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:

I don't know if it would have what you are looking for but there is a file

in the Welker list files which gives pre and post op advice on medication,

diet, activity, tests, etc. This might be of value to you. Remember it is

Dr. Welker's advice to his patients and you are not his patient. If there

is a conflict with your doctor's advice and Dr. Welkers, go with your

doctor. But this is a source for some surgeon's recommendation. You need

Word for Windows to read this file. The URL is

http://groups.yahoo.com/group/WelkerOSSG/files/%20DS%20pt%20info.doc

I hope you can simply click on this and it'll take you there. It's a big

file so it will take a minute or so to download.

I just tried to download from my URL and it didn't work. You might want to

try it. If it doesn't work for you, you can get there by going to the Yahoo

Groups website, then to the WelkerOSSG mailing list, click on files and it

is the first document there. An excellent overview of what to expect from

the surgery.

Regards.

Joe Frost, old gentleman, not old fart

San , TX, 60 years old

Dr. Welker

Lateral Gastrectomy with Duodenal Switch

340 starting weight, currently 260

http://www.duodenalswitch.com/Patients/Joe/joe.html

newbie questions

> Hello, my name is I am new to this group. I am stil a

> pre~op. I have had my psych eval and support grpup meeting, I am now

> waining for my initial consult. (had pre~reqs that had to be

> completed before the init consult) My question is this, The doctor

> that will be doing my surgery here in MI his dietary info is for RNY

> paitents and that is what I will be receiving post~op. Is there

> anyone willing to share with me their post~op dietary instructions? I

> will of course run it by Dr Scholten first (before I try to use it)

> to see if he approves for me, but I am trying to find out the

> progression difference and food differences in the 2. I know the

> progression is different, but not sure how different. Any help would

> be helpful!!

> Thank You

> stephanielynn

> ~ no matter how hard a bear tries,

> he will not lose weight without exercise

> ~~Winnie the Pooh

>

>

>

> ----------------------------------------------------------------------

>

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Guest guest

:

I don't know if it would have what you are looking for but there is a file

in the Welker list files which gives pre and post op advice on medication,

diet, activity, tests, etc. This might be of value to you. Remember it is

Dr. Welker's advice to his patients and you are not his patient. If there

is a conflict with your doctor's advice and Dr. Welkers, go with your

doctor. But this is a source for some surgeon's recommendation. You need

Word for Windows to read this file. The URL is

http://groups.yahoo.com/group/WelkerOSSG/files/%20DS%20pt%20info.doc

I hope you can simply click on this and it'll take you there. It's a big

file so it will take a minute or so to download.

I just tried to download from my URL and it didn't work. You might want to

try it. If it doesn't work for you, you can get there by going to the Yahoo

Groups website, then to the WelkerOSSG mailing list, click on files and it

is the first document there. An excellent overview of what to expect from

the surgery.

Regards.

Joe Frost, old gentleman, not old fart

San , TX, 60 years old

Dr. Welker

Lateral Gastrectomy with Duodenal Switch

340 starting weight, currently 260

http://www.duodenalswitch.com/Patients/Joe/joe.html

newbie questions

> Hello, my name is I am new to this group. I am stil a

> pre~op. I have had my psych eval and support grpup meeting, I am now

> waining for my initial consult. (had pre~reqs that had to be

> completed before the init consult) My question is this, The doctor

> that will be doing my surgery here in MI his dietary info is for RNY

> paitents and that is what I will be receiving post~op. Is there

> anyone willing to share with me their post~op dietary instructions? I

> will of course run it by Dr Scholten first (before I try to use it)

> to see if he approves for me, but I am trying to find out the

> progression difference and food differences in the 2. I know the

> progression is different, but not sure how different. Any help would

> be helpful!!

> Thank You

> stephanielynn

> ~ no matter how hard a bear tries,

> he will not lose weight without exercise

> ~~Winnie the Pooh

>

>

>

> ----------------------------------------------------------------------

>

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Guest guest

:

I don't know if it would have what you are looking for but there is a file

in the Welker list files which gives pre and post op advice on medication,

diet, activity, tests, etc. This might be of value to you. Remember it is

Dr. Welker's advice to his patients and you are not his patient. If there

is a conflict with your doctor's advice and Dr. Welkers, go with your

doctor. But this is a source for some surgeon's recommendation. You need

Word for Windows to read this file. The URL is

http://groups.yahoo.com/group/WelkerOSSG/files/%20DS%20pt%20info.doc

I hope you can simply click on this and it'll take you there. It's a big

file so it will take a minute or so to download.

