questions

[Guest guest]

I know that was a silly question Matt, but I wondered if the right handed

had left side pain, so that the left handed would have right side pain, I

guess not, well that's it for my surveying days:)

Marla

Re: Re: Questions

>

> mine is on the right side of my head and it doesnt

> seem to be related to my eye pain Matt

>

> --- mosaicgirl1 mosaicgirl1@...> wrote:

>

> >

> > Matt and Connie:

> >

> > I also get the pain in and around the ear. It is

> on the same side as

> > my facial pain and eye pain. Is your pain all on

> the same side? Mine

> > is on the left.

> >

> > Terri

> >

> > >

> > > > Hi Everybody, Hope everything is going ok with

> > you

> > > > all.

> > > >

> > > > I have a question if you don't mind. I have

> had trouble off and on

> > > > with an unusual pain mostly

> > in

> > > > the right side of my head above my ear. 2 of 3

> times this pain has

> > > > felt like someone stuck a 38

> > to

> > > > my head and pulled the trigger, the only thing

> > that

> > > > I imagine would be different was it took a

> while

> > for

> > > > the pain to stop, and the very last time this

> happened it felt

> > > > like something went up my

> > carotid

> > > > to my head, dummy here even tried to catch it

> > before

> > > > it got to the top. I have also had this funny

> > jab

> > > > in my head off and on for a while, but usually

> > they

> > > > are spaced out pretty good. All of a sudden

> this has changed in

> > > > the last 2 weeks, the pain has started coming

> more often. I get a

> > > > less severe pain almost always in the same

> spot as the other that

> > > > feels like someone is trying to push

> > something

> > > > through my head, it hurts like the dickens but

> doesn't last as

> > > > long as the other, the

> > difference is

> > > > it has started making me dizzy and nauseous,

> > which

> > > > lasts for 20 or 25 minutes even

> > > > though the pain has stopped. It's never done

> > that

> > > > before. What is this? Any ideas?

> > > >

> > > > I know you guys are not doctors, but I trust

> > your

> > > > answers more. You have been there and seem to

> understand the weird

> > > > way I ask a question. Sorry about that by the

> way.

> > > >

> > > > As always//Connie

> > > >

> > > >

> > > > --------------------------------- How low will we go? Check out

> > > > Yahoo!

> Messenger's

> > low

> > > > PC-to-Phone call rates.

> > >

> > >

> > >

> __________________________________________________

> > >

[Guest guest]

I know that was a silly question Matt, but I wondered if the right handed

had left side pain, so that the left handed would have right side pain, I

guess not, well that's it for my surveying days:)

Marla

Re: Re: Questions

>

> mine is on the right side of my head and it doesnt

> seem to be related to my eye pain Matt

>

> --- mosaicgirl1 mosaicgirl1@...> wrote:

>

> >

> > Matt and Connie:

> >

> > I also get the pain in and around the ear. It is

> on the same side as

> > my facial pain and eye pain. Is your pain all on

> the same side? Mine

> > is on the left.

> >

> > Terri

> >

> > >

> > > > Hi Everybody, Hope everything is going ok with

> > you

> > > > all.

> > > >

> > > > I have a question if you don't mind. I have

> had trouble off and on

> > > > with an unusual pain mostly

> > in

> > > > the right side of my head above my ear. 2 of 3

> times this pain has

> > > > felt like someone stuck a 38

> > to

> > > > my head and pulled the trigger, the only thing

> > that

> > > > I imagine would be different was it took a

> while

> > for

> > > > the pain to stop, and the very last time this

> happened it felt

> > > > like something went up my

> > carotid

> > > > to my head, dummy here even tried to catch it

> > before

> > > > it got to the top. I have also had this funny

> > jab

> > > > in my head off and on for a while, but usually

> > they

> > > > are spaced out pretty good. All of a sudden

> this has changed in

> > > > the last 2 weeks, the pain has started coming

> more often. I get a

> > > > less severe pain almost always in the same

> spot as the other that

> > > > feels like someone is trying to push

> > something

> > > > through my head, it hurts like the dickens but

> doesn't last as

> > > > long as the other, the

> > difference is

> > > > it has started making me dizzy and nauseous,

> > which

> > > > lasts for 20 or 25 minutes even

> > > > though the pain has stopped. It's never done

> > that

> > > > before. What is this? Any ideas?

> > > >

> > > > I know you guys are not doctors, but I trust

> > your

> > > > answers more. You have been there and seem to

> understand the weird

> > > > way I ask a question. Sorry about that by the

> way.

> > > >

> > > > As always//Connie

> > > >

> > > >

> > > > --------------------------------- How low will we go? Check out

> > > > Yahoo!

> Messenger's

> > low

> > > > PC-to-Phone call rates.

> > >

> > >

> > >

> __________________________________________________

> > >

[Guest guest]

I have had trouble off and on with an unusual pain mostly in the right side of my head above my ear. 2 of 3 times this pain has felt like someone stuck a 38 to my head and pulled the trigger, the only thing that I imagine would be different was it took a while for the pain to stop, and the very last time this happened it felt like something went up my carotid to my head,

We do have a "temporal artery" that is in the area you're talking about. If you wear glasses, the temporal artery is directly under the temples of your eye glass frame.

It is possible to get strokes or blood clots in this artery, and if a clot does happen-- vision loss is possible.

If you have high cholestrol levels, many times this shows up in this artery before it shows anywhere else. (You also get a "ring" around the iris of the eye-- that is cholestrol.)

For those of us on steroids- or have a history of pred useage, it's important to watch for these signals-- as they can be signs of more serious problems. Also the trigeminal nerve runs up that meridian--- so it may be that.

Get it checked out, a simple doppler test done by the ophthalmologist or neurologist along both the cartoids and the temporal artery can be helpful.

Blessings,

Tracie

NS Co-owner/moderator

[Guest guest]

I have had trouble off and on with an unusual pain mostly in the right side of my head above my ear. 2 of 3 times this pain has felt like someone stuck a 38 to my head and pulled the trigger, the only thing that I imagine would be different was it took a while for the pain to stop, and the very last time this happened it felt like something went up my carotid to my head,

We do have a "temporal artery" that is in the area you're talking about. If you wear glasses, the temporal artery is directly under the temples of your eye glass frame.

It is possible to get strokes or blood clots in this artery, and if a clot does happen-- vision loss is possible.

If you have high cholestrol levels, many times this shows up in this artery before it shows anywhere else. (You also get a "ring" around the iris of the eye-- that is cholestrol.)

For those of us on steroids- or have a history of pred useage, it's important to watch for these signals-- as they can be signs of more serious problems. Also the trigeminal nerve runs up that meridian--- so it may be that.

Get it checked out, a simple doppler test done by the ophthalmologist or neurologist along both the cartoids and the temporal artery can be helpful.

Blessings,

Tracie

NS Co-owner/moderator

[Guest guest]

I have had trouble off and on with an unusual pain mostly in the right side of my head above my ear. 2 of 3 times this pain has felt like someone stuck a 38 to my head and pulled the trigger, the only thing that I imagine would be different was it took a while for the pain to stop, and the very last time this happened it felt like something went up my carotid to my head,

We do have a "temporal artery" that is in the area you're talking about. If you wear glasses, the temporal artery is directly under the temples of your eye glass frame.

It is possible to get strokes or blood clots in this artery, and if a clot does happen-- vision loss is possible.

If you have high cholestrol levels, many times this shows up in this artery before it shows anywhere else. (You also get a "ring" around the iris of the eye-- that is cholestrol.)

For those of us on steroids- or have a history of pred useage, it's important to watch for these signals-- as they can be signs of more serious problems. Also the trigeminal nerve runs up that meridian--- so it may be that.

Get it checked out, a simple doppler test done by the ophthalmologist or neurologist along both the cartoids and the temporal artery can be helpful.

