Please remove me from this group

[Guest guest]

My grandfather (a very wise man) always said that " it takes two to tango. " If

one party removes themself from the disagreement, there can be no more

disagreement....it also flusters the other side when there is no response.

With that being said, this group (as I understood it) was put in place to

educate not to irritate. As much as I will miss the educational (important)

part of this site ( and this part is growing smaller and smaller), please remove

my name and subscription from this list. It is taking up too much of my time to

sort through the debris.

Respectfully,

Judith Burkholder

medicaid@...: jforthub@...: Mon, 24 Nov

2008 16:10:40 -0500Subject: [ ] Please remove me from this group

Please remove me from this groupJeannie ForthuberProject AssistantUniversity of

Central FloridaToni Jennings Exceptional Education InstitutePO Box

161250Orlando, Fl. 32816-1250jforthub@...

fax " Leadership is caring more than others think wise, dreaming more than others

think practical, risking more than others think safe and expecting more than

others think possible. "

_________________________________________________________________

Windows Live Hotmail now works up to 70% faster.

http://windowslive.com/Explore/Hotmail?ocid=TXT_TAGLM_WL_hotmail_acq_faster_1120\

08

[Guest guest]

Judith,

You're right. You should quit. By all rights this group is a miserable

failure. There are nearly 1700 members, and the group

has been in existence for just over seven years, and so far only

about .1% (one tenth of one percent) of the members have pursued legal

action seeking federally-mandated reimbursement of off-label HBOT for

their brain-injured children.

The one-tenth of 1% of members may actually be too

high. The numbers may only be as high as .05%, maybe 10 people. Maybe

a dozen.

I've gone through it and am still going through it. It's still

unresolved. The latest: The Georgia Department of Community Health

(DCH) has constructed a labyrinth of nearly-impossible requirements

that must be met before they'll pay for off-label HBOT for a child

with cerebral palsy or autism. The most impossible is a requirement

that treatments occur only in a UHMS-certified/accredited facility.

Well, that's a hospital, and every one of such facilities specifically

bans the administration of off-label HBOT.

It can be argued that document does represent a victory of sorts. It

does represent an acknowledgement by the state of the benefits of off-

label HBOT for cerebral palsy and autistic children. The very first

person I sent that policy change document to was Hartsoe. I

sent it to him in a private email last week or the week before when he

was accusing me of yet one more thing to " destroy hyperbarics. "

Flawed as it is, nonetheless, that document does represent a victory

of sorts for us all. If it's a victory of all, why hasn't

announced it? What does that mean?

I have the document, the policy change in pdf, but I haven't posted it

here yet. It's too depressing. In fact, everything about this whole

business is depressing. While we have a federal law

mandating HBOT, on the other hand, there's (obviously) a tremendous

amount of apathy on the part of parents to pursue this. And frankly,

if the only thing that's going to happen in the end is a UHMS

roadblock, what's the point?

I am in some preliminary conversations with some attorneys to go to

federal court and fight it out there, but, no matter what, that still

means a final resolution is still years away. So what should I do?

Should I quit too?

I'm so tired of all this shit.

I understand Ohio Medicaid once paid you for treating a cp child. Then

they called you up and said they made a mistake and requested you

return the money.

And you did.

Without a fight.

If we all continue without a fight, the alternative to

victories or a final victory is this: Parents who seek

out and obtain HBOT for their brain-injured children will continue to

be a very, very, very small minority of parents of brain-injured

children. My guess is around 5% to 10%. That means the status quo

standard of care: of botox and nonbeneficial Speech, OT, and PT and

surgeries and other bullshit remains the standard of care for 90% to

95% of all brain-injured children.

Which means nothing ever changes.

Nothing.

That means the state will continue to dictate what is best for our

children, despite it proven time and again the state's experts are

wrong about what is best for our brain-injured children. At the same

time, a year ago--a year ago-- Harch published a paper that proves

HBOT results in the growth of new brain tissue. This means cure, or,

in the language of Medicaid the " correction " of a " defect. "

And still nobody pursues this, with the exception of a handful.

Nobody fights for what is there for their most helpless of children to

freely receive.

