Re: Digest Number 199

[Guest guest]

To -

OCD is likely genetically based, even if only one parent has OCD or Tourette

Syndrome a child has a greater chance of developing OCD. People don't inherit

the

disorder or the specific symptoms, rather the susceptibility gets passed on.

Genes

are not the whole story as even with identical twins if one twin has OCD there

is a

13% chance that the other will not, but then again a 87% chance they will.

Other

causes of OCD include childhood infections and sometimes extreme stressors or

traumas. But as one parent said- do not blame yourself. You cannot cause or

prevent OCD by your parenting. YOu can, however, do so much to help your child

break free from this disorder by learning about it and getting the support you

need

which is exactly what you are doing! OCD is a very treatable condition (easier

said than done as you'll witness from other parent's posts on this list)-

children

can really graduate to a point of having OCD without it defining them or being

the

focus of their life.

I recommend getting OCD in CHildren and Adolescents by Dr. March and

Mulle. It explains very clearly how CBT (Cognitive Behavior THerapy) works for

OCD. There are also some helpful hints for parents. The crux of this book is

to

identify OCD as a biological disorder, not your child's fault, and caused by a

" false alarm " in your child's brain sending out the wrong messages about danger

or

evenness or perfection. It's easiest to fight this false alarm when you

externalize it- make it a separate entity- Mr Perfect, who says the shoelaces

have

to be even, Disaster Man who always tells you the worst thing that could

happen.

Then the child can start to boss back these characters who are bullying them and

giving them false information. No child likes to be bullied, so then in CBT kids

take on small challenges to break the rules of Mr. Perfect- tie the shoes wrong-

and see that the anxiety they feel will pass within about 10-20 minutes without

doing the rituals. It is hard to do this very effective and creative treatment

justice in one paragraph- the book really spells it out.

I have a book coming out in early 2000 for parents of kids with OCD which

translates this treatment to the homefront. I'll keep you posted on the release

date.

You may also want to check out the OC Foundation at ocfoundation.org -

membership

is only $45.00 a year and they have a great newsletter, website and yearly

conference. Best of luck!

Tamar Chansky, Ph.D.

[Guest guest]

On Thu, 19 Aug 1999 09:20:37 -0700 (PDT), Maris Chavenson wrote:

>successfully transition off of medication. The Luvox makes him

>alternately tired and hyper and he's become a bit more impulsive - not

>sure if that's being 9 or Luvox. I'm curious if anyone has had that

>kind of experience with Luvox.

Hi list and Maris, this alternate tiredness and hyperness is a side-effect my

daughter experienced with Luvox.

She has been noticibly more impulsive coinciding with the onset of her ocd so I

can't blame that on Luvox,

she didn't begin taking it until 5 months later.

Kathy R. in Indiana

[Guest guest]

and and all of you!!!

Thank you all for all of your words of wisdom. I don't have much time

to read on line but I've just had time to read through a bunch of the

digests. , your son sounds so much like my 9 year old son Josh.

He was diagnosed a year ago but I'm sure he's had symptoms since birth.

He too has separation anxiety and OCD. We started seeing a therapist

a year ago. We tried counseling with a little CBT through the year but

his anxiety was too high for him to really concentrate. This summer he

started on Luvox (now 100 mg a day) and we have seen big changes even

in this last eight weeks. His separation anxiety is way down. He

slept over at a friend's house for the first time ever. He too doesn't

like to be alone around the house and is afraid of robbers etc. but I

will say that too is subsiding and he can go upstairs or downstairs

without us now. We previously had elaborate good bye rituals before

he got on the camp bus or left me for school - those are gone. He also

had a need to confess everything he did wrong during the day -

virtually gone!!! Its hard to believe. I also don't like the idea of

being dependent on medication. But as Schwartz says in Brain

Lock, the meds are like water wings. I'm curious if some kids

successfully transition off of medication. The Luvox makes him

alternately tired and hyper and he's become a bit more impulsive - not

sure if that's being 9 or Luvox. I'm curious if anyone has had that

kind of experience with Luvox. He still has his main obsession which

is being afraid of throwing up - which usually bothers him in the early

evening and when he's falling asleep.. We are working on that. And

yes - he obsessively wants to play with his friends. I do think this

is an ocd symptom in that he is not good at occupying himself or being

alone. The therapist hopes that the Luvox and CBT will help him become

more independent that way as well. Josh's symptoms have never been

severe but they are hard to manage at times and I as the mother deal

with it the most. He too interrupts frequently when I am on the phone.

I wish you good luck in this OCD odyssey. There is light at the end

of the tunnel!

Maris in New Jersey

--- onelist wrote:

>

> ---------------------------

[Guest guest]

Hello,

I just joined the list...=) I was wondering did anyone have any tips for making

body oil.

