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suspected Cystic Fibrosis

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Hi,

I was wondering if any of your children have presented with leg pains, very

greasy stools, low weight, frequent sinus infections, Upper resp. infections,

malabsorpion?

Our son is 4 years old and is just now being tested for CF.

Isn't it impossible to have CF for four years and be undiagnosed? He has only

had pnuemonia once.

He is fixing to be admitted to the hospital for an array of tests. Finally

though, they too are concerned about his weight and oily stools! He is 4 and

weighs 32 lbs. You can count his ribs through his back and it doesn't matter

what he eats, he will not gain. He just goes to the bathroom more.

He is going to have a fecal fat study, endoscopy, sweat test, celiac disease

ruled out, look at pancreatic enzymes and so on....He will also be started on NG

tube feeding. If it helps, he will have a G tube placed.

Is the sweat test 100% diagnostic?

I would really appreciate any advice you may have. I am a nervous wreck!

Krystena s

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