My father, Hoyt Ingram, passed away on January 31

February 12, 2002

,

My thoughts and prayers are with you.

February 12, 2002

,

My thoughts and prayers are with you.

February 12, 2002

,

My thoughts and prayers are with you.

February 12, 2002

Dear and Family,

I am so sorry to hear of your father's passing. It sounds like you did a

wonderful job caring for him in his final days and now he is at peace.

With much sympathy,

Cindy V.

February 12, 2002

Dear and Family,

I am so sorry to hear of your father's passing. It sounds like you did a

wonderful job caring for him in his final days and now he is at peace.

With much sympathy,

Cindy V.

February 12, 2002

Dear and Family,

I am so sorry to hear of your father's passing. It sounds like you did a

wonderful job caring for him in his final days and now he is at peace.

With much sympathy,

Cindy V.

February 12, 2002

I am a " silent " member of the support group, never writing in, but always

reading all of your comments. My father, Hoyt Ingram, was diagnosed in the

fall of 1998, after initially being diagnosed with Parkinson's. Upon search

of the internet, I found information on this disease and discovered all of

you. I read and learned from each of you many of your symptoms, treatment

therapies, relationships with the health care community, caregivers

thoughts, and how many of you dealt with your or your loved one's individual

case.

My dad, thanks to the second neurologist who treated him, was diagnosed

correctly, as he suffered all the symptoms that are recognized as SDS. I

researched information on SDS, made copies and handed it to every health

care professional Daddy had to visit in the course of his illness. Very few

had ever heard of the disease. I am very appreciative of all the

information I received from this helping hand line, as I could have never

imagined all the things that happened to Daddy were just a part of the

onslaught of his disease.

Our family watched our Daddy go from a healthy, robust 80+ year old, to a

severly disabled invalid, who could hardly chew, swallow, speak, stand, or

breathe without help. One day, he would be so sick he could hardly stay out

of bed, usually UTI's related to the catheter he wore since late 1999, then

after antibiotics, he would feel well enough to be put in the car and taken

for a ride to see his beloved farm. Sometimes his speech was so bad that he

could only communicate by raising his hand when asked a question; other

times he could make a broken conversation.

His fear and main complaint was his breathing. He always wanted someone

nearby in case he had a major problem.....we kept a bell on his bedrail so

everyone could hear when he needed help.

In the end, he was admitted to the hospital because of another UTI,

dehydration, and a stomach ulcer that was discovered after he was admitted.

He was responding well to all treatments, as his body organs were very

healthy.....good heart, lungs, no signs of any kind of cancer, pulse was

strong. Things were going pretty well one minute, then all at once,

according to my sister who was staying with him that Saturday morning, he

just drew in a breath and did not exhale....she shook him thinking he might

have had something lodged in this throat, called the nurse who came and took

a look, then a Code Blue was called. They worked with him for several

minutes to get a heartbeat and pulse again, which eventually came back

strong, and put him on a respirator. An EEG was ordered 48 hours later

which revealed unrecoverable brain damage. Later we asked that he taken

from ICU and put in a room where we could stay with him and begin weaning

him from the respirator. He survived for awhile without it and the part

that helped push the oxygen into his lungs; but could not survive whenever

that main tube was taken out and only an oxygen mask placed on this face.

We would have kept him on the respirator forever had he not had the brain

damage, as I have heard some of you report for your loved ones had survived

because of the respirator and had been able to go home again for awhile.

But with that problem, we gave up and left it in the hands of our Heavenly

Father, who decided that it was time he join our Mother in a much better

place.

I thank you for being there for me and all the others who are faced with

this heartbreaking problem. Your information and personal experiences have

been the light in the darkness for me and my family....experience is the

best sympathizer...and I commend all of you who are committed to helping

others by sharing your lives with all of us on this support group.

God bless each of you,

Cornelius

Daughter of Hoyt Ingram, deceased Thursday, January 31, 2002

February 12, 2002

, it sounds like your daddy was surrounded by love all during his life

and at the end. May God bless you all and be with you as you grieve. You

have our sympathy, love and prayers. Ned and Judy.

February 12, 2002

, it sounds like your daddy was surrounded by love all during his life

and at the end. May God bless you all and be with you as you grieve. You

have our sympathy, love and prayers. Ned and Judy.

February 12, 2002

, it sounds like your daddy was surrounded by love all during his life

and at the end. May God bless you all and be with you as you grieve. You

have our sympathy, love and prayers. Ned and Judy.

February 12, 2002

Dear : We are very sorry to hear of the death of your dear father

Hoyt. Our thoughts and prayers are with you and all your family.

