Guest guest Posted July 27, 2002 Report Share Posted July 27, 2002 Unfortunately once the pancrease is damaged you can't fix it you can only try and control the disorder so you won't have any more acute flares. Itsone day at a time with this disease and a good supportive physician is mandatory. Tylenol #3 probably willn ever help the pain htat much. You probably need something stronger. Don't know if that is clear enough answer but write again with all your questions. You are in the right place for support. Kaye - In pancreatitis@y..., " joiajeanson " wrote: > Hi Everyone, > I have just been diagnosed with mild to moderate CP. My doctor gave > me this diagnoses, but didn't say anything except that there is > nothing I can do. I abstain from alchohol, eat right (except when > having an attack, I'm afraid to eat then) and don't take any drugs. > The doc thinks that I caused my CP from previous history with an > eating disorder. Said that chronic starvation will cause the > pancrease to " auto-digest " . I am a healthy weight now. I have been > clear from my eating disorder for a few years now and haven't lost > any weight form the CP, yet. I don't have near the pain that some of > you have, but it is constant and frustrating. I am worried about the > progressive nature of this disease -what do I have to look forward > to? Who should I be talking to, and what questions should I be > asking? I also want to know if anyone else gets severe headaches > accociated with the stomach pain, and night sweats? Doc told me that > the headache is like a 'radiating tension pain' from the stomach. I > know so far that when I am having an attack there is no antacid that > works. Doc has tried Nexium and Prevacid, and neither help. Over > the counter pain meds don't even touch the stomach or head pain. > Tried Tylenol 3 and that didn't work either....I have an attack about > once a month, but they are not considered acute. I get sick, but not > severely sick. I get nausea that feels like seasickness, but have > only vomited once. I would greatly appreciate any input or insight > that anybody has to offer. > Thanks, > > Joia J. > Abbotsford, BC > Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2002 Report Share Posted July 27, 2002 Unfortunately once the pancrease is damaged you can't fix it you can only try and control the disorder so you won't have any more acute flares. Itsone day at a time with this disease and a good supportive physician is mandatory. Tylenol #3 probably willn ever help the pain htat much. You probably need something stronger. Don't know if that is clear enough answer but write again with all your questions. You are in the right place for support. Kaye - In pancreatitis@y..., " joiajeanson " wrote: > Hi Everyone, > I have just been diagnosed with mild to moderate CP. My doctor gave > me this diagnoses, but didn't say anything except that there is > nothing I can do. I abstain from alchohol, eat right (except when > having an attack, I'm afraid to eat then) and don't take any drugs. > The doc thinks that I caused my CP from previous history with an > eating disorder. Said that chronic starvation will cause the > pancrease to " auto-digest " . I am a healthy weight now. I have been > clear from my eating disorder for a few years now and haven't lost > any weight form the CP, yet. I don't have near the pain that some of > you have, but it is constant and frustrating. I am worried about the > progressive nature of this disease -what do I have to look forward > to? Who should I be talking to, and what questions should I be > asking? I also want to know if anyone else gets severe headaches > accociated with the stomach pain, and night sweats? Doc told me that > the headache is like a 'radiating tension pain' from the stomach. I > know so far that when I am having an attack there is no antacid that > works. Doc has tried Nexium and Prevacid, and neither help. Over > the counter pain meds don't even touch the stomach or head pain. > Tried Tylenol 3 and that didn't work either....I have an attack about > once a month, but they are not considered acute. I get sick, but not > severely sick. I get nausea that feels like seasickness, but have > only vomited once. I would greatly appreciate any input or insight > that anybody has to offer. > Thanks, > > Joia J. > Abbotsford, BC > Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2002 Report Share Posted July 27, 2002 Unfortunately once the pancrease is damaged you can't fix it you can only try and control the disorder so you won't have any more acute flares. Itsone day at a time with this disease and a good supportive physician is mandatory. Tylenol #3 probably willn ever help the pain htat much. You probably need something stronger. Don't know if that is clear enough answer but write again with all your questions. You are in the right place for support. Kaye - In pancreatitis@y..., " joiajeanson " wrote: > Hi Everyone, > I have just been diagnosed with mild to moderate CP. My doctor gave > me this diagnoses, but didn't say anything except that there is > nothing I can do. I abstain from alchohol, eat right (except when > having an attack, I'm afraid to eat then) and don't take any drugs. > The doc thinks that I caused my CP from previous history with an > eating disorder. Said that chronic starvation will cause the > pancrease to " auto-digest " . I am a healthy weight now. I have been > clear from my eating disorder for a few years now and haven't lost > any weight form the CP, yet. I don't have near the pain that some of > you have, but it is constant and frustrating. I am worried about the > progressive nature of this disease -what do I have to look forward > to? Who should I be talking to, and what questions should I be > asking? I also want to know if anyone else gets severe headaches > accociated with the stomach pain, and night sweats? Doc told me that > the headache is like a 'radiating tension pain' from the stomach. I > know so far that when I am having an attack there is no antacid that > works. Doc has tried Nexium and Prevacid, and neither help. Over > the counter pain meds don't even touch the stomach or head pain. > Tried Tylenol 3 and that didn't work either....I have