Guest guest Posted October 16, 2007 Report Share Posted October 16, 2007 It always saddens me to hear when someone is having a really hard time with mega sides because....well, I just hate to see anyone feel that shitty. I pretty much have all those sides except I'm gaining weight again. It doesn't help that my niece and I bought out the entire cake and brownie isle because they were on sale, then she split after 2 days which means I just HAD to eat them myself! That and I have a bad case of PMS which makes everything seem worse. Here's a few tips for you and trust me I know how hard it is to keep up on hygiene when you don't feel like climbing in the shower, but you'll feel better! Brush your teeth 3 times a day, use a good mouthwash several times a day, when your aching that bad take time out for a hot bath. As for the memory loss make sure your family knows the meds affect you like that and they will surely understand and do what they can to help. Stay with them as long as you have to, they're your family and can help you through this. My husband and I actually sit here and laugh at how " stoopid " I've become on tx because I can't remember from one minute to the next what I'm doing! :-p Shucks, I have to use spell check regularly lately because I draw a blank on the simplest words now and then...but I even forget to use it sometimes. lol How long do you have to go on tx and when did you start? I feel I should know the answer to that already but I'm sure you understand if it's a repeat question. ;-) Also... does your doc know and approve of your injection being taken five days after your last one? He should know if he doesn't. I'm told most of the sides are caused by the ribavirin and not the shot, (Someone please correct me on that if I'm wrong here.) so maybe the time frame won't affect your sides that badly. Hopefully. I think I'll go scrub the tub and soak for a while before bed time... I really need to relax for a bit. I hope you find some ways to ease your suffering , tx is temporary and will not go on forever so try to hang tough baby!! Gayle -- In Hepatitis C , elizabeth easterday <queenelizabethann1963@...> wrote: > > Hey Ya'll, well if ya'll remember last week I had lost my meds. So I always take my shot on Tuesdays, well due to the fact that they had to order me some more meds, I couldn't take it til Thursday. No I have to take it again tonite, which will be 5 dys. apart this time instead of 7. I'm real nervous about this I'm not so sure what kind of side effects I'm gonna have. I already have real bad side effects as it is now from the tx. I never in a million yrs. thought it would make me this sick. I can hardly function. I can't work anymore, Iv'e had to move in with my family, I have loss of memory & eye sight. Aneimia, hairloss, weightloss, ulcers in my throat & mouth, thrush. Alot of pain in my hands, arms, & legs. Jesus, I know theres more. I don't know if I can do this. Not to mention all the emotional & mental effects. I was already crazy before the treatment, I guess now I just certifiable. thanks for listening, I'm not so good with talking to people. > > patricia <pandas2@...> wrote: Oh good thought we lost you again hahaaa. Yeah the hair thing is really a problem but my sister- in-law lost all her hair on chemo-therapy for breast cancer. My hair is so thin it's almost funny. I will try the ponds sound like a good idea, don't know when I can go off procrit but hopefully soon. Get tired of pills and shots hope they don't need to add the other shot for the white count. That one is slowly coming up but still very low. Very depressed right now but it will pass lol. love and hugs..pat > > Gayle <mollydamaula@...> wrote: Here I am!! (waving franticly) > Been down with a bad cold is all, but I'm still kicking. ;-) > Hey Tim, how's it feel to be on the upswing you lucky devil you!!!? > God I can't wait to feel better. lol I'm really glad for you. > Pat, my hair is thinning badly already at week 8 but my friends are > taking me wig shopping if it gets too bad. lol > I JUST started growing my hair out a half a year before starting this > and it's really killing me to see my newly aquired wavey locks > hanging off my brush. > Oh well... it'll grow back I'm sure and they make some lovely wigs. > lol > So how long will you have to take the procrit you think before you > get a reprieve? I'm happy to hear it isn't making you as sick this > time around. > Hey speaking of being all dry and wrinkled (like me lol) try Ponds > and a facial buff puff, you'll be amazed at the difference in your > skin. I use the cleansing one (makeup remover) with the buff and > rinse, then mix the original moisturizer with a little cool water on > my face and wipe it off gently with a damp cool cloth. Works > wonders. > Take care, > Gayle > The nurse practitioner just called and my > 4 week blood work shows the HCV is > > undetectable. She said that's great at this early stage. > > > > The bad news is my hemoglobin is 9.2 and she's going to order > Prescript to > > be delivered to me ASAP. I didn't realize that this is something I > would be > > injecting, but she explained that I'll do it weekly. > > > > The other issue is that I have had some soreness in my upper arm > and now > > some pain in my left shoulder. I feels like I might have slept on > it wrong > > or pulled something. It hurts more when I take a deep breath. I > told her > > that and she was quite concerned. I happen to have 2 appointments > tomorrow > > - my rheumatologist in the morning and the internist in the > afternoon so > > she's going to fax the report over to the internist. She told me if > it gets > > worse, I should go to the ER. > > > > While I'm excited about the good news, I'm concerned about the bad > news :-( > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2007 Report Share Posted October 16, 2007 It always saddens me to hear when someone is having a really hard time with mega sides because....well, I just hate to see anyone feel that shitty. I pretty much have all those sides except I'm gaining weight again. It doesn't help that my niece and I bought out the entire cake and brownie isle because they were on sale, then she split after 2 days which means I just HAD to eat them myself! That and I have a bad case of PMS which makes everything seem worse. Here's a few tips for you and trust me I know how hard it is to keep up on hygiene when you don't feel like climbing in the shower, but you'll feel better! Brush your teeth 3 times a day, use a good mouthwash several times a day, when your aching that bad take time out for a hot bath. As for the memory loss make sure your family knows the meds affect you like that and they will surely understand and do what they can to help. Stay with them as long as you have to, they're your family and can help you through this. My husband and I actually sit here and laugh at how " stoopid " I've become on tx because I can't remember from one minute to the next what I'm doing! :-p Shucks, I have to use spell check regularly lately because I draw a blank on the simplest words now and then...but I even forget to use it sometimes. lol How long do you have to go on tx and when did you start? I feel I should know the answer to that already but I'm sure you understand if it's a repeat question. ;-) Also... does your doc know and approve of your injection being taken five days after your last one? He should know if he doesn't. I'm told most of the sides are caused by the ribavirin and not the shot, (Someone please correct me on that if I'm wrong here.) so maybe the time frame won't affect your sides that badly. Hopefully. I think I'll go scrub the tub and soak for a while before bed time... I really need to relax for a bit. I hope you find some ways to ease your suffering , tx is temporary and will not go on forever so try to hang tough baby!! Gayle -- In Hepatitis C , elizabeth easterday <queenelizabethann1963@...> wrote: > > Hey Ya'll, well if ya'll remember last week I had lost my meds. So I always take my shot on Tuesdays, well due to the fact that they had to order me some more meds, I couldn't take it til Thursday. No I have to take it again tonite, which will be 5 dys. apart this time instead of 7. I'm real nervous about this I'm not so sure what kind of side effects I'm gonna have. I already have real bad side effects as it is now from the tx. I never in a million yrs. thought it would make me this sick. I can hardly function. I can't work anymore, Iv'e had to move in with my family, I have loss of memory & eye sight. Aneimia, hairloss, weightloss, ulcers in my throat & mouth, thrush. Alot of pain in my hands, arms, & legs. Jesus, I know theres more. I don't know if I can do this. Not to mention all the emotional & mental effects. I was already crazy before the treatment, I guess now I just certifiable. thanks for listening, I'm not so good with talking to people. > > patricia <pandas2@...> wrote: Oh good thought we lost you again hahaaa. Yeah the hair thing is really a problem but my sister- in-law lost all her hair on chemo-therapy for breast cancer. My hair is so thin it's almost funny. I will try the ponds sound like a good idea, don't know when I can go off procrit but hopefully soon. Get tired of pills and shots hope they don't need to add the other shot for the white count. That one is slowly coming up but still very low. Very depressed right now but it will pass lol. love and hugs..pat > > Gayle <mollydamaula@...> wrote: Here I am!! (waving franticly) > Been down with a bad cold is all, but I'm still kicking. ;-) > Hey Tim, how's it feel to be on the upswing you lucky devil you!!!? > God I can't wait to feel better. lol I'm really glad for you. > Pat, my hair is thinning badly already at week 8 but my friends are > taking me wig shopping if it gets too bad. lol > I JUST started growing my hair out a half a year before starting this > and it's really killing me to see my newly aquired wavey locks > hanging off my brush. > Oh well... it'll grow back I'm sure and they make some lovely wigs. > lol > So how long will you have to take the procrit you think before you > get a reprieve? I'm happy to hear it isn't making you as sick this > time around. > Hey speaking of being all dry and wrinkled (like me lol) try Ponds > and a facial buff puff, you'll be amazed at the difference in your > skin. I use the cleansing one (makeup remover) with the buff and > rinse, then mix the original moisturizer with a little cool water on > my face and wipe it off gently with a damp cool cloth. Works > wonders. > Take care, > Gayle > The nurse practitioner just called and my > 4 week blood work shows the HCV is > > undetectable. She said that's great at this early stage. > > > > The bad news is my hemoglobin is 9.2 and she's going to order > Prescript to > > be delivered to me ASAP. I didn't realize that this is something I > would be > > injecting, but she explained that I'll do it weekly. > > > > The other issue is that I have had some soreness in my upper arm > and now > > some pain in my left shoulder. I feels like I might have slept on > it wrong > > or pulled something. It hurts more when I take a deep breath. I > told her > > that and she was quite concerned. I happen to have 2 appointments > tomorrow > > - my rheumatologist in the morning and the internist in the > afternoon so > > she's going to fax the report over to the internist. She told me if > it gets > > worse, I should go to the ER. > > > > While I'm excited about the good news, I'm concerned about the bad > news :-( > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2007 Report Share Posted October 16, 2007 It always saddens me to hear when someone is having a really hard time with mega sides because....well, I just hate to see anyone feel that shitty. I pretty much have all those sides except I'm gaining weight again. It doesn't help that my niece and I bought out the entire cake and brownie isle because they were on sale, then she split after 2 days which means I just HAD to eat them myself! That and I have a bad case of PMS which makes everything seem worse. Here's a few tips for you and trust me I know how hard it is to keep up on hygiene when you don't feel like climbing in the shower, but you'll feel better! Brush your teeth 3 times a day, use a good mouthwash several times a day, when your aching that bad take time out for a hot bath. As for the memory loss make sure your family knows the meds affect you like that and they will surely understand and do what they can to help. Stay with them as long as you have to, they're your family and can help you through this. My husband and I actually sit here and laugh at how " stoopid " I've become on tx because I can't remember from one minute to the next what I'm doing! :-p Shucks, I have to use spell check regularly lately because I draw a blank on the simplest words now and then...but I even forget to use it sometimes. lol How long do you have to go on tx and when did you start? I feel I should know the answer to that already but I'm sure you understand if it's a repeat question. ;-) Also... does your doc know and approve of your injection being taken five days after your last one? He should know if he doesn't. I'm told most of the sides are caused by the ribavirin and not the shot, (Someone please correct me on that if I'm wrong here.) so maybe the time frame won't affect your sides that badly. Hopefully. I think I'll go scrub the tub and soak for a while before bed time... I really need to relax for a bit. I hope you find some ways to ease your suffering , tx is temporary and will not go on forever so try to hang tough baby!! Gayle -- In Hepatitis C , elizabeth easterday <queenelizabethann1963@...