Responce to your responses

[Guest guest]

Hi Kim (and all the others!)

and thanks a lot!

I think you (Kim) only got the right point - that the

patient CAN have a better life with all the

medications and equipment.. which is my purpose.

I don't get hurt from people's responses, after all

they are humans and they do have feelings. But I was

honestly surprised. Mainly because when I talked to my

friend - she was the first to ask these questions -

she didn't get emotional. Neither did any of the other

Bulgarian CF patients. But then I thought and realised

the reason for the reaction was lack of information,

because afterwards when I explained the real reason a

lot of people apologised. So my conclusion: Somehow

people do not feel secure when they don't have the

FULL knowledge of the situation. They think people are

attacking them. And in order to help, they need to

know everything. They need to have the 'full control'

of the situation in order to decide what to do.. Isn't

that strange?

If you know that somebody's aim is good you help.

If you know that somebody's aim is bad you don't help.

If you don't know somebody's aim you ... don't help.

Assume the bad first and react...

Anyway this is just my observation.

Thanks again to everybody. As I said I'll let you know

about the result of all your responses...

Blessings!

Maia

--- kimnbooboo danieldinsmore534@...> wrote:

> Well having read everyone elses responce to this, I

> thought enough

> was said. Until I realized that no one had really

> said the one point

> that is critical in the situation that Maia is

> facing. No our

> children don't suffer in pain and yes we all

> struggle with cf and our

> treatments that keep our loved ones alive. But

> without these life

> saving treatments and medications they would be

> suffering a great

> deal. Just like the people Maia is dealing with in

> Georgia. So do

> CF patients suffer yes but thanks to medication

> available to us they

> don't have to suffer or at least suffer as much as

> they would have,

> had the treatments not been available.

> Having said this I would like to coment on the way

> some people

> addressed Maia when she posted her question. Some

> were very rude and

> I would like to apologize to her. Unfortunately

> some people are

> still very hurt over the situations their loved ones

> are in and must

> have forgotten that no question is ever stupid even

> if asked in

> ignorance. Because if it were, we would never know

> what we do today

> about Cystic Fibrosis and the progress would never

> had been made if

> no one asked a question. So Maia ask away if we can

> teach one more

> person about cf, that may be the person that helps

> when no one else

> will listen.

>

>

> Kim mother of Kiefer 3 ncf and Wyatt 2 wcf

>

>

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