Hello Karyn it has been far too long

[Guest guest]

Hello, My name is , I had the opportunity to meet Karyn several

years ago, both through the internet and in person, back at a time

when there were very few of us known. I remember that there were

probably arounrd 100 give or take a few. Oh how time flies even when

you are not having fun. I have two congenitial defects of my

pancreas, I have an annular pancreas and pancreatic divisum ( just in

case any others may suffers from the same types of problems, which in

turn causes chronic pancreatitis) I have been told that my prognosis

is poor,I have been ill since 1996.I won't bore you all with all the

ercp's, stenting, sphinterotomies, celiac plexus blocks too many to

count, all the surgeons all too willing to explore my anatomy, who

could promise me nothing ( well we don't know what we will find we

will have to deal with it when we see it, but most assuredly that

pancreas will have to come out,problem 1. my pancreas is entirely

wrapped around my small bowel thus leaving me unable to eat only tpn

and with the promise of a life expectancy of about 2 years and

chronic infection in my liver because of the way they would have to

put back my large bowel with my liver, I have choosen against any

further surgeries, no further pancreatic testing, and no extremes in

attempting to prolong my life, there have been a few things that I

have let the Dr.s do like giving me potassiumn IV and additional IV

pain medication when I just can't stand it anymore, Well I won't

waste anyones time any

anymore.