> wrote: > > Hey Ya'll, well if ya'll remember last week I had lost my meds. So I always take my shot on Tuesdays, well due to the fact that they had to order me some more meds, I couldn't take it til Thursday. No I have to take it again tonite, which will be 5 dys. apart this time instead of 7. I'm real nervous about this I'm not so sure what kind of side effects I'm gonna have. I already have real bad side effects as it is now from the tx. I never in a million yrs. thought it would make me this sick. I can hardly function. I can't work anymore, Iv'e had to move in with my family, I have loss of memory & eye sight. Aneimia, hairloss, weightloss, ulcers in my throat & mouth, thrush. Alot of pain in my hands, arms, & legs. Jesus, I know theres more. I don't know if I can do this. Not to mention all the emotional & mental effects. I was already crazy before the treatment, I guess now I just certifiable. thanks for listening, I'm not so good with talking to people. > > patricia <pandas2@...> wrote: Oh good thought we lost you again hahaaa. Yeah the hair thing is really a problem but my sister- in-law lost all her hair on chemo-therapy for breast cancer. My hair is so thin it's almost funny. I will try the ponds sound like a good idea, don't know when I can go off procrit but hopefully soon. Get tired of pills and shots hope they don't need to add the other shot for the white count. That one is slowly coming up but still very low. Very depressed right now but it will pass lol. love and hugs..pat > > Gayle <mollydamaula@...> wrote: Here I am!! (waving franticly) > Been down with a bad cold is all, but I'm still kicking. ;-) > Hey Tim, how's it feel to be on the upswing you lucky devil you!!!? > God I can't wait to feel better. lol I'm really glad for you. > Pat, my hair is thinning badly already at week 8 but my friends are > taking me wig shopping if it gets too bad. lol > I JUST started growing my hair out a half a year before starting this > and it's really killing me to see my newly aquired wavey locks > hanging off my brush. > Oh well... it'll grow back I'm sure and they make some lovely wigs. > lol > So how long will you have to take the procrit you think before you > get a reprieve? I'm happy to hear it isn't making you as sick this > time around. > Hey speaking of being all dry and wrinkled (like me lol) try Ponds > and a facial buff puff, you'll be amazed at the difference in your > skin. I use the cleansing one (makeup remover) with the buff and > rinse, then mix the original moisturizer with a little cool water on > my face and wipe it off gently with a damp cool cloth. Works > wonders. > Take care, > Gayle > The nurse practitioner just called and my > 4 week blood work shows the HCV is > > undetectable. She said that's great at this early stage. > > > > The bad news is my hemoglobin is 9.2 and she's going to order > Prescript to > > be delivered to me ASAP. I didn't realize that this is something I > would be > > injecting, but she explained that I'll do it weekly. > > > > The other issue is that I have had some soreness in my upper arm > and now > > some pain in my left shoulder. I feels like I might have slept on > it wrong > > or pulled something. It hurts more when I take a deep breath. I > told her > > that and she was quite concerned. I happen to have 2 appointments > tomorrow > > - my rheumatologist in the morning and the internist in the > afternoon so > > she's going to fax the report over to the internist. She told me if > it gets > > worse, I should go to the ER. > > > > While I'm excited about the good news, I'm concerned about the bad > news :-( > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2007 Report Share Posted October 16, 2007 Hi Gayle, thank you so much for your kind words & support. Lets see here ( I gotta try to remember now), I have about 9 more months left of TX. Yap I'm just getting started. I originally started in April, but had to restart in August! And yes my Doc knows everything that happened, he's the one that told me to go ahead & take it tonite, so I could get back on track with my schedule. I've been taking my shots on Tuesdays ever since I restarted. I got real lucky this time, I've been very blessed with such a good Doc. The first one I had was something else. He never explained anything to me, he never warned me just how bad some of the side effects could be. I ended up in the hospital several times. Finally my mom ( God bless her heart) took me to one of the major hospitals here to try to get me well. They brought in 3 liver specialists to see me. I had severe lung infections, couldn't breath, my throat was swallon almost shut. That Quack of a Doc I was seeing & the hospital I was going to that he was out of just about killed me. I had a seizure & severed the right side of my tongue in half. They didn't even know what to do for me. Half the time they never checked my blood work. And you know that's the first thing that is usually checked first. Boy, I'll tell ya, you have to really be careful these days. But I'm just so grateful I hooked up with the Doc I have now, he's just awesome, not to metion young & good looking! I have not so good insurance so I wasn't sure what was going to happen. I think we should also be provided with some kind of classes or support groups. Where I live they have one support group once a month. That's just not enough. And of course now I can't drive, I don't dare get behind the wheel of a car! Anywho I'm getting ready to go let my Sister stick me. So I hope to talk to you real soon, again thank you. Take Care of yourself & your hubby. Gayle <mollydamaula@...> wrote: It always saddens me to hear when someone is having a really hard time with mega sides because....well, I just hate to see anyone feel that shitty. I pretty much have all those sides except I'm gaining weight again. It doesn't help that my niece and I bought out the entire cake and brownie isle because they were on sale, then she split after 2 days which means I just HAD to eat them myself! That and I have a bad case of PMS which makes everything seem worse. Here's a few tips for you and trust me I know how hard it is to keep up on hygiene when you don't feel like climbing in the shower, but you'll feel better! Brush your teeth 3 times a day, use a good mouthwash several times a day, when your aching that bad take time out for a hot bath. As for the memory loss make sure your family knows the meds affect you like that and they will surely understand and do what they can to help. Stay with them as long as you have to, they're your family and can help you through this. My husband and I actually sit here and laugh at how " stoopid " I've become on tx because I can't remember from one minute to the next what I'm doing! :-p Shucks, I have to use spell check regularly lately because I draw a blank on the simplest words now and then...but I even forget to use it sometimes. lol How long do you have to go on tx and when did you start? I feel I should know the answer to that already but I'm sure you understand if it's a repeat question. ;-) Also... does your doc know and approve of your injection being taken five days after your last one? He should know if he doesn't. I'm told most of the sides are caused by the ribavirin and not the shot, (Someone please correct me on that if I'm wrong here.) so maybe the time frame won't affect your sides that badly. Hopefully. I think I'll go scrub the tub and soak for a while before bed time... I really need to relax for a bit. I hope you find some ways to ease your suffering , tx is temporary and will not go on forever so try to hang tough baby!! Gayle -- In Hepatitis C , elizabeth easterday <queenelizabethann1963@...> wrote: > > Hey Ya'll, well if ya'll remember last week I had lost my meds. So I always take my shot on Tuesdays, well due to the fact that they had to order me some more meds, I couldn't take it til Thursday. No I have to take it again tonite, which will be 5 dys. apart this time instead of 7. I'm real nervous about this I'm not so sure what kind of side effects I'm gonna have. I already have real bad side effects as it is now from the tx. I never in a million yrs. thought it would make me this sick. I can hardly function. I can't work anymore, Iv'e had to move in with my family, I have loss of memory & eye sight. Aneimia, hairloss, weightloss, ulcers in my throat & mouth, thrush. Alot of pain in my hands, arms, & legs. Jesus, I know theres more. I don't know if I can do this. Not to mention all the emotional & mental effects. I was already crazy before the treatment, I guess now I just certifiable. thanks for listening, I'm not so good with talking to people. > > patricia <pandas2@...> wrote: Oh good thought we lost you again hahaaa. Yeah the hair thing is really a problem but my sister- in-law lost all her hair on chemo-therapy for breast cancer. My hair is so thin it's almost funny. I will try the ponds sound like a good idea, don't know when I can go off procrit but hopefully soon. Get tired of pills and shots hope they don't need to add the other shot for the white count. That one is slowly coming up but still very low. Very depressed right now but it will pass lol. love and hugs..pat > > Gayle <mollydamaula@...> wrote: Here I am!! (waving franticly) > Been down with a bad cold is all, but I'm still kicking. ;-) > Hey Tim, how's it feel to be on the upswing you lucky devil you!!!? > God I can't wait to feel better. lol I'm really glad for you. > Pat, my hair is thinning badly already at week 8 but my friends are > taking me wig shopping if it gets too bad. lol > I JUST started growing my hair out a half a year before starting this > and it's really killing me to see my newly aquired wavey locks > hanging off my brush. > Oh well... it'll grow back I'm sure and they make some lovely wigs. > lol > So how long will you have to take the procrit you think before you > get a reprieve? I'm happy to hear it isn't making you as sick this > time around. > Hey speaking of being all dry and wrinkled (like me lol) try Ponds > and a facial buff puff, you'll be amazed at the difference in your > skin. I use the cleansing one (makeup remover) with the buff and > rinse, then mix the original moisturizer with a little cool water on > my face and wipe it off gently with a damp cool cloth. Works > wonders. > Take care, > Gayle > The nurse practitioner just called and my > 4 week blood work shows the HCV is > > undetectable. She said that's great at this early stage. > > > > The bad news is my hemoglobin is 9.2 and she's going to order > Prescript to > > be delivered to me ASAP. I didn't realize that this is something I > would be > > injecting, but she explained that I'll do it weekly. > > > > The other issue is that I have had some soreness in my upper arm > and now > > some pain in my left shoulder. I feels like I might have slept on > it wrong > > or pulled something. It hurts more when I take a deep breath. I > told her > > that and she was quite concerned. I happen to have 2 appointments > tomorrow > > - my rheumatologist in the morning and the internist in the > afternoon so > > she's going to fax the report over to the internist. She told me if > it gets > > worse, I should go to the ER. > > > > While I'm excited about the good news, I'm concerned about the bad > news :-( > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2007 Report Share Posted October 16, 2007 Hi Gayle, thank you so much for your kind words & support. Lets see here ( I gotta try to remember now), I have about 9 more months left of TX. Yap I'm just getting started. I originally started in April, but had to restart in August! And yes my Doc knows everything that happened, he's the one that told me to go ahead & take it tonite, so I could get back on track with my schedule. I've been taking my shots on Tuesdays ever since I restarted. I got real lucky this time, I've been very blessed with such a good Doc. The first one I had was something else. He never explained anything to me, he never warned me just how bad some of the side effects could be. I ended up in the hospital several times. Finally my mom ( God bless her heart) took me to one of the major hospitals here to try to get me well. They brought in 3 liver specialists to see me. I had severe lung infections, couldn't breath, my throat was swallon almost shut. That Quack of a Doc I was seeing & the hospital I was going to that he was out of just about killed me. I had a seizure & severed the right side of my tongue in half. They didn't even know what to do for me. Half the time they never checked my blood work. And you know that's the first thing that is usually checked first. Boy, I'll tell ya, you have to really be careful these days. But I'm just so grateful I hooked up with the Doc I have now, he's just awesome, not to metion young & good looking! I have not so good insurance so I wasn't sure what was going to happen. I think we should also be provided with some kind of classes or support groups. Where I live they have one support group once a month. That's just not enough. And of course now I can't drive, I don't dare get behind the wheel of a car! Anywho I'm getting ready to go let my Sister stick me. So I hope to talk to you real soon, again thank you. Take Care of yourself & your hubby. Gayle <mollydamaula@...