Instead, we'd rather be at the mercy of the UHMS and Hartsoe

and let a lunatic saboteur like e Creacy represent our best

interests. We'd rather a Tom Fox demonize a company like Oxyhealth,

we'd rather he actually accuse Oxyhealth of engaging in not only

criminal activity but also intentionally and maliciously market a

product that's " dangerous " for our children.

Then, once Tom Fox et al are exposed for actually engaging in the

criminal act that Oxyhealth is daily accused of, all of a sudden

" things are just too negative on the listserv. "

And now they've really gotten bad since e, the one saint we all

thought was all for us has been exposed for deliberately trying to

sabotage a Harch study that will prove forever the benefits of HBOT

for brain-injury.

That's just too negative.

I'm not managing this group in order to buy a retirement home in St.

Augustine. I don't make any money on this at all, and in fact, I give

away too much of my time to the detriment of me and my family so I'm

real close to throwing in the towel on this whole thing too.

Judith, I don't think we've ever met in person. I habitually read

everything you post because you're a great contributor, and I'll miss

you if you leave, but this place called is a

battleground. It just is.

And I'm weary.

[ ] Please

remove me from this group

>

>

>

>Please remove me from this groupJeannie ForthuberProject

AssistantUniversity of Central FloridaToni Jennings Exceptional

Education InstitutePO Box 161250Orlando, Fl.

32816-1250jforthub@...

fax " Leadership is caring more than others think wise, dreaming more

than others think practical, risking more than others think safe and

expecting more than others think possible. "

>

>

>

>

>

>_________________________________________________________________

>Windows Live Hotmail now works up to 70% faster.

>http://windowslive.com/Explore/Hotmail?ocid=TXT_TAGLM_WL_hotmail_acq_faster_112\

008

>

>

[Guest guest]

, hang in their. All is not lost. No matter what happen's don't give up.

Just because their are a few or maybe a multitude of people that are not willing

to fight the fight don't give up. If just one persons life is touched or

protected or even saved by your efferts it is worth it all.

 

Some people just don't have the drive to fight the fight. You get tired I know I

did once. But I continue to press on. I have to Katlyn would want me to.

Take some time off sit back and relax.. YOU HAVE DEVOTED SO MUCH TIME AWAY FROM

YOUR FAMILY AND FIGHTING FOR JIMMY THAT YOU CAN " T GIVE UP NOW.

 

 

Nevermind these people that are wanting to bring you down. You are doing what is

right giving honest and correct information. Just hang in there man.... Your

doing great.

 

From: Freels <dfreels@...>

Subject: RE: [ ] Please remove me from this group

medicaid

Date: Tuesday, November 25, 2008, 9:59 AM

Judith,

You're right. You should quit. By all rights this group is a miserable

failure. There are nearly 1700 members, and the group

has been in existence for just over seven years, and so far only

about .1% (one tenth of one percent) of the members have pursued legal

action seeking federally-mandated reimbursement of off-label HBOT for

their brain-injured children.

The one-tenth of 1% of members may actually be too

high. The numbers may only be as high as .05%, maybe 10 people. Maybe

a dozen.

I've gone through it and am still going through it. It's still

unresolved. The latest: The Georgia Department of Community Health

(DCH) has constructed a labyrinth of nearly-impossible requirements

that must be met before they'll pay for off-label HBOT for a child

with cerebral palsy or autism. The most impossible is a requirement

that treatments occur only in a UHMS-certified/ accredited facility.

Well, that's a hospital, and every one of such facilities specifically

bans the administration of off-label HBOT.

It can be argued that document does represent a victory of sorts. It

does represent an acknowledgement by the state of the benefits of off-

label HBOT for cerebral palsy and autistic children. The very first

person I sent that policy change document to was Hartsoe. I

sent it to him in a private email last week or the week before when he

was accusing me of yet one more thing to " destroy hyperbarics. "

Flawed as it is, nonetheless, that document does represent a victory

of sorts for us all. If it's a victory of all, why hasn't

announced it? What does that mean?