I just tried to download from my URL and it didn't work. You might want to

try it. If it doesn't work for you, you can get there by going to the Yahoo

Groups website, then to the WelkerOSSG mailing list, click on files and it

is the first document there. An excellent overview of what to expect from

the surgery.

Regards.

Joe Frost, old gentleman, not old fart

San , TX, 60 years old

Dr. Welker

Lateral Gastrectomy with Duodenal Switch

340 starting weight, currently 260

http://www.duodenalswitch.com/Patients/Joe/joe.html

newbie questions

> Hello, my name is I am new to this group. I am stil a

> pre~op. I have had my psych eval and support grpup meeting, I am now

> waining for my initial consult. (had pre~reqs that had to be

> completed before the init consult) My question is this, The doctor

> that will be doing my surgery here in MI his dietary info is for RNY

> paitents and that is what I will be receiving post~op. Is there

> anyone willing to share with me their post~op dietary instructions? I

> will of course run it by Dr Scholten first (before I try to use it)

> to see if he approves for me, but I am trying to find out the

> progression difference and food differences in the 2. I know the

> progression is different, but not sure how different. Any help would

> be helpful!!

> Thank You

> stephanielynn

> ~ no matter how hard a bear tries,

> he will not lose weight without exercise

> ~~Winnie the Pooh

>

>

>

> ----------------------------------------------------------------------

>

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  • 2 years later...
Guest guest

Hi all,

Hope you can answer some questions for me.

Is there any guidelines as to how much a person loses after bypass

surgery? I know everyone is different, but am curious what some

averages are.

I've heard bypass patients typically regain some after they lose--is

that true, or does it depend on the person.

Thanks,

presurgery

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Guest guest

My husband keeps asking and no one seems to know.................I was

wondering if anyone knows how this will effect me when I'm elderly? My husband

is

worried that I will just quit eating all together or something I guess.

Jess

Pre-op

330lbs/GW140ish

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Guest guest

My husband keeps asking and no one seems to know.................I was

wondering if anyone knows how this will effect me when I'm elderly? My husband

is

worried that I will just quit eating all together or something I guess.

Jess

Pre-op

330lbs/GW140ish

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Guest guest

Hi :)

As an average figure, most people seem to lose about 100 lbs by

their 6th month post-op. Some lose more, some less depending on a

variety of issues including how heavy the person was to begin with

and if the person has done a lot of yoyo dieting in the past.

Yes, this is true unfortunatley. Not everyone regains some but many

do.

:) Caroline

Lap RNY 5/2/03

367/299/150

www.tinyurl.com/bkld

> Hi all,

>

> Hope you can answer some questions for me.

>

> Is there any guidelines as to how much a person loses after bypass

> surgery? I know everyone is different, but am curious what some

> averages are.

>

> I've heard bypass patients typically regain some after they lose--

is

> that true, or does it depend on the person.

>

> Thanks,

>

> presurgery

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Guest guest

Hi :)

As an average figure, most people seem to lose about 100 lbs by

their 6th month post-op. Some lose more, some less depending on a

variety of issues including how heavy the person was to begin with

and if the person has done a lot of yoyo dieting in the past.

Yes, this is true unfortunatley. Not everyone regains some but many

do.

:) Caroline

Lap RNY 5/2/03

367/299/150

www.tinyurl.com/bkld

> Hi all,

>

> Hope you can answer some questions for me.

>

> Is there any guidelines as to how much a person loses after bypass

> surgery? I know everyone is different, but am curious what some

> averages are.

>

> I've heard bypass patients typically regain some after they lose--

is

> that true, or does it depend on the person.

>

> Thanks,

>

> presurgery

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Guest guest

Hi :)

As an average figure, most people seem to lose about 100 lbs by

their 6th month post-op. Some lose more, some less depending on a

variety of issues including how heavy the person was to begin with

and if the person has done a lot of yoyo dieting in the past.

Yes, this is true unfortunatley. Not everyone regains some but many

do.

:) Caroline

Lap RNY 5/2/03

367/299/150

www.tinyurl.com/bkld

> Hi all,

>

> Hope you can answer some questions for me.

