Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 A big fat " amen " to that! Conventional medicine has done next to nothing for this condition. I certainly appreciate the doctor's contributions to this board and she is definitely an asset to this board, but the other anecdotal information is equally valued. > > > > It's hard to discuss beliefs that are based > > on gut feelings or > > > personal experience, because even when > > everyone is thoughtful and > > > polite it can feel hurtful when others don't > > validate those > > beliefs. > > Discussing personal experiences and feelings are > a large part of the discussion on this list. It's > not hard for me and it's not my impression that > it is hard for others here on the list either. to > restate once again, it's a big part of why I am > part of this group. > > > > That goes for me as well -- my beliefs are > > based on what I've > > > experienced in science and medicine, so it's > > hard for me to > > > understand others who don't prioritize > > factual information or > > logical > > > deduction as a basis for knowledge. It's not > > the only kind of > > > knowledge, of course, but we're discussing > > here real things in the > > > material world. But I know many people don't. > > this comment comes across as very condescending > and arrogant. is it appropriate here? I'm not > sure...how do you propose to know how other list > members prioritize information? > > > > Humans are by nature imaginative beings, and > > a few isolated facts > > and > > > unexplained connections can sometimes take > > our imagination to > > > insightful ventures, though not always. I'm > > in an email discussion > > > group where sometimes we talk about > > conspiracy theories for fun, > > but > > > I know there are people in the group who > > seriously believe them. (I > > > always tease them extra hard. ) Some of > > what gets posted here > > > reminds me of that kind of creative energy, > > though of course this > > > topic is very serious to many people here. > > to this I would say thanks for your opinion on > imagination and it's place in the world, but is > this tack appropriate for this list? go ahead and > state your opinion, but making some sort of > connection between your personal views and the > views you assume people on this list have, are > not really your business nor of course are they > necessarily correct. > > > > you specifically, I hope you know that. It's > > my way -- I enjoy e- > > > groups, but it's not a comfortable medium for > > me as a physician, > > > there's so much potential for > > misunderstanding, in all directions, > > > and worse if I make personal replies. And I > > don't always have the > > > free time I've had the past few days. > > How about not worrying about what other people > understand or don't? Post an opinion, offer a > suggestion, detail an experience, clue other > members into an interesting article, development, > whatever, ask questions that you are dealing with > or answer a question and leave it at that. > > No one has to justify themselves here and > everyone on the list is free to take or leave > whatever information they may come across. > > > > It's nice to know that your diet works so > > well for you. > > > > > > Marjorie > > > > > > Marjorie Lazoff, MD > > thanks, > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 A big fat " amen " to that! Conventional medicine has done next to nothing for this condition. I certainly appreciate the doctor's contributions to this board and she is definitely an asset to this board, but the other anecdotal information is equally valued. > > > > It's hard to discuss beliefs that are based > > on gut feelings or > > > personal experience, because even when > > everyone is thoughtful and > > > polite it can feel hurtful when others don't > > validate those > > beliefs. > > Discussing personal experiences and feelings are > a large part of the discussion on this list. It's > not hard for me and it's not my impression that > it is hard for others here on the list either. to > restate once again, it's a big part of why I am > part of this group. > > > > That goes for me as well -- my beliefs are > > based on what I've > > > experienced in science and medicine, so it's > > hard for me to > > > understand others who don't prioritize > > factual information or > > logical > > > deduction as a basis for knowledge. It's not > > the only kind of > > > knowledge, of course, but we're discussing > > here real things in the > > > material world. But I know many people don't. > > this comment comes across as very condescending > and arrogant. is it appropriate here? I'm not > sure...how do you propose to know how other list > members prioritize information? > > > > Humans are by nature imaginative beings, and > > a few isolated facts > > and > > > unexplained connections can sometimes take > > our imagination to > > > insightful ventures, though not always. I'm > > in an email discussion > > > group where sometimes we talk about > > conspiracy theories for fun, > > but > > > I know there are people in the group who > > seriously believe them. (I > > > always tease them extra hard. ) Some of > > what gets posted here > > > reminds me of that kind of creative energy, > > though of course this > > > topic is very serious to many people here. > > to this I would say thanks for your opinion on > imagination and it's place in the world, but is > this tack appropriate for this list? go ahead and > state your opinion, but making some sort of > connection between your personal views and the > views you assume people on this list have, are > not really your business nor of course are they > necessarily correct. > > > > you specifically, I hope you know that. It's > > my way -- I enjoy e- > > > groups, but it's not a comfortable medium for > > me as a physician, > > > there's so much potential for > > misunderstanding, in all directions, > > > and worse if I make personal replies. And I > > don't always have the > > > free time I've had the past few days. > > How about not worrying about what other people > understand or don't? Post an opinion, offer a > suggestion, detail an experience, clue other > members into an interesting article, development, > whatever, ask questions that you are dealing with > or answer a question and leave it at that. > > No one has to justify themselves here and > everyone on the list is free to take or leave > whatever information they may come across. > > > > It's nice to know that your diet works so > > well for you. > > > > > > Marjorie > > > > > > Marjorie Lazoff, MD > > thanks, > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Hi Dr. Lazoff, Maybe I missed it, but I was wondering if you could share what your rosacea-controlling routine is, and if you think that it's successful for you. If it is successful, could you explain how it is successful. I don't mean to put you on the spot. You don't have to share if you don't want to. I'd like to hear it from a physician's point of view. Thanks! Take care, Matija > > > How about not worrying about what other people > > understand or don't? Post an opinion, offer a > > suggestion, detail an experience, clue other > > members into an interesting article, development, > > whatever, ask questions that you are dealing with > > or answer a question and leave it at that. > > I agree, there's lots of helpful information here, and I too > appreciate the free flow of ideas and experiences (and hope that I've > been contributing to it). But I too feel the anti-science bias > operating here -- by that, I mean facts and theories and personal > experience are expressed as if one and the same, without distinction. > > I do worry about what others understand or don't from my words, even > when discussing health care with those who aren't my patients (though > obviously without the responsibility that entails in real life). > > Marjorie > > Marjorie Lazoff, MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Hi Dr. Lazoff, Maybe I missed it, but I was wondering if you could share what your rosacea-controlling routine is, and if you think that it's successful for you. If it is successful, could you explain how it is successful. I don't mean to put you on the spot. You don't have to share if you don't want to. I'd like to hear it from a physician's point of view. Thanks! Take care, Matija > > > How about not worrying about what other people > > understand or don't? Post an opinion, offer a > > suggestion, detail an experience, clue other > > members into an interesting article, development, > > whatever, ask questions that you are dealing with > > or answer a question and leave it at that. > > I agree, there's lots of helpful information here, and I too > appreciate the free flow of ideas and experiences (and hope that I've > been contributing to it). But I too feel the anti-science bias > operating here -- by that, I mean facts and theories and personal > experience are expressed as if one and the same, without distinction. > > I do worry about what others understand or don't from my words, even > when discussing health care with those who aren't my patients (though > obviously without the responsibility that entails in real life). > > Marjorie > > Marjorie Lazoff, MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Hi Dr. Lazoff, Maybe I missed it, but I was wondering if you could share what your rosacea-controlling routine is, and if you think that it's successful for you. If it is successful, could you explain how it is successful. I don't mean to put you on the spot. You don't have to share if you don't want to. I'd like to hear it from a physician's point of view. Thanks! Take care, Matija > > > How about not worrying about what other people > > understand or don't? Post an opinion, offer a > > suggestion, detail an experience, clue other > > members into an interesting article, development, > > whatever, ask questions that you