Blessings,

Tracie

NS Co-owner/moderator

[Guest guest]

Hi Marla- no question is silly- i thought that was why

u were asking- Matt

--- Marla Bramer mebramer@...> wrote:

> I know that was a silly question Matt, but I

> wondered if the right handed

> had left side pain, so that the left handed would

> have right side pain, I

> guess not, well that's it for my surveying days:)

> Marla

>

> Re: Re: Questions

> >

> > mine is on the right side of my head and it doesnt

> > seem to be related to my eye pain Matt

> >

> > --- mosaicgirl1 mosaicgirl1@...> wrote:

> >

> > >

> > > Matt and Connie:

> > >

> > > I also get the pain in and around the ear. It

> is

> > on the same side as

> > > my facial pain and eye pain. Is your pain all

> on

> > the same side? Mine

> > > is on the left.

> > >

> > > Terri

> > >

> > > >

> > > > > Hi Everybody, Hope everything is going ok

> with

> > > you

> > > > > all.

> > > > >

> > > > > I have a question if you don't mind. I have

> > had trouble off and on

> > > > > with an unusual pain mostly

> > > in

> > > > > the right side of my head above my ear. 2 of

> 3

> > times this pain has

> > > > > felt like someone stuck a 38

> > > to

> > > > > my head and pulled the trigger, the only

> thing

> > > that

> > > > > I imagine would be different was it took a

> > while

> > > for

> > > > > the pain to stop, and the very last time

> this

> > happened it felt

> > > > > like something went up my

> > > carotid

> > > > > to my head, dummy here even tried to catch

> it

> > > before

> > > > > it got to the top. I have also had this

> funny

> > > jab

> > > > > in my head off and on for a while, but

> usually

> > > they

> > > > > are spaced out pretty good. All of a sudden

> > this has changed in

> > > > > the last 2 weeks, the pain has started

> coming

> > more often. I get a

> > > > > less severe pain almost always in the same

> > spot as the other that

> > > > > feels like someone is trying to push

> > > something

> > > > > through my head, it hurts like the dickens

> but

> > doesn't last as

> > > > > long as the other, the

> > > difference is

> > > > > it has started making me dizzy and nauseous,

> > > which

> > > > > lasts for 20 or 25 minutes even

> > > > > though the pain has stopped. It's never done

> > > that

> > > > > before. What is this? Any ideas?

> > > > >

> > > > > I know you guys are not doctors, but I trust

> > > your

> > > > > answers more. You have been there and seem

> to

> > understand the weird

> > > > > way I ask a question. Sorry about that by

> the

> > way.

> > > > >

> > > > > As always//Connie

> > > > >

> > > > >

> > > > > --------------------------------- How low

> will we go? Check out

> > > > > Yahoo!

> > Messenger's

> > > low

> > > > > PC-to-Phone call rates.

> > > >

> > > >

> > > >

> > __________________________________________________

> > > >

[Guest guest]

Hi Marla- no question is silly- i thought that was why

u were asking- Matt

--- Marla Bramer mebramer@...> wrote:

> I know that was a silly question Matt, but I

> wondered if the right handed

> had left side pain, so that the left handed would

> have right side pain, I

> guess not, well that's it for my surveying days:)

> Marla

>

> Re: Re: Questions

> >

> > mine is on the right side of my head and it doesnt

> > seem to be related to my eye pain Matt

> >

> > --- mosaicgirl1 mosaicgirl1@...> wrote:

> >

> > >

> > > Matt and Connie:

> > >

> > > I also get the pain in and around the ear. It

> is

> > on the same side as

> > > my facial pain and eye pain. Is your pain all

> on

> > the same side? Mine

> > > is on the left.

> > >

> > > Terri

> > >

> > > >

> > > > > Hi Everybody, Hope everything is going ok

> with

> > > you

> > > > > all.

> > > > >

> > > > > I have a question if you don't mind. I have

> > had trouble off and on

> > > > > with an unusual pain mostly

> > > in

> > > > > the right side of my head above my ear. 2 of

> 3

> > times this pain has

> > > > > felt like someone stuck a 38

> > > to

> > > > > my head and pulled the trigger, the only

> thing

> > > that

> > > > > I imagine would be different was it took a

> > while

> > > for

> > > > > the pain to stop, and the very last time

> this

> > happened it felt

> > > > > like something went up my

> > > carotid

> > > > > to my head, dummy here even tried to catch

> it

> > > before

> > > > > it got to the top. I have also had this

> funny

> > > jab

> > > > > in my head off and on for a while, but

> usually

> > > they

> > > > > are spaced out pretty good. All of a sudden

> > this has changed in

> > > > > the last 2 weeks, the pain has started

> coming

> > more often. I get a

> > > > > less severe pain almost always in the same

> > spot as the other that

> > > > > feels like someone is trying to push

> > > something

> > > > > through my head, it hurts like the dickens

> but

> > doesn't last as

> > > > > long as the other, the

> > > difference is

> > > > > it has started making me dizzy and nauseous,

> > > which

> > > > > lasts for 20 or 25 minutes even

> > > > > though the pain has stopped. It's never done

> > > that

> > > > > before. What is this? Any ideas?

> > > > >

> > > > > I know you guys are not doctors, but I trust

> > > your

> > > > > answers more. You have been there and seem

> to

> > understand the weird

> > > > > way I ask a question. Sorry about that by

> the

> > way.

> > > > >

> > > > > As always//Connie

> > > > >

> > > > >

> > > > > --------------------------------- How low

> will we go? Check out

> > > > > Yahoo!

> > Messenger's

> > > low

> > > > > PC-to-Phone call rates.

> > > >

> > > >

> > > >

> > __________________________________________________

> > > >

[Guest guest]

Hi Marla- no question is silly- i thought that was why

u were asking- Matt

--- Marla Bramer mebramer@...> wrote:

> I know that was a silly question Matt, but I

> wondered if the right handed

> had left side pain, so that the left handed would

> have right side pain, I

> guess not, well that's it for my surveying days:)

> Marla

>

> Re: Re: Questions

> >

> > mine is on the right side of my head and it doesnt

> > seem to be related to my eye pain Matt

> >

> > --- mosaicgirl1 mosaicgirl1@...> wrote:

> >

> > >

> > > Matt and Connie:

> > >

> > > I also get the pain in and around the ear. It

> is

> > on the same side as

> > > my facial pain and eye pain. Is your pain all

> on

> > the same side? Mine

> > > is on the left.

> > >

> > > Terri

> > >

> > > >

> > > > > Hi Everybody, Hope everything is going ok

> with

> > > you

> > > > > all.

> > > > >

> > > > > I have a question if you don't mind. I have

> > had trouble off and on

> > > > > with an unusual pain mostly

> > > in

> > > > > the right side of my head above my ear. 2 of

> 3

> > times this pain has

> > > > > felt like someone stuck a 38

> > > to

> > > > > my head and pulled the trigger, the only

> thing

> > > that

> > > > > I imagine would be different was it took a

> > while

> > > for

> > > > > the pain to stop, and the very last time

> this

> > happened it felt

> > > > > like something went up my

> > > carotid

> > > > > to my head, dummy here even tried to catch

> it

> > > before

> > > > > it got to the top. I have also had this

> funny

> > > jab

> > > > > in my head off and on for a while, but

> usually

> > > they

> > > > > are spaced out pretty good. All of a sudden

> > this has changed in

> > > > > the last 2 weeks, the pain has started

> coming

> > more often. I get a

> > > > > less severe pain almost always in the same

> > spot as the other that

> > > > > feels like someone is trying to push

> > > something

> > > > > through my head, it hurts like the dickens

> but

> > doesn't last as

> > > > > long as the other, the

> > > difference is

> > > > > it has started making me dizzy and nauseous,

> > > which

> > > > > lasts for 20 or 25 minutes even

> > > > > though the pain has stopped. It's never done

> > > that

> > > > > before. What is this? Any ideas?

> > > > >

> > > > > I know you guys are not doctors, but I trust

> > > your

> > > > > answers more. You have been there and seem

> to

> > understand the weird

> > > > > way I ask a question. Sorry about that by

> the

> > way.

> > > > >

> > > > > As always//Connie

> > > > >

> > > > >

> > > > > --------------------------------- How low

> will we go? Check out

> > > > > Yahoo!

