Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 ette, Dr R's surgery is different, you won't find anyone else doing this particular procedure, so reading another website will not help you for information about Dr R's surgery. I think the site was offered to you so you could explore your options...and realize that there are dozens of different methods of weight loss surgery. For us to tell you which way to go.......well, we are a tad biased. LOL If you visit clos.net----Dr R has loads of information showing what the differences in surgery are, and the advantages of having surgery with him. If you are confused, you MUST do more research! Don't make this big of a decision about your life without getting all the facts. Go with the method you feel is right for you. :-) fg At 11:10 PM 05/02/2000 -0700, you wrote: >STILL CONFUSED WHAT WAY TO GO, l been reading this sight lots sounded great, but got info from dr. r . then some one told me to go to sight >www.gastricbypass.com ten on left were list is go to operations, stoll down to loop gastric bypass, says been abandoned as unsafe and lots more ? is that what this surgery is the book they sent me calls it that, i got my appoint ment tomorrow for open gastric consultation,hear in ohio close to home, but i found your group and really thought this sounds great then l was told go read that, oh course not going plum to calif, but very confused will some one else go read it and give me some advice confused wich way to go PAULETTE scorpio@... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 ette, Dr R's surgery is different, you won't find anyone else doing this particular procedure, so reading another website will not help you for information about Dr R's surgery. I think the site was offered to you so you could explore your options...and realize that there are dozens of different methods of weight loss surgery. For us to tell you which way to go.......well, we are a tad biased. LOL If you visit clos.net----Dr R has loads of information showing what the differences in surgery are, and the advantages of having surgery with him. If you are confused, you MUST do more research! Don't make this big of a decision about your life without getting all the facts. Go with the method you feel is right for you. :-) fg At 11:10 PM 05/02/2000 -0700, you wrote: >STILL CONFUSED WHAT WAY TO GO, l been reading this sight lots sounded great, but got info from dr. r . then some one told me to go to sight >www.gastricbypass.com ten on left were list is go to operations, stoll down to loop gastric bypass, says been abandoned as unsafe and lots more ? is that what this surgery is the book they sent me calls it that, i got my appoint ment tomorrow for open gastric consultation,hear in ohio close to home, but i found your group and really thought this sounds great then l was told go read that, oh course not going plum to calif, but very confused will some one else go read it and give me some advice confused wich way to go PAULETTE scorpio@... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 ette, Dr R's surgery is different, you won't find anyone else doing this particular procedure, so reading another website will not help you for information about Dr R's surgery. I think the site was offered to you so you could explore your options...and realize that there are dozens of different methods of weight loss surgery. For us to tell you which way to go.......well, we are a tad biased. LOL If you visit clos.net----Dr R has loads of information showing what the differences in surgery are, and the advantages of having surgery with him. If you are confused, you MUST do more research! Don't make this big of a decision about your life without getting all the facts. Go with the method you feel is right for you. :-) fg At 11:10 PM 05/02/2000 -0700, you wrote: >STILL CONFUSED WHAT WAY TO GO, l been reading this sight lots sounded great, but got info from dr. r . then some one told me to go to sight >www.gastricbypass.com ten on left were list is go to operations, stoll down to loop gastric bypass, says been abandoned as unsafe and lots more ? is that what this surgery is the book they sent me calls it that, i got my appoint ment tomorrow for open gastric consultation,hear in ohio close to home, but i found your group and really thought this sounds great then l was told go read that, oh course not going plum to calif, but very confused will some one else go read it and give me some advice confused wich way to go PAULETTE scorpio@... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Moya, I could be wrong, but the amount of niacin in foods is small compared to that in a vitamin pill that may contain 25 mg. or more of niacin and could cause flushing. If flax or lecithin don't bother you, I would guess that those foods don't have a substantial amount of niacin. Take care, Matija > I'm confused about niacin. I thought I heard it was a > trigger for R. If that's true, is it a given trigger > like alcohol and spicey food, or is it a trigger for > some & not others? I just found out that niacin is in > flax seeds & I thought flax was good for R. And what > about lecithin? Is that bad? Can someone please help > me figure this out. Thanks! > > ===== > The greatness of a nation & its moral progress can be judged > by the way its animals are treated. - Gandhi > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Moya, I could be wrong, but the amount of niacin in foods is small compared to that in a vitamin pill that may contain 25 mg. or more of niacin and could cause flushing. If flax or lecithin