are dealing with > > or answer a question and leave it at that. > > I agree, there's lots of helpful information here, and I too > appreciate the free flow of ideas and experiences (and hope that I've > been contributing to it). But I too feel the anti-science bias > operating here -- by that, I mean facts and theories and personal > experience are expressed as if one and the same, without distinction. > > I do worry about what others understand or don't from my words, even > when discussing health care with those who aren't my patients (though > obviously without the responsibility that entails in real life). > > Marjorie > > Marjorie Lazoff, MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 > Maybe I missed it, but I was wondering if you could share what your > rosacea-controlling routine is, and if you think that it's > successful for you. If it is successful, could you explain how it > is successful. I don't mean to put you on the spot. You don't have > to share if you don't want to. I'd like to hear it from a > physician's point of view. You aren't putting me on the spot, Matija. I described it to on Monday: http://groups.yahoo.com/group/rosacea-support/message/36477 I don't have a rosacea-controlling routine. I don't think in terms of controlling a chronic condition, I think in terms of managing it. I manage my rosacea pretty as many do here -- avoid irritating skin products, just clean once a day, moisturize as needed, use sunblock (not sunscreen), and apply Noritate once a day. My skin isn't perfect; what is at 47? But it's much better than it was 6 months ago. For more details on products and other gory details, see my post from Sunday: http://groups.yahoo.com/group/rosacea-support/message/36447 As far as explanation, I talked about that indirectly, in relation to another poster's question, also on Sunday: http://groups.yahoo.com/group/rosacea-support/message/36434 Thanks for the references in the other post. It's an interesting topic, and I don't want to miss something important. I have a reasonable background in immunology, for a brief moment I even considered specializing in allergy & immunology. But then I regained my sanity. Marjorie Marjorie Lazoff, MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 > Maybe I missed it, but I was wondering if you could share what your > rosacea-controlling routine is, and if you think that it's > successful for you. If it is successful, could you explain how it > is successful. I don't mean to put you on the spot. You don't have > to share if you don't want to. I'd like to hear it from a > physician's point of view. You aren't putting me on the spot, Matija. I described it to on Monday: http://groups.yahoo.com/group/rosacea-support/message/36477 I don't have a rosacea-controlling routine. I don't think in terms of controlling a chronic condition, I think in terms of managing it. I manage my rosacea pretty as many do here -- avoid irritating skin products, just clean once a day, moisturize as needed, use sunblock (not sunscreen), and apply Noritate once a day. My skin isn't perfect; what is at 47? But it's much better than it was 6 months ago. For more details on products and other gory details, see my post from Sunday: http://groups.yahoo.com/group/rosacea-support/message/36447 As far as explanation, I talked about that indirectly, in relation to another poster's question, also on Sunday: http://groups.yahoo.com/group/rosacea-support/message/36434 Thanks for the references in the other post. It's an interesting topic, and I don't want to miss something important. I have a reasonable background in immunology, for a brief moment I even considered specializing in allergy & immunology. But then I regained my sanity. Marjorie Marjorie Lazoff, MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 > Maybe I missed it, but I was wondering if you could share what your > rosacea-controlling routine is, and if you think that it's > successful for you. If it is successful, could you explain how it > is successful. I don't mean to put you on the spot. You don't have > to share if you don't want to. I'd like to hear it from a > physician's point of view. You aren't putting me on the spot, Matija. I described it to on Monday: http://groups.yahoo.com/group/rosacea-support/message/36477 I don't have a rosacea-controlling routine. I don't think in terms of controlling a chronic condition, I think in terms of managing it. I manage my rosacea pretty as many do here -- avoid irritating skin products, just clean once a day, moisturize as needed, use sunblock (not sunscreen), and apply Noritate once a day. My skin isn't perfect; what is at 47? But it's much better than it was 6 months ago. For more details on products and other gory details, see my post from Sunday: http://groups.yahoo.com/group/rosacea-support/message/36447 As far as explanation, I talked about that indirectly, in relation to another poster's question, also on Sunday: http://groups.yahoo.com/group/rosacea-support/message/36434 