> wrote: It always saddens me to hear when someone is having a really hard time with mega sides because....well, I just hate to see anyone feel that shitty. I pretty much have all those sides except I'm gaining weight again. It doesn't help that my niece and I bought out the entire cake and brownie isle because they were on sale, then she split after 2 days which means I just HAD to eat them myself! That and I have a bad case of PMS which makes everything seem worse. Here's a few tips for you and trust me I know how hard it is to keep up on hygiene when you don't feel like climbing in the shower, but you'll feel better! Brush your teeth 3 times a day, use a good mouthwash several times a day, when your aching that bad take time out for a hot bath. As for the memory loss make sure your family knows the meds affect you like that and they will surely understand and do what they can to help. Stay with them as long as you have to, they're your family and can help you through this. My husband and I actually sit here and laugh at how " stoopid " I've become on tx because I can't remember from one minute to the next what I'm doing! :-p Shucks, I have to use spell check regularly lately because I draw a blank on the simplest words now and then...but I even forget to use it sometimes. lol How long do you have to go on tx and when did you start? I feel I should know the answer to that already but I'm sure you understand if it's a repeat question. ;-) Also... does your doc know and approve of your injection being taken five days after your last one? He should know if he doesn't. I'm told most of the sides are caused by the ribavirin and not the shot, (Someone please correct me on that if I'm wrong here.) so maybe the time frame won't affect your sides that badly. Hopefully. I think I'll go scrub the tub and soak for a while before bed time... I really need to relax for a bit. I hope you find some ways to ease your suffering , tx is temporary and will not go on forever so try to hang tough baby!! Gayle -- In Hepatitis C , elizabeth easterday <queenelizabethann1963@...> wrote: > > Hey Ya'll, well if ya'll remember last week I had lost my meds. So I always take my shot on Tuesdays, well due to the fact that they had to order me some more meds, I couldn't take it til Thursday. No I have to take it again tonite, which will be 5 dys. apart this time instead of 7. I'm real nervous about this I'm not so sure what kind of side effects I'm gonna have. I already have real bad side effects as it is now from the tx. I never in a million yrs. thought it would make me this sick. I can hardly function. I can't work anymore, Iv'e had to move in with my family, I have loss of memory & eye sight. Aneimia, hairloss, weightloss, ulcers in my throat & mouth, thrush. Alot of pain in my hands, arms, & legs. Jesus, I know theres more. I don't know if I can do this. Not to mention all the emotional & mental effects. I was already crazy before the treatment, I guess now I just certifiable. thanks for listening, I'm not so good with talking to people. > > patricia <pandas2@...> wrote: Oh good thought we lost you again hahaaa. Yeah the hair thing is really a problem but my sister- in-law lost all her hair on chemo-therapy for breast cancer. My hair is so thin it's almost funny. I will try the ponds sound like a good idea, don't know when I can go off procrit but hopefully soon. Get tired of pills and shots hope they don't need to add the other shot for the white count. That one is slowly coming up but still very low. Very depressed right now but it will pass lol. love and hugs..pat > > Gayle <mollydamaula@...> wrote: Here I am!! (waving franticly) > Been down with a bad cold is all, but I'm still kicking. ;-) > Hey Tim, how's it feel to be on the upswing you lucky devil you!!!? > God I can't wait to feel better. lol I'm really glad for you. > Pat, my hair is thinning badly already at week 8 but my friends are > taking me wig shopping if it gets too bad. lol > I JUST started growing my hair out a half a year before starting this > and it's really killing me to see my newly aquired wavey locks > hanging off my brush. > Oh well... it'll grow back I'm sure and they make some lovely wigs. > lol > So how long will you have to take the procrit you think before you > get a reprieve? I'm happy to hear it isn't making you as sick this > time around. > Hey speaking of being all dry and wrinkled (like me lol) try Ponds > and a facial buff puff, you'll be amazed at the difference in your > skin. I use the cleansing one (makeup remover) with the buff and > rinse, then mix the original moisturizer with a little cool water on > my face and wipe it off gently with a damp cool cloth. Works > wonders. > Take care, > Gayle > The nurse practitioner just called and my > 4 week blood work shows the HCV is > > undetectable. She said that's great at this early stage. > > > > The bad news is my hemoglobin is 9.2 and she's going to order > Prescript to > > be delivered to me ASAP. I didn't realize that this is something I > would be > > injecting, but she explained that I'll do it weekly. > > > > The other issue is that I have had some soreness in my upper arm > and now > > some pain in my left shoulder. I feels like I might have slept on > it wrong > > or pulled something. It hurts more when I take a deep breath. I > told her > > that and she was quite concerned. I happen to have 2 appointments > tomorrow > > - my rheumatologist in the morning and the internist in the > afternoon so > > she's going to fax the report over to the internist. She told me if > it gets > > worse, I should go to the ER. > > > > While I'm excited about the good news, I'm concerned about the bad > news :-( > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2007 Report Share Posted October 16, 2007 Hi Gayle, thank you so much for your kind words & support. Lets see here ( I gotta try to remember now), I have about 9 more months left of TX. Yap I'm just getting started. I originally started in April, but had to restart in August! And yes my Doc knows everything that happened, he's the one that told me to go ahead & take it tonite, so I could get back on track with my schedule. I've been taking my shots on Tuesdays ever since I restarted. I got real lucky this time, I've been very blessed with such a good Doc. The first one I had was something else. He never explained anything to me, he never warned me just how bad some of the side effects could be. I ended up in the hospital several times. Finally my mom ( God bless her heart) took me to one of the major hospitals here to try to get me well. They brought in 3 liver specialists to see me. I had severe lung infections, couldn't breath, my throat was swallon almost shut. That Quack of a Doc I was seeing & the hospital I was going to that he was out of just about killed me. I had a seizure & severed the right side of my tongue in half. They didn't even know what to do for me. Half the time they never checked my blood work. And you know that's the first thing that is usually checked first. Boy, I'll tell ya, you have to really be careful these days. But I'm just so grateful I hooked up with the Doc I have now, he's just awesome, not to metion young & good looking! I have not so good insurance so I wasn't sure what was going to happen. I think we should also be provided with some kind of classes or support groups. Where I live they have one support group once a month. That's just not enough. And of course now I can't drive, I don't dare get behind the wheel of a car! Anywho I'm getting ready to go let my Sister stick me. So I hope to talk to you real soon, again thank you. Take Care of yourself & your hubby. Gayle <mollydamaula@...> wrote: It always saddens me to hear when someone is having a really hard time with mega sides because....well, I just hate to see anyone feel that shitty. I pretty much have all those sides except I'm gaining weight again. It doesn't help that my niece and I bought out the entire cake and brownie isle because they were on sale, then she split after 2 days which means I just HAD to eat them myself! That and I have a bad case of PMS which makes everything seem worse. Here's a few tips for you and trust me I know how hard it is to keep up on hygiene when you don't feel like climbing in the shower, but you'll feel better! Brush your teeth 3 times a day, use a good mouthwash several times a day, when your aching that bad take time out for a hot bath. As for the memory loss make sure your family knows the meds affect you like that and they will surely understand and do what they can to help. Stay with them as long as you have to, they're your family and can help you through this. My husband and I actually sit here and laugh at how " stoopid " I've become on tx because I can't remember from one minute to the next what I'm doing! :-p Shucks, I have to use spell check regularly lately because I draw a blank on the simplest words now and then...but I even forget to use it sometimes. lol How long do you have to go on tx and when did you start? I feel I should know the answer to that already but I'm sure you understand if it's a repeat question. ;-) Also... does your doc know and approve of your injection being taken five days after your last one? He should know if he doesn't. I'm told most of the sides are caused by the ribavirin and not the shot, (Someone please correct me on that if I'm wrong here.) so maybe the time frame won't affect your sides that badly. Hopefully. I think I'll go scrub the tub and soak for a while before bed time... I really need to relax for a bit. I hope you find some ways to ease your suffering , tx is temporary and will not go on forever so try to hang tough baby!! Gayle -- In Hepatitis C , elizabeth easterday <queenelizabethann1963@...> wrote: > > Hey Ya'll, well if ya'll remember last week I had lost my meds. So I always take my shot on Tuesdays, well due to the fact that they had to order me some more meds, I couldn't take it til Thursday. No I have to take it again tonite, which will be 5 dys. apart this time instead of 7. I'm real nervous about this I'm not so sure what kind of side effects I'm gonna have. I already have real bad side effects as it is now from the tx. I never in a million yrs. thought it would make me this sick. I can hardly function. I can't work anymore, Iv'e had to move in with my family, I have loss of memory & eye sight. Aneimia, hairloss, weightloss, ulcers in my throat & mouth, thrush. Alot of pain in my hands, arms, & legs. Jesus, I know theres more. I don't know if I can do this. Not to mention all the emotional & mental effects. I was already crazy before the treatment, I guess now I just certifiable. thanks for listening, I'm not so good with talking to people. > > patricia <pandas2@...> wrote: Oh good thought we lost you again hahaaa. Yeah the hair thing is really a problem but my sister- in-law lost all her hair on chemo-therapy for breast cancer. My hair is so thin it's almost funny. I will try the ponds sound like a good idea, don't know when I can go off procrit but hopefully soon. Get tired of pills and shots hope they don't need to add the other shot for the white count. That one is slowly coming up but still very low. Very depressed right now but it will pass lol. love and hugs..pat > > Gayle <mollydamaula@...