>

> Is there any guidelines as to how much a person loses after bypass

> surgery? I know everyone is different, but am curious what some

> averages are.

>

> I've heard bypass patients typically regain some after they lose--

is

> that true, or does it depend on the person.

>

> Thanks,

>

> presurgery

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Guest guest

Hey Jess, I went searching the internet this morning to find out some

answers for you. Here's what I have so far.

From

http://weightlosssurgeryinfo.com/pages/life/index.jsp#longterm

Although the short-term effects of obesity surgery are well understood,

there are still questions to be answered about the long-term effects on

nutrition and body systems. Nutritional deficiencies that occur over the

course of many years will need to be studied. Over time, you will need

periodic checks for anemia (low red blood cell count) and Vitamin B12,

folate and iron levels. Follow-up tests will initially be conducted every

three to six months or as needed, and then every one to two years.

From http://www.wlsguide.com/FAQ.html

I'm concerned about my future. Does anyone know what the adverse long terms

affects of Roux-en-Y surgery will have on me?

The only long term adverse affects of Roux-en-Y surgery are vitamin and iron

deficiencies. These can be treated with vitamins, iron and B12 supplements.

Hopefully your hubby will feel a bit more reassured about this now. And I'm

pretty sure you aren't going to quit eating altogether, lol. Especially

since the pouch will stretch a little bit after awhile and you'll be able to

eat a bit more than right after surgery.

Pre-Op

260/125ish

-- Re: newbie questions

My husband keeps asking and no one seems to know.................I was

wondering if anyone knows how this will effect me when I'm elderly? My

husband is

worried that I will just quit eating all together or something I guess.

Jess

Pre-op

330lbs/GW140ish

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Guest guest

Hey Jess, I went searching the internet this morning to find out some

answers for you. Here's what I have so far.

From

http://weightlosssurgeryinfo.com/pages/life/index.jsp#longterm

Although the short-term effects of obesity surgery are well understood,

there are still questions to be answered about the long-term effects on

nutrition and body systems. Nutritional deficiencies that occur over the

course of many years will need to be studied. Over time, you will need

periodic checks for anemia (low red blood cell count) and Vitamin B12,

folate and iron levels. Follow-up tests will initially be conducted every

three to six months or as needed, and then every one to two years.

From http://www.wlsguide.com/FAQ.html

I'm concerned about my future. Does anyone know what the adverse long terms

affects of Roux-en-Y surgery will have on me?

The only long term adverse affects of Roux-en-Y surgery are vitamin and iron

deficiencies. These can be treated with vitamins, iron and B12 supplements.

Hopefully your hubby will feel a bit more reassured about this now. And I'm

pretty sure you aren't going to quit eating altogether, lol. Especially

since the pouch will stretch a little bit after awhile and you'll be able to

eat a bit more than right after surgery.

Pre-Op

260/125ish

-- Re: newbie questions

My husband keeps asking and no one seems to know.................I was

wondering if anyone knows how this will effect me when I'm elderly? My

husband is

worried that I will just quit eating all together or something I guess.

Jess

Pre-op

330lbs/GW140ish

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Guest guest

Thanks for the responses, they've been great! Got a couple more

questions for you.

How long can I expect to be off work with the RNY? I have a desk job

in front of a computer, nothing strenuous.

Any thoughts about telling coworkers about WLS? I'd rather keep it

to myself, but when the weight starts dropping off, I bet they'll

figure it out.

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Guest guest

welcome rebecca. yep, i second that the other members have said. w

l depends on genetics, age, activity...

& embracing a healthy lifestyle is key to keeping the weight off.

lori h.

15 grateful months out

> Hi all,

>

> Hope you can answer some questions for me.

>

> Is there any guidelines as to how much a person loses after bypass

> surgery? I know everyone is different, but am curious what some

> averages are.

>

> I've heard bypass patients typically regain some after they lose--

is

> that true, or does it depend on the person.

>

> Thanks,

>

> presurgery

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Guest guest

hey jess. i'm not in the medical field so pls ask your health care

team, but i plan on getting regular labs & bone scans for good to

make sure i'm a-ok.

lori h.

> My husband keeps asking and no one seems to know.................I

was

> wondering if anyone knows how this will effect me when I'm

elderly? My husband is

> worried that I will just quit eating all together or something I

guess.

