Re: Good News From Doc? Celiac Block?

[Guest guest]

Fer what it's worth...my pain specialist told me that she flat-out does not

believe blocks are worthwhile for pancreas patients. I know some folks here

have had good experiences with them, though. Also strong pain meds do not

necessarily limit your activity - in my case, I have more activity than if I

don't take them.

Hang in there, Heidi.

Jerry/NC

Good News From Doc? Celiac Block?

> My GI called tonight for a long telephone appointment. He had

> gotten the radiology report from Friday's CT-scan and wanted to

> review that and talk to me about any health changes since

> March. The good news was reassuring, my largest pseudocyst

> has reduced to 3 cm. around from 3.6 cm. and the other two

> smaller ones at the tail also showed " very significant " reduction!

> He was optimistic, that with more time, total resolution may be

> possible.

>

> I told him that my pain had been increasing in duration and

> happening more frequently, and that the Percocet was not that

> effective anymore, and that I wished the pain would resolve, too!

> He sort of laughed and said that unfortunately, that wouldn't

> happen, but that if this had become more of a problem it was

> time for other options. He said he felt it was time to see an

> anesthesia specialist with a pain mangement clinic to discuss

> the options of a celiac block and/or longer acting pain meds. I

> told him I knew of one in a neighboring town that was highly

> recommended by my sister-in-law with lupus, and he said he

> had no objections, I could go to that doctor, or there were two

> others he could recommend. Whatever I wanted.

>

> Needless to say, I was floored! The long persuasive speech I'd

> been memorizing for the last few weeks to discuss this very

> subject was totally unnecessary. He said he'd be happy to work

> with whomever I chose and would fax all my records to them as

> soon as I requested it.

>

> I'd like to hear anyone's feedback on celiac blocks, again. If you

> have had this done, was it effective, and for how long? I'm trying

> to weigh the advantages/disadvantages of this option as

> opposed to moving up to a longer acting medication. At this

> point I'm leaning toward a stronger pain medication as a first

> choice, but am wondering how much that will limit my activity,

> since I am on my own raising a child much of the time and those

> times I have to be able to function with little impairment.

>

> So any advice, experience or comments would be very welcome!

> This group is the best sounding board ever. I know I can

> research everything possible on the blocks, and the drugs, and I

> will, but your personal experience with both would be helpful.

>

> With hope and prayers,

> Heidi

>

>

> Heidi H. Griffeth - SC

> hhessgriffeth@...

> Southeastern Representative

> Pancreatitis Association, Intl.

>

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit & quot;reply & quot; or send an e-mail

to: Pancreatitis (AT) Yahoo

>

>

[Guest guest]

Fer what it's worth...my pain specialist told me that she flat-out does not

believe blocks are worthwhile for pancreas patients. I know some folks here

have had good experiences with them, though. Also strong pain meds do not

necessarily limit your activity - in my case, I have more activity than if I

don't take them.

Hang in there, Heidi.

Jerry/NC

Good News From Doc? Celiac Block?

> My GI called tonight for a long telephone appointment. He had

> gotten the radiology report from Friday's CT-scan and wanted to

> review that and talk to me about any health changes since

> March. The good news was reassuring, my largest pseudocyst

> has reduced to 3 cm. around from 3.6 cm. and the other two

> smaller ones at the tail also showed " very significant " reduction!

> He was optimistic, that with more time, total resolution may be

> possible.

>

> I told him that my pain had been increasing in duration and

> happening more frequently, and that the Percocet was not that

> effective anymore, and that I wished the pain would resolve, too!

> He sort of laughed and said that unfortunately, that wouldn't

> happen, but that if this had become more of a problem it was

> time for other options. He said he felt it was time to see an

> anesthesia specialist with a pain mangement clinic to discuss

> the options of a celiac block and/or longer acting pain meds. I

> told him I knew of one in a neighboring town that was highly

> recommended by my sister-in-law with lupus, and he said he

> had no objections, I could go to that doctor, or there were two

> others he could recommend. Whatever I wanted.

>

> Needless to say, I was floored! The long persuasive speech I'd

> been memorizing for the last few weeks to discuss this very

> subject was totally unnecessary. He said he'd be happy to work

> with whomever I chose and would fax all my records to them as

> soon as I requested it.