don't bother you, I would guess that those foods don't have a substantial amount of niacin. Take care, Matija > I'm confused about niacin. I thought I heard it was a > trigger for R. If that's true, is it a given trigger > like alcohol and spicey food, or is it a trigger for > some & not others? I just found out that niacin is in > flax seeds & I thought flax was good for R. And what > about lecithin? Is that bad? Can someone please help > me figure this out. Thanks! > > ===== > The greatness of a nation & its moral progress can be judged > by the way its animals are treated. - Gandhi > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Moya, I could be wrong, but the amount of niacin in foods is small compared to that in a vitamin pill that may contain 25 mg. or more of niacin and could cause flushing. If flax or lecithin don't bother you, I would guess that those foods don't have a substantial amount of niacin. Take care, Matija > I'm confused about niacin. I thought I heard it was a > trigger for R. If that's true, is it a given trigger > like alcohol and spicey food, or is it a trigger for > some & not others? I just found out that niacin is in > flax seeds & I thought flax was good for R. And what > about lecithin? Is that bad? Can someone please help > me figure this out. Thanks! > > ===== > The greatness of a nation & its moral progress can be judged > by the way its animals are treated. - Gandhi > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Are both of you eating four-five-six small meals a day?? I know, that's about the hardest thing in the world to plan for and actually execute. Try as I might, I don't seem to be able to go much further than three... But at least that's a lot better than the ONE that I was used to, if that. I know it's especially hard if food makes one nauseous or sick, but it's so important. Do you suffer from seizures? The last one I had was extreme enough to scare me into taking better care of my body. I thrashed around my apartment for almost two hours before the woman upstairs finally called 911. I couldn't speak, I couldn't pick up the phone - the room was spinning so rapidly that I couldn't stay on my feet, heck I couldn't even crawl... I was just so upside-down. I managed to knock the phone off the hook, but then all I could manage to do with it was to push it against the wall with my chin a couple of times. Finally I had to wriggle over to a dresser and use my feet to try knocking it over... Couldn't do that, but it made enough noise banging into the wall that the neighbor got alarmed and called 911. Thank God she did, I'd have died. In fact the guys from the ambulance, once they gave me some glucose, said that it was a miracle that I had enough strength to go on for two hours as it was - they'd neither one seen anybody in a diabetic hypoglycemic episode stay conscious that long without going comatose... then I'd had been cooked, as my partner was out of town for the weekend, and he'd have just had to find me on the bedroom floor two days later... It was pretty scary, still is. Thankfully, I started to take the diabetes more seriously after that, and soon learned a great deal more about my body and what it needs. I don't honor it all the time, not even close, but I'm a lot better than I was at that time. Unfortunately, Gail, Diabetes (as you well know) is just a part of the cross that most of us - many of us - with CP have to carry. It was incredibly brave of you to go through the transplant surgery if you had diabetes - I'm sorry, was that the case? I know I shouldn't assume. In fact I'd love to know if you were diabetic BEFORE the surgery or not, or if the diabetes is a result of the surgery. I so desperately would love to have the pancreatectomy and islet cell transplant, but I'm end-stage CP and have been diabetic for some time, so I'm guessing that my islet count is near ZERO, so I haven't pursued it - I keep hoping for some sort of breakthrough that will make the surgery a better choice for we diabetics that won't just automatically leave us brittle. Some would say I'm being naive and overly optimistic. It gives me something to hope for. I experience the same with exercise - I have to ALWAYS take along juice or milk. (If milk, I tend to freeze about 1/3 bottle of water, then pour the cold milk over it so that it stays cold - it's not bad, and it does the trick!)... Plus, my gym bag is never short of candy bars, hard candy, peanut butter crackers, etc. Works well enough that I've only had one major problem while exercising, and that was before I was so well-prepared. Had to have my tennis partner drive me home ASAP so I could get something in my system, and I locked my keys in my trunk that day. What a terrible day THAT turned out to be. Thankfully, all worked out in the end. Haha. Here I am, anyway. Good luck Ladies, God bless. Peace, Terry in KC << Jill, I have experienced significant hypoglycemia since I had pancreatitis. I have been severely symptomatic. When I has on TPN I had to be careful when coming off the infusion because my blood sugar would drop to the 32 range. Since I have been able to eat I have to be careful about eating a balanced diet and wait the exercise. I have to carry with me candy for some kind of agent to increase my blood sugar. I can get hypoglycemic out of the blue and need sugar. I was not this way before I had pancreatitis not to this extreme. I have since had a auto islet cell transplant and pancreatectomy, the hype glycemia is not any better. I still need to carry candy with me and get more hypoglycemic with