Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 I know you know that this is a particular hobby horse of mine. I have an answer (AT LAST) from the Cystic Fibrosis Trust. At the moment they have yet to be convinced that the vest is any better treatment than hand PT or breathing techniques or autogenic draining. Ha Ha. They will not listen to the American Health Insurance companies who have already done all this research - you would think that as the USA Insurance companies are almost always concerned about long term savings, European health services and insurance companies would want to SAVE THEIR MONEY too and cut their research times in half. Its not as if its going to risk lives, in fact it could actually be risking lives by NOT doing this research. Oh well back to the drawing board - If I knew how to collect the data to LOBBY our MPs I would do it. Shelby is still creating a fuss when we do PT but at least we just carry on and let her scream the place down if thats how she feels at the time. Most of the time she realises we are NOT going to stop and submits (albeit a bit ungraciously). She still gives an occasional " NO " and struggles a bit just to let us know she hasn't given up either?? Still a sweety still eatable (without the Creon). Luv Grandma Maggs Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.