>

> I'd like to hear anyone's feedback on celiac blocks, again. If you

> have had this done, was it effective, and for how long? I'm trying

> to weigh the advantages/disadvantages of this option as

> opposed to moving up to a longer acting medication. At this

> point I'm leaning toward a stronger pain medication as a first

> choice, but am wondering how much that will limit my activity,

> since I am on my own raising a child much of the time and those

> times I have to be able to function with little impairment.

>

> So any advice, experience or comments would be very welcome!

> This group is the best sounding board ever. I know I can

> research everything possible on the blocks, and the drugs, and I

> will, but your personal experience with both would be helpful.

>

> With hope and prayers,

> Heidi

>

>

> Heidi H. Griffeth - SC

> hhessgriffeth@...

> Southeastern Representative

> Pancreatitis Association, Intl.

>

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit & quot;reply & quot; or send an e-mail

to: Pancreatitis (AT) Yahoo

>

>

[Guest guest]

Fer what it's worth...my pain specialist told me that she flat-out does not

believe blocks are worthwhile for pancreas patients. I know some folks here

have had good experiences with them, though. Also strong pain meds do not

necessarily limit your activity - in my case, I have more activity than if I

don't take them.

Hang in there, Heidi.

Jerry/NC

Good News From Doc? Celiac Block?

> My GI called tonight for a long telephone appointment. He had

> gotten the radiology report from Friday's CT-scan and wanted to

> review that and talk to me about any health changes since

> March. The good news was reassuring, my largest pseudocyst

> has reduced to 3 cm. around from 3.6 cm. and the other two

> smaller ones at the tail also showed " very significant " reduction!

> He was optimistic, that with more time, total resolution may be

> possible.

>

> I told him that my pain had been increasing in duration and

> happening more frequently, and that the Percocet was not that

> effective anymore, and that I wished the pain would resolve, too!

> He sort of laughed and said that unfortunately, that wouldn't

> happen, but that if this had become more of a problem it was

> time for other options. He said he felt it was time to see an

> anesthesia specialist with a pain mangement clinic to discuss

> the options of a celiac block and/or longer acting pain meds. I

> told him I knew of one in a neighboring town that was highly

> recommended by my sister-in-law with lupus, and he said he

> had no objections, I could go to that doctor, or there were two

> others he could recommend. Whatever I wanted.

>

> Needless to say, I was floored! The long persuasive speech I'd

> been memorizing for the last few weeks to discuss this very

> subject was totally unnecessary. He said he'd be happy to work

> with whomever I chose and would fax all my records to them as

> soon as I requested it.

>

> I'd like to hear anyone's feedback on celiac blocks, again. If you

> have had this done, was it effective, and for how long? I'm trying

> to weigh the advantages/disadvantages of this option as

> opposed to moving up to a longer acting medication. At this

> point I'm leaning toward a stronger pain medication as a first

> choice, but am wondering how much that will limit my activity,

> since I am on my own raising a child much of the time and those

> times I have to be able to function with little impairment.

>

> So any advice, experience or comments would be very welcome!

> This group is the best sounding board ever. I know I can

> research everything possible on the blocks, and the drugs, and I

> will, but your personal experience with both would be helpful.

>

> With hope and prayers,

> Heidi

>

>

> Heidi H. Griffeth - SC

> hhessgriffeth@...

> Southeastern Representative

> Pancreatitis Association, Intl.

>

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit & quot;reply & quot; or send an e-mail

to: Pancreatitis (AT) Yahoo

>

>

[Guest guest]

Heidi,

I went for the longer pain medication. I find I am able to

do a lot more taking these. They started me out on a very

small dose and then raised it based on the fact that I was

also having to take the maximum dose of my breakthrough pain

meds on a daily basis, in addition to the long acting.

Hope this helps.

Kimber

--

Kimber

hominid2@...

Southwest Representative

Pancreatitis Association, International

[Guest guest]

Heidi,

I went for the longer pain medication. I find I am able to

do a lot more taking these. They started me out on a very

small dose and then raised it based on the fact that I was

also having to take the maximum dose of my breakthrough pain

meds on a daily basis, in addition to the long acting.