exercise. gail jgecker wrote: > Hi, friends, > > I know that many of you suffer from diabetes as a result of the pancreatitis. But, do any of you have hypoglycemia. I think that I do. I just had an 5 hour oral glucose tolerance test. From what I've seen on the internet, my results seem to follow the pattern. I was within normal range for hours 1 and 2 but, by hour 3, I was low at > 55 mg/dl. So, I'm guessing that I'm now hypoglycemic, tho when my doctor's nurse called with the results she said it was " borderline low " . From what I've read it's definitely hypoglycemia. > > Any light that can be shed on this would be greatly appreciated. > > You guys are the best. Thanks so much. > > Jill >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Are both of you eating four-five-six small meals a day?? I know, that's about the hardest thing in the world to plan for and actually execute. Try as I might, I don't seem to be able to go much further than three... But at least that's a lot better than the ONE that I was used to, if that. I know it's especially hard if food makes one nauseous or sick, but it's so important. Do you suffer from seizures? The last one I had was extreme enough to scare me into taking better care of my body. I thrashed around my apartment for almost two hours before the woman upstairs finally called 911. I couldn't speak, I couldn't pick up the phone - the room was spinning so rapidly that I couldn't stay on my feet, heck I couldn't even crawl... I was just so upside-down. I managed to knock the phone off the hook, but then all I could manage to do with it was to push it against the wall with my chin a couple of times. Finally I had to wriggle over to a dresser and use my feet to try knocking it over... Couldn't do that, but it made enough noise banging into the wall that the neighbor got alarmed and called 911. Thank God she did, I'd have died. In fact the guys from the ambulance, once they gave me some glucose, said that it was a miracle that I had enough strength to go on for two hours as it was - they'd neither one seen anybody in a diabetic hypoglycemic episode stay conscious that long without going comatose... then I'd had been cooked, as my partner was out of town for the weekend, and he'd have just had to find me on the bedroom floor two days later... It was pretty scary, still is. Thankfully, I started to take the diabetes more seriously after that, and soon learned a great deal more about my body and what it needs. I don't honor it all the time, not even close, but I'm a lot better than I was at that time. Unfortunately, Gail, Diabetes (as you well know) is just a part of the cross that most of us - many of us - with CP have to carry. It was incredibly brave of you to go through the transplant surgery if you had diabetes - I'm sorry, was that the case? I know I shouldn't assume. In fact I'd love to know if you were diabetic BEFORE the surgery or not, or if the diabetes is a result of the surgery. I so desperately would love to have the pancreatectomy and islet cell transplant, but I'm end-stage CP and have been diabetic for some time, so I'm guessing that my islet count is near ZERO, so I haven't pursued it - I keep hoping for some sort of breakthrough that will make the surgery a better choice for we diabetics that won't just automatically leave us brittle. Some would say I'm being naive and overly optimistic. It gives me something to hope for. I experience the same with exercise - I have to ALWAYS take along juice or milk. (If milk, I tend to freeze about 1/3 bottle of water, then pour the cold milk over it so that it stays cold - it's not bad, and it does the trick!)... Plus, my gym bag is never short of candy bars, hard candy, peanut butter crackers, etc. Works well enough that I've only had one major problem while exercising, and that was before I was so well-prepared. Had to have my tennis partner drive me home ASAP so I could get something in my system, and I locked my keys in my trunk that day. What a terrible day THAT turned out to be. Thankfully, all worked out in the end. Haha. Here I am, anyway. Good luck Ladies, God bless. Peace, Terry in KC << Jill, I have experienced significant hypoglycemia since I had pancreatitis. I have been severely symptomatic. When I has on TPN I had to be careful when coming off the infusion because my blood sugar would drop to the 32 range. Since I have been able to eat I have to be careful about eating a balanced diet and wait the exercise. I have to carry with me candy for some kind of agent to increase my blood sugar. I can get hypoglycemic out of the blue and need sugar. I was not this way before I had pancreatitis not to this extreme. I have since had a auto islet cell transplant and pancreatectomy, the hype glycemia is not any better. I still need to carry candy with me and get more hypoglycemic with exercise. gail jgecker wrote: > Hi, friends, > > I know that many of you suffer from diabetes as a result of the pancreatitis. But, do any of you have hypoglycemia. I think that I do. I just had an 5 hour oral glucose tolerance test. From what I've seen on the internet, my results seem to follow the pattern. I was within normal range for hours 1 and 2 but, by hour 3, I was low at > 55 mg/dl. So, I'm guessing that I'm now hypoglycemic, tho when my doctor's nurse called with the results she said it was " borderline low " . From what I've read it's definitely hypoglycemia. > > Any light that can be shed on this would be greatly appreciated. > > You guys are the best. Thanks so much. > > Jill >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Are