an attack about > once a month, but they are not considered acute. I get sick, but not > severely sick. I get nausea that feels like seasickness, but have > only vomited once. I would greatly appreciate any input or insight > that anybody has to offer. > Thanks, > > Joia J. > Abbotsford, BC > Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 Answer to your questions: 1) > what do I have to look forward to? > Well, to be honest, not a whole lot of good. Can't eat much, so lose weight again. Lots of pain everday. Tylenol 3 will do nothing to help this. Best treatment they've found for me is nausea meds and narcotic pain killers. The surgeries don't always help, so I haven't asked to have any of them done. (check out http://hopkins-gi.org/ and do a search on pancreatitis. There is a section there on therapy and the surgeries are one of the things listed. It includes diagrams and everything on them. ) End-stage is really bad farther down the road. Eventually, uncontrollable vomiting, diahhrea and not able to eat anything. Mostly staying on liquids or TPN (total Parenteral Nutrition [not sure of spelling]). So far, I'm still able to eat two meals a day, if they are relatively small. 2) > Who should I be talking to, and what questions should I be asking? > Most of us see a GI, preferably a GI who specializes in pancreatitis. Not a whole lot of those around. I know some good doctors in CA, and others have found good doctors in at MUSC and Mayo clinic. A detailed list of doctor is available on the yahoo groups website (http://groups.yahoo.com/group/pancreatitis) You will have to sign in to be able to use the left hand navigation besides reading the posts. Once you sign into Yahoo Groups, go back to this location and click on the left hand navigation bar for databases. You'll find the list there. As for questions you should be asking. Ask about pain clinics or pain doctors (ones that are willing to write prescriptions for pain meds). I'm sure others in the group can come up with questions to ask your doctors. Hey all of you here, can you help getting questions Joia should be asking her doctors? 3. > I also want to know if anyone else gets severe headaches > accociated with the stomach pain, and night sweats? > I haven't had any of these problems, but I know several others have posted about the night sweats. Go back to the group on Yahoo site for this group and do a search on " sweats " in the messages section and I'm sure the old posts will come up for you to read. Hope this is of some help. -- Kimber Vallejo, CA hominid2@... Southwest Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 Answer to your questions: 1) > what do I have to look forward to? > Well, to be honest, not a whole lot of good. Can't eat much, so lose weight again. Lots of pain everday. Tylenol 3 will do nothing to help this. Best treatment they've found for me is nausea meds and narcotic pain killers. The surgeries don't always help, so I haven't asked to have any of them done. (check out http://hopkins-gi.org/ and do a search on pancreatitis. There is a section there on therapy and the surgeries are one of the things listed. It includes diagrams and everything on them. ) End-stage is really bad farther down the road. Eventually, uncontrollable vomiting, diahhrea and not able to eat anything. Mostly staying on liquids or TPN (total Parenteral Nutrition [not sure of spelling]). So far, I'm still able to eat two meals a day, if they are relatively small. 2) > Who should I be talking to, and what questions should I be asking? > Most of us see a GI, preferably a GI who specializes in pancreatitis. Not a whole lot of those around. I know some good doctors in CA, and others have found good doctors in at MUSC and Mayo clinic. A detailed list of doctor is available on the yahoo groups website (http://groups.yahoo.com/group/pancreatitis) You will have to sign in to be able to use the left hand navigation besides reading the posts. Once you sign into Yahoo Groups, go back to this location and click on the left hand navigation bar for databases. You'll find the list there. As for questions you should be asking. Ask about pain clinics or pain doctors (ones that are willing to write prescriptions for pain meds). I'm sure others in the group can come up with questions to ask your doctors. Hey all of you here, can you help getting questions Joia should be asking her doctors? 3. > I also want to know if anyone else gets severe headaches > accociated with the stomach pain, and night sweats? > I haven't had any of these problems, but I know several others have posted about the night sweats. Go back to the group on Yahoo site for this group and do a search on " sweats " in the messages section and I'm sure the old posts will come up for you to read. Hope this is of some help. -- Kimber Vallejo, CA hominid2@... Southwest Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 Answer to your questions: 1) > what do I have to look forward to? > Well, to be honest, not a whole lot of good. Can't eat much, so lose weight again. Lots of pain everday. Tylenol 3 will do nothing to help this. Best treatment they've found for me is nausea meds and narcotic pain killers. The surgeries don't always help, so I haven't asked to have any of them done. (check out http://hopkins-gi.org/ and do a search on pancreatitis. There is a section there on therapy and the surgeries are one of the things listed. It includes diagrams and everything on them. ) End-stage is really bad farther down the road. Eventually, uncontrollable vomiting, diahhrea and not able to eat anything. Mostly staying on liquids or TPN (total Parenteral Nutrition [not sure of spelling]). So far, I'm still able to eat two meals a day, if they are relatively small. 2) > Who should I be talking to, and what questions should I be asking? > Most of us see a GI, preferably a GI who specializes in pancreatitis. Not a whole lot of those around. I know some good doctors in CA, and others have found good doctors in at MUSC and Mayo clinic. A detailed list of doctor is available on the yahoo groups website (http://groups.yahoo.com/group/pancreatitis) You will have to sign in to be able to use the left hand navigation besides reading the posts. Once you sign into Yahoo Groups, go back to this location and click on the left hand navigation bar for databases. You'll find the list there. As for questions you should be asking. Ask about pain clinics or pain doctors (ones that are willing to write prescriptions for pain meds). I'm sure others in the group can come up with questions to ask your doctors. Hey all of you here, can you help getting questions Joia should be asking her doctors? 