> > Messenger's

> > > low

> > > > > PC-to-Phone call rates.

> > > >

> > > >

> > > >

> > __________________________________________________

> > > >

[Guest guest]

Thanks Rose,

I was just checking into a theory,

but was wrong.

Marla

From: Neurosarcoidosis

[mailto:Neurosarcoidosis ] On Behalf Of Rose

Sent: Wednesday, May 17, 2006 3:39 PM

To: Neurosarcoidosis

Subject: RE: Re: Questions

Marla, both of my Bell's palsies were on the left, along with the trigeminal

neuralgia. Now I have the residual pain in my left eye from the trig.

neuralgia. But I'm right-handed, so no connection there.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis

To: <Neurosarcoidosis >

Subject: RE: Re: Questions

Date: Wed, 17 May 2006 11:04:11 -0600

Matt all my pain in on the left too, or you left handed? Just curious?

Love ya,

Marla

Re: Re: Questions

mine is on the right side of my head and it doesnt

seem to be related to my eye pain Matt

--- mosaicgirl1 wrote:

>

> Matt and Connie:

>

> I also get the pain in and around the ear. It is on the same side as

> my facial pain and eye pain. Is your pain all on the same

side? Mine

> is on the left.

>

> Terri

>

> >

> > > Hi Everybody, Hope everything is going ok with

> you

> > > all.

> > >

> > > I have a question if you don't mind. I have had trouble off and

on

> > > with an unusual pain mostly

> in

> > > the right side of my head above my ear. 2 of 3 times this pain

has

> > > felt like someone stuck a 38

> to

> > > my head and pulled the trigger, the only thing

> that

> > > I imagine would be different was it took a while

> for

> > > the pain to stop, and the very last time this happened it felt

> > > like something went up my

> carotid

> > > to my head, dummy here even tried to catch it

> before

> > > it got to the top. I have also had this funny

> jab

> > > in my head off and on for a while, but usually

> they

> > > are spaced out pretty good. All of a sudden this has changed in

> > > the last 2 weeks, the pain has started coming more often. I get

a

> > > less severe pain almost always in the same spot as the other

that

> > > feels like someone is trying to push

> something

> > > through my head, it hurts like the dickens but doesn't last as

> > > long as the other, the

> difference is

> > > it has started making me dizzy and nauseous,

> which

> > > lasts for 20 or 25 minutes even

> > > though the pain has stopped. It's never done

> that

> > > before. What is this? Any ideas?

> > >

> > > I know you guys are not doctors, but I trust

> your

> > > answers more. You have been there and seem to understand the

weird

> > > way I ask a question. Sorry about that by the way.

> > >

> > > As always//Connie

> > >

> > >

> > > ---------------------------------

> > > How low will we go? Check out Yahoo! Messenger's

> low

> > > PC-to-Phone call rates.

> >

> >

> > __________________________________________________

> >

[Guest guest]

Thanks Rose,

I was just checking into a theory,

but was wrong.

Marla

From: Neurosarcoidosis

[mailto:Neurosarcoidosis ] On Behalf Of Rose

Sent: Wednesday, May 17, 2006 3:39 PM

To: Neurosarcoidosis

Subject: RE: Re: Questions

Marla, both of my Bell's palsies were on the left, along with the trigeminal

neuralgia. Now I have the residual pain in my left eye from the trig.

neuralgia. But I'm right-handed, so no connection there.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis

To: <Neurosarcoidosis >

Subject: RE: Re: Questions

Date: Wed, 17 May 2006 11:04:11 -0600

Matt all my pain in on the left too, or you left handed? Just curious?

Love ya,

Marla

Re: Re: Questions

mine is on the right side of my head and it doesnt

seem to be related to my eye pain Matt

--- mosaicgirl1 wrote:

>

> Matt and Connie:

>

> I also get the pain in and around the ear. It is on the same side as

> my facial pain and eye pain. Is your pain all on the same

side? Mine

> is on the left.

>

> Terri

>

> >

> > > Hi Everybody, Hope everything is going ok with

> you

> > > all.

> > >

> > > I have a question if you don't mind. I have had trouble off and

on

> > > with an unusual pain mostly

> in

> > > the right side of my head above my ear. 2 of 3 times this pain

has

> > > felt like someone stuck a 38

> to

> > > my head and pulled the trigger, the only thing

> that

> > > I imagine would be different was it took a while

> for

> > > the pain to stop, and the very last time this happened it felt

> > > like something went up my

> carotid

> > > to my head, dummy here even tried to catch it

> before

> > > it got to the top. I have also had this funny

> jab

> > > in my head off and on for a while, but usually

> they

> > > are spaced out pretty good. All of a sudden this has changed in

> > > the last 2 weeks, the pain has started coming more often. I get

a

> > > less severe pain almost always in the same spot as the other

that

> > > feels like someone is trying to push

> something

> > > through my head, it hurts like the dickens but doesn't last as

> > > long as the other, the

> difference is

> > > it has started making me dizzy and nauseous,

> which

> > > lasts for 20 or 25 minutes even

> > > though the pain has stopped. It's never done

> that

> > > before. What is this? Any ideas?

> > >

> > > I know you guys are not doctors, but I trust

> your

> > > answers more. You have been there and seem to understand the

weird

> > > way I ask a question. Sorry about that by the way.

> > >

> > > As always//Connie

> > >

> > >

> > > ---------------------------------

> > > How low will we go? Check out Yahoo! Messenger's

> low

> > > PC-to-Phone call rates.

> >

> >

> > __________________________________________________

> >

[Guest guest]

Thanks Rose,

I was just checking into a theory,

but was wrong.

Marla

From: Neurosarcoidosis

[mailto:Neurosarcoidosis ] On Behalf Of Rose

Sent: Wednesday, May 17, 2006 3:39 PM

To: Neurosarcoidosis

Subject: RE: Re: Questions

Marla, both of my Bell's palsies were on the left, along with the trigeminal

neuralgia. Now I have the residual pain in my left eye from the trig.

neuralgia. But I'm right-handed, so no connection there.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis

To: <Neurosarcoidosis >

Subject: RE: Re: Questions

Date: Wed, 17 May 2006 11:04:11 -0600

Matt all my pain in on the left too, or you left handed? Just curious?

Love ya,

Marla

Re: Re: Questions

mine is on the right side of my head and it doesnt

seem to be related to my eye pain Matt

--- mosaicgirl1 wrote:

>

> Matt and Connie:

>

> I also get the pain in and around the ear. It is on the same side as

> my facial pain and eye pain. Is your pain all on the same

side? Mine

> is on the left.

>

> Terri

>

> >

> > > Hi Everybody, Hope everything is going ok with

> you

> > > all.

> > >

> > > I have a question if you don't mind. I have had trouble off and

on

> > > with an unusual pain mostly

> in

> > > the right side of my head above my ear. 2 of 3 times this pain

has

> > > felt like someone stuck a 38

> to

> > > my head and pulled the trigger, the only thing

> that

> > > I imagine would be different was it took a while

> for

> > > the pain to stop, and the very last time this happened it felt

> > > like something went up my

> carotid

> > > to my head, dummy here even tried to catch it

> before

> > > it got to the top. I have also had this funny

> jab

> > > in my head off and on for a while, but usually

> they

> > > are spaced out pretty good. All of a sudden this has changed in

> > > the last 2 weeks, the pain has started coming more often. I get

a

> > > less severe pain almost always in the same spot as the other

that

> > > feels like someone is trying to push

> something

> > > through my head, it hurts like the dickens but doesn't last as

> > > long as the other, the

> difference is

> > > it has started making me dizzy and nauseous,

> which

> > > lasts for 20 or 25 minutes even

> > > though the pain has stopped. It's never done

> that

> > > before. What is this? Any ideas?

> > >

> > > I know you guys are not doctors, but I trust

> your

> > > answers more. You have been there and seem to understand the

weird

> > > way I ask a question. Sorry about that by the way.

> > >

> > > As always//Connie

> > >

> > >

> > > ---------------------------------

> > > How low will we go? Check out Yahoo! Messenger's

> low

> > > PC-to-Phone call rates.