I'm going to be making some soon. I have a recipe, but I'd like to know if

there are any

do's and don'ts when it comes to body oils.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Annissa Naturals House of Soap

http://www.annissanaturals.com

" She is a tree of life to them that lay hold upon her: and happy is everyone

that retaineth

her. " ~Proverbs 3:18

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Get 100% FREE Internet Access from Freei.Net. 100% FREE, 100% Anonymous, 100%

Jam Packed with features. Check us out at http://www.freei.net.

[Guest guest]

Hi all-

We need your guidance...Soon, we will be looking for a qualified VB aide

for one on one time and another 1:1 aide to be in typical kindergarten with

our son. When you've interveiwed for therapists in the past, what kind of

hands-on experience did you look for? I know it may be easier to find

someone with standard ABA experience. But if we need to provide our school

district with some general qualifications guidelines, what do you suggest

(particularly as they relate to the number of hands-on hours working with a

child using VB)? Also, what kind of experience should we look for in a

program supervisor (also relating to number of hours of VB therapy as

opposed to just overall program supervision)?

Thanks in advance.

[Guest guest]

Dear Harriet:

As of today's standards, you can NEVER be HCV free. This is a virus

and the majority of viruses are not destroyed, (like bacteria can be),

but, your body no longer responds, or the virus no longer causes a

reaction to fight. Being undetectable only means that the virus is

considered to be " in check " . The ultimate goal of any viral therapy is

to make your system strong enough that the virus never begins to

multiply out of control.

Depending on the lab, (the actual numbers vary by different labs),

for your circumstances, " undetectable " is excellent and means that you

are responding to treatment. The crucial period will be after the 48

weeks, whether you stay undetectable for the first 4 weeks and then 6

months after therapy is done. If you are still undetectable at that

point, you will be considered to be in a " permanent " or " long term "

remission, Hopefully, if the virus ever acts up again, with all the

genetics being done, if you need treatment years from now, it will be to

do dome gene splicing to permanently get rid of the virus for good.

Hope this helps. Marty

[Guest guest]

The EMG is a test that measures nerve conduction. What this means is

that your nerve cells work by combining certain molecules that create an

electrical charge=meaning if you have the right equipment, you can

actually measure the electrical conduction along the nerve. This

electrical conduction is what is used to make your muscles work, etc.

For example, going in and out of each cell are potassium and sodium.

As they cross in and out of the cell, they leave some of their

electricity behind. That triggers each cell communicates with the next

and eventually reaches some end point. If this pathway is blocked, or

interrupted, for many different reasons, then you can not get from the

beginning to the end. Think of a string of Christmas Lights. If one is

not working, it will keep either the whole string from lighting, or, all

the bulbs beyond the bad one from lighting.

This is the same basic idea of what the EMG does. I won't lie and

tell you it is pleasant, but, its not usually as bad as people would

imagine. What they will do is, using measuring device, with a very small

probe, check the electrical conduction along the nerve's route. By

pinpointing where a problem is, the neurologist can then find out why,

and possibly fix it. It could be a swelling of a muscle, or arthritis, a

spur, or many things that can easily be dealt with by medications, or

similar easy solutions.

But, first you need to have the problem located and find out why it

is occurring. I hope this helps, and makes it clearer. If not, or any

other questions, let me know. Marty

[Guest guest]

Does anyone know if treatment makes you tolerate pain less? Like I said

I have been a manicurist for years I have always had a pain here and

their. But nothing like know I have pain in my hip shoulders arms

knuckles and neck. I had a rash but been off work for a week and a half

it is gone. Is all this stuff cause of treatment. I have 6 months left

on treatment.

Thank You Jessie

EZ-DOES IT

[Guest guest]

yeah.. I think the hep has caused me to be more sensitive to pain. Nothing

used to bother me, now every little thing does. However, I'm on combo now

and feel almost as good as I did before hep! Which is a false feeling cause

then I overdo it, and then I'm sick from overdoing

alley/

ICQ 12631861

alleypat@...

http://www.flash.net/~alleypat

[Guest guest]

yeah.. I think the hep has caused me to be more sensitive to pain. Nothing

used to bother me, now every little thing does. However, I'm on combo now

and feel almost as good as I did before hep! Which is a false feeling cause

then I overdo it, and then I'm sick from overdoing

alley/

ICQ 12631861

alleypat@...

http://www.flash.net/~alleypat

[Guest guest]

hI mARTY,

How is your wife doing?? still holding that virus down? seems like it has

been awhile is it still undectable and how many times do they check for

pcr once you are off the treatment?

Suzy

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

I asked my wife-I'll let you know if possible(it will cost you/somebody something)

M

[Guest guest]

Sorry last email for Bobbi Ryder only

[Guest guest]

I do not know whether Nina Wallerstein is still at the School of

Medicine (approx. name) at the University of New Mexico (and also, I

think, Bernalillo Co. Medical Center--the hospital in Albuquerque). She

has done quite a bit of training of low literacy people on occupational

health issues, and might be appropriate. She uses a participatory

approach to communicating health hazards that makes a lot of sense to

me!

