Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 hi, our 3 year old daughter got her vest this June. we do it 2 times a day 20 minutes each session. hope this helps. Merrill vests Hi to everyone I hope everyone is feeling happy and healthy. Just a quick question.. at what age can children start using the vest? Also, does anyone know in Canada if the vest is paid by health care or blue cross? Also, how often do you guys do pt on your children? Thanks in advance Jasmine(mommy to Jaycen,6months wcf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2002 Report Share Posted August 31, 2002 Hi Jasmine, I work for Advanced Respiratory, the Vest company. I monitor CFParents and Cystic-L in order to answer questions, dispel incorrect information, and to try to help where I can. Canada has presented some serious challenges...in particular with the physios. All I can say is that we have accumulated 17 years of clinical research on the Vest and its effectiveness with CF. We have a mountain of clinical evidence on the greater effectiveness of the Vest over traditional CPT/physio. The is significant research in the area of healthcare cost savings by using the Vest. If the Vest can keep a patient out of the hospital just one time, it has usually paid for itself. And keep one important thing in mind...90% of the research was completed independent of our support. On occasion, we supplied a device to the researchers so they could conduct their investigations, but no funding was provided. I'm not sure why the physios are so resistant to the Vest. We have run into the same problem with the Canadian CF Foundation. I always wonder if they feel that the Vest will take away some of their duties. The physios/respiratory therapists (RTs) here in the US have found that the use of the Vest improves their efficiency, provides more effective therapy for their patients and, thus, reduces the pulmonary exacerbations that occur. We have introduced the Vest to Europe and have had a good response. It is my impression that the healthcare systems in Europe are similar to the Canadian system in that it is nationalized and that the approach to treatment is more holistic. We here in the US are more gadget driven. That is probably one of our biggest barriers. We sell the Vest to Canadians who want to purchase one. We recently sent one to a Canadian family who had a fund raising event that paid for the Vest. I realize that this probably does not make it any easier for you, but our efforts in Canada continue. All we ask is that the Canadian healthcare professionals and administrators of the Medicare system look at the evidence that exists and even conduct their own research. They will discover what over 25,000 people in the US have experienced: better pulmonary health. They will see what American insurers (the stingiest in the world) are realizing: greater healthcare cost savings. And they will understand what more than 2000 US physicians have found: the Vest is making a significant difference in the lives and quality of life for their patients and families. I am just a worker bee with Advanced Respiratory. I will forward your e-mail to our corporate office in Minnesota to the folks who handle sales in Canada. They may be able to give you more information regarding the status of our progress in Canada. In the meantime, God bless. We will continue to do what we can. Don't hesitate to contact me for questions/concerns. I will do everything within my power to help. Randy , RN Advanced Respiratory 1- www.thevest.com vests Thank-you to everyone in regards to vests as well as the cookie thing and my computer. I got the computer working I live in Alberta, Canada. Right now Jaycen is 6 1/2 months old. His weight is 19 1/2 pounds and is 27 " . On our last clinic visit, I had mentioned that I would like to get a vest for Jaycen. It would make my life a little easier as I am a single mother and Jaycen hates physio. I can't convince physio about the vest though. She was comparing apples to oranges and didn't really know anything. I found out that the vest isn't covered by any health insurance or the cf foundation She quoted that the vest would cost $8000.00 can. Can anyone please send me information in regards to vests, distributor-who makes them-the pros and cons to them-personal experience with them as well as documentation. I would like to receive these emails and print them out for her. If all else fails, would anyone like to sell me an old vest that doesn't fit their child anymore? Thanks!!!! Jasmine (mommy to Jaycen wcf) ______________________________________________________________ Information contained in this e-mail message may be legally privileged and confidential information intended only for the use of the individual(s) named above. If the reader of this message is not the intended recipient, you are hereby notified that any use, dissemination, distribution, or copying of this e-mail is strictly prohibited. If e-mailed messages include MEDICAL RECORDS, these records ARE PRIVILEGED AND CONFIDENTIAL and may be released only upon written permission of the patient. If you have received this e-mail in error, please immediately notify the sender by telephone at 1- and delete this e-mail. Thank you! ______________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2002 Report Share Posted August 31, 2002 Randy, I live in Phoenix, and during our last visit to Phoenix Childrens Hospital CF clinic, I asked the Dr. if the vest was more effective than manual CPT. He told me that there was no evidence that the vest was more effective. If you have factual data contradicting his statements, please e-mail me, as I would like to see the data. Thanks, Steve father of 11mos wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2002 Report Share Posted August 31, 2002 Steve, I will forward your request to our Customer Service Dept. They can get you the information. In addition, if you could let me know which MD it was, we could send him/her some info as well. Your name, of course, would be held in the strictest confidence. Randy Re: vests Randy, I live in Phoenix, and during our last visit to Phoenix Childrens Hospital CF clinic, I asked the Dr. if the vest was more effective than manual CPT. He told me that there was no evidence that the vest was more effective. If you have factual data contradicting his statements, please e-mail me, as I would like to see the data. Thanks, Steve father of 11mos wcf PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 Hi Randy You keep talking about all this research that has happened that proves the vest works better than manual physio- where is it? How can we get a copy to read etc etc. As you know I have been asking for this for so long I find it frustrating - your European chap never contacted me - the UK physio's are not certain this is the best road to take (and not because it will put them out of a job!! - we do the physio ourselves and they would still need to be a major part of the respiratory care). We are orgnising a ball to raise money in November, a third of the monies raised will go to the CF Trust to find a cure, a third to the CF unit at our hospital and a third to purchasing a vest (if appropriate!). Please can we see this research, the hard facts. Thank you for your help in this matter. Lucinda Fleming-, with son Dylan 18 months wcf from Durham in the UK. > >Reply-To: cfparents >To: " cfparents cfparents jlambert88@...jlambert88@...> >CC: Steve ssmith@...> >Subject: RE: vests >Date: Sat, 31 Aug 2002 20:50:01 -0500 > >Hi Jasmine, > >I work for Advanced Respiratory, the Vest company. I monitor CFParents and >Cystic-L in order to answer questions, dispel incorrect information, and to >try to help where I can. > >Canada has presented some serious challenges...in particular with the >physios. All I can say is that we have accumulated 17 years of clinical >research on the Vest and its effectiveness with CF. We have a mountain of >clinical evidence on the greater effectiveness of the Vest over traditional >CPT/physio. The is significant research in the area of healthcare cost >savings by using the Vest. If the Vest can keep a patient out of the >hospital just one time, it has usually paid for itself. And keep one >important thing in mind...90% of the research was completed independent of >our support. On occasion, we supplied a device to the researchers so they >could conduct their investigations, but no funding was provided. > >I'm not sure why the physios are so resistant to the Vest. We have run >into >the same problem with the Canadian CF Foundation. I always wonder if they >feel that the Vest will take away some of their duties. The >physios/respiratory therapists (RTs) here in the US have found that the use >of the Vest improves their efficiency, provides more effective therapy for >their patients and, thus, reduces the pulmonary exacerbations that occur. > >We have introduced the Vest to Europe and have had a good response. It is >my impression that the healthcare systems in Europe are similar to the >Canadian system in that it is nationalized and that the approach to >treatment is more holistic. We here in the US are more gadget driven. >That >is probably one of our biggest barriers. > >We sell the Vest to Canadians who want to purchase one. We recently sent >one to a Canadian family who had a fund raising event that paid for the >Vest. I realize that this probably does not make it any easier for you, >but >our efforts in Canada continue. All we ask is that the Canadian healthcare >professionals and administrators of the Medicare system look at the >evidence >that exists and even conduct their own research. They will discover what >over 25,000 people in the US have experienced: better pulmonary health. >They will see what American insurers (the stingiest in the world) are >realizing: greater healthcare cost savings. And they will understand what >more than 2000 US physicians have found: the Vest is making a significant >difference in the lives and quality of life for their patients and >families. > >I am just a worker bee with Advanced Respiratory. I will forward your >e-mail to our corporate office in Minnesota to the folks who handle sales >in >Canada. They may be able to give you more information regarding the status >of our progress in Canada. > >In the meantime, God bless. We will continue to do what we can. Don't >hesitate to contact me for questions/concerns. I will do everything within >my power to help. > >Randy , RN >Advanced Respiratory >1- >www.thevest.com > > > > vests > > >Thank-you to everyone in regards to vests as well as the cookie thing and >my >computer. I got the computer working I live in Alberta, Canada. Right >now > Jaycen is 6 1/2 months old. His weight is 19 1/2 pounds and is 27 " . On >our last clinic visit, I had mentioned that I would like to get a vest for >Jaycen. It would make my life a little easier as I am a single mother and >Jaycen hates physio. I can't convince physio about the vest though. She >was comparing apples to oranges and didn't really know anything. I found >out that the vest isn't covered by any health insurance or the cf >foundation > She quoted that the vest would cost $8000.00 can. Can anyone please >send >me information in regards to vests, distributor-who makes them-the pros and >cons to them-personal experience with them as well as documentation. I >would like to receive these emails and print them