really gave me dry mouth throughout the day. I would be talking at work and literally get so dry I couldn't talk. I don't miss it. The cpap took a little getting used to but I can really tell the difference. Mike Plunkett

If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe

[Guest guest]

Hi Vera, We have a nebulizer but ony use it when the nurse notices sound in the lungs, you put on a mask and put meds (liquid) in a cup attached to the mask, turn it on and it steams for about 5-10 min. This gets the meds into the lungs. Hope that explains it. Ginger

RE: RE: question to youVera,The strap and the cpap together help. Without the strap i would open my mouth and mess up the airflow. Before I started the Parkinson.s meds I had days when breathing was hard, I think because my right side was so rigid even my chest muscles were into the act. I don't have trouble per se breathing in the evenings. The one thing the cpap machine did though was stir up my allergies. So I take claritin intermittently otherwise I would sneeze all day. And just to keep with the right sided theme only the right side of my nose wanted to sneeze.But when I use the cpap, the strap and drink enough water I wake up in a lot better shape dry mouth wise. Before I had the cpap I used to take amitriptyline to help me sleep. Now that really gave me dry mouth throughout the day. I would be talking at work and literally get so dry I couldn't talk. I don't miss it. The cpap took a little getting used to but I can really tell the difference. Mike Plunkett

If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe

[Guest guest]

I was told to stop using a nebulizer a while back by my doctor. A

nebulizer is an instrument that creates a vapor of medication that

you inhale through a mask or tube. It is much more efficient than an

inhaler and for some people it is a life-saver.

I am a life-long asthma sufferer and have had several serious attacks

(serious meaning enough to warrant a trip to the ER) in adulthood. I

thought my asthma had burned itself out when I got into my twenties -

that was until I found myself on top of a 14,000 peak in Colorado and

somehow it managed to come rushing back with a vengence. Since then,

I have had three to four serious attacks per year. They finally put

me on a nebulizer because I just could not get the medication into my

lungs with a normal inhaler.

Now, here's the part you need to keep in mind as MSA patients. The

typical medication used in an inhaler is Albutoral. (I'm not sure of

the spelling, but it's close to that.) That's the same medication

found in most prescription inhalers, it's just that with the

nebulizer, you get a much bigger whif.

The first really noticeable and identifiable symptom that I had with

MSA was tremors. I went to a neurologist and he thought I just

had " essential tremors " , and told me about the common meds used to

treat them, including our good friend clonazepam (aka Klonopin).

However, he told me he would not treat my tremors because I was using

albutoral and the only meds available to treat tremors

were " incompatible " with the asthma drugs. When my tremors got bad

enough that there was no choice but to treat them, I was taken off

the nebulizer (and albutoral) and put on a couple steroids

(Asthmacort and Rhinocort) instead, plus an extra strength dose of

Claritin. I was told never to use my nebulizer again - it would be

bad, like you know, crossing the streams and all that. (Sorry, I

can't resist obscure movie references.)

So, my only word of caution is that if you are like me and have an

entire platoon of doctors you visit, you must take it upon yourself

to make sure that Doctor A isn't giving you something that reacts

badly with what Doctor B is giving you. Keeping a written list of ALL

your medications and making sure you show it to ALL your doctors is a

good first step.

If you are sure you should use a nebulizer then let me add a second

caution. As an asthma sufferer, I am well aware of the effect of

hyper-ventilating. Do NOT use a nebulizer when you are hyper-

ventilating. Get the breathing under control first, then use the

nebulizer. If you don't, you might end up in the boat I did once - in

an ambulance, passed out cold with people slapping your face and

asking you if you can remember your name. You see, albutoral from a

nebulizer gives you quite the zing - it's like falling into a vat of

Starbucks espresso. In this excited state, if you're already hyper-

ventilating, you will be gasping worse than Starr after running

a marathon. The only way your body knows to calm you down at this

point is to knock you out... Hopefully, you won't be standing like I

was when this happens. I know it sounds counter-intuitive not to use

the nebulizer when it seems like you need it the most, but trust me

on this one...

> Mike:

> We're still waiting for the CPAP machine for Fred, along with a

Nebulizer

> that the Pulmonary Doctor wants him on. I'm hoping that it will

help him with

> the breathing. Have they ever had you on a Nebulizer? I haven't

heard anyone

> say anything on the group about having one. I wonder if anyone with

the

> breathing problem has used one and it helped.