Sincerely, Bob and Pat from Framingham MA

February 12, 2002

Dear : We are very sorry to hear of the death of your dear father

Hoyt. Our thoughts and prayers are with you and all your family.

Sincerely, Bob and Pat from Framingham MA

February 12, 2002

Dear : We are very sorry to hear of the death of your dear father

Hoyt. Our thoughts and prayers are with you and all your family.

Sincerely, Bob and Pat from Framingham MA

February 12, 2002

, I am so sorry for your great loss. I am glad your father was able to

see his farm when feeling up to it. (I live on a small farm and know the

connection.)

When my mother Joyce (71) died (11/5/00) from complications, she, too, was

revived and placed on a respirator. When we turned it off, she lasted only a

few seconds. I hope that you and your sister were able to tell your father

what you needed to at the end.

I am thinking of your father, and you and your sister. I hope you find

peace. Debbie

February 12, 2002

, I am so sorry for your great loss. I am glad your father was able to

see his farm when feeling up to it. (I live on a small farm and know the

connection.)

When my mother Joyce (71) died (11/5/00) from complications, she, too, was

revived and placed on a respirator. When we turned it off, she lasted only a

few seconds. I hope that you and your sister were able to tell your father

what you needed to at the end.

I am thinking of your father, and you and your sister. I hope you find

peace. Debbie

February 12, 2002

, I am so sorry for your great loss. I am glad your father was able to

see his farm when feeling up to it. (I live on a small farm and know the

connection.)

When my mother Joyce (71) died (11/5/00) from complications, she, too, was

revived and placed on a respirator. When we turned it off, she lasted only a

few seconds. I hope that you and your sister were able to tell your father

what you needed to at the end.

I am thinking of your father, and you and your sister. I hope you find

peace. Debbie

February 12, 2002

-Dear ,

Reading your message I see that your father was loved very much. One

day you will see him again. It is wonderful knowing he is not feeling

any pain and is happy being with your mother once again. He was very

blessed to be loved as he was. My thought and prayers are with you.

God bless and keep you all the days of your life.

Belinda

-- In shydrager@y..., Cornelius wrote:

> I am a " silent " member of the support group, never writing in, but

always

> reading all of your comments. My father, Hoyt Ingram, was

diagnosed in the

> fall of 1998, after initially being diagnosed with Parkinson's.

Upon search

> of the internet, I found information on this disease and discovered

all of

> you. I read and learned from each of you many of your symptoms,

treatment

> therapies, relationships with the health care community, caregivers

> thoughts, and how many of you dealt with your or your loved one's

individual

> case.

>

> My dad, thanks to the second neurologist who treated him, was

diagnosed

> correctly, as he suffered all the symptoms that are recognized as

SDS. I

> researched information on SDS, made copies and handed it to every

health

> care professional Daddy had to visit in the course of his illness.

Very few

> had ever heard of the disease. I am very appreciative of all the

> information I received from this helping hand line, as I could have

never

> imagined all the things that happened to Daddy were just a part of

the

> onslaught of his disease.

>

> Our family watched our Daddy go from a healthy, robust 80+ year

old, to a

> severly disabled invalid, who could hardly chew, swallow, speak,

stand, or

> breathe without help. One day, he would be so sick he could hardly

stay out

> of bed, usually UTI's related to the catheter he wore since late

1999, then

> after antibiotics, he would feel well enough to be put in the car

and taken

> for a ride to see his beloved farm. Sometimes his speech was so

bad that he

> could only communicate by raising his hand when asked a question;

other

> times he could make a broken conversation.

>

> His fear and main complaint was his breathing. He always wanted

someone

> nearby in case he had a major problem.....we kept a bell on his

bedrail so

> everyone could hear when he needed help.

>

> In the end, he was admitted to the hospital because of another UTI,

> dehydration, and a stomach ulcer that was discovered after he was

admitted.

> He was responding well to all treatments, as his body organs were

very

> healthy.....good heart, lungs, no signs of any kind of cancer,

pulse was

> strong. Things were going pretty well one minute, then all at once,

> according to my sister who was staying with him that Saturday

morning, he

> just drew in a breath and did not exhale....she shook him thinking

he might

> have had something lodged in this throat, called the nurse who came

and took

> a look, then a Code Blue was called. They worked with him for

several

> minutes to get a heartbeat and pulse again, which eventually came

back

> strong, and put him on a respirator. An EEG was ordered 48 hours

later

> which revealed unrecoverable brain damage. Later we asked that he

taken

> from ICU and put in a room where we could stay with him and begin

weaning

> him from the respirator. He survived for awhile without it and the

part

> that helped push the oxygen into his lungs; but could not survive

whenever

> that main tube was taken out and only an oxygen mask placed on this

face.