> >

> >

> > __________________________________________________

> >

[Guest guest]

Rose,

I am the same way; I am right handed and my facial/head and ear pain

are all on the left. Doesn't make much sense does it?

Terri G.

[Guest guest]

Rose,

I am the same way; I am right handed and my facial/head and ear pain

are all on the left. Doesn't make much sense does it?

Terri G.

[Guest guest]

Rose,

I am the same way; I am right handed and my facial/head and ear pain

are all on the left. Doesn't make much sense does it?

Terri G.

[Guest guest]

Marla,

Do you hear anything when you get the terrible headaches? I was talking

with someone else (it might have been you) and they will wake me up in

the middle of the night - severe pain -and I can hear somthing

swooshing/pulsating and the pain is miserable. Is this the same with

you?

Thanks.

Terri

>

> I get this pain too, the vessel in my head just pounds, and is

painful, I

> find that Aspirin helps me the most, I usually get it at the end of a

long

> day, and when I do too much.

>

> But you should get it check out, I am going to my " Sarcoid " doctor

today, I

> need to make a list so I don't forget what to say, I try to get my

husband

> to come, but always too busy, oh well I'm taking a clip board so I can

make

> notes, as the head has started again, with pain, brain farts, and the

worse

> getting lost and the feeling of lost, the body is still 90% pain free,

> praise God, and the energy level is still up, praise God, the rest

will

> come, just takes time and I'm not good at that, like all of here we

want it

> fixed now, but know that now to the doctor is years, if we are lucky.

>

> I wish you all a pain free, beautiful day, with much love.

>

> Marla

>

>

>

>

>

> _____

>

> From: Neurosarcoidosis

> [mailto:Neurosarcoidosis ] On Behalf Of tiodaat@...

> Sent: Wednesday, May 17, 2006 11:59 PM

> To: Neurosarcoidosis

> Subject: Re: Questions

>

>

>

> In a message dated 5/16/06 4:58:50 PM Pacific Daylight Time,

> conaugusta@... writes:

>

>

>

>

>

> I have had trouble off and on with an unusual pain mostly in the right

side

> of my head above my ear. 2 of 3 times this pain has felt like someone

stuck

> a 38 to my head and pulled the trigger, the only thing that I imagine

would

> be different was it took a while for the pain to stop, and the very

last

> time this happened it felt like something went up my carotid to my

head,

>

>

>

> We do have a " temporal artery " that is in the area you're talking

about. If

> you wear glasses, the temporal artery is directly under the temples of

your

> eye glass frame.

> It is possible to get strokes or blood clots in this artery, and if a

clot

> does happen-- vision loss is possible.

> If you have high cholestrol levels, many times this shows up in this

artery

> before it shows anywhere else. (You also get a " ring " around the iris

of

> the eye-- that is cholestrol.)

> For those of us on steroids- or have a history of pred useage, it's

> important to watch for these signals-- as they can be signs of more

serious

> problems. Also the trigeminal nerve runs up that meridian--- so it may

be

> that.

> Get it checked out, a simple doppler test done by the ophthalmologist

or

> neurologist along both the cartoids and the temporal artery can be

helpful.

>

> Blessings,

> Tracie

> NS Co-owner/moderator

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> NS CHAT:- Has been cancelled for now.

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

[Guest guest]

Marla,

Do you hear anything when you get the terrible headaches? I was talking

with someone else (it might have been you) and they will wake me up in

the middle of the night - severe pain -and I can hear somthing

swooshing/pulsating and the pain is miserable. Is this the same with

you?

Thanks.

Terri

>

> I get this pain too, the vessel in my head just pounds, and is

painful, I

> find that Aspirin helps me the most, I usually get it at the end of a

long

> day, and when I do too much.

>

> But you should get it check out, I am going to my " Sarcoid " doctor

today, I

> need to make a list so I don't forget what to say, I try to get my

husband

> to come, but always too busy, oh well I'm taking a clip board so I can

make

> notes, as the head has started again, with pain, brain farts, and the

worse

> getting lost and the feeling of lost, the body is still 90% pain free,

> praise God, and the energy level is still up, praise God, the rest

will

> come, just takes time and I'm not good at that, like all of here we

want it

> fixed now, but know that now to the doctor is years, if we are lucky.

>

> I wish you all a pain free, beautiful day, with much love.

>

> Marla

>

>

>

>

>

> _____

>

> From: Neurosarcoidosis

> [mailto:Neurosarcoidosis ] On Behalf Of tiodaat@...

> Sent: Wednesday, May 17, 2006 11:59 PM

> To: Neurosarcoidosis

> Subject: Re: Questions

>

>

>

> In a message dated 5/16/06 4:58:50 PM Pacific Daylight Time,

> conaugusta@... writes:

>

>

>

>

>

> I have had trouble off and on with an unusual pain mostly in the right

side

> of my head above my ear. 2 of 3 times this pain has felt like someone

stuck

> a 38 to my head and pulled the trigger, the only thing that I imagine

would

> be different was it took a while for the pain to stop, and the very

last

> time this happened it felt like something went up my carotid to my

head,

>

>

>

> We do have a " temporal artery " that is in the area you're talking

about. If

> you wear glasses, the temporal artery is directly under the temples of

your

> eye glass frame.

> It is possible to get strokes or blood clots in this artery, and if a

clot

> does happen-- vision loss is possible.

> If you have high cholestrol levels, many times this shows up in this

artery

> before it shows anywhere else. (You also get a " ring " around the iris

of

> the eye-- that is cholestrol.)

> For those of us on steroids- or have a history of pred useage, it's

> important to watch for these signals-- as they can be signs of more

serious

> problems. Also the trigeminal nerve runs up that meridian--- so it may

be

> that.

> Get it checked out, a simple doppler test done by the ophthalmologist

or

> neurologist along both the cartoids and the temporal artery can be

helpful.

>

> Blessings,

> Tracie

> NS Co-owner/moderator

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

> NS CHAT:- Has been cancelled for now.

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

[Guest guest]

Hi Connie - Sorry this is a little late. I've been offline for a little while. When I "got sick" it all started with the strangest sensation in my head that felt like a little baby's fist twisting around. It made me very lightheaded and dizzy... Like the entire room was going white and I was floating. It was awful. After a few visits to the doctor, he took me seriously. The MRI showed a granuloma (?I think that's what they called it) right where I told them - smack dab in the middle of my head at the top of my spinal chord. They said it's not life threatening, but I have since suffered excruciating headaches that sound similar to what you are experiencing. I usually say it's like a couple of swords sticking up through the base of my neck up through the top of my head. The pain was unbearable until they got me on the right meds. They

tried various anti-depressants (pain blockers) unti we found one I can deal with - I can't remember the brand name, but the generic is Amitryptalin. Anyhow, I think it would be a good idea to ask if they would do an MRI for you. I have them about every six months and so far this is the only one. I hope you feel better. I know it can be miserable. And believe me, when they called with the results I was convinced I was dying! LOL! My family was just really happy that they actually FOUND a brain up there! LOL!!! You'll be in my prayers for certain. Please let me know how you make out, ok?Hugs, JeannieConnie Griffis wrote: Hi Everybody, Hope everything is going ok with

you all. I have a question if you don't mind. I have had trouble off and on with an unusual pain mostly in the right side of my head above my ear. 2 of 3 times this pain has felt like someone stuck a 38 to my head and pulled the trigger, the only thing that I imagine would be different was it took a while for the pain to stop, and the very last time this happened it felt like something went up my carotid to my head, dummy here even tried to catch it before it got to the top. I have also had this funny jab in my head off and on for a while, but usually they are spaced out pretty good. All of a sudden this has changed in the last 2 weeks, the pain has started coming more often. I get a less severe pain almost always in the same spot as the other that feels like someone is trying to push something through my head, it hurts like the dickens but doesn't last as long as the other, the

difference is it has started making me dizzy and nauseous, which lasts for 20 or 25 minutes even though the pain has stopped. It's never done that before. What is this? Any ideas? I know you guys are not doctors, but I trust your answers more. You have been there and seem to understand the weird way I ask a question. Sorry about that by the way. As always//Connie How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Yahoo! Messenger with Voice.