Hope this helps.

Kimber

--

Kimber

hominid2@...

Southwest Representative

Pancreatitis Association, International

[Guest guest]

Heidi,

I went for the longer pain medication. I find I am able to

do a lot more taking these. They started me out on a very

small dose and then raised it based on the fact that I was

also having to take the maximum dose of my breakthrough pain

meds on a daily basis, in addition to the long acting.

Hope this helps.

Kimber

--

Kimber

hominid2@...

Southwest Representative

Pancreatitis Association, International

[Guest guest]

Hi Heidi,

My first block was 3 months ago and lasted for a total of 2 days. My

second block was last month and it never took, in fact since that last block

I find myself in more pain which has me taking double pain medication than

before they did it. My pain management Dr said that its obvious that the

blocks are not good for me, but then again everyones body is different. My

next appointment is in August and they are talking about a morphine pain

pump. Pancreatitis has changed my life completely ..... I feel as though my

life is ..pop pills which knock me out for 2 hours only to wake up in pain

and then it's. pop pills and get knocked out all over again. If you ask me

I'd rather be dead !!!

KimNY

[Guest guest]

Hi Heidi,

My first block was 3 months ago and lasted for a total of 2 days. My

second block was last month and it never took, in fact since that last block

I find myself in more pain which has me taking double pain medication than

before they did it. My pain management Dr said that its obvious that the

blocks are not good for me, but then again everyones body is different. My

next appointment is in August and they are talking about a morphine pain

pump. Pancreatitis has changed my life completely ..... I feel as though my

life is ..pop pills which knock me out for 2 hours only to wake up in pain

and then it's. pop pills and get knocked out all over again. If you ask me

I'd rather be dead !!!

KimNY

[Guest guest]

Hi Heidi,

My first block was 3 months ago and lasted for a total of 2 days. My

second block was last month and it never took, in fact since that last block

I find myself in more pain which has me taking double pain medication than

before they did it. My pain management Dr said that its obvious that the

blocks are not good for me, but then again everyones body is different. My

next appointment is in August and they are talking about a morphine pain

pump. Pancreatitis has changed my life completely ..... I feel as though my

life is ..pop pills which knock me out for 2 hours only to wake up in pain

and then it's. pop pills and get knocked out all over again. If you ask me

I'd rather be dead !!!

KimNY

[Guest guest]

Ellen.

My block was done by a Pain Specialist (Anestegologest) (sp)

[Guest guest]

Ellen.

My block was done by a Pain Specialist (Anestegologest) (sp)

[Guest guest]

> Hi Heidi,

> My first block was 3 months ago and lasted for a total of

2 days. My

> second block was last month and it never took, in fact since that

last block

> I find myself in more pain which has me taking double pain

medication than

> before they did it. My pain management Dr said that its obvious

that the

> blocks are not good for me, but then again everyones body is

different. My

> next appointment is in August and they are talking about a morphine

pain

> pump. Pancreatitis has changed my life completely ..... I feel as

though my

> life is ..pop pills which knock me out for 2 hours only to wake up

in pain

> and then it's. pop pills and get knocked out all over again. If you

ask me

> I'd rather be dead !!!

> KimNY

>

>

>

[Guest guest]

> Hi Heidi,

> My first block was 3 months ago and lasted for a total of

2 days. My

> second block was last month and it never took, in fact since that

last block

> I find myself in more pain which has me taking double pain

medication than

> before they did it. My pain management Dr said that its obvious

that the

> blocks are not good for me, but then again everyones body is

different. My

> next appointment is in August and they are talking about a morphine

pain

> pump. Pancreatitis has changed my life completely ..... I feel as

though my

> life is ..pop pills which knock me out for 2 hours only to wake up

in pain

> and then it's. pop pills and get knocked out all over again. If you

ask me

> I'd rather be dead !!!

> KimNY

>

>

>

[Guest guest]

> Ellen.

> My block was done by a Pain Specialist (Anestegologest) (sp)

>

>

>

[Guest guest]

> Ellen.