out for her. If all else >fails, would anyone like to sell me an old vest that doesn't fit their >child >anymore? > > >Thanks!!!! >Jasmine (mommy to Jaycen wcf) > > > >______________________________________________________________ >Information contained in this e-mail message may be legally privileged and >confidential information intended only for the use of the individual(s) >named above. If the reader of this message is not the intended recipient, >you are hereby notified that any use, dissemination, distribution, or >copying of this e-mail is strictly prohibited. If e-mailed messages include >MEDICAL RECORDS, these records ARE PRIVILEGED AND CONFIDENTIAL and may be >released only upon written permission of the patient. If you have received >this e-mail in error, please immediately notify the sender by telephone at >1- and delete this e-mail. Thank you! >______________________________________________________________ > _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 In Australia they also will not use the vest. The physio / medical team also tell us there is no proof that it is any better than manual cpt. They are very closed minded on this subject. I would love the chance to try it, even if its only the same standard as manual, but at least it would give our poor arms a rest from 3 times a day manual cpt. (Australia) liam 8 wocf & Eilish 5wcf vests > > >Thank-you to everyone in regards to vests as well as the cookie thing and >my >computer. I got the computer working I live in Alberta, Canada. Right >now > Jaycen is 6 1/2 months old. His weight is 19 1/2 pounds and is 27 " . On >our last clinic visit, I had mentioned that I would like to get a vest for >Jaycen. It would make my life a little easier as I am a single mother and >Jaycen hates physio. I can't convince physio about the vest though. She >was comparing apples to oranges and didn't really know anything. I found >out that the vest isn't covered by any health insurance or the cf >foundation > She quoted that the vest would cost $8000.00 can. Can anyone please >send >me information in regards to vests, distributor-who makes them-the pros and >cons to them-personal experience with them as well as documentation. I >would like to receive these emails and print them out for her. If all else >fails, would anyone like to sell me an old vest that doesn't fit their >child >anymore? > > >Thanks!!!! >Jasmine (mommy to Jaycen wcf) > > > >______________________________________________________________ >Information contained in this e-mail message may be legally privileged and >confidential information intended only for the use of the individual(s) >named above. If the reader of this message is not the intended recipient, >you are hereby notified that any use, dissemination, distribution, or >copying of this e-mail is strictly prohibited. If e-mailed messages include >MEDICAL RECORDS, these records ARE PRIVILEGED AND CONFIDENTIAL and may be >released only upon written permission of the patient. If you have received >this e-mail in error, please immediately notify the sender by telephone at >1- and delete this e-mail. Thank you! >______________________________________________________________ > _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 Jody, The " VEST " is a type of respiratory therapy. We had used percussion for our little one but it was not effective for us so we got the vest a few months ago. It is a vest that they wear and it fills with air. A compressor compresses the vest at different speeds to deliver respiartory therapy to the entire chest region at the same time. Instead of pounding on each region for a few minutes her entire chest gets the treatment for 20 minutes twice a day. It shakes them pretty good but my daughter falls asleep to it every night! Hope that helps mom of Hannah 2 1/2 wcf and Tommy 5 wocf > Can somebody tell me what the vest is for that I keep reading about? I gather that they are not available in the UK, but I would be interested to know anyway > > Thanks > > Jody (mum to Amy 2, nocf, Hannah, 8 months wcf) > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2002 Report Share Posted September 7, 2002 Hi to everyone Thank-you so much to everyone who responded to the questions about the vest. I learnt alot. I have been reading about how some people haven't gotten diagnosed with cf until they were a little older. Jaycen wouldn't have lived that long. He was very, very sick since birth. we were in hospitals for a month. At 2 1/2 months he was under the 5th percentile. Now, at 6 1/2 months, he is at the 75th percentile. Does this reflect somewhat on the severity of his cf? Once again, thank-you so much for all your input Hugs to all Jasmine(mommy to Jaycen, 6.5 months.wcf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2002 Report Share Posted September 8, 2002 I may be totally off on this, but I have been told that sometimes if they are younger and have a rough of time things are little bit harder and can be more severe, but I believe there have been so many cases our there now that totally show that to be different. I have a dear friend that her daughter was in the intensive care for the first 2 months of her life due to CF complications and low weight. Since then, she is now about 7 years old, no other complications, hospital stays, minimal treatments, etc. I believe there are quite a few of kids and adults that are like that out there. I think with the diagnose being so soon the child is able to get the best of care even medicine wise before things get severe. Just my thoughts. Christi (mom to 3 teenagers, one w/cf) Quote Link to comment Share on other sites More sharing options...
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