>

> We would have kept him on the respirator forever had he not had the

brain

> damage, as I have heard some of you report for your loved ones had

survived

> because of the respirator and had been able to go home again for

awhile.

> But with that problem, we gave up and left it in the hands of our

Heavenly

> Father, who decided that it was time he join our Mother in a much

better

> place.

>

> I thank you for being there for me and all the others who are faced

with

> this heartbreaking problem. Your information and personal

experiences have

> been the light in the darkness for me and my family....experience

is the

> best sympathizer...and I commend all of you who are committed to

helping

> others by sharing your lives with all of us on this support group.

>

> God bless each of you,

>

> Cornelius

> Daughter of Hoyt Ingram, deceased Thursday, January 31, 2002

February 12, 2002

-Dear ,

Reading your message I see that your father was loved very much. One

day you will see him again. It is wonderful knowing he is not feeling

any pain and is happy being with your mother once again. He was very

blessed to be loved as he was. My thought and prayers are with you.

God bless and keep you all the days of your life.

Belinda

-- In shydrager@y..., Cornelius wrote:

> I am a " silent " member of the support group, never writing in, but

always

> reading all of your comments. My father, Hoyt Ingram, was

diagnosed in the

> fall of 1998, after initially being diagnosed with Parkinson's.

Upon search

> of the internet, I found information on this disease and discovered

all of

> you. I read and learned from each of you many of your symptoms,

treatment

> therapies, relationships with the health care community, caregivers

> thoughts, and how many of you dealt with your or your loved one's

individual

> case.

>

> My dad, thanks to the second neurologist who treated him, was

diagnosed

> correctly, as he suffered all the symptoms that are recognized as

SDS. I

> researched information on SDS, made copies and handed it to every

health

> care professional Daddy had to visit in the course of his illness.

Very few

> had ever heard of the disease. I am very appreciative of all the

> information I received from this helping hand line, as I could have

never

> imagined all the things that happened to Daddy were just a part of

the

> onslaught of his disease.

>

> Our family watched our Daddy go from a healthy, robust 80+ year

old, to a

> severly disabled invalid, who could hardly chew, swallow, speak,

stand, or

> breathe without help. One day, he would be so sick he could hardly

stay out

> of bed, usually UTI's related to the catheter he wore since late

1999, then

> after antibiotics, he would feel well enough to be put in the car

and taken

> for a ride to see his beloved farm. Sometimes his speech was so

bad that he

> could only communicate by raising his hand when asked a question;

other

> times he could make a broken conversation.

>

> His fear and main complaint was his breathing. He always wanted

someone

> nearby in case he had a major problem.....we kept a bell on his

bedrail so

> everyone could hear when he needed help.

>

> In the end, he was admitted to the hospital because of another UTI,

> dehydration, and a stomach ulcer that was discovered after he was

admitted.

> He was responding well to all treatments, as his body organs were

very

> healthy.....good heart, lungs, no signs of any kind of cancer,

pulse was

> strong. Things were going pretty well one minute, then all at once,

> according to my sister who was staying with him that Saturday

morning, he

> just drew in a breath and did not exhale....she shook him thinking

he might

> have had something lodged in this throat, called the nurse who came

and took

> a look, then a Code Blue was called. They worked with him for

several

> minutes to get a heartbeat and pulse again, which eventually came

back

> strong, and put him on a respirator. An EEG was ordered 48 hours

later

> which revealed unrecoverable brain damage. Later we asked that he

taken

> from ICU and put in a room where we could stay with him and begin

weaning

> him from the respirator. He survived for awhile without it and the

part

> that helped push the oxygen into his lungs; but could not survive

whenever

> that main tube was taken out and only an oxygen mask placed on this

face.

>

> We would have kept him on the respirator forever had he not had the

brain

> damage, as I have heard some of you report for your loved ones had

survived

> because of the respirator and had been able to go home again for

awhile.

> But with that problem, we gave up and left it in the hands of our

Heavenly

> Father, who decided that it was time he join our Mother in a much

better

> place.

>

> I thank you for being there for me and all the others who are faced

with

> this heartbreaking problem. Your information and personal

experiences have

> been the light in the darkness for me and my family....experience

is the

> best sympathizer...and I commend all of you who are committed to

helping

> others by sharing your lives with all of us on this support group.

>

> God bless each of you,

>

> Cornelius

> Daughter of Hoyt Ingram, deceased Thursday, January 31, 2002

February 12, 2002

-Dear ,

Reading your message I see that your father was loved very much. One

day you will see him again. It is wonderful knowing he is not feeling

any pain and is happy being with your mother once again. He was very

blessed to be loved as he was. My thought and prayers are with you.

