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Re: MSA Study Group

> 10 February 2002

>

> Pam,

>

> Our Program Project Grant Application will be reviewed by NIH at the end

> of the month. This is our first application and such proposals are almost

> never funded on the first submission. That having been said, we have a

very

> strong group and proposal. I think that it would be inappropriate for

> members of your group to lobby for any specific proposal (including ours),

> but it is appropriate for constituents to encourage their Representative

in

> the House and Senators to support research in any disease which affects

them.

>

> When our project is funded, we will need to recruit and begin to follow

> 150 MSA patients at 7 sites in the US.

>

> I look forward to working with you to better understand and develop

> treatments for MSA.

>

> Cliff Shults, M.D.

>

>

>

> At 10:01 AM 2/10/2002 -0400, you wrote:

> >The Multiple System Atrophy patient community is very excited to hear

news

> >of your proposed study. Our online network currently includes over 500

> >families affected by MSA. We're wondering how we can best be of help to

you

> >in your research and who we can contact to indicate our willingness to

> >participate directly.

> >

> >Thanks for your efforts on behalf of everyone with MSA,

> >Pam

> >Moderator, MSA Online Support Group

> >http://groups.yahoo.com/group/shydrager

> >

> >

> Cliff Shults, MD

> Professor of Neurosciences, UCSD

>

> Department of Neurosciences, 0662

> UCSD School of Medicine

> 9500 Gilman Drive

> La Jolla, California 92093-0662

>

> email cshults@...

>

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