Thanks for the references in the other post. It's an interesting topic, and I don't want to miss something important. I have a reasonable background in immunology, for a brief moment I even considered specializing in allergy & immunology. But then I regained my sanity. Marjorie Marjorie Lazoff, MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 > I know you sell your diet and I respect that, but would you summarize > in a few concise sentences its philosophy, general features and > goals? > > Marjorie > > Marjorie Lazoff, MD Dr. Lazoff, Again I wish to thank you for all the volunteer time you give to this group. I was an EMT for over ten years, two years paid and the rest volunteer and having first hand knowledge of what you do as an emergency physician, my hat is off to you pulling all those shifts for such long hours. It is definitely a tough job with much stress. No doubt the stress aggravates your rosacea. And you still have time to answer all those questions you write for the group. You must be a fire cracker. The philosophy of the cea Diet is controlling your rosacea with your diet, no cure, just control, like any other treatment. Understanding is validated by the results. cea Diet users have substantiated this and you can read their comments at this url for the public to read: http://groups.yahoo.com/group/rosacea-diet-users-support-group The general features are first, this diet is only for thirty days, after that, you eat whatever you want, thus posing no health problem since it is only thirty days. Second it is a strict diet allowing no sugar in any form for thirty days, no sugar substitutes, no alcohol, tobacco, and limiting carbohydrates to 30 grams per day, drinking at least 144 ounces of water a day. Third, you can eat as much protein as you want and no concern over fat during this thirty day period. Fourth, the book gives suggestions on what to eat for thirty days allowing protein or carbohydrate substitutes for your individual circumstance. The current version of the cea Diet has taken over three years of feedback from users questions and answers along with much research. The internet has played a major role in the results of this work. The goal is to prove that you can control your rosacea with diet. After you have proven to yourself that it works, you modify the diet to fit your individual response to carbohydrate intake until your rosacea returns, which it will, but you have learned a way to control it. That briefly is what it is about. Pascoe, the owner of this rosacea-support group has reviewed my book and his review can be found at this url: http://rosacea.ii.net/reviews.html Do you think that this diet is an immune modulating diet? I have never heard of an immune modulating diet until you mentioned it. My initial email to you was to you alone about the fact that the NRS and most medical authorities do not list sugar as a trigger but someday will when some prestigious group with enough money and power actually does a clinical study on this and sugar is listed as a trigger. Dr. Nase lists it as a trigger for flushing. Drs Eades, (husband and wife medical doctors) who wrote Protein Power and the three medical doctors who wrote Sugar Busters! do not mention rosacea, but they all agree about the unhealthy effect of sugar. My theory is that eating sugar over the years results in an imbalance in the immune system causing vascular disorders like rosacea. The increase in diabetes, which is another vascular disorder, over the same period that increased sugar consumption has occurred is no coincidence. There may be other factors, but diet plays a key role in vascular disorders like rosacea contrary to the other theories. My theory is as valid as any proposed. Heart disease is blamed on fat, but sugar is more to blame in my theory. But you are right on one point, if my diet is an immune modulating diet, it is notoriously difficult, and most rosaceans will not give up their sugar. Hope this helps you. -- Brady Barrows - webmaster for http://www.rosaceans.com http://groups.yahoo.com/group/rosaceans http://www.rosacea-control.com http://www.rosaceadiet.com http://groups.yahoo.com/group/rosacea-diet-users-support-group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 > I know you sell your diet and I respect that, but would you summarize > in a few concise sentences its philosophy, general features and > goals? > > Marjorie > > Marjorie Lazoff, MD Dr. Lazoff, Again I wish to thank you for all the volunteer time you give to this group. I was an EMT for over ten years, two years paid and the rest volunteer and having first hand knowledge of what you do as an emergency physician, my hat is off to you pulling all those shifts for such long hours. It is definitely a tough job with much stress. No doubt the stress aggravates your rosacea. And you still have time to answer all those questions you write for the group. You must be a fire cracker. The philosophy of the cea Diet