> wrote: Here I am!! (waving franticly) > Been down with a bad cold is all, but I'm still kicking. ;-) > Hey Tim, how's it feel to be on the upswing you lucky devil you!!!? > God I can't wait to feel better. lol I'm really glad for you. > Pat, my hair is thinning badly already at week 8 but my friends are > taking me wig shopping if it gets too bad. lol > I JUST started growing my hair out a half a year before starting this > and it's really killing me to see my newly aquired wavey locks > hanging off my brush. > Oh well... it'll grow back I'm sure and they make some lovely wigs. > lol > So how long will you have to take the procrit you think before you > get a reprieve? I'm happy to hear it isn't making you as sick this > time around. > Hey speaking of being all dry and wrinkled (like me lol) try Ponds > and a facial buff puff, you'll be amazed at the difference in your > skin. I use the cleansing one (makeup remover) with the buff and > rinse, then mix the original moisturizer with a little cool water on > my face and wipe it off gently with a damp cool cloth. Works > wonders. > Take care, > Gayle > The nurse practitioner just called and my > 4 week blood work shows the HCV is > > undetectable. She said that's great at this early stage. > > > > The bad news is my hemoglobin is 9.2 and she's going to order > Prescript to > > be delivered to me ASAP. I didn't realize that this is something I > would be > > injecting, but she explained that I'll do it weekly. > > > > The other issue is that I have had some soreness in my upper arm > and now > > some pain in my left shoulder. I feels like I might have slept on > it wrong > > or pulled something. It hurts more when I take a deep breath. I > told her > > that and she was quite concerned. I happen to have 2 appointments > tomorrow > > - my rheumatologist in the morning and the internist in the > afternoon so > > she's going to fax the report over to the internist. She told me if > it gets > > worse, I should go to the ER. > > > > While I'm excited about the good news, I'm concerned about the bad > news :-( > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2007 Report Share Posted October 16, 2007 Hi Gayle, thank you so much for your kind words & support. Lets see here ( I gotta try to remember now), I have about 9 more months left of TX. Yap I'm just getting started. I originally started in April, but had to restart in August! And yes my Doc knows everything that happened, he's the one that told me to go ahead & take it tonite, so I could get back on track with my schedule. I've been taking my shots on Tuesdays ever since I restarted. I got real lucky this time, I've been very blessed with such a good Doc. The first one I had was something else. He never explained anything to me, he never warned me just how bad some of the side effects could be. I ended up in the hospital several times. Finally my mom ( God bless her heart) took me to one of the major hospitals here to try to get me well. They brought in 3 liver specialists to see me. I had severe lung infections, couldn't breath, my throat was swallon almost shut. That Quack of a Doc I was seeing & the hospital I was going to that he was out of just about killed me. I had a seizure & severed the right side of my tongue in half. They didn't even know what to do for me. Half the time they never checked my blood work. And you know that's the first thing that is usually checked first. Boy, I'll tell ya, you have to really be careful these days. But I'm just so grateful I hooked up with the Doc I have now, he's just awesome, not to metion young & good looking! I have not so good insurance so I wasn't sure what was going to happen. I think we should also be provided with some kind of classes or support groups. Where I live they have one support group once a month. That's just not enough. And of course now I can't drive, I don't dare get behind the wheel of a car! Anywho I'm getting ready to go let my Sister stick me. So I hope to talk to you real soon, again thank you. Take Care of yourself & your hubby. Gayle <mollydamaula@...> wrote: It always saddens me to hear when someone is having a really hard time with mega sides because....well, I just hate to see anyone feel that shitty. I pretty much have all those sides except I'm gaining weight again. It doesn't help that my niece and I bought out the entire cake and brownie isle because they were on sale, then she split after 2 days which means I just HAD to eat them myself! That and I have a bad case of PMS which makes everything seem worse. Here's a few tips for you and trust me I know how hard it is to keep up on hygiene when you don't feel like climbing in the shower, but you'll feel better! Brush your teeth 3 times a day, use a good mouthwash several times a day, when your aching that bad take time out for a hot bath. As for the memory loss make sure your family knows the meds affect you like that and they will surely understand and do what they can to help. Stay with them as long as you have to, they're your family and can help you through this. My husband and I actually sit here and laugh at how " stoopid " I've become on tx because I can't remember from one minute to the next what I'm doing! :-p Shucks, I have to use spell check regularly lately because I draw a blank on the simplest words now and then...but I even forget to use it sometimes. lol How long do you have to go on tx and when did you start? I feel I should know the answer to that already but I'm sure you understand if it's a repeat question. ;-) Also... does your doc know and approve of your injection being taken five days after your last one? He should know if he doesn't. I'm told most of the sides are caused by the ribavirin and not the shot, (Someone please correct me on that if I'm wrong here.) so maybe the time frame won't affect your sides that badly. Hopefully. I think I'll go scrub the tub and soak for a while before bed time... I really need to relax for a bit. I hope you find some ways to ease your suffering , tx is temporary and will not go on forever so try to hang tough baby!! Gayle -- In Hepatitis C , elizabeth easterday <queenelizabethann1963@...> wrote: > > Hey Ya'll, well if ya'll remember last week I had lost my meds. So I always take my shot on Tuesdays, well due to the fact that they had to order me some more meds, I couldn't take it til Thursday. No I have to take it again tonite, which will be 5 dys. apart this time instead of 7. I'm real nervous about this I'm not so sure what kind of side effects I'm gonna have. I already have real bad side effects as it is now from the tx. I never in a million yrs. thought it would make me this sick. I can hardly function. I can't work anymore, Iv'e had to move in with my family, I have loss of memory & eye sight. Aneimia, hairloss, weightloss, ulcers in my throat & mouth, thrush. Alot of pain in my hands, arms, & legs. Jesus, I know theres more. I don't know if I can do this. Not to mention all the emotional & mental effects. I was already crazy before the treatment, I guess now I just certifiable. thanks for listening, I'm not so good with talking to people. > > patricia <pandas2@...> wrote: Oh good thought we lost you again hahaaa. Yeah the hair thing is really a problem but my sister- in-law lost all her hair on chemo-therapy for breast cancer. My hair is so thin it's almost funny. I will try the ponds sound like a good idea, don't know when I can go off procrit but hopefully soon. Get tired of pills and shots hope they don't need to add the other shot for the white count. That one is slowly coming up but still very low. Very depressed right now but it will pass lol. love and hugs..pat > > Gayle <mollydamaula@...> wrote: Here I am!! (waving franticly) > Been down with a bad cold is all, but I'm still kicking. ;-) > Hey Tim, how's it feel to be on the upswing you lucky devil you!!!? > God I can't wait to feel better. lol I'm really glad for you. > Pat, my hair is thinning badly already at week 8 but my friends are > taking me wig shopping if it gets too bad. lol > I JUST started growing my hair out a half a year before starting this > and it's really killing me to see my newly aquired wavey locks > hanging off my brush. > Oh well... it'll grow back I'm sure and they make some lovely wigs. > lol > So how long will you have to take the procrit you think before you > get a reprieve? I'm happy to hear it isn't making you as sick this > time around. > Hey speaking of being all dry and wrinkled (like me lol) try Ponds > and a facial buff puff, you'll be amazed at the difference in your > skin. I use the cleansing one (makeup remover) with the buff and > rinse, then mix the original moisturizer with a little cool water on > my face and wipe it off gently with a damp cool cloth. Works > wonders. > Take care, > Gayle > The nurse practitioner just called and my > 4 week blood work shows the HCV is > > undetectable. She said that's great at this early stage. > > > > The bad news is my hemoglobin is 9.2 and she's going to order > Prescript to > > be delivered to me ASAP. I didn't realize that this is something I > would be > > injecting, but she explained that I'll do it weekly. > > > > The other issue is that I have had some soreness in my upper arm > and now > > some pain in my left shoulder. I feels like I might have slept on > it wrong > > or pulled something. It hurts more when I take a deep breath. I > told her > > that and she was quite concerned. I happen to have 2 appointments > tomorrow > > - my rheumatologist in the morning and the internist in the > afternoon so > > she's going to fax the report over to the internist. She told me if > it gets > > worse, I should go to the ER. > > > > While I'm excited about the good news, I'm concerned about the bad > news :-( > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 ok, so you have 9 months to go which means you're probably gen 1a and are on 48 weeks of tx. Did I get all that right? Is it just me or do people with that genotype seem to have worse sides because possibly it requires a higher dosage of medicine? I only take 800mg a day of Riba and .50ml of peginterferon, are your doses higher? Did they ever tell you what the seizure was caused by? (I'm just full of questions this morning. lol) Oh man you went through more crap than I did with my first doc, there certainly are some out there that have no idea what they're doing!! My first one was as bad as yours but I also found a better one with a referal from my family md thank goodness. He's 50 miles from here but it's worth the trip just to look at him. lol He's a babe! Seriously he's very infomative and good at his job. Admittedly my truck sits in the driveway a lot more these days, and having just gotten off Cymbalta I may have someone drive me there this month because things have gotten a little " weird " behind my eyes lately. Who knows though, maybe in 2 weeks that'll pass and I'll go it alone. Hey listen, although there are some who will disagree with me I'm going to say it anyway... Drink a gallon of water a day if you can! It not only hydrates you from the inside but it will flush toxins out of your body which can only make you feel better. And rest when you need to! Lay any guilt aside and sleep all damned day if you have to! I hope you get to feeling better and can hack the months ahead of you. Remember that this will pass and a day will come when it'll be behind you. Take care. Gayle The nurse practitioner just called and my > > 4 week blood work shows the HCV is > > > undetectable. She said that's great at this early stage. > > > > > > The bad news is my hemoglobin is 9.2 and she's going to order > > Prescript to > > > be delivered to me ASAP. I didn't realize that this is something > I > > would be > > > injecting, but she explained that I'll do it weekly. > > > > > > The other issue is that I have had some soreness in my upper arm > > and now > > > some pain in my left shoulder. I feels like I might have slept on > > it wrong > > > or pulled something. It hurts more when I take a deep breath. I > > told her > > > that and she was quite concerned. I happen to have 2 appointments > > tomorrow > > > - my rheumatologist in the morning and the internist in the > > afternoon so > > > she's going to fax the report over to the internist. She told me > if > > it gets > > > worse, I should go to the ER. > > > > > > While I'm excited about the good news, I'm concerned about the > bad > > news :-( > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 ok, so you have 9 months to go which means you're probably gen 1a and are on 48 weeks of tx. Did I get all that right? Is it just me or do people with that genotype seem to have worse sides because possibly it requires a higher dosage of medicine? I only take 800mg