[Guest guest]

Oh Connie - that STINKS!! (But you gave me a giggle with the mental picture... wouldn't you just like to see that happen to your doctors just once? LOL!) How do they find granulomas if they can't do an MRI??? Do they even try? It's always something else, isn't it? Unbelievable. Well, we're stronger than we seem, don't we know it? I hope they will at least try some sort of pain blocker for you. The anti-depressant really works for me - it's amazing. And, it keeps me annoyingly chipper, too! Hugs, Jeannie Connie Griffis wrote: Jeanne, Thanks so much for the information. I am so thankful that you all are kind enough

to answer my questions. As to MRI's, I wish I could have one since they seem better at locating our hateful little friends (granulomas), however I have an InSyncIII Pacemaker so I can not have an MRI. I'd look like that doctor in the old suspense movie, he's chasing the good guys and they run through the MRI room, turn on the machine and the bad guy ends up stuck to the top of the MRI by my pacer, ouch...that hurt. Thanks again///ConnieJeanne Betters wrote: Hi Connie - Sorry this is a little late. I've been offline for a little while. When I "got sick" it all started with the strangest sensation in my head that felt like a little baby's fist

twisting around. It made me very lightheaded and dizzy... Like the entire room was going white and I was floating. It was awful. After a few visits to the doctor, he took me seriously. The MRI showed a granuloma (?I think that's what they called it) right where I told them - smack dab in the middle of my head at the top of my spinal chord. They said it's not life threatening, but I have since suffered excruciating headaches that sound similar to what you are experiencing. I usually say it's like a couple of swords sticking up through the base of my neck up through the top of my head. The pain was unbearable until they got me on the right meds. They tried various anti-depressants (pain blockers) unti we found one I can deal with - I can't remember the brand name, but the generic is Amitryptalin. Anyhow, I think it would be a good idea to ask if they would do an MRI for you. I have them about every six

months and so far this is the only one. I hope you feel better. I know it can be miserable. And believe me, when they called with the results I was convinced I was dying! LOL! My family was just really happy that they actually FOUND a brain up there! LOL!!! You'll be in my prayers for certain. Please let me know how you make out, ok?Hugs, JeannieConnie Griffis wrote: Hi Everybody, Hope everything is going ok with you all. I have a question if you don't mind. I have had trouble off and on with an unusual pain mostly in the right side of my head above my ear. 2 of 3 times this pain has felt like someone stuck a 38 to my head and pulled

the trigger, the only thing that I imagine would be different was it took a while for the pain to stop, and the very last time this happened it felt like something went up my carotid to my head, dummy here even tried to catch it before it got to the top. I have also had this funny jab in my head off and on for a while, but usually they are spaced out pretty good. All of a sudden this has changed in the last 2 weeks, the pain has started coming more often. I get a less severe pain almost always in the same spot as the other that feels like someone is trying to push something through my head, it hurts like the dickens but doesn't last as long as the other, the difference is it has started making me dizzy and nauseous, which lasts for 20 or 25 minutes even though the pain has stopped. It's never done that before. What is this? Any ideas? I know you guys are not doctors, but I trust

your answers more. You have been there and seem to understand the weird way I ask a question. Sorry about that by the way. As always//Connie How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Yahoo! Messenger with Voice. __________________________________________________

[Guest guest]

Thanks Jeanne, I go to the neurologist Thursday, I am hoping he has some answers for me. I am also hoping if I'm right about what is going on he will take over the care of my sarc. As to the other questions, they try CT with contrast, but unless something is really fouled up it doesn't work. The only thing CT's seem to show are the damage left by the granuloma, but not the granuloma. Example: Nobody found the extensive granuolomas in my bronchial tubes even though they were to the scary point as far as my breathing. It took a bronchoscopy for the pulmonologist to finally figure out why I wasn't getting any air and coughed constantly. Same with my heart, after an arterogram the doctor told us it was that "blank" sarcoid. But to my knowledge it does not show in the CT, even though I am so miswired conduction wise I have a

pacemaker and have had ablation surgery. To me one of the biggest breakthroughs I would like to see is someone develop a dye or opague that would pick up the critters (granulomas). Or develop a definitive test for the granulomas. The anguish and physical damage it would stop would be phenominal. So many of us physically go down the tubes sometimes for years with no one able to figure out what's wrong, or taking the easy way out with the classic "it's all in your noggin". If they can't find a cause or cure, I wish they would at least get the diagnostic test right. (Now I'll will carefully get off my soapbox because my knees are bugging me) Take care............always, Connie Jeanne Betters wrote: Oh Connie - that STINKS!! (But you gave me a giggle with the mental picture... wouldn't you just like to see that happen to your doctors just once? LOL!) How do they find granulomas if they can't do an MRI??? Do they even try? It's always something else, isn't it? Unbelievable. Well, we're stronger than we seem, don't we know it? I hope they will at least try some sort of pain blocker for you. The anti-depressant really works for me - it's amazing. And, it keeps me annoyingly chipper, too! Hugs, Jeannie Connie Griffis wrote: Jeanne, Thanks so much for the information. I am so thankful that you

all are kind enough to answer my questions. As to MRI's, I wish I could have one since they seem better at locating our hateful little friends (granulomas), however I have an InSyncIII Pacemaker so I can not have an MRI. I'd look like that doctor in the old suspense movie, he's chasing the good guys and they run through the MRI room, turn on the machine and the bad guy ends up stuck to the top of the MRI by my pacer, ouch...that hurt. Thanks again///ConnieJeanne Betters wrote: Hi Connie - Sorry this is a little late. I've been offline for a little while. When I "got sick" it all started with the strangest sensation in my head that felt like a

little baby's fist twisting around. It made me very lightheaded and dizzy... Like the entire room was going white and I was floating. It was awful. After a few visits to the doctor, he took me seriously. The MRI showed a granuloma (?I think that's what they called it) right where I told them - smack dab in the middle of my head at the top of my spinal chord. They said it's not life threatening, but I have since suffered excruciating headaches that sound similar to what you are experiencing. I usually say it's like a couple of swords sticking up through the base of my neck up through the top of my head. The pain was unbearable until they got me on the right meds. They tried various anti-depressants (pain blockers) unti we found one I can deal with - I can't remember the brand name, but the generic is Amitryptalin. Anyhow, I think it would be a good idea to ask if they would do an MRI for you. I have them

about every six months and so far this is the only one. I hope you feel better. I know it can be miserable. And believe me, when they called with the results I was convinced I was dying! LOL! My family was just really happy that they actually FOUND a brain up there! LOL!!! You'll be in my prayers for certain. Please let me know how you make out, ok?Hugs, JeannieConnie Griffis wrote: Hi Everybody, Hope everything is going ok with you all. I have a question if you don't mind. I have had trouble off and on with an unusual pain mostly in the right side of my head above my ear. 2 of 3 times this pain has felt like someone stuck a 38 to my

head and pulled the trigger, the only thing that I imagine would be different was it took a while for the pain to stop, and the very last time this happened it felt like something went up my carotid to my head, dummy here even tried to catch it before it got to the top. I have also had this funny jab in my head off and on for a while, but usually they are spaced out pretty good. All of a sudden this has changed in the last 2 weeks, the pain has started coming more often. I get a less severe pain almost always in the same spot as the other that feels like someone is trying to push something through my head, it hurts like the dickens but doesn't last as long as the other, the difference is it has started making me dizzy and nauseous, which lasts for 20 or 25 minutes even though the pain has stopped. It's never done that before. What is this? Any ideas? I know you guys are not

doctors, but I trust your answers more. You have been there and seem to understand the weird way I ask a question. Sorry about that by the way. As always//Connie How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Yahoo! Messenger with Voice. __________________________________________________

[Guest guest]