I have the document, the policy change in pdf, but I haven't posted it

here yet. It's too depressing. In fact, everything about this whole

business is depressing. While we have a federal law

mandating HBOT, on the other hand, there's (obviously) a tremendous

amount of apathy on the part of parents to pursue this. And frankly,

if the only thing that's going to happen in the end is a UHMS

roadblock, what's the point?

I am in some preliminary conversations with some attorneys to go to

federal court and fight it out there, but, no matter what, that still

means a final resolution is still years away. So what should I do?

Should I quit too?

I'm so tired of all this shit.

I understand Ohio Medicaid once paid you for treating a cp child. Then

they called you up and said they made a mistake and requested you

return the money.

And you did.

Without a fight.

If we all continue without a fight, the alternative to

victories or a final victory is this: Parents who seek

out and obtain HBOT for their brain-injured children will continue to

be a very, very, very small minority of parents of brain-injured

children. My guess is around 5% to 10%. That means the status quo

standard of care: of botox and nonbeneficial Speech, OT, and PT and

surgeries and other bullshit remains the standard of care for 90% to

95% of all brain-injured children.

Which means nothing ever changes.

Nothing.

That means the state will continue to dictate what is best for our

children, despite it proven time and again the state's experts are

wrong about what is best for our brain-injured children. At the same

time, a year ago--a year ago-- Harch published a paper that proves

HBOT results in the growth of new brain tissue. This means cure, or,

in the language of Medicaid the " correction " of a " defect. "

And still nobody pursues this, with the exception of a handful.

Nobody fights for what is there for their most helpless of children to

freely receive.

Instead, we'd rather be at the mercy of the UHMS and Hartsoe

and let a lunatic saboteur like e Creacy represent our best

interests. We'd rather a Tom Fox demonize a company like Oxyhealth,

we'd rather he actually accuse Oxyhealth of engaging in not only

criminal activity but also intentionally and maliciously market a

product that's " dangerous " for our children.

Then, once Tom Fox et al are exposed for actually engaging in the

criminal act that Oxyhealth is daily accused of, all of a sudden

" things are just too negative on the listserv. "

And now they've really gotten bad since e, the one saint we all

thought was all for us has been exposed for deliberately trying to

sabotage a Harch study that will prove forever the benefits of HBOT

for brain-injury.

That's just too negative.

I'm not managing this group in order to buy a retirement home in St.

Augustine. I don't make any money on this at all, and in fact, I give

away too much of my time to the detriment of me and my family so I'm

real close to throwing in the towel on this whole thing too.

Judith, I don't think we've ever met in person. I habitually read

everything you post because you're a great contributor, and I'll miss

you if you leave, but this place called is a

battleground. It just is.

And I'm weary.

[ ] Please

remove me from this group

>

>

>

>Please remove me from this groupJeannie ForthuberProject

AssistantUniversity of Central FloridaToni Jennings Exceptional

Education InstitutePO Box 161250Orlando, Fl. 32816-1250jforthub@ mail.ucf.

edu407.823. 6705407.823. 1297

fax " Leadership is caring more than others think wise, dreaming more

than others think practical, risking more than others think safe and

expecting more than others think possible. "

>

>

>

>

>

>___________ _________ _________ _________ _________ _________ __

>Windows Live Hotmail now works up to 70% faster.

>http://windowslive. com/Explore/ Hotmail?ocid= TXT_TAGLM_ WL_hotmail_

acq_faster_ 112008

>

>

[Guest guest]

Judith did this really happen?

Freels wrote:

> Judith,

> You're right. You should quit. By all rights this group is a miserable

> failure. There are nearly 1700 members, and the group

> has been in existence for just over seven years, and so far only

> about .1% (one tenth of one percent) of the members have pursued legal

> action seeking federally-mandated reimbursement of off-label HBOT for

> their brain-injured children.

> The one-tenth of 1% of members may actually be too

> high. The numbers may only be as high as .05%, maybe 10 people. Maybe

> a dozen.

> I've gone through it and am still going through it. It's still

> unresolved. The latest: The Georgia Department of Community Health

> (DCH) has constructed a labyrinth of nearly-impossible requirements

> that must be met before they'll pay for off-label HBOT for a child

> with cerebral palsy or autism. The most impossible is a requirement

> that treatments occur only in a UHMS-certified/ accredited facility.