is controlling your rosacea with your diet, no cure, just control, like any other treatment. Understanding is validated by the results. cea Diet users have substantiated this and you can read their comments at this url for the public to read: http://groups.yahoo.com/group/rosacea-diet-users-support-group The general features are first, this diet is only for thirty days, after that, you eat whatever you want, thus posing no health problem since it is only thirty days. Second it is a strict diet allowing no sugar in any form for thirty days, no sugar substitutes, no alcohol, tobacco, and limiting carbohydrates to 30 grams per day, drinking at least 144 ounces of water a day. Third, you can eat as much protein as you want and no concern over fat during this thirty day period. Fourth, the book gives suggestions on what to eat for thirty days allowing protein or carbohydrate substitutes for your individual circumstance. The current version of the cea Diet has taken over three years of feedback from users questions and answers along with much research. The internet has played a major role in the results of this work. The goal is to prove that you can control your rosacea with diet. After you have proven to yourself that it works, you modify the diet to fit your individual response to carbohydrate intake until your rosacea returns, which it will, but you have learned a way to control it. That briefly is what it is about. Pascoe, the owner of this rosacea-support group has reviewed my book and his review can be found at this url: http://rosacea.ii.net/reviews.html Do you think that this diet is an immune modulating diet? I have never heard of an immune modulating diet until you mentioned it. My initial email to you was to you alone about the fact that the NRS and most medical authorities do not list sugar as a trigger but someday will when some prestigious group with enough money and power actually does a clinical study on this and sugar is listed as a trigger. Dr. Nase lists it as a trigger for flushing. Drs Eades, (husband and wife medical doctors) who wrote Protein Power and the three medical doctors who wrote Sugar Busters! do not mention rosacea, but they all agree about the unhealthy effect of sugar. My theory is that eating sugar over the years results in an imbalance in the immune system causing vascular disorders like rosacea. The increase in diabetes, which is another vascular disorder, over the same period that increased sugar consumption has occurred is no coincidence. There may be other factors, but diet plays a key role in vascular disorders like rosacea contrary to the other theories. My theory is as valid as any proposed. Heart disease is blamed on fat, but sugar is more to blame in my theory. But you are right on one point, if my diet is an immune modulating diet, it is notoriously difficult, and most rosaceans will not give up their sugar. Hope this helps you. -- Brady Barrows - webmaster for http://www.rosaceans.com http://groups.yahoo.com/group/rosaceans http://www.rosacea-control.com http://www.rosaceadiet.com http://groups.yahoo.com/group/rosacea-diet-users-support-group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 > I know you sell your diet and I respect that, but would you summarize > in a few concise sentences its philosophy, general features and > goals? > > Marjorie > > Marjorie Lazoff, MD Dr. Lazoff, Again I wish to thank you for all the volunteer time you give to this group. I was an EMT for over ten years, two years paid and the rest volunteer and having first hand knowledge of what you do as an emergency physician, my hat is off to you pulling all those shifts for such long hours. It is definitely a tough job with much stress. No doubt the stress aggravates your rosacea. And you still have time to answer all those questions you write for the group. You must be a fire cracker. The philosophy of the cea Diet is controlling your rosacea with your diet, no cure, just control, like any other treatment. Understanding is validated by the results. cea Diet users have substantiated this and you can read their comments at this url for the public to read: http://groups.yahoo.com/group/rosacea-diet-users-support-group The general features are first, this diet is only for thirty days, after that, you eat whatever you want, thus posing no health problem since it is only thirty days. Second it is a strict diet allowing no sugar in any form for thirty days, no sugar substitutes, no alcohol, tobacco, and limiting carbohydrates to 30 grams per day, drinking at least 144 ounces of water a day. Third, you can eat as much protein as you want and no concern over fat during this thirty day period. Fourth, the book gives suggestions on what to eat for thirty days allowing protein or carbohydrate substitutes for your individual circumstance. The current version of the cea Diet has taken over three years of feedback from users questions and answers along with much research. The internet has played