3. > I also want to know if anyone else gets severe headaches > accociated with the stomach pain, and night sweats? > I haven't had any of these problems, but I know several others have posted about the night sweats. Go back to the group on Yahoo site for this group and do a search on " sweats " in the messages section and I'm sure the old posts will come up for you to read. Hope this is of some help. -- Kimber Vallejo, CA hominid2@... Southwest Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Hi , Glad to know you are going high on water. But, with a liquid or semi-liquid diet, I suggest adding a little sugar (like 1/2 teaspoon) and a very little salt (like a small pinch) to each pint of water. That will be easier on the system, keep the electrolytes in balance, and can hardly hurt at all. Good Luck and best wishes, Poncho - GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Hi , Glad to know you are going high on water. But, with a liquid or semi-liquid diet, I suggest adding a little sugar (like 1/2 teaspoon) and a very little salt (like a small pinch) to each pint of water. That will be easier on the system, keep the electrolytes in balance, and can hardly hurt at all. Good Luck and best wishes, Poncho - GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Hi , Glad to know you are going high on water. But, with a liquid or semi-liquid diet, I suggest adding a little sugar (like 1/2 teaspoon) and a very little salt (like a small pinch) to each pint of water. That will be easier on the system, keep the electrolytes in balance, and can hardly hurt at all. Good Luck and best wishes, Poncho - GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 My advice to you is to get to a pancreatic specialist. I agree with not wanting to go into the hospital, but Pancreatitis is a killer if you don't watch yourself. You can't drink no more, my man! At least not until get a confirming diagnosis. If you're drinking a good deal of water and that is helping you, you probably have pancreatic " sludge " in your ducts. You are doing the right thing by staying hydrated. Ibuprofen is OK for awhile, but it does cause stomach inflammation and ulcers. Lots of people die every year from non-steroidal anti-inflammatory caused complications (like GI bleeds). Acetaminophen (Tylenol) is OK for awhile, but it eventually affects your liver, and that is an organ you definitely do not want to make angry. Once it is damaged, it is damaged for good. You should get opiod pain relief. The pain gets too severe for anything else. If you see a specialist, get on the right pain meds, and control your diet, you should do pretty well. Just don't wait. I did and it caused complications and even more horrendous medical bills. And the pain you will suffer is not to be believed. Jerry/NC ********************************** New with questions > I recently had a diagnosis (4mos ago) of AP. I spent 2 days in the > hospital and underwent a series of tests, CAT, Endo, x-ray, blood, > urine. During that time I was suffering extreme abdominal pain > minimized by demerol shots every couple of hours. After leaving the > hospital I was on a liquid diet for a few days then slowly introduced > solids to my diet. All was fine for a while and I slipped back into > my old habits ie; drinking excessively and eating fatty foods, no > exercise. Nevertheless, I started feeling the same symptoms on > Tuesday and have gone on a semi-liquid diet and drinking at least a > gallon of water a day. The symptoms have been mild in comparison and > I do not want to go to the hospital for several days while they poke > and prod me. Not to mention incurring several more thousands in > medical bills. Any suggestions on OTC (ibuprofen)pain medications or > self treatment regimens? Am I being foolish and taking a risk of > worse things to come? > > Please any help would be greatly appreciated. > > > > > PANCREATITIS Association, Intl. > Online e-mail group > > To reply to this message hit & quot;reply & quot; or send an e-mail to: Pancreatitis (AT) Yahoo > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 My advice to you is to get to a pancreatic specialist. I agree with not wanting to go into the hospital, but Pancreatitis is a killer if you don't watch yourself. You can't drink no more, my man! At least not until get a confirming diagnosis. If you're drinking a good deal of water and that is helping you, you probably have pancreatic " sludge " in your ducts. You are doing the right thing by staying hydrated. Ibuprofen is OK for awhile, but it does cause stomach inflammation and ulcers. Lots of people die every year from non-steroidal anti-inflammatory caused complications (like GI bleeds). Acetaminophen (Tylenol) is OK for awhile, but it eventually affects your liver, and that is an organ you definitely do not want to make angry. Once it is damaged, it is damaged for good. You should get opiod pain relief. The pain gets too severe for anything else. If you see a specialist, get on the right pain meds, and control your diet, you should do pretty well. Just don't wait. I did and it caused complications and even more horrendous medical bills. And the pain you will suffer is not to be believed. Jerry/NC ********************************** New with questions > I recently had a diagnosis (4mos ago) of AP. I spent 2 days in the > hospital and underwent a series of tests, CAT, Endo, x-ray, blood, > urine. During that time I was suffering extreme abdominal pain > minimized by demerol shots every couple of hours. After leaving the > hospital I was on a liquid diet for a few days then slowly introduced > solids to my diet. All was fine for a while and I slipped back into > my old habits ie; drinking excessively and eating fatty foods, no > exercise. Nevertheless, I