> Well, that's a hospital, and every one of such facilities specifically

> bans the administration of off-label HBOT.

> It can be argued that document does represent a victory of sorts. It

> does represent an acknowledgement by the state of the benefits of off-

> label HBOT for cerebral palsy and autistic children. The very first

> person I sent that policy change document to was Hartsoe. I

> sent it to him in a private email last week or the week before when he

> was accusing me of yet one more thing to " destroy hyperbarics. "

> Flawed as it is, nonetheless, that document does represent a victory

> of sorts for us all. If it's a victory of all, why hasn't

> announced it? What does that mean?

> I have the document, the policy change in pdf, but I haven't posted it

> here yet. It's too depressing. In fact, everything about this whole

> business is depressing. While we have a federal law

> mandating HBOT, on the other hand, there's (obviously) a tremendous

> amount of apathy on the part of parents to pursue this. And frankly,

> if the only thing that's going to happen in the end is a UHMS

> roadblock, what's the point?

> I am in some preliminary conversations with some attorneys to go to

> federal court and fight it out there, but, no matter what, that still

> means a final resolution is still years away. So what should I do?

> Should I quit too?

> I'm so tired of all this shit.

> I understand Ohio Medicaid once paid you for treating a cp child. Then

> they called you up and said they made a mistake and requested you

> return the money.

> And you did.

> Without a fight.

> If we all continue without a fight, the alternative to

> victories or a final victory is this: Parents who seek

> out and obtain HBOT for their brain-injured children will continue to

> be a very, very, very small minority of parents of brain-injured

> children. My guess is around 5% to 10%. That means the status quo

> standard of care: of botox and nonbeneficial Speech, OT, and PT and

> surgeries and other bullshit remains the standard of care for 90% to

> 95% of all brain-injured children.

> Which means nothing ever changes.

> Nothing.

> That means the state will continue to dictate what is best for our

> children, despite it proven time and again the state's experts are

> wrong about what is best for our brain-injured children. At the same

> time, a year ago--a year ago-- Harch published a paper that proves

> HBOT results in the growth of new brain tissue. This means cure, or,

> in the language of Medicaid the " correction " of a " defect. "

> And still nobody pursues this, with the exception of a handful.

> Nobody fights for what is there for their most helpless of children to

> freely receive.

> Instead, we'd rather be at the mercy of the UHMS and Hartsoe

> and let a lunatic saboteur like e Creacy represent our best

> interests. We'd rather a Tom Fox demonize a company like Oxyhealth,

> we'd rather he actually accuse Oxyhealth of engaging in not only

> criminal activity but also intentionally and maliciously market a

> product that's " dangerous " for our children.

> Then, once Tom Fox et al are exposed for actually engaging in the

> criminal act that Oxyhealth is daily accused of, all of a sudden

> " things are just too negative on the listserv. "

> And now they've really gotten bad since e, the one saint we all

> thought was all for us has been exposed for deliberately trying to

> sabotage a Harch study that will prove forever the benefits of HBOT

> for brain-injury.

> That's just too negative.

> I'm not managing this group in order to buy a retirement home in St.

> Augustine. I don't make any money on this at all, and in fact, I give

> away too much of my time to the detriment of me and my family so I'm

> real close to throwing in the towel on this whole thing too.

> Judith, I don't think we've ever met in person. I habitually read

> everything you post because you're a great contributor, and I'll miss

> you if you leave, but this place called is a

> battleground. It just is.

> And I'm weary.

> [ ] Please

> remove me from this group

> >

> >

> >

> >Please remove me from this groupJeannie ForthuberProject

> AssistantUniversity of Central FloridaToni Jennings Exceptional

> Education InstitutePO Box 161250Orlando, Fl. 32816-1250jforthub@ mail.ucf.

edu407.823. 6705407.823. 1297

> fax " Leadership is caring more than others think wise, dreaming more

> than others think practical, risking more than others think safe and

> expecting more than others think possible. "

> >

> >

> >

> >

> >

> >___________ _________ _________ _________ _________ _________ __

> >Windows Live Hotmail now works up to 70% faster.