both of you eating four-five-six small meals a day?? I know, that's about the hardest thing in the world to plan for and actually execute. Try as I might, I don't seem to be able to go much further than three... But at least that's a lot better than the ONE that I was used to, if that. I know it's especially hard if food makes one nauseous or sick, but it's so important. Do you suffer from seizures? The last one I had was extreme enough to scare me into taking better care of my body. I thrashed around my apartment for almost two hours before the woman upstairs finally called 911. I couldn't speak, I couldn't pick up the phone - the room was spinning so rapidly that I couldn't stay on my feet, heck I couldn't even crawl... I was just so upside-down. I managed to knock the phone off the hook, but then all I could manage to do with it was to push it against the wall with my chin a couple of times. Finally I had to wriggle over to a dresser and use my feet to try knocking it over... Couldn't do that, but it made enough noise banging into the wall that the neighbor got alarmed and called 911. Thank God she did, I'd have died. In fact the guys from the ambulance, once they gave me some glucose, said that it was a miracle that I had enough strength to go on for two hours as it was - they'd neither one seen anybody in a diabetic hypoglycemic episode stay conscious that long without going comatose... then I'd had been cooked, as my partner was out of town for the weekend, and he'd have just had to find me on the bedroom floor two days later... It was pretty scary, still is. Thankfully, I started to take the diabetes more seriously after that, and soon learned a great deal more about my body and what it needs. I don't honor it all the time, not even close, but I'm a lot better than I was at that time. Unfortunately, Gail, Diabetes (as you well know) is just a part of the cross that most of us - many of us - with CP have to carry. It was incredibly brave of you to go through the transplant surgery if you had diabetes - I'm sorry, was that the case? I know I shouldn't assume. In fact I'd love to know if you were diabetic BEFORE the surgery or not, or if the diabetes is a result of the surgery. I so desperately would love to have the pancreatectomy and islet cell transplant, but I'm end-stage CP and have been diabetic for some time, so I'm guessing that my islet count is near ZERO, so I haven't pursued it - I keep hoping for some sort of breakthrough that will make the surgery a better choice for we diabetics that won't just automatically leave us brittle. Some would say I'm being naive and overly optimistic. It gives me something to hope for. I experience the same with exercise - I have to ALWAYS take along juice or milk. (If milk, I tend to freeze about 1/3 bottle of water, then pour the cold milk over it so that it stays cold - it's not bad, and it does the trick!)... Plus, my gym bag is never short of candy bars, hard candy, peanut butter crackers, etc. Works well enough that I've only had one major problem while exercising, and that was before I was so well-prepared. Had to have my tennis partner drive me home ASAP so I could get something in my system, and I locked my keys in my trunk that day. What a terrible day THAT turned out to be. Thankfully, all worked out in the end. Haha. Here I am, anyway. Good luck Ladies, God bless. Peace, Terry in KC << Jill, I have experienced significant hypoglycemia since I had pancreatitis. I have been severely symptomatic. When I has on TPN I had to be careful when coming off the infusion because my blood sugar would drop to the 32 range. Since I have been able to eat I have to be careful about eating a balanced diet and wait the exercise. I have to carry with me candy for some kind of agent to increase my blood sugar. I can get hypoglycemic out of the blue and need sugar. I was not this way before I had pancreatitis not to this extreme. I have since had a auto islet cell transplant and pancreatectomy, the hype glycemia is not any better. I still need to carry candy with me and get more hypoglycemic with exercise. gail jgecker wrote: > Hi, friends, > > I know that many of you suffer from diabetes as a result of the pancreatitis. But, do any of you have hypoglycemia. I think that I do. I just had an 5 hour oral glucose tolerance test. From what I've seen on the internet, my results seem to follow the pattern. I was within normal range for hours 1 and 2 but, by hour 3, I was low at > 55 mg/dl. So, I'm guessing that I'm now hypoglycemic, tho when my doctor's nurse called with the results she said it was " borderline low " . From what I've read it's definitely hypoglycemia. > > Any light that can be shed on this would be greatly appreciated. > > You guys are the best. Thanks so much. > > Jill >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Are both of you eating four-five-six small meals a day?? I know, that's about the hardest thing in the world to plan for and actually execute. Try as I might, I don't seem to be able to go much further than three... But at least that's a lot better than the ONE that I was used to, if that. I know it's especially hard if food makes one nauseous or sick, but it's so important. Do you suffer from seizures? The last one I had was extreme enough to scare me into taking better care of my body. I thrashed around my apartment for almost two hours before the woman upstairs finally called 911. I couldn't speak, I couldn't pick up the phone - the room was spinning so rapidly that I couldn't stay on my feet, heck I couldn't even