a day of Riba and .50ml of peginterferon, are your doses higher? Did they ever tell you what the seizure was caused by? (I'm just full of questions this morning. lol) Oh man you went through more crap than I did with my first doc, there certainly are some out there that have no idea what they're doing!! My first one was as bad as yours but I also found a better one with a referal from my family md thank goodness. He's 50 miles from here but it's worth the trip just to look at him. lol He's a babe! Seriously he's very infomative and good at his job. Admittedly my truck sits in the driveway a lot more these days, and having just gotten off Cymbalta I may have someone drive me there this month because things have gotten a little " weird " behind my eyes lately. Who knows though, maybe in 2 weeks that'll pass and I'll go it alone. Hey listen, although there are some who will disagree with me I'm going to say it anyway... Drink a gallon of water a day if you can! It not only hydrates you from the inside but it will flush toxins out of your body which can only make you feel better. And rest when you need to! Lay any guilt aside and sleep all damned day if you have to! I hope you get to feeling better and can hack the months ahead of you. Remember that this will pass and a day will come when it'll be behind you. Take care. Gayle The nurse practitioner just called and my > > 4 week blood work shows the HCV is > > > undetectable. She said that's great at this early stage. > > > > > > The bad news is my hemoglobin is 9.2 and she's going to order > > Prescript to > > > be delivered to me ASAP. I didn't realize that this is something > I > > would be > > > injecting, but she explained that I'll do it weekly. > > > > > > The other issue is that I have had some soreness in my upper arm > > and now > > > some pain in my left shoulder. I feels like I might have slept on > > it wrong > > > or pulled something. It hurts more when I take a deep breath. I > > told her > > > that and she was quite concerned. I happen to have 2 appointments > > tomorrow > > > - my rheumatologist in the morning and the internist in the > > afternoon so > > > she's going to fax the report over to the internist. She told me > if > > it gets > > > worse, I should go to the ER. > > > > > > While I'm excited about the good news, I'm concerned about the > bad > > news :-( > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 ok, so you have 9 months to go which means you're probably gen 1a and are on 48 weeks of tx. Did I get all that right? Is it just me or do people with that genotype seem to have worse sides because possibly it requires a higher dosage of medicine? I only take 800mg a day of Riba and .50ml of peginterferon, are your doses higher? Did they ever tell you what the seizure was caused by? (I'm just full of questions this morning. lol) Oh man you went through more crap than I did with my first doc, there certainly are some out there that have no idea what they're doing!! My first one was as bad as yours but I also found a better one with a referal from my family md thank goodness. He's 50 miles from here but it's worth the trip just to look at him. lol He's a babe! Seriously he's very infomative and good at his job. Admittedly my truck sits in the driveway a lot more these days, and having just gotten off Cymbalta I may have someone drive me there this month because things have gotten a little " weird " behind my eyes lately. Who knows though, maybe in 2 weeks that'll pass and I'll go it alone. Hey listen, although there are some who will disagree with me I'm going to say it anyway... Drink a gallon of water a day if you can! It not only hydrates you from the inside but it will flush toxins out of your body which can only make you feel better. And rest when you need to! Lay any guilt aside and sleep all damned day if you have to! I hope you get to feeling better and can hack the months ahead of you. Remember that this will pass and a day will come when it'll be behind you. Take care. Gayle The nurse practitioner just called and my > > 4 week blood work shows the HCV is > > > undetectable. She said that's great at this early stage. > > > > > > The bad news is my hemoglobin is 9.2 and she's going to order > > Prescript to > > > be delivered to me ASAP. I didn't realize that this is something > I > > would be > > > injecting, but she explained that I'll do it weekly. > > > > > > The other issue is that I have had some soreness in my upper arm > > and now > > > some pain in my left shoulder. I feels like I might have slept on > > it wrong > > > or pulled something. It hurts more when I take a deep breath. I > > told her > > > that and she was quite concerned. I happen to have 2 appointments > > tomorrow > > > - my rheumatologist in the morning and the internist in the > > afternoon so > > > she's going to fax the report over to the internist. She told me > if > > it gets > > > worse, I should go to the ER. > > > > > > While I'm excited about the good news, I'm concerned about the > bad > > news :-( > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 ok, so you have 9 months to go which means you're probably gen 1a and are on 48 weeks of tx. Did I get all that right? Is it just me or do people with that genotype seem to have worse sides because possibly it requires a higher dosage of medicine? I only take 800mg a day of Riba and .50ml of peginterferon, are your doses higher? Did they ever tell you what the seizure was caused by? (I'm just full of questions this morning. lol) Oh man you went through more crap than I did with my first doc, there certainly are some out there that have no idea what they're doing!! My first one was as bad as yours but I also found a better one with a referal from my family md thank goodness. He's 50 miles from here but it's worth the trip just to look at him. lol He's a babe! Seriously he's very infomative and good at his job. Admittedly my truck sits in the driveway a lot more these days, and having just gotten off Cymbalta I may have someone drive me there this month because things have gotten a little " weird " behind my eyes lately. Who knows though, maybe in 2 weeks that'll pass and I'll go it alone. Hey listen, although there are some who will disagree with me I'm going to say it anyway... Drink a gallon of water a day if you can! It not only hydrates you from the inside but it will flush toxins out of your body which can only make you feel better. And rest when you need to! Lay any guilt aside and sleep all damned day if you have to! I hope you get to feeling better and can hack the months ahead of you. Remember that this will pass and a day will come when it'll be behind you. Take care. Gayle The nurse practitioner just called and my > > 4 week blood work shows the HCV is > > > undetectable. She said that's great at this early stage. > > > > > > The bad news is my hemoglobin is 9.2 and she's going to order > > Prescript to > > > be delivered to me ASAP. I didn't realize that this is something > I > > would be > > > injecting, but she explained that I'll do it weekly. > > > > > > The other issue is that I have had some soreness in my upper arm > > and now > > > some pain in my left shoulder. I feels like I might have slept on > > it wrong > > > or pulled something. It hurts more when I take a deep breath. I > > told her > > > that and she was quite concerned. I happen to have 2 appointments > > tomorrow > > > - my rheumatologist in the morning and the internist in the > > afternoon so > > > she's going to fax the report over to the internist. She told me > if > > it gets > > > worse, I should go to the ER. > > > > > > While I'm excited about the good news, I'm concerned about the > bad > > news :-( > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 dose is same.i took 1200 mg of riba. and full shot. Gayle <mollydamaula@...> wrote: ok, so you have 9 months to go which means you're probably gen 1a and are on 48 weeks of tx. Did I get all that right? Is it just me or do people with that genotype seem to have worse sides because possibly it requires a higher dosage of medicine? I only take 800mg a day of Riba and .50ml of peginterferon, are your doses higher? Did they ever tell you what the seizure was caused by? (I'm just full of questions this morning. lol) Oh man you went through more crap than I did with my first doc, there certainly are some out there that have no idea what they're doing!! My first one was as bad as yours but I also found a better one with a referal from my family md thank goodness. He's 50 miles from here but it's worth the trip just to look at him. lol He's a babe! Seriously he's very infomative and good at his job. Admittedly my truck sits in the driveway a lot more these days, and having just gotten off Cymbalta I may have someone drive me there this month because things have gotten a little " weird " behind my eyes lately. Who knows though, maybe in 2 weeks that'll pass and I'll go it alone. Hey listen, although there are some who will disagree with me I'm going to say it anyway... Drink a gallon of water a day if you can! It not only hydrates you from the inside but it will flush toxins out of your body which can only make you feel better. And rest when you need to! Lay any guilt aside and sleep all damned day if you have to! I hope you get to feeling better and can hack the months ahead of you. Remember that this will pass and a day will come when it'll be behind you. Take care. Gayle The nurse practitioner just called and my > > 4 week blood work shows the HCV is > > > undetectable. She said that's great at this early stage. > > > > > > The bad news is my hemoglobin is 9.2 and she's going to order > > Prescript to > > > be delivered to me ASAP. I didn't realize that this is something > I > > would be > > > injecting, but she explained that I'll do it weekly. > > > > > > The other issue is that I have had some soreness in my upper arm > > and now > > > some pain in my left shoulder. I feels like I might have slept on > > it wrong > > > or pulled something. It hurts more when I take a deep breath. I > > told her > > > that and she was quite concerned. I happen to have 2 appointments > > tomorrow > > > - my rheumatologist in the morning and the internist in the > > afternoon so > > > she's going to fax the report over to the internist. She told me > if > > it gets > > > worse, I should go to the ER. > > > > > > While I'm excited about the good news, I'm concerned about the > bad > > news :-( > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 Hey everybody, it has deen a minute since I have wrote anything,, I have been really doing some soul searching and some studying on this whole tx thing. I think that I have come to the conclusion that I am not going to do treatment. I have been reading studys that yes, you have sides while you are on tx, but post tx alot of people have worse sides. Blindeness, servere depression to the fact that they have to be put away or they commit sucide. I sit here and read how all of you cant go to work you cant even get up to go check the mail or get yourself a glass of soda or water. I guess I am not realy understanding the whole thing if you know your going to be worse off after the fact then why do it.. Yeah tx might help your hep C not a gaurentee so you would rather tx something that after tx you have to worry about serious post tx sides.. PLEASE.... someone make me understan this whole concept. Tammy Hillbilly Tim <knoxweb1@...> wrote: dose is same.i took 1200 mg of riba. and full shot. Gayle <mollydamaula@...