started feeling the same symptoms on > Tuesday and have gone on a semi-liquid diet and drinking at least a > gallon of water a day. The symptoms have been mild in comparison and > I do not want to go to the hospital for several days while they poke > and prod me. Not to mention incurring several more thousands in > medical bills. Any suggestions on OTC (ibuprofen)pain medications or > self treatment regimens? Am I being foolish and taking a risk of > worse things to come? > > Please any help would be greatly appreciated. > > > > > PANCREATITIS Association, Intl. > Online e-mail group > > To reply to this message hit & quot;reply & quot; or send an e-mail to: Pancreatitis (AT) Yahoo > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 My advice to you is to get to a pancreatic specialist. I agree with not wanting to go into the hospital, but Pancreatitis is a killer if you don't watch yourself. You can't drink no more, my man! At least not until get a confirming diagnosis. If you're drinking a good deal of water and that is helping you, you probably have pancreatic " sludge " in your ducts. You are doing the right thing by staying hydrated. Ibuprofen is OK for awhile, but it does cause stomach inflammation and ulcers. Lots of people die every year from non-steroidal anti-inflammatory caused complications (like GI bleeds). Acetaminophen (Tylenol) is OK for awhile, but it eventually affects your liver, and that is an organ you definitely do not want to make angry. Once it is damaged, it is damaged for good. You should get opiod pain relief. The pain gets too severe for anything else. If you see a specialist, get on the right pain meds, and control your diet, you should do pretty well. Just don't wait. I did and it caused complications and even more horrendous medical bills. And the pain you will suffer is not to be believed. Jerry/NC ********************************** New with questions > I recently had a diagnosis (4mos ago) of AP. I spent 2 days in the > hospital and underwent a series of tests, CAT, Endo, x-ray, blood, > urine. During that time I was suffering extreme abdominal pain > minimized by demerol shots every couple of hours. After leaving the > hospital I was on a liquid diet for a few days then slowly introduced > solids to my diet. All was fine for a while and I slipped back into > my old habits ie; drinking excessively and eating fatty foods, no > exercise. Nevertheless, I started feeling the same symptoms on > Tuesday and have gone on a semi-liquid diet and drinking at least a > gallon of water a day. The symptoms have been mild in comparison and > I do not want to go to the hospital for several days while they poke > and prod me. Not to mention incurring several more thousands in > medical bills. Any suggestions on OTC (ibuprofen)pain medications or > self treatment regimens? Am I being foolish and taking a risk of > worse things to come? > > Please any help would be greatly appreciated. > > > > > PANCREATITIS Association, Intl. > Online e-mail group > > To reply to this message hit & quot;reply & quot; or send an e-mail to: Pancreatitis (AT) Yahoo > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 My advice to you is to get to a pancreatic specialist. I agree with not wanting to go into the hospital, but Pancreatitis is a killer if you don't watch yourself. You can't drink no more, my man! At least not until get a confirming diagnosis. If you're drinking a good deal of water and that is helping you, you probably have pancreatic " sludge " in your ducts. You are doing the right thing by staying hydrated. Ibuprofen is OK for awhile, but it does cause stomach inflammation and ulcers. Lots of people die every year from non-steroidal anti-inflammatory caused complications (like GI bleeds). Acetaminophen (Tylenol) is OK for awhile, but it eventually affects your liver, and that is an organ you definitely do not want to make angry. Once it is damaged, it is damaged for good. You should get opiod pain relief. The pain gets too severe for anything else. If you see a specialist, get on the right pain meds, and control your diet, you should do pretty well. Just don't wait. I did and it caused complications and even more horrendous medical bills. And the pain you will suffer is not to be believed. Jerry/NC ********************************** New with questions > I recently had a diagnosis (4mos ago) of AP. I spent 2 days in the > hospital and underwent a series of tests, CAT, Endo, x-ray, blood, > urine. During that time I was suffering extreme abdominal pain > minimized by demerol shots every couple of hours. After leaving the > hospital I was on a liquid diet for a few days then slowly introduced > solids to my diet. All was fine for a while and I slipped back into > my old habits ie; drinking excessively and eating fatty foods, no > exercise. Nevertheless, I started feeling the same symptoms on > Tuesday and have gone on a semi-liquid diet and drinking at least a > gallon of water a day. The symptoms have been mild in comparison and > I do not want to go to the hospital for several days while they poke > and prod me. Not to mention incurring several more thousands in > medical bills. Any suggestions on OTC (ibuprofen)pain medications or > self treatment regimens? Am I being foolish and taking a risk of > worse things to come? > > Please any help would be greatly appreciated. > > > > > PANCREATITIS Association, Intl. > Online e-mail group > > To reply to this message hit & quot;reply & quot; or send an e-mail to: Pancreatitis (AT) Yahoo > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Dear , I concur with what Jerry has already told you. You need to find a pancreatic specialist and have that person review all your earlier records from the time of your acute attack, and start you on appropriate treatment. You also need to not drink any alcoholic beverages, and start yourself on a strict low fat diet. The alcohol can quickly destroy an already damaged pancreas and can put you back in the hospital quicker than you can blink, with a good probability of even worse complications than you've previously experienced. Unfortunately both the ibuprofen and tylenol aren't effective against pancreatic pain, and both cause damage