Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 a hernia? Rosemary in New York with 3 children with CF - they are 12, 9.8, 5.9...I coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you ready for this - TOBI after their medication! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 Could they be hernias? Traci looks like she has poor posture because CF causes her to be barrel chested. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 can hernias be small? They are no bigger than a dime in size? and would they hurt? He has not complained of pain. I will call his ped. tomorrow. My 7 yr old had two bad hernias when he was baby and had to have them surgically corrected. They were down low in the pelvic area. You couldn't see them outside though. Thanks! Krystena Re: knots under the skin? a hernia? Rosemary in New York with 3 children with CF - they are 12, 9.8, 5.9...I coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you ready for this - TOBI after their medication! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 My son has one under his skin on his chest. He has been examined and they think it is a benign cyst caused by a blocked follicle under the skin. Have your pediatrician look at them. ] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 Adam just had surgery for an umbilical hernia (meaning it was located at his belly-button. The muscles didn't fully close properly after his cord fell off.) His hernia was always soft unless he was crying and upset. We could easily push it back in and feel the " hole " in the muscle. His hernia was as big as a small plum, but the hole in the muscles was only as big as a nickle, maybe even a little smaller. Crystal mom to Adam 7mo wcf, le almost 3 nocf. > can hernias be small? They are no bigger than a dime in size? and would they hurt? He has not complained of pain. > I will call his ped. tomorrow. > > My 7 yr old had two bad hernias when he was baby and had to have them surgically corrected. They were down low in the pelvic area. You couldn't see them outside though. > > Thanks! > Krystena > Re: knots under the skin? > > > a hernia? > > > > Rosemary in New York with 3 children with CF - they are 12, 9.8, 5.9...I > coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you > ready for this - TOBI after their medication! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 I keep reading this barrel chested symptom and I am not sure what it means but if it means flared ribs (more big at the bottom), it describes Caden's chest to a T. When he walks, you can actually see the bottom of his ribs coming first! Not his belly or his head or shoulders, you see the bottom of his ribs. Is this what " barrel chest " means?? Krystena s mom to: Caden 4 yrs Glutaric Aciduria type II 10 yrs (half sibling) -Diabetic Warren 7yrs- (half sibling) Not tested Re: knots under the skin? Could they be hernias? Traci looks like she has poor posture because CF causes her to be barrel chested. PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 My son, now 18 months old, had surgery on the fifth day of his life for what was thought to be a bowel obstruction. I later learned that the obstruction was due to meconium ilieus. While the Docs were " in there " on Jack, they found a hiatal hernia on his lower left. They did the removal and repair but he still had a " bulge " on the OTHER side of his lower abdomen (below the belly-button running down to his " package " ) which was another possible hernia that I had to watch. His second hernia appeared to me to be almost the illusion of a lower intestine full of marbles Thankfully, after about five months, that " possible hernia " disappeared, and his surgeon ruled it a non-event. Phew! I'm still uncomfortable with the fact that my kid has a wicked case of " puffy tummy " every time he eats. Granted he eats TONS, but he's rarely ever NOT PUFFY, even on an empty tummy. I think I've finally reached an equilibrium with his fat intake and his enzyme needs -- at least for today. Sorry that I ran off-topic!! Have you had an ultrasound done on Caden's abdomen? It's painless, drug-free and can be kinda " tickly " ? That might be your best solution. Just my 2 cents! Paige knots under the skin? > Well guys, I am here for another question. > > This one may sound really weird and totally not pertain to any of your children but I have had NO luck finding anything on the net. So, I assume it is not CF related. > > When I got Caden out of the tub tonight, I noticed that his belly has a few grisly knots under the skin (of his pot belly). > You can kinda see a raised up skin area and then when you feel it, it feels like a knot or gristle of some sort. > He has two of them. > > I have never seen them before. Maybe I noticed them because his belly was swelled out tighter than usual tonight. He is very skinny but his little belly sticks way out when he eats. He actually has very poor posture. His back sways in. His muscle tone is poor (on top) and his shoulders droop too. I think he would be a whole inch or so taller if he could stand up tall and straight. > > Well, thanks once more, > Krystena s > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 In a message dated 9/29/2002 9:07:08 PM Central Daylight Time, krystena@... writes: > Krystena s > The big belly is another sign of CF. I remember everyone always making fun of my girls bellies when they were little. It is because the food sits in their belly until it comes out in their stools. Sorry I don't know what the bumps are but my middle kid that doesn't have CF has something like that on her ear lobe and I have talked to the doctors about it and they just tell me to keep an eye on it and see if it will go away and it hasn't and it hasn't gotten any bigger either. It doesn't hurt her. When we are at the doctors office I forget to say something to them about it. I need to do that. Sorry I can't be of better help to you. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 Dear Crystal, I hope all is doing well with your Adam. It seems we are hearing of these " small " ??? surgeries more & more. maybe it is a good thing , that they find this early & CAN do the repair. Bless you & I look to only best wishes for you all LOVE & HUGS, grandmomBEV Re: knots under the skin? Adam just had surgery for an umbilical hernia (meaning it was located at his belly-button. The muscles didn't fully close properly after his cord fell off.) His hernia was always soft unless he was crying and upset. We could easily push it back in and feel the " hole " in the muscle. His hernia was as big as a small plum, but the hole in the muscles was only as big as a nickle, maybe even a little smaller. Crystal mom to Adam 7mo wcf, le almost 3 nocf. > can hernias be small? They are no bigger than a dime in size? and would they hurt? He has not complained of pain. > I will call his ped. tomorrow. > > My 7 yr old had two bad hernias when he was baby and had to have them surgically corrected. They were down low in the pelvic area. You couldn't see them outside though. > > Thanks! > Krystena > Re: knots under the skin? > > > a hernia? > > > > Rosemary in New York with 3 children with CF - they are 12, 9.8, 5.9...I > coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you > ready for this - TOBI after their medication! > > > Quote Link to comment Share on other sites More sharing options...
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