a major role in the results of this work. The goal is to prove that you can control your rosacea with diet. After you have proven to yourself that it works, you modify the diet to fit your individual response to carbohydrate intake until your rosacea returns, which it will, but you have learned a way to control it. That briefly is what it is about. Pascoe, the owner of this rosacea-support group has reviewed my book and his review can be found at this url: http://rosacea.ii.net/reviews.html Do you think that this diet is an immune modulating diet? I have never heard of an immune modulating diet until you mentioned it. My initial email to you was to you alone about the fact that the NRS and most medical authorities do not list sugar as a trigger but someday will when some prestigious group with enough money and power actually does a clinical study on this and sugar is listed as a trigger. Dr. Nase lists it as a trigger for flushing. Drs Eades, (husband and wife medical doctors) who wrote Protein Power and the three medical doctors who wrote Sugar Busters! do not mention rosacea, but they all agree about the unhealthy effect of sugar. My theory is that eating sugar over the years results in an imbalance in the immune system causing vascular disorders like rosacea. The increase in diabetes, which is another vascular disorder, over the same period that increased sugar consumption has occurred is no coincidence. There may be other factors, but diet plays a key role in vascular disorders like rosacea contrary to the other theories. My theory is as valid as any proposed. Heart disease is blamed on fat, but sugar is more to blame in my theory. But you are right on one point, if my diet is an immune modulating diet, it is notoriously difficult, and most rosaceans will not give up their sugar. Hope this helps you. -- Brady Barrows - webmaster for http://www.rosaceans.com http://groups.yahoo.com/group/rosaceans http://www.rosacea-control.com http://www.rosaceadiet.com http://groups.yahoo.com/group/rosacea-diet-users-support-group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 You know, I *thought* your name looked familiar! I needed to see the EMT after it. Some other initials too, NPR-EMT, or something? Did you ever post on EMED-L when it first started in the mid 90s? There's something your name was associated with on the ER boards or Web site, no? You're right, your diet sounds nothing like immune modulating diet. (Yet another reason to regret ever having brought that $##!$%* diet up! ) You insure everyone on your diet is under a doctor's care, right? Theoretically what you suggest doesn't sound unsafe for 30 days for a young healthy person, but what about people with undiagnosed problems? Together we can create lots of nightmare emergency scenarios: someone with subclinical renal disease who goes into CHF or hypertensive crisis because they can't excrete all the water they're drinking....arrhythmias from borderline electrolyte abnormalities that gets kicked over the edge with temporary blood dilution.... It's based on a theory, as you say, and either you accept the theory or not. But I'm not clear why the extreme approach is needed. Why not work backwards, first eliminate the worst offenders, then continue eliminating other foods month after month until the rosacea is well- managed? Aren't you teaching a new dietary lifestyle to manage a chronic disease? Why not use behavior modification tools and gradually move forward, instead of fighting behavior modification with an initial extreme deprivation, setting up hopeful people for yet another disappointment and failure? After all, the diet isn't really for thirty days, it just advances after thirty days, right? They really can't eat whatever they want -- they can't go back to their old diets, for example? Your explanation was very clear, thanks very much for taking the time to explain your diet. I will check out your sites and the review. Marjorie Marjorie Lazoff, MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2002 Report Share Posted March 22, 2002 > > I don't think in terms of controlling any chronic condition. I think > in terms of management. Control is false empowerment because no one > truly controls a medical disorder. Imagine telling a person to > control their multiple sclerosis, to consider their remissions and > exacerbations as if they were in control and out-of-control? > > Sometimes we talk about a drug controlling the number of seizures, or > a diabetic controlling his blood sugar. But epilepsy and diabetes as > conditions are managed, not controlled. Likewise, we talk about > controlling triggers, but rosacea itself is managed. I don't think > it's a subtle difference. Management is a more realistic description > of what it's like to live with a chronic condition, day in and day > out. A chronic condition can't always be controlled, but it can > always be managed. > I wish I had discussed control verses manage with you a couple of years