> wrote: ok, so you have 9 months to go which means you're probably gen 1a and are on 48 weeks of tx. Did I get all that right? Is it just me or do people with that genotype seem to have worse sides because possibly it requires a higher dosage of medicine? I only take 800mg a day of Riba and .50ml of peginterferon, are your doses higher? Did they ever tell you what the seizure was caused by? (I'm just full of questions this morning. lol) Oh man you went through more crap than I did with my first doc, there certainly are some out there that have no idea what they're doing!! My first one was as bad as yours but I also found a better one with a referal from my family md thank goodness. He's 50 miles from here but it's worth the trip just to look at him. lol He's a babe! Seriously he's very infomative and good at his job. Admittedly my truck sits in the driveway a lot more these days, and having just gotten off Cymbalta I may have someone drive me there this month because things have gotten a little " weird " behind my eyes lately. Who knows though, maybe in 2 weeks that'll pass and I'll go it alone. Hey listen, although there are some who will disagree with me I'm going to say it anyway... Drink a gallon of water a day if you can! It not only hydrates you from the inside but it will flush toxins out of your body which can only make you feel better. And rest when you need to! Lay any guilt aside and sleep all damned day if you have to! I hope you get to feeling better and can hack the months ahead of you. Remember that this will pass and a day will come when it'll be behind you. Take care. Gayle The nurse practitioner just called and my > > 4 week blood work shows the HCV is > > > undetectable. She said that's great at this early stage. > > > > > > The bad news is my hemoglobin is 9.2 and she's going to order > > Prescript to > > > be delivered to me ASAP. I didn't realize that this is something > I > > would be > > > injecting, but she explained that I'll do it weekly. > > > > > > The other issue is that I have had some soreness in my upper arm > > and now > > > some pain in my left shoulder. I feels like I might have slept on > > it wrong > > > or pulled something. It hurts more when I take a deep breath. I > > told her > > > that and she was quite concerned. I happen to have 2 appointments > > tomorrow > > > - my rheumatologist in the morning and the internist in the > > afternoon so > > > she's going to fax the report over to the internist. She told me > if > > it gets > > > worse, I should go to the ER. > > > > > > While I'm excited about the good news, I'm concerned about the > bad > > news :-( > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 http://janis7hepc.com/side_effects.htm http://www.hcvadvocate.org/hepatitis/factsheets_pdf/Treatment_Side_effect_Guide.\ pdf http://www.medhelp.org/forums/Hepatitis/messages/35758.html http://www.medhelp.org/forums/Hepatitis/messages/38558.html Tammy Ehrlich <xxtuffgirlxx@...> wrote: Hey everybody, it has deen a minute since I have wrote anything,, I have been really doing some soul searching and some studying on this whole tx thing. I think that I have come to the conclusion that I am not going to do treatment. I have been reading studys that yes, you have sides while you are on tx, but post tx alot of people have worse sides. Blindeness, servere depression to the fact that they have to be put away or they commit sucide. I sit here and read how all of you cant go to work you cant even get up to go check the mail or get yourself a glass of soda or water. I guess I am not realy understanding the whole thing if you know your going to be worse off after the fact then why do it.. Yeah tx might help your hep C not a gaurentee so you would rather tx something that after tx you have to worry about serious post tx sides.. PLEASE.... someone make me understan this whole concept. Tammy Hillbilly Tim <knoxweb1@...> wrote: dose is same.i took 1200 mg of riba. and full shot. Gayle <mollydamaula@...> wrote: ok, so you have 9 months to go which means you're probably gen 1a and are on 48 weeks of tx. Did I get all that right? Is it just me or do people with that genotype seem to have worse sides because possibly it requires a higher dosage of medicine? I only take 800mg a day of Riba and .50ml of peginterferon, are your doses higher? Did they ever tell you what the seizure was caused by? (I'm just full of questions this morning. lol) Oh man you went through more crap than I did with my first doc, there certainly are some out there that have no idea what they're doing!! My first one was as bad as yours but I also found a better one with a referal from my family md thank goodness. He's 50 miles from here but it's worth the trip just to look at him. lol He's a babe! Seriously he's very infomative and good at his job. Admittedly my truck sits in the driveway a lot more these days, and having just gotten off Cymbalta I may have someone drive me there this month because things have gotten a little " weird " behind my eyes lately. Who knows though, maybe in 2 weeks that'll pass and I'll go it alone. Hey listen, although there are some who will disagree with me I'm going to say it anyway... Drink a gallon of water a day if you can! It not only hydrates you from the inside but it will flush toxins out of your body which can only make you feel better. And rest when you need to! Lay any guilt aside and sleep all damned day if you have to! I hope you get to feeling better and can hack the months ahead of you. Remember that this will pass and a day will come when it'll be behind you. Take care. Gayle The nurse practitioner just called and my > > 4 week blood work shows the HCV is > > > undetectable. She said that's great at this early stage. > > > > > > The bad news is my hemoglobin is 9.2 and she's going to order > > Prescript to > > > be delivered to me ASAP. I didn't realize that this is something > I > > would be > > > injecting, but she explained that I'll do it weekly. > > > > > > The other issue is that I have had some soreness in my upper arm > > and now > > > some pain in my left shoulder. I feels like I might have slept on > > it wrong > > > or pulled something. It hurts more when I take a deep breath. I > > told her > > > that and she was quite concerned. I happen to have 2 appointments > > tomorrow > > > - my rheumatologist in the morning and the internist in the > > afternoon so > > > she's going to fax the report over to the internist. She told me > if > > it gets > > > worse, I should go to the ER. > > > > > > While I'm excited about the good news, I'm concerned about the > bad > > news :-( > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 http://janis7hepc.com/side_effects.htm http://www.hcvadvocate.org/hepatitis/factsheets_pdf/Treatment_Side_effect_Guide.\ pdf http://www.medhelp.org/forums/Hepatitis/messages/35758.html http://www.medhelp.org/forums/Hepatitis/messages/38558.html Tammy Ehrlich <xxtuffgirlxx@...> wrote: Hey everybody, it has deen a minute since I have wrote anything,, I have been really doing some soul searching and some studying on this whole tx thing. I think that I have come to the conclusion that I am not going to do treatment. I have been reading studys that yes, you have sides while you are on tx, but post tx alot of people have worse sides. Blindeness, servere depression to the fact that they have to be put away or they commit sucide. I sit here and read how all of you cant go to work you cant even get up to go check the mail or get yourself a glass of soda or water. I guess I am not realy understanding the whole thing if you know your going to be worse off after the fact then why do it.. Yeah tx might help your hep C not a gaurentee so you would rather tx something that after tx you have to worry about serious post tx sides.. PLEASE.... someone make me understan this whole concept. Tammy Hillbilly Tim <knoxweb1@...> wrote: dose is same.i took 1200 mg of riba. and full shot. Gayle <mollydamaula@...> wrote: ok, so you have 9 months to go which means you're probably gen 1a and are on 48 weeks of tx. Did I get all that right? Is it just me or do people with that genotype seem to have worse sides because possibly it requires a higher dosage of medicine? I only take 800mg a day of Riba and .50ml of peginterferon, are your doses higher? Did they ever tell you what the seizure was caused by? (I'm just full of questions this morning. lol) Oh man you went through more crap than I did with my first doc, there certainly are some out there that have no idea what they're doing!! My first one was as bad as yours but I also found a better one with a referal from my family md thank goodness. He's 50 miles from here but it's worth the trip just to look at him. lol He's a babe! Seriously he's very infomative and good at his job. Admittedly my truck sits in the driveway a lot more these days, and having just gotten off Cymbalta I may have someone drive me there this month because things have gotten a little " weird " behind my eyes lately. Who knows though, maybe in 2 weeks that'll pass and I'll go it alone. Hey listen, although there are some who will disagree with me I'm going to say it anyway... Drink a gallon of water a day if you can! It not only hydrates you from the inside but it will flush toxins out of your body which can only make you feel better. And rest when you need to! Lay any guilt aside and sleep all damned day if you have to! I hope you get to feeling better and can hack the months ahead of you. Remember that this will pass and a day will come when it'll be behind you. Take care. Gayle The nurse practitioner just called and my > > 4 week blood work shows the HCV is > > > undetectable. She said that's great at this early stage. > > > > > > The bad news is my hemoglobin is 9.2 and she's going to order > > Prescript to > > > be delivered to me ASAP. I didn't realize that this is something > I > > would be > > > injecting, but she explained that I'll do it weekly. > > > > > > The other issue is that I have had some soreness in my upper arm > > and now > > > some pain in my left shoulder. I feels like I might have slept on > > it wrong > > > or pulled something. It hurts more when I take a deep breath. I > > told her > > > that and she was quite concerned. I happen to have 2 appointments > > tomorrow > > > - my rheumatologist in the morning and the internist in the > > afternoon so > > > she's going to fax the report over to the internist. She told me > if > > it gets > > > worse, I should go to the ER. > > > > > > While I'm excited about the good news, I'm concerned about the > bad > > news :-( > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 Hey Gayle, yes I'm a 1a geno, stage 2. I'm on 1200 Riba & 180 Pegasys. I do know that this geno is the hardest to treat. And I think the Riba is the worse side affects of all. I took my shot last night as planned. So of course I feel real crapy today. I have rashes on my arms, real ichy. I'm goning to take your suggestion & start drinking the water. I was drinking alot of water than I kinda slacked off. I'm not a big water person, I perfer 7-up. See I gave up all the caffine & chocolate, man that was hard. I had been addicted to mountain dew for years & well as coff/caps. well thanks again for your words of wisdom. Take Care, Tammy Ehrlich <xxtuffgirlxx@...> wrote: Hey everybody, it has deen a minute since I have wrote anything,, I have been really doing some soul searching and some studying on this whole tx thing. I think that I have come to the conclusion that I am not going to do treatment. I have been reading studys that yes, you have sides while you are on tx, but post tx alot of people have worse sides. Blindeness, servere depression to the fact that they have to be put away or they commit sucide. I sit here and read how all of you cant go to work you cant even get up to go check the mail or get yourself a glass of soda or water. I guess I am not realy understanding the whole thing if you know your going to be worse off after the fact then why do it.. Yeah tx might help your hep C not a gaurentee so you would rather tx something that after tx you have to worry about serious post tx sides.. PLEASE.... someone make me understan this whole concept. Tammy Hillbilly Tim <knoxweb1@...> wrote: dose is same.i took 1200 mg of riba. and full shot. Gayle <mollydamaula@...