Thank you Cass!

[Guest guest]

Dear Cass,

Your e-mail came at a good time. I have been shuffled from doc to doc, both

GP and GI, and even after checking my pancreas on two CT scans abnormally

large, no one is willing to say " pancreatitis " . However, they are willing to

say " IBD " (aka Crohns and colitis) and cancer, so for these murmurings, I

have a colonoscopy next week and just finished yet another CT and MRI with

blood cancer marker tests at Tokyo's National Cancer Center.

I have diarrhea more often than not. I feel fatigue daily between 10 am and

4pm. At 6pm, I don't want to move.

Pain comes and goes all over my abdomen areas and back. (this " movement " of

pain, my GI told me, is an indication of NOT having pancreatitis, becasue

pancreatitis pain " is constant and remains in one location " .

My blood and stool tests are " normal " and my GI looks at my CT from June and

basically shrugs. " We'll you don't have it now... " it seems as though he

says.

So after my appointment, on my hour long train ride home, I became resigned

in not knowing. I thought, " from tomorrow, I will go back to normal. I will

eat what I want and the amounts I want and if and when an attack comes, I'll

take that hour long train ride in pain so he can see for himself it's back! "

..... probably not a good action to take and one my wife does not want to see

me do. Perahps there is a careful middle ground.

But thank you. I won't give up even though it seems as though the health

system wants me to.

Take care,

Ron

Saitama, Japan

k6onrte66@...

[Guest guest]

Ron, don't give up! During the time period of June 2001 and March

2002 I had a colonscope, 2 CTs, MRI, and etc, enough to glow in the

dark, but one thing remained consistent and that was the lab work.

This was me of course. But you're right to know your body and know

what triggers the pain. One thing I tried was that I ate smaller

portions, much smaller more like grazing. It seemed to me at the

time in my weird thinking perhaps my abdomin was too full

and " pushing " on something. And, if the next day I had diahrea or

pain, as it seems the pain in me always would happen a day or 2

after, I tried to elimnate what it was the previous day from my

diet. At the time I could stand to loose a few pounds anyhow. After

the lab work they looked at the lliver on the MRI and thats where

they found my cancer. Then the thin slice of pancreas on the CT

finally appeared the tumor in the tail of the pancreas. But one

thing I have learned you can harbor this for some time before it

actually shows up and it is slow. I will be optimistic that this

next physician will be the one to find the answer for you and that

just a pill will take care of it all!!! The main thing to remember

is if its not normal for you don't give up.

> Dear Cass,

>

> Your e-mail came at a good time. I have been shuffled from doc to

doc, both

> GP and GI, and even after checking my pancreas on two CT scans

abnormally

> large, no one is willing to say " pancreatitis " . However, they are

willing to

> say " IBD " (aka Crohns and colitis) and cancer, so for these

murmurings, I

> have a colonoscopy next week and just finished yet another CT and

MRI with

> blood cancer marker tests at Tokyo's National Cancer Center.

>

> I have diarrhea more often than not. I feel fatigue daily between

10 am and

> 4pm. At 6pm, I don't want to move.

>

> Pain comes and goes all over my abdomen areas and back.

(this " movement " of

> pain, my GI told me, is an indication of NOT having pancreatitis,

becasue

> pancreatitis pain " is constant and remains in one location " .

>

> My blood and stool tests are " normal " and my GI looks at my CT from

June and

> basically shrugs. " We'll you don't have it now... " it seems as

though he

> says.

>

> So after my appointment, on my hour long train ride home, I became

resigned

> in not knowing. I thought, " from tomorrow, I will go back to

normal. I will

> eat what I want and the amounts I want and if and when an attack

comes, I'll

> take that hour long train ride in pain so he can see for himself

it's back! "

> .... probably not a good action to take and one my wife does not

want to see

> me do. Perahps there is a careful middle ground.

>

> But thank you. I won't give up even though it seems as though the

health

> system wants me to.

>

> Take care,

>

> Ron

> Saitama, Japan

> k6onrte66@m...