Thanks Jeanne, I go to the neurologist Thursday, I am hoping he has some answers for me. I am also hoping if I'm right about what is going on he will take over the care of my sarc. As to the other questions, they try CT with contrast, but unless something is really fouled up it doesn't work. The only thing CT's seem to show are the damage left by the granuloma, but not the granuloma. Example: Nobody found the extensive granuolomas in my bronchial tubes even though they were to the scary point as far as my breathing. It took a bronchoscopy for the pulmonologist to finally figure out why I wasn't getting any air and coughed constantly. Same with my heart, after an arterogram the doctor told us it was that "blank" sarcoid. But to my knowledge it does not show in the CT, even though I am so miswired conduction wise I have a

pacemaker and have had ablation surgery. To me one of the biggest breakthroughs I would like to see is someone develop a dye or opague that would pick up the critters (granulomas). Or develop a definitive test for the granulomas. The anguish and physical damage it would stop would be phenominal. So many of us physically go down the tubes sometimes for years with no one able to figure out what's wrong, or taking the easy way out with the classic "it's all in your noggin". If they can't find a cause or cure, I wish they would at least get the diagnostic test right. (Now I'll will carefully get off my soapbox because my knees are bugging me) Take care............always, Connie Jeanne Betters wrote: Oh Connie - that STINKS!! (But you gave me a giggle with the mental picture... wouldn't you just like to see that happen to your doctors just once? LOL!) How do they find granulomas if they can't do an MRI??? Do they even try? It's always something else, isn't it? Unbelievable. Well, we're stronger than we seem, don't we know it? I hope they will at least try some sort of pain blocker for you. The anti-depressant really works for me - it's amazing. And, it keeps me annoyingly chipper, too! Hugs, Jeannie Connie Griffis wrote: Jeanne, Thanks so much for the information. I am so thankful that you

all are kind enough to answer my questions. As to MRI's, I wish I could have one since they seem better at locating our hateful little friends (granulomas), however I have an InSyncIII Pacemaker so I can not have an MRI. I'd look like that doctor in the old suspense movie, he's chasing the good guys and they run through the MRI room, turn on the machine and the bad guy ends up stuck to the top of the MRI by my pacer, ouch...that hurt. Thanks again///ConnieJeanne Betters wrote: Hi Connie - Sorry this is a little late. I've been offline for a little while. When I "got sick" it all started with the strangest sensation in my head that felt like a

little baby's fist twisting around. It made me very lightheaded and dizzy... Like the entire room was going white and I was floating. It was awful. After a few visits to the doctor, he took me seriously. The MRI showed a granuloma (?I think that's what they called it) right where I told them - smack dab in the middle of my head at the top of my spinal chord. They said it's not life threatening, but I have since suffered excruciating headaches that sound similar to what you are experiencing. I usually say it's like a couple of swords sticking up through the base of my neck up through the top of my head. The pain was unbearable until they got me on the right meds. They tried various anti-depressants (pain blockers) unti we found one I can deal with - I can't remember the brand name, but the generic is Amitryptalin. Anyhow, I think it would be a good idea to ask if they would do an MRI for you. I have them

about every six months and so far this is the only one. I hope you feel better. I know it can be miserable. And believe me, when they called with the results I was convinced I was dying! LOL! My family was just really happy that they actually FOUND a brain up there! LOL!!! You'll be in my prayers for certain. Please let me know how you make out, ok?Hugs, JeannieConnie Griffis wrote: Hi Everybody, Hope everything is going ok with you all. I have a question if you don't mind. I have had trouble off and on with an unusual pain mostly in the right side of my head above my ear. 2 of 3 times this pain has felt like someone stuck a 38 to my

head and pulled the trigger, the only thing that I imagine would be different was it took a while for the pain to stop, and the very last time this happened it felt like something went up my carotid to my head, dummy here even tried to catch it before it got to the top. I have also had this funny jab in my head off and on for a while, but usually they are spaced out pretty good. All of a sudden this has changed in the last 2 weeks, the pain has started coming more often. I get a less severe pain almost always in the same spot as the other that feels like someone is trying to push something through my head, it hurts like the dickens but doesn't last as long as the other, the difference is it has started making me dizzy and nauseous, which lasts for 20 or 25 minutes even though the pain has stopped. It's never done that before. What is this? Any ideas? I know you guys are not

doctors, but I trust your answers more. You have been there and seem to understand the weird way I ask a question. Sorry about that by the way. As always//Connie How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Yahoo! Messenger with Voice. __________________________________________________

[Guest guest]

Thanks Jeanne, I go to the neurologist Thursday, I am hoping he has some answers for me. I am also hoping if I'm right about what is going on he will take over the care of my sarc. As to the other questions, they try CT with contrast, but unless something is really fouled up it doesn't work. The only thing CT's seem to show are the damage left by the granuloma, but not the granuloma. Example: Nobody found the extensive granuolomas in my bronchial tubes even though they were to the scary point as far as my breathing. It took a bronchoscopy for the pulmonologist to finally figure out why I wasn't getting any air and coughed constantly. Same with my heart, after an arterogram the doctor told us it was that "blank" sarcoid. But to my knowledge it does not show in the CT, even though I am so miswired conduction wise I have a

pacemaker and have had ablation surgery. To me one of the biggest breakthroughs I would like to see is someone develop a dye or opague that would pick up the critters (granulomas). Or develop a definitive test for the granulomas. The anguish and physical damage it would stop would be phenominal. So many of us physically go down the tubes sometimes for years with no one able to figure out what's wrong, or taking the easy way out with the classic "it's all in your noggin". If they can't find a cause or cure, I wish they would at least get the diagnostic test right. (Now I'll will carefully get off my soapbox because my knees are bugging me) Take care............always, Connie Jeanne Betters wrote: Oh Connie - that STINKS!! (But you gave me a giggle with the mental picture... wouldn't you just like to see that happen to your doctors just once? LOL!) How do they find granulomas if they can't do an MRI??? Do they even try? It's always something else, isn't it? Unbelievable. Well, we're stronger than we seem, don't we know it? I hope they will at least try some sort of pain blocker for you. The anti-depressant really works for me - it's amazing. And, it keeps me annoyingly chipper, too! Hugs, Jeannie Connie Griffis wrote: Jeanne, Thanks so much for the information. I am so thankful that you

all are kind enough to answer my questions. As to MRI's, I wish I could have one since they seem better at locating our hateful little friends (granulomas), however I have an InSyncIII Pacemaker so I can not have an MRI. I'd look like that doctor in the old suspense movie, he's chasing the good guys and they run through the MRI room, turn on the machine and the bad guy ends up stuck to the top of the MRI by my pacer, ouch...that hurt. Thanks again///ConnieJeanne Betters wrote: Hi Connie - Sorry this is a little late. I've been offline for a little while. When I "got sick" it all started with the strangest sensation in my head that felt like a

little baby's fist twisting around. It made me very lightheaded and dizzy... Like the entire room was going white and I was floating. It was awful. After a few visits to the doctor, he took me seriously. The MRI showed a granuloma (?I think that's what they called it) right where I told them - smack dab in the middle of my head at the top of my spinal chord. They said it's not life threatening, but I have since suffered excruciating headaches that sound similar to what you are experiencing. I usually say it's like a couple of swords sticking up through the base of my neck up through the top of my head. The pain was unbearable until they got me on the right meds. They tried various anti-depressants (pain blockers) unti we found one I can deal with - I can't remember the brand name, but the generic is Amitryptalin. Anyhow, I think it would be a good idea to ask if they would do an MRI for you. I have them

about every six months and so far this is the only one. I hope you feel better. I know it can be miserable. And believe me, when they called with the results I was convinced I was dying! LOL! My family was just really happy that they actually FOUND a brain up there! LOL!!! You'll be in my prayers for certain. Please let me know how you make out, ok?Hugs, JeannieConnie Griffis wrote: Hi Everybody, Hope everything is going ok with you all. I have a question if you don't mind. I have had trouble off and on with an unusual pain mostly in the right side of my head above my ear. 2 of 3 times this pain has felt like someone stuck a 38 to my

head and pulled the trigger, the only thing that I imagine would be different was it took a while for the pain to stop, and the very last time this happened it felt like something went up my carotid to my head, dummy here even tried to catch it before it got to the top. I have also had this funny jab in my head off and on for a while, but usually they are spaced out pretty good. All of a sudden this has changed in the last 2 weeks, the pain has started coming more often. I get a less severe pain almost always in the same spot as the other that feels like someone is trying to push something through my head, it hurts like the dickens but doesn't last as long as the other, the difference is it has started making me dizzy and nauseous, which lasts for 20 or 25 minutes even though the pain has stopped. It's never done that before. What is this? Any ideas? I know you guys are not

doctors, but I trust your answers more. You have been there and seem to understand the weird way I ask a question. Sorry about that by the way. As always//Connie How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Yahoo! Messenger with Voice. __________________________________________________