> > http://windowslive. com/Explore/ Hotmail?ocid= TXT_TAGLM_ WL_hotmail_

acq_faster_ 112008

> >

> >

[Guest guest]

Dear :

Yes, at one point Ohio Medicaid did reimburse. Yes, we returned the

reimbursement along with the additional monies in daily interest that they were

charging our nonprofit organization for each day that the monies were not

returned. We appealed their audit and were left with a judgement that upheld

their decision.

We were designated by Ohio Medicaid to be a DME (simply because we looked like

one); according to Ohio Medicaid policies and procedures a DME may not

administer HBOT. They are still trying to decide what we are and in the

meantime we are continuing to practice.

We have not given up as you suggest. On the contrary, to date, we are

approaching 5,000 treatments, many of which are unable to pay. It is not about

the money (although it is beneficial for continued operations), it is truly

about the people who desire treatment and are unable to acquire it elsewhere.

I simply want to be removed from this group because I do not understand why

arguments must persist. Respectfully speaking, it really does waste time.

I wish only the best for those who are seeking assistance. I hope that they can

wade through all of this better than I can.

With much respect,

Judith Burkholder

dfreels@...: medicaid@...:

wmanslansky@...: Tue, 25 Nov 2008 12:02:38 -0800Subject: RE:

[ ] Please remove me from this group

Judith did this really happen? Freels wrote: > Judith, > You're right. You

should quit. By all rights this group is a miserable > failure. There are nearly

1700 members, and the group > has been in existence for just

over seven years, and so far only > about .1% (one tenth of one percent) of the

members have pursued legal > action seeking federally-mandated reimbursement of

off-label HBOT for > their brain-injured children. > The one-tenth of 1% of

members may actually be too > high. The numbers may only be as

high as .05%, maybe 10 people. Maybe > a dozen. > I've gone through it and am

still going through it. It's still > unresolved. The latest: The Georgia

Department of Community Health > (DCH) has constructed a labyrinth of

nearly-impossible requirements > that must be met before they'll pay for

off-label HBOT for a child > with cerebral palsy or autism. The most impossible

is a requirement > that treatments occur only in a UHMS-certified/ accredited

facility. > Well, that's a hospital, and every one of such facilities

specifically > bans the administration of off-label HBOT. > It can be argued

that document does represent a victory of sorts. It > does represent an

acknowledgement by the state of the benefits of off- > label HBOT for cerebral

palsy and autistic children. The very first > person I sent that policy change

document to was Hartsoe. I > sent it to him in a private email last week

or the week before when he > was accusing me of yet one more thing to " destroy

hyperbarics. " > Flawed as it is, nonetheless, that document does represent a

victory > of sorts for us all. If it's a victory of all, why hasn't >

announced it? What does that mean? > I have the document, the policy change in

pdf, but I haven't posted it > here yet. It's too depressing. In fact,

everything about this whole > business is depressing. While we

have a federal law > mandating HBOT, on the other hand, there's (obviously) a

tremendous > amount of apathy on the part of parents to pursue this. And

frankly, > if the only thing that's going to happen in the end is a UHMS >

roadblock, what's the point? > I am in some preliminary conversations with some

attorneys to go to > federal court and fight it out there, but, no matter what,

that still > means a final resolution is still years away. So what should I do?

> Should I quit too? > I'm so tired of all this shit. > I understand Ohio

Medicaid once paid you for treating a cp child. Then > they called you up and

said they made a mistake and requested you > return the money. > And you did. >

Without a fight. > If we all continue without a fight, the alternative to

> victories or a final victory is this: Parents

who seek > out and obtain HBOT for their brain-injured children will continue to

> be a very, very, very small minority of parents of brain-injured > children.