God bless and keep you all the days of your life.

Belinda

-- In shydrager@y..., Cornelius wrote:

> I am a " silent " member of the support group, never writing in, but

always

> reading all of your comments. My father, Hoyt Ingram, was

diagnosed in the

> fall of 1998, after initially being diagnosed with Parkinson's.

Upon search

> of the internet, I found information on this disease and discovered

all of

> you. I read and learned from each of you many of your symptoms,

treatment

> therapies, relationships with the health care community, caregivers

> thoughts, and how many of you dealt with your or your loved one's

individual

> case.

>

> My dad, thanks to the second neurologist who treated him, was

diagnosed

> correctly, as he suffered all the symptoms that are recognized as

SDS. I

> researched information on SDS, made copies and handed it to every

health

> care professional Daddy had to visit in the course of his illness.

Very few

> had ever heard of the disease. I am very appreciative of all the

> information I received from this helping hand line, as I could have

never

> imagined all the things that happened to Daddy were just a part of

the

> onslaught of his disease.

>

> Our family watched our Daddy go from a healthy, robust 80+ year

old, to a

> severly disabled invalid, who could hardly chew, swallow, speak,

stand, or

> breathe without help. One day, he would be so sick he could hardly

stay out

> of bed, usually UTI's related to the catheter he wore since late

1999, then

> after antibiotics, he would feel well enough to be put in the car

and taken

> for a ride to see his beloved farm. Sometimes his speech was so

bad that he

> could only communicate by raising his hand when asked a question;

other

> times he could make a broken conversation.

>

> His fear and main complaint was his breathing. He always wanted

someone

> nearby in case he had a major problem.....we kept a bell on his

bedrail so

> everyone could hear when he needed help.

>

> In the end, he was admitted to the hospital because of another UTI,

> dehydration, and a stomach ulcer that was discovered after he was

admitted.

> He was responding well to all treatments, as his body organs were

very

> healthy.....good heart, lungs, no signs of any kind of cancer,

pulse was

> strong. Things were going pretty well one minute, then all at once,

> according to my sister who was staying with him that Saturday

morning, he

> just drew in a breath and did not exhale....she shook him thinking

he might

> have had something lodged in this throat, called the nurse who came

and took

> a look, then a Code Blue was called. They worked with him for

several

> minutes to get a heartbeat and pulse again, which eventually came

back

> strong, and put him on a respirator. An EEG was ordered 48 hours

later

> which revealed unrecoverable brain damage. Later we asked that he

taken

> from ICU and put in a room where we could stay with him and begin

weaning

> him from the respirator. He survived for awhile without it and the

part

> that helped push the oxygen into his lungs; but could not survive

whenever

> that main tube was taken out and only an oxygen mask placed on this

face.

>

> We would have kept him on the respirator forever had he not had the

brain

> damage, as I have heard some of you report for your loved ones had

survived

> because of the respirator and had been able to go home again for

awhile.

> But with that problem, we gave up and left it in the hands of our

Heavenly

> Father, who decided that it was time he join our Mother in a much

better

> place.

>

> I thank you for being there for me and all the others who are faced

with

> this heartbreaking problem. Your information and personal

experiences have

> been the light in the darkness for me and my family....experience

is the

> best sympathizer...and I commend all of you who are committed to

helping

> others by sharing your lives with all of us on this support group.

>

> God bless each of you,

>

> Cornelius

> Daughter of Hoyt Ingram, deceased Thursday, January 31, 2002

February 12, 2002

,

So sorry for the loss of your father. Our thoughts and prayers are

with your family. After reading your eloquent letter on his passing

and your thoughtfullness toward others I'm sure he was a very proud

Papa of a very nice daughter. Repectfully w/ hugs......Rose

February 12, 2002

,

So sorry for the loss of your father. Our thoughts and prayers are

with your family. After reading your eloquent letter on his passing

and your thoughtfullness toward others I'm sure he was a very proud

Papa of a very nice daughter. Repectfully w/ hugs......Rose

February 12, 2002

,

So sorry for the loss of your father. Our thoughts and prayers are

with your family. After reading your eloquent letter on his passing

and your thoughtfullness toward others I'm sure he was a very proud

Papa of a very nice daughter. Repectfully w/ hugs......Rose

February 12, 2002

From: Cornelius <linda.cornelius@c...>

:

I too want to say how sorry I am about your father. No one should have to suffer with this illness. May he rest in peace .

God Bless

Vera

********************************

Date: Tue Feb 12, 2002 12:25 pm

Subject: My father, Hoyt Ingram, passed away on January 31

I am a "silent" member of the support group, never writing in, but always