Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Is anyone doing tube feedings or liquid diets with SCD? This has become our most recent situation and I'd love to email with other parents doing this as well. I know in the past there have been a few posts about this. Not many, but a couple! Thanks for any input! Feel free to email me privately. Thanks Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 > > Is anyone doing tube feedings or liquid diets with SCD? This has become > our most recent situation and I'd love to email with other parents doing > this as well. I know in the past there have been a few posts about > this. Not many, but a couple! Thanks for any input! Feel free to > email me privately. Thanks Deb > Hi Deb: I was so excited when I read your message. My child (, 11 years old, autistic, UC since Feb. 05, SCD since June 2005, no meds.) He did wonderful until Oct. 05 that he got Clostridium Difficile, it was so bad that caused a clostridium difficile colitis flare up. He spent a month at the hospital with a pancolitis. Today, It's been a week that we are back home, he is on 40mg. of prednisone, 50 mg. of 6MP, and 2000 cal. of TPN tube feeding (12 hours day). I am doing liquid diet as well. Feel free to contact me, maybe we can help each other to get out of this stage. Thanks, Ana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 > > Is anyone doing tube feedings or liquid diets with SCD? This has become > our most recent situation and I'd love to email with other parents doing > this as well. I know in the past there have been a few posts about > this. Not many, but a couple! Thanks for any input! Feel free to > email me privately. Thanks Deb > Hi Deb: I was so excited when I read your message. My child (, 11 years old, autistic, UC since Feb. 05, SCD since June 2005, no meds.) He did wonderful until Oct. 05 that he got Clostridium Difficile, it was so bad that caused a clostridium difficile colitis flare up. He spent a month at the hospital with a pancolitis. Today, It's been a week that we are back home, he is on 40mg. of prednisone, 50 mg. of 6MP, and 2000 cal. of TPN tube feeding (12 hours day). I am doing liquid diet as well. Feel free to contact me, maybe we can help each other to get out of this stage. Thanks, Ana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 > > Is anyone doing tube feedings or liquid diets with SCD? This has become > our most recent situation and I'd love to email with other parents doing > this as well. I know in the past there have been a few posts about > this. Not many, but a couple! Thanks for any input! Feel free to > email me privately. Thanks Deb > Hi Deb: I was so excited when I read your message. My child (, 11 years old, autistic, UC since Feb. 05, SCD since June 2005, no meds.) He did wonderful until Oct. 05 that he got Clostridium Difficile, it was so bad that caused a clostridium difficile colitis flare up. He spent a month at the hospital with a pancolitis. Today, It's been a week that we are back home, he is on 40mg. of prednisone, 50 mg. of 6MP, and 2000 cal. of TPN tube feeding (12 hours day). I am doing liquid diet as well. Feel free to contact me, maybe we can help each other to get out of this stage. Thanks, Ana Quote Link to comment Share on other sites More sharing options...
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