> Fred's breathing starts getting bad about 3 or 4 pm and during the

night. He

> has an inhaler, but that doesn't seem to be of much help. Sure hope

we get

> the machines soon. Always have to fight for something.

>

> Take Care

> Vera

>

> *****************************************

>

> Subject: RE: RE: question to you

>

>

> Vera,

>

> The strap and the cpap together help. Without the strap i would

open my

> mouth and mess up the airflow. Before I started the Parkinson.s

meds I had

> days when breathing was hard, I think because my right side was so

rigid

> even my chest muscles were into the act. I don't have trouble per

se

> breathing in the evenings. The one thing the cpap machine did

though was

> stir up my allergies. So I take claritin intermittently otherwise

I would

> sneeze all day. And just to keep with the right sided theme only

the right

> side of my nose wanted to sneeze.

>

> But when I use the cpap, the strap and drink enough water I wake up

in a lot

> better shape dry mouth wise. Before I had the cpap I used to take

> amitriptyline to help me sleep. Now that really gave me dry mouth

throughout

> the day. I would be talking at work and literally get so dry I

couldn't

> talk. I don't miss it. The cpap took a little getting used to but

I can

> really tell the difference.

>

> Mike Plunkett

> >

> >

> >

[Guest guest]

Ask your doctor about a medication called ACCOLATE...There's no need for a nebulizer when you are taking this stuff. I'm a chronic asthma sufferer and since taking this medicine don't have the attacks I used to.

-- RE: RE: question to you> > > Vera,> > The strap and the cpap together help. Without the strap i would open my > mouth and mess up the airflow. Before I started the Parkinson.s meds I had > days when breathing was hard, I think because my right side was so rigid > even my chest muscles were into the act. I don't have trouble per se > breathing in the evenings. The one thing the cpap machine did though was > stir up my allergies. So I take claritin intermittently otherwise I would > sneeze all day. And just to keep with the right sided theme only the right > side of my nose wanted to sneeze.> > But when I use the cpap, the strap and drink enough water I wake up in a lot > better shape dry mouth wise. Before I had the cpap I used to take > amitriptyline to help me sleep. Now that really gave me dry mouth throughout > the day. I would be talking at work and literally get so dry I couldn't > talk. I don't miss it. The cpap took a little getting used to but I can > really tell the difference. > > Mike Plunkett> > > > > >If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe

[Guest guest]

,

It is okay to cross the streams just don't be thinking of the

StayPuft marshmallow man when you do it ;-)

Mike

> > Mike:

> > We're still waiting for the CPAP machine for Fred, along with a

> Nebulizer

> > that the Pulmonary Doctor wants him on. I'm hoping that it will

> help him with

> > the breathing. Have they ever had you on a Nebulizer? I haven't

> heard anyone

> > say anything on the group about having one. I wonder if anyone

with

> the

> > breathing problem has used one and it helped.

> > Fred's breathing starts getting bad about 3 or 4 pm and during

the

> night. He

> > has an inhaler, but that doesn't seem to be of much help. Sure

hope

> we get

> > the machines soon. Always have to fight for something.

> >

> > Take Care

> > Vera

> >

> > *****************************************

> >

> > Subject: RE: RE: question to you

> >

> >

> > Vera,

> >

> > The strap and the cpap together help. Without the strap i would

> open my

> > mouth and mess up the airflow. Before I started the Parkinson.s

> meds I had

> > days when breathing was hard, I think because my right side was

so

> rigid

> > even my chest muscles were into the act. I don't have trouble

per

> se

> > breathing in the evenings. The one thing the cpap machine did

> though was

> > stir up my allergies. So I take claritin intermittently

otherwise

> I would

> > sneeze all day. And just to keep with the right sided theme only

> the right

> > side of my nose wanted to sneeze.

> >

> > But when I use the cpap, the strap and drink enough water I wake

up

> in a lot

> > better shape dry mouth wise. Before I had the cpap I used to

take

> > amitriptyline to help me sleep. Now that really gave me dry

mouth

> throughout

> > the day. I would be talking at work and literally get so dry I

> couldn't

> > talk. I don't miss it. The cpap took a little getting used to

but

> I can

> > really tell the difference.

> >

> > Mike Plunkett

> > >

> > >

> > >