crawl... I was just so upside-down. I managed to knock the phone off the hook, but then all I could manage to do with it was to push it against the wall with my chin a couple of times. Finally I had to wriggle over to a dresser and use my feet to try knocking it over... Couldn't do that, but it made enough noise banging into the wall that the neighbor got alarmed and called 911. Thank God she did, I'd have died. In fact the guys from the ambulance, once they gave me some glucose, said that it was a miracle that I had enough strength to go on for two hours as it was - they'd neither one seen anybody in a diabetic hypoglycemic episode stay conscious that long without going comatose... then I'd had been cooked, as my partner was out of town for the weekend, and he'd have just had to find me on the bedroom floor two days later... It was pretty scary, still is. Thankfully, I started to take the diabetes more seriously after that, and soon learned a great deal more about my body and what it needs. I don't honor it all the time, not even close, but I'm a lot better than I was at that time. Unfortunately, Gail, Diabetes (as you well know) is just a part of the cross that most of us - many of us - with CP have to carry. It was incredibly brave of you to go through the transplant surgery if you had diabetes - I'm sorry, was that the case? I know I shouldn't assume. In fact I'd love to know if you were diabetic BEFORE the surgery or not, or if the diabetes is a result of the surgery. I so desperately would love to have the pancreatectomy and islet cell transplant, but I'm end-stage CP and have been diabetic for some time, so I'm guessing that my islet count is near ZERO, so I haven't pursued it - I keep hoping for some sort of breakthrough that will make the surgery a better choice for we diabetics that won't just automatically leave us brittle. Some would say I'm being naive and overly optimistic. It gives me something to hope for. I experience the same with exercise - I have to ALWAYS take along juice or milk. (If milk, I tend to freeze about 1/3 bottle of water, then pour the cold milk over it so that it stays cold - it's not bad, and it does the trick!)... Plus, my gym bag is never short of candy bars, hard candy, peanut butter crackers, etc. Works well enough that I've only had one major problem while exercising, and that was before I was so well-prepared. Had to have my tennis partner drive me home ASAP so I could get something in my system, and I locked my keys in my trunk that day. What a terrible day THAT turned out to be. Thankfully, all worked out in the end. Haha. Here I am, anyway. Good luck Ladies, God bless. Peace, Terry in KC << Jill, I have experienced significant hypoglycemia since I had pancreatitis. I have been severely symptomatic. When I has on TPN I had to be careful when coming off the infusion because my blood sugar would drop to the 32 range. Since I have been able to eat I have to be careful about eating a balanced diet and wait the exercise. I have to carry with me candy for some kind of agent to increase my blood sugar. I can get hypoglycemic out of the blue and need sugar. I was not this way before I had pancreatitis not to this extreme. I have since had a auto islet cell transplant and pancreatectomy, the hype glycemia is not any better. I still need to carry candy with me and get more hypoglycemic with exercise. gail jgecker wrote: > Hi, friends, > > I know that many of you suffer from diabetes as a result of the pancreatitis. But, do any of you have hypoglycemia. I think that I do. I just had an 5 hour oral glucose tolerance test. From what I've seen on the internet, my results seem to follow the pattern. I was within normal range for hours 1 and 2 but, by hour 3, I was low at > 55 mg/dl. So, I'm guessing that I'm now hypoglycemic, tho when my doctor's nurse called with the results she said it was " borderline low " . From what I've read it's definitely hypoglycemia. > > Any light that can be shed on this would be greatly appreciated. > > You guys are the best. Thanks so much. > > Jill >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Jill, I have experienced significant hypoglycemia since I had pancreatitis. I have been severely symptomatic. When I has on TPN I had to be careful when coming off the infusion because my blood sugar would drop to the 32 range. Since I have been able to eat I have to be careful about eating a balanced diet and wait the exercise. I have to carry with me candy for some kind of agent to increase my blood sugar. I can get hypoglycemic out of the blue and need sugar. I was not this way before I had pancreatitis not to this extreme. I have since had a auto islet cell transplant and pancreatectomy, the hype glycemia is not any better. I still need to carry candy with me and get more hypoglycemic with exercise. gail jgecker wrote: > Hi, friends, > > I know that many of you suffer from diabetes as a result of the pancreatitis. But, do any of you have hypoglycemia. I think that I do. I just had an 5 hour oral glucose tolerance test. From what I've seen on the internet, my results seem to follow the pattern. I was within normal range for hours 1 and 2 but, by hour 3, I was low at > 55 mg/dl. So, I'm guessing that I'm now hypoglycemic, tho when my doctor's nurse called with the results she said it was " borderline low " . From what I've read it's definitely hypoglycemia. > > Any light that can be shed on this would be greatly appreciated. > > You guys are the best. Thanks so much. > > Jill > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Jill, I have