Guest guest Posted February 10, 2002 Report Share Posted February 10, 2002 A Rose is a Rose is a Rose to some of us and although we read all the ivory tower articles with hope for magic bullets for variations AND complete eradication of ALL symptoms we continue to share working methods of coping. Enthusiasm And Frustration are equally accepted and if YOUR symptoms are worth describing to experienced caregivers you will promptly be sent methods of coping that MOST doctors do not know exist. My 75 year old husband is a quadraplegic dx'd 6+ years ago. He has seen no doctor for over a year. I am sole caregiver far from practical medical care. His atrophy has pulled him into a rigid fetal position and he requires constant care. This forum is lifeline to newbies and survivors, both the educated and possibly some ineducable professionals. Unrestricted discussion is practiced with coping as goal. My once international computer consultant and marathon runner deserves the best care I can offer. Hospitals and nursing homes could benefit greatly from the advice shared on this forum. I have watched this group grow from 40 to 650 and KNOW the value of shared information on many levels. Expertise I do not have is sent as counsel I can understand and use. We do work for cures. We are all allotted an indeterminate lifetime. Our collective energies and capabilities CAN be constructive. Perhaps your symptoms lessened will allow you more patience and peace of mind. Accept, adjust, adapt and apply your talents toward solutions. Many here care enough to help no matter what the problems. Send your list to be considered. LA Louise in Cold Springhill where daffodils wave among the budding azaleas and frogs chirp their springtime requests. Quote Link to comment Share on other sites More sharing options...
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