to other organs that you don't need right now. That's why getting hooked up with a good specialist is so important. That doctor can not only prescribe appropriate pain medications, but can also counsel you on your diet and he or she should start you on enzyme supplements to help you digest your food. That specialist can also determine whatever tests might be necessary to check on the current status of the pancreas. Since you started drinking again after the attack four months ago, there is the possibility that some things may have changed since your earlier ct-scans and ultrasounds. Meanwhile, keep up the water consumption, since it is the best source to keep you well hydrated. Post again if you have any more specific questions, we're here to help however we can. With hope and prayers, Heidi Heidi H. Griffeth Bluffton, SC hhessgriffeth@... Southeastern Representative Pancreatitis Association, Intl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Dear , I concur with what Jerry has already told you. You need to find a pancreatic specialist and have that person review all your earlier records from the time of your acute attack, and start you on appropriate treatment. You also need to not drink any alcoholic beverages, and start yourself on a strict low fat diet. The alcohol can quickly destroy an already damaged pancreas and can put you back in the hospital quicker than you can blink, with a good probability of even worse complications than you've previously experienced. Unfortunately both the ibuprofen and tylenol aren't effective against pancreatic pain, and both cause damage to other organs that you don't need right now. That's why getting hooked up with a good specialist is so important. That doctor can not only prescribe appropriate pain medications, but can also counsel you on your diet and he or she should start you on enzyme supplements to help you digest your food. That specialist can also determine whatever tests might be necessary to check on the current status of the pancreas. Since you started drinking again after the attack four months ago, there is the possibility that some things may have changed since your earlier ct-scans and ultrasounds. Meanwhile, keep up the water consumption, since it is the best source to keep you well hydrated. Post again if you have any more specific questions, we're here to help however we can. With hope and prayers, Heidi Heidi H. Griffeth Bluffton, SC hhessgriffeth@... Southeastern Representative Pancreatitis Association, Intl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Dear , I concur with what Jerry has already told you. You need to find a pancreatic specialist and have that person review all your earlier records from the time of your acute attack, and start you on appropriate treatment. You also need to not drink any alcoholic beverages, and start yourself on a strict low fat diet. The alcohol can quickly destroy an already damaged pancreas and can put you back in the hospital quicker than you can blink, with a good probability of even worse complications than you've previously experienced. Unfortunately both the ibuprofen and tylenol aren't effective against pancreatic pain, and both cause damage to other organs that you don't need right now. That's why getting hooked up with a good specialist is so important. That doctor can not only prescribe appropriate pain medications, but can also counsel you on your diet and he or she should start you on enzyme supplements to help you digest your food. That specialist can also determine whatever tests might be necessary to check on the current status of the pancreas. Since you started drinking again after the attack four months ago, there is the possibility that some things may have changed since your earlier ct-scans and ultrasounds. Meanwhile, keep up the water consumption, since it is the best source to keep you well hydrated. Post again if you have any more specific questions, we're here to help however we can. With hope and prayers, Heidi Heidi H. Griffeth Bluffton, SC hhessgriffeth@... Southeastern Representative Pancreatitis Association, Intl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Dear , I concur with what Jerry has already told you. You need to find a pancreatic specialist and have that person review all your earlier records from the time of your acute attack, and start you on appropriate treatment. You also need to not drink any alcoholic beverages, and start yourself on a strict low fat diet. The alcohol can quickly destroy an already damaged pancreas and can put you back in the hospital quicker than you can blink, with a good probability of even worse complications than you've previously experienced. Unfortunately both the ibuprofen and tylenol aren't effective against pancreatic pain, and both cause damage to other organs that you don't need right now. That's why getting hooked up with a good specialist is so important. That doctor can not only prescribe appropriate pain medications, but can also counsel you on your diet and he or she should start you on enzyme supplements to help you digest your food. That specialist can also determine whatever tests might be necessary to check on the current status of the pancreas. Since you started drinking again after the attack four months ago, there is the possibility that some things may have changed since your earlier ct-scans and ultrasounds. Meanwhile, keep up the water consumption, since it is the best source to keep you well hydrated. Post again if you have any more specific questions, we're here to help however we can. With hope and prayers, Heidi Heidi H. Griffeth Bluffton, SC hhessgriffeth@... Southeastern Representative Pancreatitis Association, Intl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 , You better get it together. Jerry gave you some good advice. If you continue to drink and have a unhealthy diet and lifestyle you can expect to lose to count of how many times you have been in the hospital, not even counting the tests! The side effects and spin-offs of pancreatitis will bring you to your knees! Diabetes is a spin- off. It can cost you everything, including your life. I have had AP/CP for over 12 years. I hardly ever had a drink, they always