Ann Millard

[Guest guest]

Welcome to Deb and Cody! My name is Vicky and I just completed a year of treatment like 3 weeks ago. I am a Philly Girl and our weather has been really mild! Welcome to our group! Hey Raf........are you out there? How are you today! Wow everyone, all I wanna do is eat! I go from one thing to another constantly. I can't believe that everything tastes so good! Now, for my next course.......

[Guest guest]

Vicky eat until you little heart is content..I'm so glad to hear you have such a good appetite...Let us know how the blood work goes ok..

[Guest guest]

vicky...tooo funny...i ate everything in site once my

appitite came back...think its the fact you begin to

taste stuff again ( i lived off of popcorn and rice on

treatment)of course its several years later and im

still munchin deb

=====

deb, the wicked one

debsimonen@...

" Between two evils, i always pick the one i haven't tried before. " Mae West

__________________________________________________

[Guest guest]

<Does anyone beside me find it impossible to get a <phone call returned from

Dr. 's office? <Any suggestion would be appreciated. Deb in

<

Deb, are you referring to Emma ? I think that is the gal my band

doctor wants me to go to for fills. He said he proctored her and thatshe is

the one he wants doing my fills. I only had my band put in a month ago so

have not contacted her yet.

Are there other doctors you folks use in the Portland / Vancouver area? I

would hate to drive to either Eugene or Tacoma for a fill.

<Does anyone beside me find it impossible to get a <phone call returned from

Dr. 's office? <Any suggestion would be appreciated. Deb in

<

[Guest guest]

In a message dated 11/8/2002 5:12:34 AM Eastern Standard Time,

writes:

> -- Have any of you had a problem with tons of secretions?

Hi , First , I hope h gets better very soon. Now, I've been having a

big time problem with secretions going on for a couple of months now with no

apparent reasons for it. I take my compuvent, an anti-histamine and pepcid

just in case it's gastro related. I can't really tell that any of it helps

though. It usually wears off after 3 or 4 hours and doesn't happen every day.

I know this doesn't help you at all, but I do know what you're talking about.

Hopefully someone else will know of something to help. Tell h to stay

strong and that we're all pulling for her. Love to all, Vickie 0:)

[Guest guest]

Hello Dawn,

>Has anyone on this board been pregnant with Samters? If so what did

>you do during your pg and how was your asthma, allergies and polyps?

>Any input would be great!!!

First pregnancy (1986 - things have changed a lot in the medical scene

since then) occured a couple of years after my allergy to aspirin showed

up, which was about the same time as my first operation to remove polyps

(no one connected the polyps with the asthma back then, or either with the

aspirin! My doctor was treating my asthma as anxiety attacks, giving me

tranquilisers for a full year before I told him I thought it was asthma).

During pregnancy I was very healthy and my asthma was relatively under

control. I was taking becotide as long term prevention and ventolin for

daily wheezing.

I suffered from post natal depression in a huge way. I finally began to get

a handle on the depression sixteen years later after a mental breakdown!

Has the condition been recognised after the birth I think I may have

avoided those bleak times altogether. During this period my asthma and

sinus were in and out of control.

My second pregnancy was plagued with stomach acid problems - I drank

bottles of antacid daily. No one saw any problem with this. The last month

was spent sleeping sitting upright because the pain was too great lying

down. I now know the connection between asthma and acid problems and have

adjusted my diet and don't get acid at all (which always precipitates a

wheezing attack). The acid could have been due to the pregnancy, but it

persisted for the next ten years, so I think it was connected to the

sensitivities - I can't combine certain foods without running into

problems. It had nothing to do with weight gain either as I'm much fatter

now than I've ever been. :-)

I was VERY worried about ventolin use during pregnancy, and all the other

drugs I kept trying to get my asthma under control, but was reassured they

were okay for the baby.

My daughter (first born) had tonsilitus and bronchitis in her first few

weeks (totally breastfed babe) and suffered from recurrent excema, with a

major outbreak all over her body as a toddler. This was repeated with my

son, who suffered from blocked nasal passages for the first few months,

making feeding difficult without medication (nose drops). My daughter

definitely had allergies from the word go, to a variety of foods I was

eating when she was fully breastfed. I had no idea at the time that this

was possible. My youngest is the healthiest of all three as I was much more

aware by then.

I've often wondered what effect the drugs had on my children's immune

systems - both in utero and afterwards when they were fully breastfed. All

three have allergies similar to me. The youngest has recently developed

hives, at the same age I did when younger (before showing a reaction to

aspirin). The middle child has had sinus headaches bordering on migraine -

something I suffered from weekly as a child. The eldest has been treated

for asthma since about age 10, has hives, dermagraphic skin and is showing

depressive tendencies. It's a worry.