[Guest guest]

Hi Jeanne, I am on Cymbalta. Which is an antidepressant that helps with the pain. It doesn't help all the pain , I am also on a Duragesic patch and have vicodin on hand as well. But I noticed you said your antidpressant helped. DebbieJeanne Betters wrote: Oh Connie - that STINKS!! (But you gave me a giggle with the mental picture... wouldn't you just like to see that happen to your doctors just once? LOL!) How do they find granulomas if they can't do an MRI??? Do they even try? It's always something else, isn't it? Unbelievable. Well, we're stronger than we seem, don't we know it? I hope they will at least try some sort of pain blocker for you. The anti-depressant really

works for me - it's amazing. And, it keeps me annoyingly chipper, too! Hugs, Jeannie Connie Griffis wrote: Jeanne, Thanks so much for the information. I am so thankful that you all are kind enough to answer my questions. As to MRI's, I wish I could have one since they seem better at locating our hateful little friends (granulomas), however I have an InSyncIII Pacemaker so I can not have an MRI. I'd look like that doctor in the old suspense movie, he's chasing the good guys and they run through the MRI room, turn on the machine and the bad guy ends up stuck to the top of the MRI by my pacer, ouch...that hurt. Thanks again///ConnieJeanne Betters wrote: Hi Connie - Sorry this is a little late. I've been offline for a little while. When I "got sick" it all started with the strangest sensation in my head that felt like a little baby's fist twisting around. It made me very lightheaded and dizzy... Like the entire room was going white and I was floating. It was awful. After a few visits to the doctor, he took me seriously. The MRI showed a granuloma (?I think that's what they called it) right where I told them - smack dab in the middle of my head at the top of my spinal chord. They said it's not life threatening, but I have since suffered excruciating headaches

that sound similar to what you are experiencing. I usually say it's like a couple of swords sticking up through the base of my neck up through the top of my head. The pain was unbearable until they got me on the right meds. They tried various anti-depressants (pain blockers) unti we found one I can deal with - I can't remember the brand name, but the generic is Amitryptalin. Anyhow, I think it would be a good idea to ask if they would do an MRI for you. I have them about every six months and so far this is the only one. I hope you feel better. I know it can be miserable. And believe me, when they called with the results I was convinced I was dying! LOL! My family was just really happy that they actually FOUND a brain up there! LOL!!! You'll be in my prayers for certain. Please let me know how you make out, ok?Hugs, JeannieConnie Griffis wrote: Hi Everybody, Hope everything is going ok with you all. I have a question if you don't mind. I have had trouble off and on with an unusual pain mostly in the right side of my head above my ear. 2 of 3 times this pain has felt like someone stuck a 38 to my head and pulled the trigger, the only thing that I imagine would be different was it took a while for the pain to stop, and the very last time this happened it felt like something went up my carotid to my head, dummy here even tried to catch it before it got to the top. I have also had this funny jab in my head off and on for a while, but usually they are spaced out pretty good. All of a sudden this has changed in the last 2 weeks,

the pain has started coming more often. I get a less severe pain almost always in the same spot as the other that feels like someone is trying to push something through my head, it hurts like the dickens but doesn't last as long as the other, the difference is it has started making me dizzy and nauseous, which lasts for 20 or 25 minutes even though the pain has stopped. It's never done that before. What is this? Any ideas? I know you guys are not doctors, but I trust your answers more. You have been there and seem to understand the weird way I ask a question. Sorry about that by the way. As always//Connie How low will we go? Check out Yahoo! Messenger�s low PC-to-Phone call rates. Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2�/min with Yahoo! Messenger with Voice. __________________________________________________

[Guest guest]

Hi Jeanne, I am on Cymbalta. Which is an antidepressant that helps with the pain. It doesn't help all the pain , I am also on a Duragesic patch and have vicodin on hand as well. But I noticed you said your antidpressant helped. DebbieJeanne Betters wrote: Oh Connie - that STINKS!! (But you gave me a giggle with the mental picture... wouldn't you just like to see that happen to your doctors just once? LOL!) How do they find granulomas if they can't do an MRI??? Do they even try? It's always something else, isn't it? Unbelievable. Well, we're stronger than we seem, don't we know it? I hope they will at least try some sort of pain blocker for you. The anti-depressant really

works for me - it's amazing. And, it keeps me annoyingly chipper, too! Hugs, Jeannie Connie Griffis wrote: Jeanne, Thanks so much for the information. I am so thankful that you all are kind enough to answer my questions. As to MRI's, I wish I could have one since they seem better at locating our hateful little friends (granulomas), however I have an InSyncIII Pacemaker so I can not have an MRI. I'd look like that doctor in the old suspense movie, he's chasing the good guys and they run through the MRI room, turn on the machine and the bad guy ends up stuck to the top of the MRI by my pacer, ouch...that hurt. Thanks again///ConnieJeanne Betters wrote: Hi Connie - Sorry this is a little late. I've been offline for a little while. When I "got sick" it all started with the strangest sensation in my head that felt like a little baby's fist twisting around. It made me very lightheaded and dizzy... Like the entire room was going white and I was floating. It was awful. After a few visits to the doctor, he took me seriously. The MRI showed a granuloma (?I think that's what they called it) right where I told them - smack dab in the middle of my head at the top of my spinal chord. They said it's not life threatening, but I have since suffered excruciating headaches

that sound similar to what you are experiencing. I usually say it's like a couple of swords sticking up through the base of my neck up through the top of my head. The pain was unbearable until they got me on the right meds. They tried various anti-depressants (pain blockers) unti we found one I can deal with - I can't remember the brand name, but the generic is Amitryptalin. Anyhow, I think it would be a good idea to ask if they would do an MRI for you. I have them about every six months and so far this is the only one. I hope you feel better. I know it can be miserable. And believe me, when they called with the results I was convinced I was dying! LOL! My family was just really happy that they actually FOUND a brain up there! LOL!!! You'll be in my prayers for certain. Please let me know how you make out, ok?Hugs, JeannieConnie Griffis wrote: Hi Everybody, Hope everything is going ok with you all. I have a question if you don't mind. I have had trouble off and on with an unusual pain mostly in the right side of my head above my ear. 2 of 3 times this pain has felt like someone stuck a 38 to my head and pulled the trigger, the only thing that I imagine would be different was it took a while for the pain to stop, and the very last time this happened it felt like something went up my carotid to my head, dummy here even tried to catch it before it got to the top. I have also had this funny jab in my head off and on for a while, but usually they are spaced out pretty good. All of a sudden this has changed in the last 2 weeks,

the pain has started coming more often. I get a less severe pain almost always in the same spot as the other that feels like someone is trying to push something through my head, it hurts like the dickens but doesn't last as long as the other, the difference is it has started making me dizzy and nauseous, which lasts for 20 or 25 minutes even though the pain has stopped. It's never done that before. What is this? Any ideas? I know you guys are not doctors, but I trust your answers more. You have been there and seem to understand the weird way I ask a question. Sorry about that by the way. As always//Connie How low will we go? Check out Yahoo! Messenger�s low PC-to-Phone call rates. Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2�/min with Yahoo! Messenger with Voice. __________________________________________________

[Guest guest]