>

> Jess

> Pre-op

> 330lbs/GW140ish

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You should ask Katy or if they know of a doctor where

you live> They referred me to a wonderful Dr. in California,

because I live in California and no the Goverment does not give me

at least finicial help.

the school district does come twice a week to give Gaby Infant

therapy, this is paid by the state. This is the only help we get.

we are not rich nor poor, but we do not qualify for any kind of

help. And the doctor visits and specialist, do cost a lot of money.

You son will need to see a GI doctor and a Endo doc. for sure.

They can make any referrals if there is anything else they think is

neccessary.

Gaby is 10 months old and she is doing great, compare to other

children with RSS. She does not need a feed tube, but she will need

GH therpay when she turns two.

You have came to the right place to have all your quetions

answered. i know that is can me over whelming, but this site is a

great support.

Take care,

Stella

Gaby 10 month RSS,

> Hello everyone :) As I have said before, my son was just

diagnosed

> with RSS and now I have all these thoughts and questions rolling

> around in my head. So here goes..

>

> Does anyone have suggestions on the easiest way to find a doc who

has

> experience with RSS? I plan on making some calls today but I am

not

> sure who to call or where to start. I love the current doc we

have

> now but would prefer somone who has delt with RSS before.

>

> Also, I noticed many of you here are dealing with some very

> complicated medical issues and also seeing a doctor in New York.

Are

> you all wealthy or do you get government assistance? LOL

>

> The genetisist told us we only need to be concerned about the

kidney

> tumors within the first 5 years and the asymmetry when my son

starts

> to bear weight. Then I read about GI tubes and the hypoglycemia

> here. What types of complications should we be watching for in

the

> first year?

>

> I have called out local school district which will come out weekly

> and work on various physical things with my son for free. Has

anyone

> else done this and has it helped? I know in Nebraska it is

required

> by law that the schools provide this service for free. I am not

sure

> if that is different elsewhere.

>

> Thank you in advance...I am sure I will come up with more

questions

> later but I think this book is long enough for now :)

> Blessings,

>

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,

You are correct - all states have to provide needed services at no

cost to you for your child with special needs or who is at risk for

special needs. You are lucky that your district was so attentive. I

was talking to a family in NYC while Max was there and they have had

to pay for services. I was shocked! I want them to contact someone

to help them get this straightened out. They live in VA, so I don't

know who to have them call yet. ( , are you reading

this?)

Now, for the doctor in NYC, she is Dr. Madeleine Harbison and she

will do whatever it takes to get a patient to see her in NYC. If

your baby is having real health issues, then she can arrange for free

transportation to see her via Angel Flights. I'm sorry I don't know

anyone near you. Have you contacted Barker? She lives in

either Oregon or WA - my tired and overwhelmed brain cannot think of

the place right now. She sees someone she really likes and her son

Colin looks great!

Please post as many questions as you would like. There is almost

someone who will have an answer. Because my son is now 15 (immature

and young at that, but who cares???), I've had a lot of experience.

You will also see that I post a lot, although not much lately due to

the hospitalization and surgery he just went through. Then we leave

for 6 days of vacation on Saturday. I can't wait!

Jodi

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Thanks for the info, Maloy. I will hopefully see them in NYC at the

hospital tomorrow. I think their son had surgery today - the triple

procedure without the g-tube placement because he already has one.

If their son is not in the PICU, then I will talk to them. If he is,

I don't know if I can visit.

Jodi

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Jodi

For the family from VA that has to pay for services have them contact

www.Arcfip.org they may be able to help them. It is a site with just about any

special need you can think of on it. We went though Chesapeake Early

Intervention in VA and were place on a sliding fee schedule and the ins. picked

up it's part. I don't know what we are going to do know that we have reached

age 3 and left the Early intervention program. Hopefully Tori will get the

services she needs from the school system.

Maloy

Re: Newbie Questions

,

You are correct - all states have to provide needed services at no

cost to you for your child with special needs or who is at risk for

special needs. You are lucky that your district was so attentive. I

was talking to a family in NYC while Max was there and they have had

to pay for services. I was shocked! I want them to contact someone

to help them get this straightened out. They live in VA, so I don't

know who to have them call yet. ( , are you reading

this?)