> wrote: ok, so you have 9 months to go which means you're probably gen 1a and are on 48 weeks of tx. Did I get all that right? Is it just me or do people with that genotype seem to have worse sides because possibly it requires a higher dosage of medicine? I only take 800mg a day of Riba and .50ml of peginterferon, are your doses higher? Did they ever tell you what the seizure was caused by? (I'm just full of questions this morning. lol) Oh man you went through more crap than I did with my first doc, there certainly are some out there that have no idea what they're doing!! My first one was as bad as yours but I also found a better one with a referal from my family md thank goodness. He's 50 miles from here but it's worth the trip just to look at him. lol He's a babe! Seriously he's very infomative and good at his job. Admittedly my truck sits in the driveway a lot more these days, and having just gotten off Cymbalta I may have someone drive me there this month because things have gotten a little " weird " behind my eyes lately. Who knows though, maybe in 2 weeks that'll pass and I'll go it alone. Hey listen, although there are some who will disagree with me I'm going to say it anyway... Drink a gallon of water a day if you can! It not only hydrates you from the inside but it will flush toxins out of your body which can only make you feel better. And rest when you need to! Lay any guilt aside and sleep all damned day if you have to! I hope you get to feeling better and can hack the months ahead of you. Remember that this will pass and a day will come when it'll be behind you. Take care. Gayle The nurse practitioner just called and my > > 4 week blood work shows the HCV is > > > undetectable. She said that's great at this early stage. > > > > > > The bad news is my hemoglobin is 9.2 and she's going to order > > Prescript to > > > be delivered to me ASAP. I didn't realize that this is something > I > > would be > > > injecting, but she explained that I'll do it weekly. > > > > > > The other issue is that I have had some soreness in my upper arm > > and now > > > some pain in my left shoulder. I feels like I might have slept on > > it wrong > > > or pulled something. It hurts more when I take a deep breath. I > > told her > > > that and she was quite concerned. I happen to have 2 appointments > > tomorrow > > > - my rheumatologist in the morning and the internist in the > > afternoon so > > > she's going to fax the report over to the internist. She told me > if > > it gets > > > worse, I should go to the ER. > > > > > > While I'm excited about the good news, I'm concerned about the > bad > > news :-( > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 It was do or die for me so any other reason is pointless to explain on my part. It's your choice Tammy so don't let anyone talk you into doing something you don't want to. Are you planning an alternative means of treatment?? Good luck with whatever you do and I hope you'll still stick around, I like talking to Tammy and this group is not just for people on interferon and riba. Gayle The nurse practitioner just called and > my > > > 4 week blood work shows the HCV is > > > > undetectable. She said that's great at this early stage. > > > > > > > > The bad news is my hemoglobin is 9.2 and she's going to order > > > Prescript to > > > > be delivered to me ASAP. I didn't realize that this is > something > > I > > > would be > > > > injecting, but she explained that I'll do it weekly. > > > > > > > > The other issue is that I have had some soreness in my upper > arm > > > and now > > > > some pain in my left shoulder. I feels like I might have slept > on > > > it wrong > > > > or pulled something. It hurts more when I take a deep breath. I > > > told her > > > > that and she was quite concerned. I happen to have 2 > appointments > > > tomorrow > > > > - my rheumatologist in the morning and the internist in the > > > afternoon so > > > > she's going to fax the report over to the internist. She told > me > > if > > > it gets > > > > worse, I should go to the ER. > > > > > > > > While I'm excited about the good news, I'm concerned about the > > bad > > > news :-( > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 It was do or die for me so any other reason is pointless to explain on my part. It's your choice Tammy so don't let anyone talk you into doing something you don't want to. Are you planning an alternative means of treatment?? Good luck with whatever you do and I hope you'll still stick around, I like talking to Tammy and this group is not just for people on interferon and riba. Gayle The nurse practitioner just called and > my > > > 4 week blood work shows the HCV is > > > > undetectable. She said that's great at this early stage. > > > > > > > > The bad news is my hemoglobin is 9.2 and she's going to order > > > Prescript to > > > > be delivered to me ASAP. I didn't realize that this is > something > > I > > > would be > > > > injecting, but she explained that I'll do it weekly. > > > > > > > > The other issue is that I have had some soreness in my upper > arm > > > and now > > > > some pain in my left shoulder. I feels like I might have slept > on > > > it wrong > > > > or pulled something. It hurts more when I take a deep breath. I > > > told her > > > > that and she was quite concerned. I happen to have 2 > appointments > > > tomorrow > > > > - my rheumatologist in the morning and the internist in the > > > afternoon so > > > > she's going to fax the report over to the internist. She told > me > > if > > > it gets > > > > worse, I should go to the ER. > > > > > > > > While I'm excited about the good news, I'm concerned about the > > bad > > > news :-( > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 Ahhhh, that's what I thought. You're on a higher dose so of course your sides are worse. That makes sense to me. Yeah I always feel the worst the day after my shot too. (Today was shot day for me) I'm a diet 7-up kinda gal, there's just something soooo refreshing about it but I've gotten hooked on ice water somehow and go through 2 bags of ice a week. lol My Mom always had a skin problem that drove her nuts and she'd use a moisturizer called Urcerin but I'm not sure that's how it's spelled. It's water based and non irritating. You might give that a try on the itchy skin. ttfn, Gayle The nurse practitioner just called and > my > > > 4 week blood work shows the HCV is > > > > undetectable. She said that's great at this early stage. > > > > > > > > The bad news is my hemoglobin is 9.2 and she's going to order > > > Prescript to > > > > be delivered to me ASAP. I didn't realize that this is > something > > I > > > would be > > > > injecting, but she explained that I'll do it weekly. > > > > > > > > The other issue is that I have had some soreness in my upper > arm > > > and now > > > > some pain in my left shoulder. I feels like I might have slept > on > > > it wrong > > > > or pulled something. It hurts more when I take a deep breath. I > > > told her > > > > that and she was quite concerned. I happen to have 2 > appointments > > > tomorrow > > > > - my rheumatologist in the morning and the internist in the > > > afternoon so > > > > she's going to fax the report over to the internist. She told > me > > if > > > it gets > > > > worse, I should go to the ER. > > > > > > > > While I'm excited about the good news, I'm concerned about the > > bad > > > news :-( > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 Yep, I knew that and I also know the sides were horrific for you too. Ya got through it though didn't ya. WHO da man! Gayle > > dose is same.i took 1200 mg of riba. and full shot. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 Hey Gayle, yeah I know what your talking about, I have some. Eucerin, it's real expensive. But I bought some shortly after I started tx. I always forget to use it, (imagine that). And than I bought the 1 in the big jar, so it's real thick, and it takes forever to put on. Honestly, I just don't have the energy. It takes everthing I have just to take a shower everyday. Thats 1 thing I'm real funny about, is hygene. And a clean enviorment. I'm constantly washing my hands, but you know Iv'e always been that way. Well as always good to talk to you, good luck with your shot tonite! Take Care Gayle <mollydamaula@...> wrote: Ahhhh, that's what I thought. You're on a higher dose so of course your sides are worse. That makes sense to me. Yeah I always feel the worst the day after my shot too. (Today was shot day for me) I'm a diet 7-up kinda gal, there's just something soooo refreshing about it but I've gotten hooked on ice water somehow and go through 2 bags of ice a week. lol My Mom always had a skin problem that drove her nuts and she'd use a moisturizer called Urcerin but I'm not sure that's how it's spelled. It's water based and non irritating. You might give that a try on the itchy skin. ttfn, Gayle The nurse practitioner just called and > my > > > 4 week blood work shows the HCV is > > > > undetectable. She said that's great at this early stage. > > > > > > > > The bad news is my hemoglobin is 9.2 and she's going to order > > > Prescript to > > > > be delivered to me ASAP. I didn't realize that this is > something > > I > > > would be > > > > injecting, but she explained that I'll do it weekly. > > > > > > > > The other issue is that I have had some soreness in my upper > arm > > > and now > > > > some pain in my left shoulder. I feels like I might have slept > on > > > it wrong > > > > or pulled something. It hurts more when I take a deep breath. I > > > told her > > > > that and she was quite concerned. I happen to have 2 > appointments > > > tomorrow > > > > - my rheumatologist in the morning and the internist in the > > > afternoon so > > > > she's going to fax the report over to the internist. She told > me > > if > > > it gets > > > > worse, I should go to the ER. > > > > > > > > While I'm excited about the good news, I'm concerned about the > > bad > > > news :-( > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 Hey Gayle, yeah I know what your talking about, I have some. Eucerin, it's real expensive. But I bought some shortly after I started tx. I always forget to use it, (imagine that). And than I bought the 1 in the big jar, so it's real thick, and it takes forever to put on. Honestly, I just don't have the energy. It takes everthing I have just to take a shower everyday. Thats 1 thing I'm real funny about, is hygene. And a clean enviorment. I'm constantly washing my hands, but you know Iv'e always been that way. Well as always good to talk to you, good luck with your shot tonite! Take Care Gayle <mollydamaula@...> wrote: Ahhhh, that's what I thought. You're on a higher dose so of course your sides are worse. That makes sense to me. Yeah I always feel the worst the day after my shot too. (Today was shot day for me) I'm a diet 7-up kinda gal, there's just something soooo refreshing about it but I've gotten hooked on ice water somehow and go through 2 bags of ice a week. lol My Mom always had a skin problem that drove her nuts and she'd use a moisturizer called Urcerin but I'm not sure that's how it's spelled. It's water based and non irritating. You might give that a try on the itchy skin. ttfn, Gayle The nurse practitioner just called and > my > > > 4 week blood work shows the HCV is > > > > undetectable. She said that's great at this early stage. > > > > > > > > The bad news is my hemoglobin is 9.2 and she's going to order > > > Prescript to > > > > be delivered to me ASAP. I didn't realize that this is > something > > I > > > would be > > > > injecting, but she explained that I'll do it weekly. > > > > > > > > The other issue is that I have had some soreness in my upper > arm > > > and now > > > > some pain in my left shoulder. I feels like I might have slept > on > > > it wrong > > > > or pulled something. It hurts more when I take a deep breath. I > > > told her > > > > that and she was quite concerned. I happen to have 2 > appointments > > > tomorrow > > > > - my rheumatologist in the morning and the internist in the > > > afternoon so > > > > she's going to fax the report over to the internist. She told > me > > if > > > it gets > > > > worse, I should go to the ER. > > > > > > > > While I'm excited about the good news, I'm concerned about the > > bad > > > news :-( > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 , Hi there! I am not new to this group, I just haven't been here in over a year now. I just wanted to tell you or maybe somehow reassure you that all that you are going through is normal... It doesn't by ANY means make it any easier - this I know too well myself. I just finished a second round of TX in March - and I had every side affect you mentioned and then some... Both times, and after the first time, I swore I would never do TX again. But I became so incapacitated this time from the sides, that we had to lower the TX, the really bad part was, I was responding, but as soon as I lowered the medications, my viral load sky rocketed and they stopped the treatment. I was literally bed ridden from my sides, I was so weak, and also developed RA - Rhuematiod Arthritis, which became so severe while on TX, that I ended up on like 60 mg of oxiycodne 4 tx a day to deal with the pain. So if the sides, the RA wasn't keep me in bed - the pain medications were, I was a walking zombie.. I don't know how far along you are - but hang in there if you can, I truly believe it is worth the fight... Keep in touch.. May God Bless you and all of us.. Marie -- Re: Re: Gayle Hey Ya'll, well if ya'll remember last week I had lost my meds. So I always take my shot on Tuesdays, well due to the fact that they had to order me some more meds, I couldn't take it til Thursday. No I have to take it again tonite, which will be 5 dys. apart this time instead of 7. I'm real nervous about this I'm not so sure what kind of side effects I'm gonna have. I already have real bad side effects as it is now from the tx. I never in a million yrs. thought it would make me this sick. I can hardly function. I can't work anymore, Iv'e had to move in with my family, I have loss of memory & eye sight. Aneimia, hairloss, weightloss, ulcers in my throat & mouth, thrush. Alot of pain in my hands, arms, & legs. Jesus, I know theres more. I don't know if I can do this. Not to mention all the emotional & mental effects. I was already crazy before the treatment, I guess now I just certifiable. thanks for listening, I'm not so good with talking to people. patricia <pandas2@...