Hi Jeanne, I am on Cymbalta. Which is an antidepressant that helps with the pain. It doesn't help all the pain , I am also on a Duragesic patch and have vicodin on hand as well. But I noticed you said your antidpressant helped. DebbieJeanne Betters wrote: Oh Connie - that STINKS!! (But you gave me a giggle with the mental picture... wouldn't you just like to see that happen to your doctors just once? LOL!) How do they find granulomas if they can't do an MRI??? Do they even try? It's always something else, isn't it? Unbelievable. Well, we're stronger than we seem, don't we know it? I hope they will at least try some sort of pain blocker for you. The anti-depressant really

works for me - it's amazing. And, it keeps me annoyingly chipper, too! Hugs, Jeannie Connie Griffis wrote: Jeanne, Thanks so much for the information. I am so thankful that you all are kind enough to answer my questions. As to MRI's, I wish I could have one since they seem better at locating our hateful little friends (granulomas), however I have an InSyncIII Pacemaker so I can not have an MRI. I'd look like that doctor in the old suspense movie, he's chasing the good guys and they run through the MRI room, turn on the machine and the bad guy ends up stuck to the top of the MRI by my pacer, ouch...that hurt. Thanks again///ConnieJeanne Betters wrote: Hi Connie - Sorry this is a little late. I've been offline for a little while. When I "got sick" it all started with the strangest sensation in my head that felt like a little baby's fist twisting around. It made me very lightheaded and dizzy... Like the entire room was going white and I was floating. It was awful. After a few visits to the doctor, he took me seriously. The MRI showed a granuloma (?I think that's what they called it) right where I told them - smack dab in the middle of my head at the top of my spinal chord. They said it's not life threatening, but I have since suffered excruciating headaches

that sound similar to what you are experiencing. I usually say it's like a couple of swords sticking up through the base of my neck up through the top of my head. The pain was unbearable until they got me on the right meds. They tried various anti-depressants (pain blockers) unti we found one I can deal with - I can't remember the brand name, but the generic is Amitryptalin. Anyhow, I think it would be a good idea to ask if they would do an MRI for you. I have them about every six months and so far this is the only one. I hope you feel better. I know it can be miserable. And believe me, when they called with the results I was convinced I was dying! LOL! My family was just really happy that they actually FOUND a brain up there! LOL!!! You'll be in my prayers for certain. Please let me know how you make out, ok?Hugs, JeannieConnie Griffis wrote: Hi Everybody, Hope everything is going ok with you all. I have a question if you don't mind. I have had trouble off and on with an unusual pain mostly in the right side of my head above my ear. 2 of 3 times this pain has felt like someone stuck a 38 to my head and pulled the trigger, the only thing that I imagine would be different was it took a while for the pain to stop, and the very last time this happened it felt like something went up my carotid to my head, dummy here even tried to catch it before it got to the top. I have also had this funny jab in my head off and on for a while, but usually they are spaced out pretty good. All of a sudden this has changed in the last 2 weeks,

the pain has started coming more often. I get a less severe pain almost always in the same spot as the other that feels like someone is trying to push something through my head, it hurts like the dickens but doesn't last as long as the other, the difference is it has started making me dizzy and nauseous, which lasts for 20 or 25 minutes even though the pain has stopped. It's never done that before. What is this? Any ideas? I know you guys are not doctors, but I trust your answers more. You have been there and seem to understand the weird way I ask a question. Sorry about that by the way. As always//Connie How low will we go? Check out Yahoo! Messenger�s low PC-to-Phone call rates. Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2�/min with Yahoo! Messenger with Voice. __________________________________________________

[Guest guest]

Hi Debbie! They had me on Cymbalta, but it didn't do a dang thing for me. The Amitryptalin works... I just wish I could remember what the brand name was. I'll have to ask my husband. They have me on that and Toprol XL for high blood pressure. My doctor said he believes my blood pressure was so high due to pain (I can't remember what it was, but my foster daughter Penny had a fit when she heard what it was - she's a nurse's aide at a nursing home.). When I take both, for the most part, I'm good. Just before my "special time" each month, I'm in awful AWFUL "I can't move, don't bug me, I really love you, but please go somewhere else, have some fun and leave me alone for a while" kind of pain, but it goes away after a few days. My headaches are so awful when they come. And it's weird because even though I can't feel the pain of them, I always "feel" them - like

my head seems always on the verge of horrific pain. I can't explain it, but it's there. And my arms are always achey. I actually started getting tingly numbness in my feet last week, which really freaked me out, but it has only come once or twice. I didn't tell anyone because I don't want people to make a big deal of it. They'd make me go back to the neurologist and he'd make me feel like I was crazy, so I'll deal with these little surprises until I can't handle them anymore. I am going to see a new neurologist soon. I'm hoping that she will be more help than the doctor(s) I see now. How are you doing? Hugs, Jeannie Debbie wrote: Hi

Jeanne, I am on Cymbalta. Which is an antidepressant that helps with the pain. It doesn't help all the pain , I am also on a Duragesic patch and have vicodin on hand as well. But I noticed you said your antidpressant helped. DebbieJeanne Betters wrote: Oh Connie - that STINKS!! (But you gave me a giggle with the mental picture... wouldn't you just like to see that happen to your doctors just once? LOL!) How do they find granulomas if they can't do an MRI??? Do they even try? It's always something else, isn't it? Unbelievable. Well, we're stronger than we seem, don't we know it? I hope they will at least try some sort of pain blocker for you. The anti-depressant really works for

me - it's amazing. And, it keeps me annoyingly chipper, too! Hugs, Jeannie Connie Griffis wrote: Jeanne, Thanks so much for the information. I am so thankful that you all are kind enough to answer my questions. As to MRI's, I wish I could have one since they seem better at locating our hateful little friends (granulomas), however I have an InSyncIII Pacemaker so I can not have an MRI. I'd look like that doctor in the old suspense movie, he's chasing the good guys and they run through the MRI room, turn on the machine and the bad guy ends up stuck to the top of the MRI by my pacer, ouch...that hurt. Thanks again///ConnieJeanne Betters wrote: Hi Connie - Sorry this is a little late. I've been offline for a little while. When I "got sick" it all started with the strangest sensation in my head that felt like a little baby's fist twisting around. It made me very lightheaded and dizzy... Like the entire room was going white and I was floating. It was awful. After a few visits to the doctor, he took me seriously. The MRI showed a granuloma (?I think that's what they called it) right where I told them - smack dab in the middle of my head at the top of my spinal chord. They said it's not life threatening, but I have since suffered excruciating headaches that

sound similar to what you are experiencing. I usually say it's like a couple of swords sticking up through the base of my neck up through the top of my head. The pain was unbearable until they got me on the right meds. They tried various anti-depressants (pain blockers) unti we found one I can deal with - I can't remember the brand name, but the generic is Amitryptalin. Anyhow, I think it would be a good idea to ask if they would do an MRI for you. I have them about every six months and so far this is the only one. I hope you feel better. I know it can be miserable. And believe me, when they called with the results I was convinced I was dying! LOL! My family was just really happy that they actually FOUND a brain up there! LOL!!! You'll be in my prayers for certain. Please let me know how you make out, ok?Hugs, JeannieConnie Griffis wrote: Hi Everybody, Hope everything is going ok with you all. I have a question if you don't mind. I have had trouble off and on with an unusual pain mostly in the right side of my head above my ear. 2 of 3 times this pain has felt like someone stuck a 38 to my head and pulled the trigger, the only thing that I imagine would be different was it took a while for the pain to stop, and the very last time this happened it felt like something went up my carotid to my head, dummy here even tried to catch it before it got to the top. I have also had this funny jab in my head off and on for a while, but usually they are spaced out pretty good. All of a sudden this has changed in the last 2 weeks, the

pain has started coming more often. I get a less severe pain almost always in the same spot as the other that feels like someone is trying to push something through my head, it hurts like the dickens but doesn't last as long as the other, the difference is it has started making me dizzy and nauseous, which lasts for 20 or 25 minutes even though the pain has stopped. It's never done that before. What is this? Any ideas? I know you guys are not doctors, but I trust your answers more. You have been there and seem to understand the weird way I ask a question. Sorry about that by the way. As always//Connie How low will we go? Check out Yahoo! Messenger�s low PC-to-Phone call rates. Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2�/min with Yahoo! Messenger with Voice. __________________________________________________