> My block was done by a Pain Specialist (Anestegologest) (sp)

>

>

>

[Guest guest]

Heidi,

I am very happy that your cysts have decreased in size. I am also pleased

that your doc was a willing particpant in your tretament plan. I can't tell

you much about the blocks as I have not had one but I think Ellen and a few

others have. I think that you may want to consider the long acting pills as

they are mostly time released and don;t give you that buzzed, high or

drowzy feeling. I imagin the pain doc will be able to help you with that

info. I am just afraid of the blocks as they have side effects and not

alwayseffective. I know somw have had good results and I would only have one

done by a doc that has ton TONS of them and knows what they are doing. Pick

their brains, then you will know what will work best for you. You may even

want to consider going to more than one doc for a second opinion as well. Is

MUSC a possibility ? I bet they have some pretty good pain docs ???????????

Lily

Good News From Doc? Celiac Block?

> My GI called tonight for a long telephone appointment. He had

> gotten the radiology report from Friday's CT-scan and wanted to

> review that and talk to me about any health changes since

> March. The good news was reassuring, my largest pseudocyst

> has reduced to 3 cm. around from 3.6 cm. and the other two

> smaller ones at the tail also showed " very significant " reduction!

> He was optimistic, that with more time, total resolution may be

> possible.

>

> I told him that my pain had been increasing in duration and

> happening more frequently, and that the Percocet was not that

> effective anymore, and that I wished the pain would resolve, too!

> He sort of laughed and said that unfortunately, that wouldn't

> happen, but that if this had become more of a problem it was

> time for other options. He said he felt it was time to see an

> anesthesia specialist with a pain mangement clinic to discuss

> the options of a celiac block and/or longer acting pain meds. I

> told him I knew of one in a neighboring town that was highly

> recommended by my sister-in-law with lupus, and he said he

> had no objections, I could go to that doctor, or there were two

> others he could recommend. Whatever I wanted.

>

> Needless to say, I was floored! The long persuasive speech I'd

> been memorizing for the last few weeks to discuss this very

> subject was totally unnecessary. He said he'd be happy to work

> with whomever I chose and would fax all my records to them as

> soon as I requested it.

>

> I'd like to hear anyone's feedback on celiac blocks, again. If you

> have had this done, was it effective, and for how long? I'm trying

> to weigh the advantages/disadvantages of this option as

> opposed to moving up to a longer acting medication. At this

> point I'm leaning toward a stronger pain medication as a first

> choice, but am wondering how much that will limit my activity,

> since I am on my own raising a child much of the time and those

> times I have to be able to function with little impairment.

>

> So any advice, experience or comments would be very welcome!

> This group is the best sounding board ever. I know I can

> research everything possible on the blocks, and the drugs, and I

> will, but your personal experience with both would be helpful.

>

> With hope and prayers,

> Heidi

>

>

> Heidi H. Griffeth - SC

> hhessgriffeth@...

> Southeastern Representative

> Pancreatitis Association, Intl.

>

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit & quot;reply & quot; or send an e-mail

to: Pancreatitis (AT) Yahoo

>

>

[Guest guest]

Heidi,

I am very happy that your cysts have decreased in size. I am also pleased

that your doc was a willing particpant in your tretament plan. I can't tell

you much about the blocks as I have not had one but I think Ellen and a few

others have. I think that you may want to consider the long acting pills as

they are mostly time released and don;t give you that buzzed, high or

drowzy feeling. I imagin the pain doc will be able to help you with that

info. I am just afraid of the blocks as they have side effects and not

alwayseffective. I know somw have had good results and I would only have one

done by a doc that has ton TONS of them and knows what they are doing. Pick

their brains, then you will know what will work best for you. You may even

want to consider going to more than one doc for a second opinion as well. Is

MUSC a possibility ? I bet they have some pretty good pain docs ???????????

Lily

Good News From Doc? Celiac Block?

> My GI called tonight for a long telephone appointment. He had

> gotten the radiology report from Friday's CT-scan and wanted to

> review that and talk to me about any health changes since

> March. The good news was reassuring, my largest pseudocyst

> has reduced to 3 cm. around from 3.6 cm. and the other two

> smaller ones at the tail also showed " very significant " reduction!

> He was optimistic, that with more time, total resolution may be

> possible.