> wrote: Oh good thought we lost you again hahaaa. Yeah the hair thing is really a problem but my sister-in-law lost all her hair on chemo-therapy for breast cancer. My hair is so thin it's almost funny. I will try the ponds sound like a good idea, don't know when I can go off procrit but hopefully soon. Get tired of pills and shots hope they don't need to add the other shot for the white count. That one is slowly coming up but still very low. Very depressed right now but it will pass lol. love and hugs..pat Gayle <mollydamaula@...> wrote: Here I am!! (waving franticly) Been down with a bad cold is all, but I'm still kicking. ;-) Hey Tim, how's it feel to be on the upswing you lucky devil you!!!? God I can't wait to feel better. lol I'm really glad for you. Pat, my hair is thinning badly already at week 8 but my friends are taking me wig shopping if it gets too bad. lol I JUST started growing my hair out a half a year before starting this and it's really killing me to see my newly aquired wavey locks hanging off my brush. Oh well... it'll grow back I'm sure and they make some lovely wigs. lol So how long will you have to take the procrit you think before you get a reprieve? I'm happy to hear it isn't making you as sick this time around. Hey speaking of being all dry and wrinkled (like me lol) try Ponds and a facial buff puff, you'll be amazed at the difference in your skin. I use the cleansing one (makeup remover) with the buff and rinse, then mix the original moisturizer with a little cool water on my face and wipe it off gently with a damp cool cloth. Works wonders. Take care, Gayle The nurse practitioner just called and my 4 week blood work shows the HCV is > undetectable. She said that's great at this early stage. > > The bad news is my hemoglobin is 9.2 and she's going to order Prescript to > be delivered to me ASAP. I didn't realize that this is something I would be > injecting, but she explained that I'll do it weekly. > > The other issue is that I have had some soreness in my upper arm and now > some pain in my left shoulder. I feels like I might have slept on it wrong > or pulled something. It hurts more when I take a deep breath. I told her > that and she was quite concerned. I happen to have 2 appointments tomorrow > - my rheumatologist in the morning and the internist in the afternoon so > she's going to fax the report over to the internist. She told me if it gets > worse, I should go to the ER. > > While I'm excited about the good news, I'm concerned about the bad news :-( > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 , Hi there! I am not new to this group, I just haven't been here in over a year now. I just wanted to tell you or maybe somehow reassure you that all that you are going through is normal... It doesn't by ANY means make it any easier - this I know too well myself. I just finished a second round of TX in March - and I had every side affect you mentioned and then some... Both times, and after the first time, I swore I would never do TX again. But I became so incapacitated this time from the sides, that we had to lower the TX, the really bad part was, I was responding, but as soon as I lowered the medications, my viral load sky rocketed and they stopped the treatment. I was literally bed ridden from my sides, I was so weak, and also developed RA - Rhuematiod Arthritis, which became so severe while on TX, that I ended up on like 60 mg of oxiycodne 4 tx a day to deal with the pain. So if the sides, the RA wasn't keep me in bed - the pain medications were, I was a walking zombie.. I don't know how far along you are - but hang in there if you can, I truly believe it is worth the fight... Keep in touch.. May God Bless you and all of us.. Marie -- Re: Re: Gayle Hey Ya'll, well if ya'll remember last week I had lost my meds. So I always take my shot on Tuesdays, well due to the fact that they had to order me some more meds, I couldn't take it til Thursday. No I have to take it again tonite, which will be 5 dys. apart this time instead of 7. I'm real nervous about this I'm not so sure what kind of side effects I'm gonna have. I already have real bad side effects as it is now from the tx. I never in a million yrs. thought it would make me this sick. I can hardly function. I can't work anymore, Iv'e had to move in with my family, I have loss of memory & eye sight. Aneimia, hairloss, weightloss, ulcers in my throat & mouth, thrush. Alot of pain in my hands, arms, & legs. Jesus, I know theres more. I don't know if I can do this. Not to mention all the emotional & mental effects. I was already crazy before the treatment, I guess now I just certifiable. thanks for listening, I'm not so good with talking to people. patricia <pandas2@...> wrote: Oh good thought we lost you again hahaaa. Yeah the hair thing is really a problem but my sister-in-law lost all her hair on chemo-therapy for breast cancer. My hair is so thin it's almost funny. I will try the ponds sound like a good idea, don't know when I can go off procrit but hopefully soon. Get tired of pills and shots hope they don't need to add the other shot for the white count. That one is slowly coming up but still very low. Very depressed right now but it will pass lol. love and hugs..pat Gayle <mollydamaula@...> wrote: Here I am!! (waving franticly) Been down with a bad cold is all, but I'm still kicking. ;-) Hey Tim, how's it feel to be on the upswing you lucky devil you!!!? God I can't wait to feel better. lol I'm really glad for you. Pat, my hair is thinning badly already at week 8 but my friends are taking me wig shopping if it gets too bad. lol I JUST started growing my hair out a half a year before starting this and it's really killing me to see my newly aquired wavey locks hanging off my brush. Oh well... it'll grow back I'm sure and they make some lovely wigs. lol So how long will you have to take the procrit you think before you get a reprieve? I'm happy to hear it isn't making you as sick this time around. Hey speaking of being all dry and wrinkled (like me lol) try Ponds and a facial buff puff, you'll be amazed at the difference in your skin. I use the cleansing one (makeup remover) with the buff and rinse, then mix the original moisturizer with a little cool water on my face and wipe it off gently with a damp cool cloth. Works wonders. Take care, Gayle The nurse practitioner just called and my 4 week blood work shows the HCV is > undetectable. She said that's great at this early stage. > > The bad news is my hemoglobin is 9.2 and she's going to order Prescript to > be delivered to me ASAP. I didn't realize that this is something I would be > injecting, but she explained that I'll do it weekly. > > The other issue is that I have had some soreness in my upper arm and now > some pain in my left shoulder. I feels like I might have slept on it wrong > or pulled something. It hurts more when I take a deep breath. I told her > that and she was quite concerned. I happen to have 2 appointments tomorrow > - my rheumatologist in the morning and the internist in the afternoon so > she's going to fax the report over to the internist. She told me if it gets > worse, I should go to the ER. > > While I'm excited about the good news, I'm concerned about the bad news :-( > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 Hi , thankyou so much for your support. Yes the sides r unbareable & they keep me in bed most of the time. I have no life, I don't go anywhere except th Docs., Hospital, Pharmacy & to see the Shrink! It really sucks. I'm on all kinds of other meds besides the tx too, including pain meds. I look & feel like a Zombie all the time. I have to take meds for the pain, I have to take meds to help me sleep. Then I'm on B.P. meds, Phyc. meds. Jesus I lose track all the time. Now my blood is low. Anyways, I will keep you in my thoughts & prayers always. lisadavies2821 <davies2821@...> wrote: , Hi there! I am not new to this group, I just haven't been here in over a year now. I just wanted to tell you or maybe somehow reassure you that all that you are going through is normal... It doesn't by ANY means make it any easier - this I know too well myself. I just finished a second round of TX in March - and I had every side affect you mentioned and then some... Both times, and after the first time, I swore I would never do TX again. But I became so incapacitated this time from the sides, that we had to lower the TX, the really bad part was, I was responding, but as soon as I lowered the medications, my viral load sky rocketed and they stopped the treatment. I was literally bed ridden from my sides, I was so weak, and also developed RA - Rhuematiod Arthritis, which became so severe while on TX, that I ended up on like 60 mg of oxiycodne 4 tx a day to deal with the pain. So if the sides, the RA wasn't keep me in bed - the pain medications were, I was a walking zombie.. I don't know how far along you are - but hang in there if you can, I truly believe it is worth the fight... Keep in touch.. May God Bless you and all of us.. Marie -- Re: Re: Gayle Hey Ya'll, well if ya'll remember last week I had lost my meds. So I always take my shot on Tuesdays, well due to the fact that they had to order me some more meds, I couldn't take it til Thursday. No I have to take it again tonite, which will be 5 dys. apart this time instead of 7. I'm real nervous about this I'm not so sure what kind of side effects I'm gonna have. I already have real bad side effects as it is now from the tx. I never in a million yrs. thought it would make me this sick. I can hardly function. I can't work anymore, Iv'e had to move in with my family, I have loss of memory & eye sight. Aneimia, hairloss, weightloss, ulcers in my throat & mouth, thrush. Alot of pain in my hands, arms, & legs. Jesus, I know theres more. I don't know if I can do this. Not to mention all the emotional & mental effects. I was already crazy before the treatment, I guess now I just certifiable. thanks for listening, I'm not so good with talking to people. patricia <pandas2@...> wrote: Oh good thought we lost you again hahaaa. Yeah the hair thing is really a problem but my sister-in-law lost all her hair on chemo-therapy for breast cancer. My hair is so thin it's almost funny. I will try the ponds sound like a good idea, don't know when I can go off procrit but hopefully soon. Get tired of pills and shots hope they don't need to add the other shot for the white count. That one is slowly coming up but still very low. Very depressed right now but it will pass lol. love and hugs..pat Gayle <mollydamaula@...> wrote: Here I am!! (waving franticly) Been down with a bad cold is all, but I'm still kicking. ;-) Hey Tim, how's it feel to be on the upswing you lucky devil you!!!? God I can't wait to feel better. lol I'm really glad for you. Pat, my hair is thinning badly already at week 8 but my friends are taking me wig shopping if it gets too bad. lol I JUST started growing my hair out a half a year before starting this and it's really killing me to see my newly aquired wavey locks hanging off my brush. Oh well... it'll grow back I'm sure and they make some lovely wigs. lol So how long will you have to take the procrit you think before you get a reprieve? I'm happy to hear it isn't making you as sick this time around. Hey speaking of being all dry and wrinkled (like me lol) try Ponds and a facial buff puff, you'll be amazed at the difference in your skin. I use the cleansing one (makeup remover) with the buff and rinse, then mix the original moisturizer with a little cool water on my face and wipe it off gently with a damp cool cloth. Works wonders. Take care, Gayle The nurse practitioner just called and my 4 week blood work shows the HCV is > undetectable. She said that's great at this early stage. > > The bad news is my hemoglobin is 9.2 and she's going to order Prescript to > be delivered to me ASAP. I didn't realize that this is something I would be > injecting, but she explained that I'll do it weekly. > > The other issue is that I have had some soreness in my upper arm and now > some pain in my left shoulder. I feels like I might have slept on it wrong > or pulled something. It hurts more when I take a deep breath. I told her > that and she was quite concerned. I happen to have 2 appointments tomorrow > - my rheumatologist in the morning and the internist in the afternoon so > she's going to fax the report over to the internist. She told me if it gets > worse, I should go to the ER. > > While I'm excited about the good news, I'm concerned about the bad news :-( > > Quote Link to comment Share on other sites More sharing options...
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