hurt me. You are going to learn the hard way if you do not throw the brakes on ASAP. I advise you to read as much as possible here. This is not game and almost impossible to beat. You are causing scarring to your pancreas. It might not be to late for you. I can tell you that if wait and play to long, it will be. Excuse me if I seem blunt but I have just got out of the bed from 5 days on my back. Still I am just happy to be up and alive. I now have made it a month longer than 2 of my doctors gave me to live. It all started with pancreatitis some 60+ hospital stays ago. I really do not think that I would have ever been in the hospital at all except for pancreatitis and its spin- offs. I even owe a coma to pancreatitis. This is the time to plan your future, please choose carefully! This thing called pancreatitis can be a killer. Take care, and please take our advice. Be sure to get a doctor that can help you!, > My advice to you is to get to a pancreatic specialist. I agree with not > wanting to go into the hospital, but Pancreatitis is a killer if you don't > watch yourself. You can't drink no more, my man! At least not until get a > confirming diagnosis. If you're drinking a good deal of water and that is > helping you, you probably have pancreatic " sludge " in your ducts. You are > doing the right thing by staying hydrated. > > Ibuprofen is OK for awhile, but it does cause stomach inflammation and > ulcers. Lots of people die every year from non-steroidal anti- inflammatory > caused complications (like GI bleeds). Acetaminophen (Tylenol) is OK for > awhile, but it eventually affects your liver, and that is an organ you > definitely do not want to make angry. Once it is damaged, it is damaged for > good. You should get opiod pain relief. The pain gets too severe for > anything else. > > If you see a specialist, get on the right pain meds, and control your diet, > you should do pretty well. Just don't wait. I did and it caused > complications and even more horrendous medical bills. And the pain you will > suffer is not to be believed. > > Jerry/NC > ********************************** > New with questions > > > > I recently had a diagnosis (4mos ago) of AP. I spent 2 days in the > > hospital and underwent a series of tests, CAT, Endo, x-ray, blood, > > urine. During that time I was suffering extreme abdominal pain > > minimized by demerol shots every couple of hours. After leaving the > > hospital I was on a liquid diet for a few days then slowly introduced > > solids to my diet. All was fine for a while and I slipped back into > > my old habits ie; drinking excessively and eating fatty foods, no > > exercise. Nevertheless, I started feeling the same symptoms on > > Tuesday and have gone on a semi-liquid diet and drinking at least a > > gallon of water a day. The symptoms have been mild in comparison and > > I do not want to go to the hospital for several days while they poke > > and prod me. Not to mention incurring several more thousands in > > medical bills. Any suggestions on OTC (ibuprofen)pain medications or > > self treatment regimens? Am I being foolish and taking a risk of > > worse things to come? > > > > Please any help would be greatly appreciated. > > > > > > > > > > PANCREATITIS Association, Intl. > > Online e-mail group > > > > To reply to this message hit & quot;reply & quot; or send an e-mail > to: Pancreatitis@Y... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 , You better get it together. Jerry gave you some good advice. If you continue to drink and have a unhealthy diet and lifestyle you can expect to lose to count of how many times you have been in the hospital, not even counting the tests! The side effects and spin-offs of pancreatitis will bring you to your knees! Diabetes is a spin- off. It can cost you everything, including your life. I have had AP/CP for over 12 years. I hardly ever had a drink, they always hurt me. You are going to learn the hard way if you do not throw the brakes on ASAP. I advise you to read as much as possible here. This is not game and almost impossible to beat. You are causing scarring to your pancreas. It might not be to late for you. I can tell you that if wait and play to long, it will be. Excuse me if I seem blunt but I have just got out of the bed from 5 days on my back. Still I am just happy to be up and alive. I now have made it a month longer than 2 of my doctors gave me to live. It all started with pancreatitis some 60+ hospital stays ago. I really do not think that I would have ever been in the hospital at all except for pancreatitis and its spin- offs. I even owe a coma to pancreatitis. This is the time to plan your future, please choose carefully! This thing called pancreatitis can be a killer. Take care, and please take our advice. Be sure to get a doctor that can help you!, > My advice to you is to get to a pancreatic specialist. I agree with not > wanting to go into the hospital, but Pancreatitis is a killer if you don't > watch yourself. You can't drink no more, my man! At least not until get a > confirming diagnosis. If you're drinking a good deal of water and that is > helping you, you probably have pancreatic " sludge " in your ducts. You are > doing the right thing by staying hydrated. > > Ibuprofen is OK for awhile, but it does cause stomach inflammation and > ulcers. Lots of people die every year from non-steroidal anti- inflammatory > caused complications (like GI bleeds). Acetaminophen (Tylenol) is OK for > awhile, but it eventually affects your liver, and that is an organ you > definitely do not want to make angry. Once it is damaged, it is damaged for > good. You should get opiod pain relief. The pain gets too severe for > anything else. > > If you see a specialist, get on the right pain meds, and control your diet, > you should do pretty well. Just don't wait. I did and it caused > complications and even more horrendous medical bills. And the pain you will > suffer is not to be believed. > > Jerry/NC > ********************************** > New with questions > > > > I recently had a diagnosis (4mos ago) of AP. I spent 2 days in the > > hospital and underwent a series of tests, CAT, Endo, x-ray, blood, > > urine. During that time I was suffering