experienced significant hypoglycemia since I had pancreatitis. I have been severely symptomatic. When I has on TPN I had to be careful when coming off the infusion because my blood sugar would drop to the 32 range. Since I have been able to eat I have to be careful about eating a balanced diet and wait the exercise. I have to carry with me candy for some kind of agent to increase my blood sugar. I can get hypoglycemic out of the blue and need sugar. I was not this way before I had pancreatitis not to this extreme. I have since had a auto islet cell transplant and pancreatectomy, the hype glycemia is not any better. I still need to carry candy with me and get more hypoglycemic with exercise. gail jgecker wrote: > Hi, friends, > > I know that many of you suffer from diabetes as a result of the pancreatitis. But, do any of you have hypoglycemia. I think that I do. I just had an 5 hour oral glucose tolerance test. From what I've seen on the internet, my results seem to follow the pattern. I was within normal range for hours 1 and 2 but, by hour 3, I was low at > 55 mg/dl. So, I'm guessing that I'm now hypoglycemic, tho when my doctor's nurse called with the results she said it was " borderline low " . From what I've read it's definitely hypoglycemia. > > Any light that can be shed on this would be greatly appreciated. > > You guys are the best. Thanks so much. > > Jill > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 Laurie-please don't feel that way-this group is here toSUPPORT each other. I also do not know if you are who they were referring to but i did read all the posts that were posted about this discussing everyone's level of pain post-op etc., and I think those that posted as they did realized that how they stated things came out wrong and they didn't mean to discredit anyone's pain. No one who lives with chiari could possibly disbelieve pain levels. I guess if we all seriously looked at the amount of pain we live under before surgury, during flair-ups, constant headaches-I guess it's a wonder we all get along and don't have our claws out all the time trying to deal with our own pain. Hope you're having a good day and will give everyone a second chance. Liz-RN in Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 Laurie and everyone, I read all those pain posts, too, while the thread took a lot of twists and turns, it seems clear that no one ever called anyone anything, or said anything bad. This is a great group of very supportive people. In fact, I think it was that desire to be protective that got this thread going in the direction it went. First, someone said that recovery from decompression surgery could be very painful, and gave a moving example of a particular person's terrible suffering. Then others talked about great pain, too. Then someone else thought that the reports of great suffering (real as they were) might scare newbies or other pre-ops into thinking they shouldn't take the risk of having surgery, so that person protectively tried to comfort anyone who might be feeling apprehensive by saying that most of the time the surgeries turn out just fine. Then a few more people echoed that sentiment: that it's okay to have surgery, don't be scared; it's not always unbearably painful, etc. Along the way, people found slangy shortcuts but they were not saying mean things about the actual people who had experienced that pain. In fact, it seemed that they were being sympathetic by pointing out that no one, including the first person, could be thought of as a w---. Then someone else (who maybe missed some of the convolutions) wondered if that comment meant that someone had in fact called the first person the w word, but really no one had. Now the person who might be the original story's sufferer has caught part of the thread and mistakenly thinks someone might have said something mean -- but they didn't. We all know that sometimes things hurt more than at other times, and sometimes people suffer more than others do. But always we are human beings giving it our best try. This group obviously is here to listen, comfort, ask, answer, share, and celebrate all the various developments we experience. Remember, Steve recently called it, " Walking the Chiarian Road. " It's a journey. Let's continue to hold hands, shall we? ~Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 Laurie and everyone, I read all those pain posts, too, while the thread took a lot of twists and turns, it seems clear that no one ever called anyone anything, or said anything bad. This is a great group of very supportive people. In fact, I think it was that desire to be protective that got this thread going in the direction it went. First, someone said that recovery from decompression surgery could be very painful, and gave a moving example of a particular person's terrible suffering. Then others talked about great pain, too. Then someone else thought that the reports of great suffering (real as they were) might scare newbies or other pre-ops into thinking they shouldn't take the risk of having surgery, so that person protectively tried to comfort anyone who might be feeling apprehensive by saying that most of the time the surgeries turn out just fine. Then a few more people echoed that sentiment: that it's okay to have surgery, don't be scared; it's not always unbearably painful, etc. Along the way, people found slangy shortcuts but they were not saying mean things about the actual people who had experienced that pain. In fact, it seemed that they were being sympathetic by pointing out that no one, including the first