My guess is around 5% to 10%. That means the status quo > standard of care: of

botox and nonbeneficial Speech, OT, and PT and > surgeries and other bullshit

remains the standard of care for 90% to > 95% of all brain-injured children. >

Which means nothing ever changes. > Nothing. > That means the state will

continue to dictate what is best for our > children, despite it proven time and

again the state's experts are > wrong about what is best for our brain-injured

children. At the same > time, a year ago--a year ago-- Harch published a

paper that proves > HBOT results in the growth of new brain tissue. This means

cure, or, > in the language of Medicaid the " correction " of a " defect. " > And

still nobody pursues this, with the exception of a handful. > Nobody fights for

what is there for their most helpless of children to > freely receive. >

Instead, we'd rather be at the mercy of the UHMS and Hartsoe > and let a

lunatic saboteur like e Creacy represent our best > interests. We'd rather

a Tom Fox demonize a company like Oxyhealth, > we'd rather he actually accuse

Oxyhealth of engaging in not only > criminal activity but also intentionally and

maliciously market a > product that's " dangerous " for our children. > Then, once

Tom Fox et al are exposed for actually engaging in the > criminal act that

Oxyhealth is daily accused of, all of a sudden > " things are just too negative

on the listserv. " > And now they've really gotten bad since

e, the one saint we all > thought was all for us has been exposed for

deliberately trying to > sabotage a Harch study that will prove forever the

benefits of HBOT > for brain-injury. > That's just too negative. > I'm not

managing this group in order to buy a retirement home in St. > Augustine. I

don't make any money on this at all, and in fact, I give > away too much of my

time to the detriment of me and my family so I'm > real close to throwing in the

towel on this whole thing too. > Judith, I don't think we've ever met in person.

I habitually read > everything you post because you're a great contributor, and

I'll miss > you if you leave, but this place called is a >

battleground. It just is. > And I'm weary. > [ ] Please > remove me from this

group > > > > > > > >Please remove me from this groupJeannie ForthuberProject >

AssistantUniversity of Central FloridaToni Jennings Exceptional > Education

InstitutePO Box 161250Orlando, Fl. 32816-1250jforthub@ mail.ucf. edu407.823.

6705407.823. 1297 > fax " Leadership is caring more than others think wise,

dreaming more > than others think practical, risking more than others think safe

and > expecting more than others think possible. " > > > > > > > > > > >

>___________ _________ _________ _________ _________ _________ __ > >Windows

Live Hotmail now works up to 70% faster. > > http://windowslive. com/Explore/

Hotmail?ocid= TXT_TAGLM_ WL_hotmail_ acq_faster_ 112008 > > > >[Non-text

portions of this message have been removed] > > > Freels > 2948 Windfield

Circle > Tucker, GA 30084-6714 > 770-491-6776 (phone) > 404-725-4520 (cell) >

815-366-7962 (fax) > mailto: daviddavidfreels (DOT) com > http://groups. /

group/fearlesspa rents/ > http://www.Medicaid forHBOT.com > http://www.davidfre

els.com > __._,_..___ > Messages in this topic ( 3 )> Reply (via web post)> | >

Start a new topic > Messages > | Database > | Polls > | Calendar > " So I say to

you: Ask and it will be given to you; seek and you will find; knock and the door

will be opened to you. For everyone who asks receives; he who seeks finds; and

to him who knocks, the door will be opened. " [Luke 11: 9-10] >

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ >

[Guest guest]

Rubbish, Helen; mentioning there's no validation of a product's claims and

asking for some isn't an attack. We NEED validation in this highly-hyped field

of natural remedies and nutitrion. Please stay, and give us any data you have.

Duncan

> >

> > > >

> >

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Helen, I really enjoyed the video, it was fun to see you. Glad you decided to do

it. I hope you'll stay in the group. I always enjoy your posts. I don't think

Duncan meant that as an attack, he was just asking about the bbb part, which

doesn't necessarily mean anything about the product's effectiveness. If it works

then it's good, end of story.

Vicky

>

>

> Could I please be removed from this group.

>

>

[Guest guest]

As my implants were removed sev yrs ago, I don't need to be in this group

anymore so please remove my email address from the list.

[Guest guest]

Only a moderator, or you can remove you, scroll down to the bottom of the group

page, and on the bottom right, it says unsubscribe, just click there.........

Take care, hope you are doing well ! We love to have input of successful

healing, it gives others hope, so if you ever care to share with us, we would be

greatful !

Take Care ~

Dede

Please remove me from this group

As my implants were removed sev yrs ago, I don't need to be in this group anymore so please remove my email address from the list.