extreme abdominal pain > > minimized by demerol shots every couple of hours. After leaving the > > hospital I was on a liquid diet for a few days then slowly introduced > > solids to my diet. All was fine for a while and I slipped back into > > my old habits ie; drinking excessively and eating fatty foods, no > > exercise. Nevertheless, I started feeling the same symptoms on > > Tuesday and have gone on a semi-liquid diet and drinking at least a > > gallon of water a day. The symptoms have been mild in comparison and > > I do not want to go to the hospital for several days while they poke > > and prod me. Not to mention incurring several more thousands in > > medical bills. Any suggestions on OTC (ibuprofen)pain medications or > > self treatment regimens? Am I being foolish and taking a risk of > > worse things to come? > > > > Please any help would be greatly appreciated. > > > > > > > > > > PANCREATITIS Association, Intl. > > Online e-mail group > > > > To reply to this message hit & quot;reply & quot; or send an e-mail > to: Pancreatitis@Y... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 , You better get it together. Jerry gave you some good advice. If you continue to drink and have a unhealthy diet and lifestyle you can expect to lose to count of how many times you have been in the hospital, not even counting the tests! The side effects and spin-offs of pancreatitis will bring you to your knees! Diabetes is a spin- off. It can cost you everything, including your life. I have had AP/CP for over 12 years. I hardly ever had a drink, they always hurt me. You are going to learn the hard way if you do not throw the brakes on ASAP. I advise you to read as much as possible here. This is not game and almost impossible to beat. You are causing scarring to your pancreas. It might not be to late for you. I can tell you that if wait and play to long, it will be. Excuse me if I seem blunt but I have just got out of the bed from 5 days on my back. Still I am just happy to be up and alive. I now have made it a month longer than 2 of my doctors gave me to live. It all started with pancreatitis some 60+ hospital stays ago. I really do not think that I would have ever been in the hospital at all except for pancreatitis and its spin- offs. I even owe a coma to pancreatitis. This is the time to plan your future, please choose carefully! This thing called pancreatitis can be a killer. Take care, and please take our advice. Be sure to get a doctor that can help you!, > My advice to you is to get to a pancreatic specialist. I agree with not > wanting to go into the hospital, but Pancreatitis is a killer if you don't > watch yourself. You can't drink no more, my man! At least not until get a > confirming diagnosis. If you're drinking a good deal of water and that is > helping you, you probably have pancreatic " sludge " in your ducts. You are > doing the right thing by staying hydrated. > > Ibuprofen is OK for awhile, but it does cause stomach inflammation and > ulcers. Lots of people die every year from non-steroidal anti- inflammatory > caused complications (like GI bleeds). Acetaminophen (Tylenol) is OK for > awhile, but it eventually affects your liver, and that is an organ you > definitely do not want to make angry. Once it is damaged, it is damaged for > good. You should get opiod pain relief. The pain gets too severe for > anything else. > > If you see a specialist, get on the right pain meds, and control your diet, > you should do pretty well. Just don't wait. I did and it caused > complications and even more horrendous medical bills. And the pain you will > suffer is not to be believed. > > Jerry/NC > ********************************** > New with questions > > > > I recently had a diagnosis (4mos ago) of AP. I spent 2 days in the > > hospital and underwent a series of tests, CAT, Endo, x-ray, blood, > > urine. During that time I was suffering extreme abdominal pain > > minimized by demerol shots every couple of hours. After leaving the > > hospital I was on a liquid diet for a few days then slowly introduced > > solids to my diet. All was fine for a while and I slipped back into > > my old habits ie; drinking excessively and eating fatty foods, no > > exercise. Nevertheless, I started feeling the same symptoms on > > Tuesday and have gone on a semi-liquid diet and drinking at least a > > gallon of water a day. The symptoms have been mild in comparison and > > I do not want to go to the hospital for several days while they poke > > and prod me. Not to mention incurring several more thousands in > > medical bills. Any suggestions on OTC (ibuprofen)pain medications or > > self treatment regimens? Am I being foolish and taking a risk of > > worse things to come? > > > > Please any help would be greatly appreciated. > > > > > > > > > > PANCREATITIS Association, Intl. > > Online e-mail group > > > > To reply to this message hit & quot;reply & quot; or send an e-mail > to: Pancreatitis@Y... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 , You better get it together. Jerry gave you some good advice. If you continue to drink and have a unhealthy diet and lifestyle you can expect to lose to count of how many times you have been in the hospital, not even counting the tests! The side effects and spin-offs of pancreatitis will bring you to your knees! Diabetes is a spin- off. It can cost you everything, including your life. I have had AP/CP for over 12 years. I hardly ever had a drink, they always hurt me. You are going to learn the hard way if you do not throw the brakes on ASAP. I advise you to read as much as possible here. This is not game and almost impossible to beat. You are causing scarring to your pancreas. It might not be to late for you. I can tell you that if wait and play to long, it will be. Excuse me if I seem blunt but I have just got out of the bed from 5 days on my back. Still I am just happy to be up and alive. I now have made it a month longer than 2 of my doctors gave me to live. It all started with pancreatitis some 60+ hospital stays ago. I really do not think that I would have ever been in the hospital at all except for pancreatitis and its spin- offs. I even owe a coma to pancreatitis. This is the time to plan your