ago. You have a valid point here. I never realized the difference. One of the definitions of control in my dictionary says, 'to restrain,' which is how I was using the word, but you are absolutely right about this one. I appreciate the correction. You can't imagine how much work it will be to change every reference on my site and book from 'control' to manage! However, my dictionary also says that the first definition on manage is, " to exercise control over, " but I think that your point is so good that I will add a paragraph in my next version of the book and a clarification on my web site, like a link, 'Control or Manage your rosacea?' Since you have posted this for all to read, I would like to quote you on this point. -- Brady Barrows - webmaster for http://www.rosaceans.com http://groups.yahoo.com/group/rosaceans http://www.rosacea-control.com http://www.rosaceadiet.com http://groups.yahoo.com/group/rosacea-diet-users-support-group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2002 Report Share Posted March 22, 2002 > > I don't think in terms of controlling any chronic condition. I think > in terms of management. Control is false empowerment because no one > truly controls a medical disorder. Imagine telling a person to > control their multiple sclerosis, to consider their remissions and > exacerbations as if they were in control and out-of-control? > > Sometimes we talk about a drug controlling the number of seizures, or > a diabetic controlling his blood sugar. But epilepsy and diabetes as > conditions are managed, not controlled. Likewise, we talk about > controlling triggers, but rosacea itself is managed. I don't think > it's a subtle difference. Management is a more realistic description > of what it's like to live with a chronic condition, day in and day > out. A chronic condition can't always be controlled, but it can > always be managed. > I wish I had discussed control verses manage with you a couple of years ago. You have a valid point here. I never realized the difference. One of the definitions of control in my dictionary says, 'to restrain,' which is how I was using the word, but you are absolutely right about this one. I appreciate the correction. You can't imagine how much work it will be to change every reference on my site and book from 'control' to manage! However, my dictionary also says that the first definition on manage is, " to exercise control over, " but I think that your point is so good that I will add a paragraph in my next version of the book and a clarification on my web site, like a link, 'Control or Manage your rosacea?' Since you have posted this for all to read, I would like to quote you on this point. -- Brady Barrows - webmaster for http://www.rosaceans.com http://groups.yahoo.com/group/rosaceans http://www.rosacea-control.com http://www.rosaceadiet.com http://groups.yahoo.com/group/rosacea-diet-users-support-group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2002 Report Share Posted March 22, 2002 > > I don't think in terms of controlling any chronic condition. I think > in terms of management. Control is false empowerment because no one > truly controls a medical disorder. Imagine telling a person to > control their multiple sclerosis, to consider their remissions and > exacerbations as if they were in control and out-of-control? > > Sometimes we talk about a drug controlling the number of seizures, or > a diabetic controlling his blood sugar. But epilepsy and diabetes as > conditions are managed, not controlled. Likewise, we talk about > controlling triggers, but rosacea itself is managed. I don't think > it's a subtle difference. Management is a more realistic description > of what it's like to live with a chronic condition, day in and day > out. A chronic condition can't always be controlled, but it can > always be managed. > I wish I had discussed control verses manage with you a couple of years ago. You have a valid point here. I never realized the difference. One of the definitions of control in my dictionary says, 'to restrain,' which is how I was using the word, but you are absolutely right about this one. I appreciate the correction. You can't imagine how much work it will be to change every reference on my site and book from 'control' to manage! However, my dictionary also says that the first definition on manage is, " to exercise control over, " but I think that your point is so good that I will add a paragraph in my next version of the book and a clarification on my web site, like a link, 'Control or Manage your rosacea?' Since you have posted this for all to read, I would like to quote you on this point. -- Brady Barrows - webmaster for http://www.rosaceans.com http://groups.yahoo.com/group/rosaceans http://www.rosacea-control.com http://www.rosaceadiet.com http://groups.yahoo.com/group/rosacea-diet-users-support-group Quote Link to comment Share on other sites More sharing options...
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