person, could be thought of as a w---. Then someone else (who maybe missed some of the convolutions) wondered if that comment meant that someone had in fact called the first person the w word, but really no one had. Now the person who might be the original story's sufferer has caught part of the thread and mistakenly thinks someone might have said something mean -- but they didn't. We all know that sometimes things hurt more than at other times, and sometimes people suffer more than others do. But always we are human beings giving it our best try. This group obviously is here to listen, comfort, ask, answer, share, and celebrate all the various developments we experience. Remember, Steve recently called it, " Walking the Chiarian Road. " It's a journey. Let's continue to hold hands, shall we? ~Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2003 Report Share Posted March 19, 2003 If you are overmedicated, you can certainly be hyper post-RAI. It has been almost a year since I had mine, and I am still hyper at times. I have noticed it varies with my hormonal cycle, and there are foods that still make me hyper. About the hair thinning: it can be caused by being hyper, being hypo, RAI, and can also happen as your body adjusts to thyroid hormone supplements. I lost about 1/3 of mine, and it has only recently started growing back. I have a lot of hair that is 1 1/2 inches long! I don't know for sure that REALLY trying to get enough sleep and taking vitamins helps it, but it sure won't hurt either... The usual recomendation for labs is TSH, FT4, and if you can get it, FT3. In a lot of areas, they still do the T3 instead. Good luck! -- in Fla. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 My daughtrer (19) was diagnosed with Crohn's disease a year ago and did not respond to initial treatments by her pediatric GI. Her symptoms started out a few years ago with abdominal cramps/pain with occasional bleeding with BM's. The pediatric GI initially thought she had some polyps (without doing any tests) and told her to eat a HIGH FIBER diet! A year or so later when the pains and bleeding were getting worse we returned to him and he decided to do a colonoscopy. The pics from the colonoscopy showed a few small white spots on the intestine. We were told that was indicative of Crohn's. He took biopsies and told us that they came back testing positive for Crohn's. She finally ended up in the hospital for 2 weeks being given massive doses of prednisone and finally infusions of Remicaide. She has been coping somewhat throughout the year (freshman at college) until recently when her pains and symptoms returned and the GI put her BACK on prednisone and gave her MORE Remicaide. She found the SCD diet and BTVC book while researching online and started the diet about a month ago. She immediately started to feel SOME relief. We have spent the Christmas holiday cooking SCD and it's been good for the whole family - we love the recipes! In the meantime we went to see ANOTHER GI (adult) for a second opinion and to switch from a pediatric doc to adult doc. This doc did his own colonoscopy and upper GI scope last week and tells us he doesn't think she has Crohn's or has ever had it! He looked at the report from the pediatric GI and disagrees with the original diagnosis. He seems to think she may have a case of Irritable Bowel (?) or a protien allergy (?). He wants her to come down of the Prednisone before making a final diagnosis. So our question is WHAT is wrong - does she have Crohn's or not. What else would cause her symptoms of abdominal (extreme low right), some bleeding with soft stools, extreme joint pain? We are so VERY confused. If one doctor can be wrong, can two? Do we seek a THIRD opinion? My daughter refuses to go through any more tests (colonoscopies). She has NEVER experienced extreme D or weight loss - typical of Crohn's. The diet was helping her (I think) until this last doctor told her to eat WHATEVER she wants, it makes no difference! (He looked at the BTVC book and told us that these fad's are for people that have lost all hope). Can someone PLEASE give me some advice or encouragement - I am so confused. We live in the southeastern part of Virginia if anyone can recommend a good GI that will LISTEN to her (and me!) Mandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Of course, I don't know if she has Crohn's, or has ever had Crohn's. I think you and your daughter are wise to pay attention to what has worked for her, which is the SCD. Unfortunately, sometimes doctors don't and will never understand how SCD can help and heal, and it's up to us to trust our own judgement and instincts and experience. Marilyn leaky gut, low thyroid/adrenal, SCD 3 months CONFUSED > My daughtrer (19) was diagnosed with Crohn's disease a year ago and > did not respond to initial treatments by her pediatric GI. Her > symptoms started out a few years ago with abdominal cramps/pain with > occasional bleeding with BM's. The pediatric GI initially thought > she had some polyps (without doing any tests) and told her to eat a > HIGH FIBER diet! A year or so later when the pains and bleeding were > getting worse we returned to him and he decided to do a colonoscopy. > The pics from the colonoscopy showed a few small white spots on the > intestine. We were told that was indicative of Crohn's. He took > biopsies and told us that they came back testing positive for > Crohn's. She finally ended up in the hospital for 2 weeks being given > massive doses of prednisone and finally infusions of Remicaide. She > has been coping somewhat