new diagnosis

[Guest guest]

I've been to four different doctors in the past and have gotten four

different diagnosis. The last one was rosacea. Yesterday, I went to a

fifth doctor and was told that I have..........eczema! Well, that

explains why antihistamines work. She gave me a month's worth of

Zoloft. I have to use Cetaphil (sp?) as a cleanser, and a " miracle "

moisturizer that starts with a c, but I can't read what she wrote.

Hopefully they can make it out at Mother's Market.

[Guest guest]

Okaayy! Now I thought that fibrosing alveolitis was an existing term for pulmonary fibrosis, that the two were interchangeable.

And I also thought that as the 'I' stands for idiopathic, which is literally from the same source as 'idiot' and means know nothing, then you can still have all the different types of PF like NSIP or UIP etc. It is the NSIP that is known to be responsive to steroid treatment while UIP not so. Or possibly the other way around.

I have never had a biopsy as it is already known that my pf is responsive to treatment. My chest physician simply feels that it's too much of an invasive proceedure to tell us something we already know. I'm inclined to agree.

Love Ze xx

>> hi> my diagnosis has changed from IPF to idiopathic fibrosing alveolitis (516.3)> > this is because my disease is responsive to prednisone and cellcept> > ipf is not responsive> > when i looked it up on line, i found that it is basically the same thing, just different wording and different coding> > still glad i did not have a biopsy> > in fact i found an abstract of an article that one of my docs co-authored, in which they discuss the dangers of biopsy> > > Pink Joyce IPF 3/06 Pennsylvania > Donate Life Listed 1/09 inactive 4/09> www.transplantfund.org>