future, please choose carefully! This thing called pancreatitis can be a killer. Take care, and please take our advice. Be sure to get a doctor that can help you!, > My advice to you is to get to a pancreatic specialist. I agree with not > wanting to go into the hospital, but Pancreatitis is a killer if you don't > watch yourself. You can't drink no more, my man! At least not until get a > confirming diagnosis. If you're drinking a good deal of water and that is > helping you, you probably have pancreatic " sludge " in your ducts. You are > doing the right thing by staying hydrated. > > Ibuprofen is OK for awhile, but it does cause stomach inflammation and > ulcers. Lots of people die every year from non-steroidal anti- inflammatory > caused complications (like GI bleeds). Acetaminophen (Tylenol) is OK for > awhile, but it eventually affects your liver, and that is an organ you > definitely do not want to make angry. Once it is damaged, it is damaged for > good. You should get opiod pain relief. The pain gets too severe for > anything else. > > If you see a specialist, get on the right pain meds, and control your diet, > you should do pretty well. Just don't wait. I did and it caused > complications and even more horrendous medical bills. And the pain you will > suffer is not to be believed. > > Jerry/NC > ********************************** > New with questions > > > > I recently had a diagnosis (4mos ago) of AP. I spent 2 days in the > > hospital and underwent a series of tests, CAT, Endo, x-ray, blood, > > urine. During that time I was suffering extreme abdominal pain > > minimized by demerol shots every couple of hours. After leaving the > > hospital I was on a liquid diet for a few days then slowly introduced > > solids to my diet. All was fine for a while and I slipped back into > > my old habits ie; drinking excessively and eating fatty foods, no > > exercise. Nevertheless, I started feeling the same symptoms on > > Tuesday and have gone on a semi-liquid diet and drinking at least a > > gallon of water a day. The symptoms have been mild in comparison and > > I do not want to go to the hospital for several days while they poke > > and prod me. Not to mention incurring several more thousands in > > medical bills. Any suggestions on OTC (ibuprofen)pain medications or > > self treatment regimens? Am I being foolish and taking a risk of > > worse things to come? > > > > Please any help would be greatly appreciated. > > > > > > > > > > PANCREATITIS Association, Intl. > > Online e-mail group > > > > To reply to this message hit & quot;reply & quot; or send an e-mail > to: Pancreatitis@Y... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 , 1st. stay away from the alcohol. Everytime you drink it, it damages your pancreas and it will, sooner or later, cause another attack of pancreatitis and this will continue until your pancreas is completely non-functional. There is no doubt about this happening once you have had at least one case of pancreatitis, especially if you are already feeling the pain starting again.I'm being very honest, drink and your pancreas will make you pay for it and all you have to look forward to by drinking is a life of unremitting severe abdominal pain, uncontrillable diahhrea, vomiting, nausea, etc. The whole nine yards on a constant daily basis. Plus complications such as diabetes, neuropathy, gastroparesis, etc. (if you doubt, check out the Hopkin's GI website : http://hopkins-gi.org/ and do a search on pancreatitis, especially chronic pancreatitis and read all of it). I know, I suffer from End-stage chronic pancreatitis. 2nd. Stay on a low fat diet. Same reasons as above. I know it is hard, but you really don't want to end up in the condtion that a lot of us in this group are currently facing. The problem with ibuprofen or tylenol for over the counter meds is that, in large doses, or long term use, they damage the liver. The best thing for you is to find a doctor who treats pancreatitis, get on pancreatic enzymes and treat your body right. Do it now before it does anymore damage to your pancreas. Kimber -- Kimber Vallejo, CA hominid2@... Southwest Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 , 1st. stay away from the alcohol. Everytime you drink it, it damages your pancreas and it will, sooner or later, cause another attack of pancreatitis and this will continue until your pancreas is completely non-functional. There is no doubt about this happening once you have had at least one case of pancreatitis, especially if you are already feeling the pain starting again.I'm being very honest, drink and your pancreas will make you pay for it and all you have to look forward to by drinking is a life of unremitting severe abdominal pain, uncontrillable diahhrea, vomiting, nausea, etc. The whole nine yards on a constant daily basis. Plus complications such as diabetes, neuropathy, gastroparesis, etc. (if you doubt, check out the Hopkin's GI website : http://hopkins-gi.org/ and do a search on pancreatitis, especially chronic pancreatitis and read all of it). I know, I suffer from End-stage chronic pancreatitis. 2nd. Stay on a low fat diet. Same reasons as above. I know it is hard, but you really don't want to end up in the condtion that a lot of us in this group are currently facing. The problem with ibuprofen or tylenol for over the counter meds is that, in large doses, or long term use, they damage the liver. The best thing for you is to find a doctor who treats pancreatitis, get on pancreatic enzymes and treat your body right. Do it now before it does anymore damage to your pancreas. Kimber -- Kimber Vallejo, CA hominid2@... Southwest Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Why would you drink at all with this disease and eat fatty food you are just asking for trouble. Use your brain for petes sake you cant drink or eat fatty foods period. from Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Why would you drink at all with this disease and eat fatty food you are just asking for trouble. Use your brain for petes sake you cant drink or eat fatty foods period. from Canada Quote Link to comment Share on other sites More sharing options...
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