Now, for the doctor in NYC, she is Dr. Madeleine Harbison and she

will do whatever it takes to get a patient to see her in NYC. If

your baby is having real health issues, then she can arrange for free

transportation to see her via Angel Flights. I'm sorry I don't know

anyone near you. Have you contacted Barker? She lives in

either Oregon or WA - my tired and overwhelmed brain cannot think of

the place right now. She sees someone she really likes and her son

Colin looks great!

Please post as many questions as you would like. There is almost

someone who will have an answer. Because my son is now 15 (immature

and young at that, but who cares???), I've had a lot of experience.

You will also see that I post a lot, although not much lately due to

the hospitalization and surgery he just went through. Then we leave

for 6 days of vacation on Saturday. I can't wait!

Jodi

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Dr. H cleared up the cancer/asymmetry link for me at this years

convention. There are two ways to obtain an asymmetric body shape, one

side of the body grows too fast - hemihypertophy - or one side grows

too slow - hemiatrophy. The liver/kidney cancer risk is associated

with hemihypertophy. I do not know of any RSS kids with this cause of

asymmetry, though I suppose it is possible. You should make sure the

asymmetry is properly diagnosed.

Andy

> > Hello everyone :) As I have said before, my son was just

> diagnosed

> > with RSS and now I have all these thoughts and questions rolling

> > around in my head. So here goes..

> >

> > Does anyone have suggestions on the easiest way to find a doc who

> has

> > experience with RSS? I plan on making some calls today but I am

> not

> > sure who to call or where to start. I love the current doc we

> have

> > now but would prefer somone who has delt with RSS before.

> >

> > Also, I noticed many of you here are dealing with some very

> > complicated medical issues and also seeing a doctor in New York.

> Are

> > you all wealthy or do you get government assistance? LOL

> >

> > The genetisist told us we only need to be concerned about the

> kidney

> > tumors within the first 5 years and the asymmetry when my son

> starts

> > to bear weight. Then I read about GI tubes and the hypoglycemia

> > here. What types of complications should we be watching for in

> the

> > first year?

> >

> > I have called out local school district which will come out weekly

> > and work on various physical things with my son for free. Has

> anyone

> > else done this and has it helped? I know in Nebraska it is

> required

> > by law that the schools provide this service for free. I am not

> sure

> > if that is different elsewhere.

> >

> > Thank you in advance...I am sure I will come up with more

> questions

> > later but I think this book is long enough for now :)

> > Blessings,

> >

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-

Hello !!! I´m a mother of Mattias 21 months old dx with RSS.

We are from Sweden living in Stockholm, Sweden. I´m reading mails on

this listserve everyday even thu I don´t write to often. English is

not my native language so I prefer reading.....Anyway I just had to

say that your child i adorable. Time flies !!! It seems like

yesterday my son was that litle. And now he is a little big

boy....//// Helén mother of Mica almost 14 years old and Mattias 21

months old.

-- In RSS-Support , wrote:

> I am not sure if all of this e-mail was dierected at me or

not...but out genetisist said to have ultrasounds every six months to

check for the Wilms tumors aka kidney tumors. He said it was fairly

common within the first 5 years of life. We went through Boys Town

Pediatrics here in Omaha.

>

> I joined the Magic foundation yesterday but have still not obtained

access to their members website.

>

> He does have reflux which I am gonna bring up to the doctor next

time we go in. The doc diagnosed this very early on but said it

would go away. I now know this is not the case with RSS. I am also

gonna bring up the hypoglycemia because he does get night sweats.

Really they are anytime he sleeps for more than 2 hours. Do they

test for that with a blood draw? I will have to check out the info

on the keytones since I am not familiar with that at all.

>

> I wanted to say thank you to everyone who has replied. You have

all been a big help already. I went and looked at some of the pics

on the list website and wow there are a lot of cuties out there! I

went and added my guy...Keigan. Thanks again :)

> Blessings,

>

>

>

>

>

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,

You do not necessarily have to stick him each night to test blood

sugar, although many people do this. We did with Max when he was an

infant. The alternative is to try using ketosticks. They are easy to

use and noninvasive. You just collect a little urine, drop it onto

the stick and compare the pad on the stick to the chart on the

bottle. Many RSS kids will spill ketones before they drop blood

sugar. HOWEVER, if the ketones are negative and you are still seeing

nightsweats, then you will have to go the sticking route. It's easy,

but painful for us parents who have to do that to our children.

Jodi

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