throughout the year (freshman at college) > until recently when her pains and symptoms returned and the GI put > her BACK on prednisone and gave her MORE Remicaide. She found the > SCD diet and BTVC book while researching online and started the diet > about a month ago. She immediately started to feel SOME relief. We > have spent the Christmas holiday cooking SCD and it's been good for > the whole family - we love the recipes! In the meantime we went to > see ANOTHER GI (adult) for a second opinion and to switch from a > pediatric doc to adult doc. This doc did his own colonoscopy and > upper GI scope last week and tells us he doesn't think she has > Crohn's or has ever had it! He looked at the report from the > pediatric GI and disagrees with the original diagnosis. He seems to > think she may have a case of Irritable Bowel (?) or a protien allergy > (?). He wants her to come down of the Prednisone before making a > final diagnosis. So our question is WHAT is wrong - does she have > Crohn's or not. What else would cause her symptoms of abdominal > (extreme low right), some bleeding with soft stools, extreme joint > pain? We are so VERY confused. If one doctor can be wrong, can > two? Do we seek a THIRD opinion? My daughter refuses to go through > any more tests (colonoscopies). She has NEVER experienced extreme D > or weight loss - typical of Crohn's. The diet was helping her (I > think) until this last doctor told her to eat WHATEVER she wants, it > makes no difference! (He looked at the BTVC book and told us that > these fad's are for people that have lost all hope). Can someone > PLEASE give me some advice or encouragement - I am so confused. We > live in the southeastern part of Virginia if anyone can recommend a > good GI that will LISTEN to her (and me!) > Mandy > > > > > > For information on the Specific Carbohydrate Diet, please read the book > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following > websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Was she ever tested for celiac disease? It is the inability to digest gluten found in wheat, barley and rye. Usually the way to dx is a blood test that looks for gluten proteins in the blood. If she is already gf from being on SCD she will not show positive now. I think my son has ceiliac and was tesed a month ago and of course it was nevative...he has been gf since february 2005. My daughter is showing some of the same GI signs so we are testing her too. If she is postive then I will assume that my son is too. Also 8 years ago my dad started to have blood in his stool,diarehea etc and has been to 5 GI since no one knows what his diagnosis is. Finally they settled on non-specific ulcerative colitis. Which means they really don't know what it is (and he refuses to try SCD :-( Hope this helps! andrea mother of Caden 2 3/4 years old SCD since 2-05 and Emmalynn 13 months old > > My daughtrer (19) was diagnosed with Crohn's disease a year ago and > did not respond to initial treatments by her pediatric GI. Her > symptoms started out a few years ago with abdominal cramps/pain with > occasional bleeding with BM's. The pediatric GI initially thought > she had some polyps (without doing any tests) and told her to eat a > HIGH FIBER diet! A year or so later when the pains and bleeding were > getting worse we returned to him and he decided to do a colonoscopy. > The pics from the colonoscopy showed a few small white spots on the > intestine. We were told that was indicative of Crohn's. He took > biopsies and told us that they came back testing positive for > Crohn's. She finally ended up in the hospital for 2 weeks being given > massive doses of prednisone and finally infusions of Remicaide. She > has been coping somewhat throughout the year (freshman at college) > until recently when her pains and symptoms returned and the GI put > her BACK on prednisone and gave her MORE Remicaide. She found the > SCD diet and BTVC book while researching online and started the diet > about a month ago. She immediately started to feel SOME relief. We > have spent the Christmas holiday cooking SCD and it's been good for > the whole family - we love the recipes! In the meantime we went to > see ANOTHER GI (adult) for a second opinion and to switch from a > pediatric doc to adult doc. This doc did his own colonoscopy and > upper GI scope last week and tells us he doesn't think she has > Crohn's or has ever had it! He looked at the report from the > pediatric GI and disagrees with the original diagnosis. He seems to > think she may have a case of Irritable Bowel (?) or a protien allergy > (?). He wants her to come down of the Prednisone before making a > final diagnosis. So our question is WHAT is wrong - does she have > Crohn's or not. What else would cause her symptoms of abdominal > (extreme low right), some bleeding with soft stools, extreme joint > pain? We are so VERY confused. If one doctor can be wrong, can > two? Do we seek a THIRD opinion? My daughter refuses to go through > any more tests (colonoscopies). She has NEVER experienced extreme D > or weight loss - typical of Crohn's. The diet was helping her (I > think) until this last doctor told her to eat WHATEVER she wants, it > makes no difference! (He looked at the BTVC book and told us that > these fad's are for people that have lost all hope). Can someone > PLEASE give me some advice or encouragement - I am so confused. We > live in the southeastern part of Virginia if anyone can recommend a > good GI that will LISTEN to her (and me!) > Mandy > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.