Sorry if this all sounds bleak. Hope it helps in some way.

Hello ,

>My other theory is that a very hot bath might not be the best the way

>to treat fever?

Too true! I was visiting my sister in hospital once when I caught the

popular flu virus floating around the ward. Sitting waiting for attention

(as I hallucinated during the night and my heart rate was the fastest it's

ever been) I complained of feeling too hot and the nurse asked me to take

my sweater off - duh! Since then I've learned to sponge myself down with

cool or tepid water, or eat ice cubes, to combat fever (I saw this in a

dozen or movies over many, many years and never twigged it was a good

idea!) The other thing I read is that fever is good for us, provided we

rest, of course. Keep the clear fluids up and lie still and let it work

it's course.

all the best,

Beverley

Author of " The Chimaera Conspiracy " , new Australian YA sci-fi mystery

http://chimaera.topcities.com

Homeschool Australia!

http://members.ozemail.com.au/~beverleypaine/homeschool

Editor of new children's ezine: Unschool~Kidz!

http://members.ozemail.com.au/~beverleypaine/Unschool~Kidz/index.html

[Guest guest]

Hi There,

I'm in Toronto. I did indeed use vinegar as starter when I split my brew into

two batches. I thought it was pateurized...I'll have to look again. I had

gotten a beautiful tasting brew just before doing this and now my KT turns sour

very quickly after only 4 or 5 days...I wonder if I have mother of vinegar

babies...unfortunately I threw out the mother...now what??? Is there a way to

convert them if they are mother of vinegar? I'll do the test to see (thanks

Benno)

Thank goodness I just received a " Baby " scoby from a kind soul (you know who you

are...thanks bunches...I am mailing off a m.o. to you to cover the shipping

costs...)I may have to start from scratch with this one if it turns out that I

have ruined the others (I was up to 3 separate brews...boohoo).

Benno, where do you buy oatstraw and how do you use it when brewing

Kombucha...and also I have powdered stevia, but where do you buy leaves?

Cheryl

OT: Fibro and Chronic Fatigue

Hi EveryOne,

This is off topic for this list but since several people are posting who

have Fibro or CFS I thought I would mention that low thyroid and low adrenal

hormones, - or resistance to either, may contribute to both of these

illnesses. There is a Dr. Lowe who says that he has helped both with a

program he calls Metabolic rehab:

http://www.drlowe.com/<http://www.drlowe.com/>

Hope this is helpful to you:-))

Peace, Love and Harmony,

Bev

Thyroid-Adrenal Connection Information & Resources

http://www.bestweb.net/~om/thyroid<http://www.bestweb.net/~om/thyroid>

[Guest guest]

Hi Cheryl:

Don't put yourself under stress by worrying about lost scobies. I am

in Toronto at least once a week and I can supply you with whatever you

need to produce a healthy Kombucha drink.I am serving right now 46

Kombucha brewers in the Toronto area. At present I am producing about

200 liters per week and therefore I have lots of scobies in stock. I

supply them free of charge with concentrated starter fluid. My advise,

support and time is free too. So, you can't lose.

I suggest that you contact me via e-mail: bsternig@... so that

we can make arrangements for whatever help you need.

Happy brewing,

Benno.

> Hi There,

> I'm in Toronto. I did indeed use vinegar as starter when I split my

brew into two batches. I thought it was pateurized...I'll have to

look again. I had gotten a beautiful tasting brew just before doing

this and now my KT turns sour very quickly after only 4 or 5 days...I

wonder if I have mother of vinegar babies...unfortunately I threw out

the mother...now what??? Is there a way to convert them if they are

mother of vinegar? I'll do the test to see (thanks Benno)

> Thank goodness I just received a " Baby " scoby from a kind soul (you

know who you are...thanks bunches...I am mailing off a m.o. to you to

cover the shipping costs...)I may have to start from scratch with this

one if it turns out that I have ruined the others (I was up to 3

separate brews...boohoo).

> Benno, where do you buy oatstraw and how do you use it when brewing

Kombucha...and also I have powdered stevia, but where do you buy leaves?

> Cheryl

[Guest guest]

Someone e mailed me that the fax machine for:

> * White House Communications Director* 

> > *_ Devonish_* 

> > * 202-456-7910* 

> > * 202-456-2983 - fax* 

was not working... I just called and they said..." Oh yes, our fax machine is working.. I have a stack of faxes 2 inches think in my lap!!!!!!"

Keep It up!

nancy

H. Cale

Vice President

Unlocking Autism

770.463.4475-home office

1.866.366.3361-toll free

www.UnlockingAutism.org

NanCale@...