>

> I told him that my pain had been increasing in duration and

> happening more frequently, and that the Percocet was not that

> effective anymore, and that I wished the pain would resolve, too!

> He sort of laughed and said that unfortunately, that wouldn't

> happen, but that if this had become more of a problem it was

> time for other options. He said he felt it was time to see an

> anesthesia specialist with a pain mangement clinic to discuss

> the options of a celiac block and/or longer acting pain meds. I

> told him I knew of one in a neighboring town that was highly

> recommended by my sister-in-law with lupus, and he said he

> had no objections, I could go to that doctor, or there were two

> others he could recommend. Whatever I wanted.

>

> Needless to say, I was floored! The long persuasive speech I'd

> been memorizing for the last few weeks to discuss this very

> subject was totally unnecessary. He said he'd be happy to work

> with whomever I chose and would fax all my records to them as

> soon as I requested it.

>

> I'd like to hear anyone's feedback on celiac blocks, again. If you

> have had this done, was it effective, and for how long? I'm trying

> to weigh the advantages/disadvantages of this option as

> opposed to moving up to a longer acting medication. At this

> point I'm leaning toward a stronger pain medication as a first

> choice, but am wondering how much that will limit my activity,

> since I am on my own raising a child much of the time and those

> times I have to be able to function with little impairment.

>

> So any advice, experience or comments would be very welcome!

> This group is the best sounding board ever. I know I can

> research everything possible on the blocks, and the drugs, and I

> will, but your personal experience with both would be helpful.

>

> With hope and prayers,

> Heidi

>

>

> Heidi H. Griffeth - SC

> hhessgriffeth@...

> Southeastern Representative

> Pancreatitis Association, Intl.

>

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit & quot;reply & quot; or send an e-mail

to: Pancreatitis (AT) Yahoo

>

>

[Guest guest]

Please remove EduSeminar.org from your mailing list.

Thanks!

--- llakovo llakovo@...> wrote:

> Heidi,

> I am very happy that your cysts have decreased in size. I am also

> pleased

> that your doc was a willing particpant in your tretament plan. I

> can't tell

> you much about the blocks as I have not had one but I think Ellen

> and a few

> others have. I think that you may want to consider the long acting

> pills as

> they are mostly time released and don;t give you that buzzed,

> high or

> drowzy feeling. I imagin the pain doc will be able to help you with

> that

> info. I am just afraid of the blocks as they have side effects and

> not

> alwayseffective. I know somw have had good results and I would only

> have one

> done by a doc that has ton TONS of them and knows what they are

> doing. Pick

> their brains, then you will know what will work best for you. You

> may even

> want to consider going to more than one doc for a second opinion as

> well. Is

> MUSC a possibility ? I bet they have some pretty good pain docs

> ???????????

> Lily

> Good News From Doc? Celiac Block?

>

>

> > My GI called tonight for a long telephone appointment. He had

> > gotten the radiology report from Friday's CT-scan and wanted to

> > review that and talk to me about any health changes since

> > March. The good news was reassuring, my largest pseudocyst

> > has reduced to 3 cm. around from 3.6 cm. and the other two

> > smaller ones at the tail also showed " very significant "

> reduction!

> > He was optimistic, that with more time, total resolution may be

> > possible.

> >

> > I told him that my pain had been increasing in duration and

> > happening more frequently, and that the Percocet was not that

> > effective anymore, and that I wished the pain would resolve, too!

> > He sort of laughed and said that unfortunately, that wouldn't

> > happen, but that if this had become more of a problem it was

> > time for other options. He said he felt it was time to see an

> > anesthesia specialist with a pain mangement clinic to discuss

> > the options of a celiac block and/or longer acting pain meds. I

> > told him I knew of one in a neighboring town that was highly

> > recommended by my sister-in-law with lupus, and he said he

> > had no objections, I could go to that doctor, or there were two

> > others he could recommend. Whatever I wanted.

> >

> > Needless to say, I was floored! The long persuasive speech I'd

> > been memorizing for the last few weeks to discuss this very

> > subject was totally unnecessary. He said he'd be happy to work

> > with whomever I chose and would fax all my records to them as

> > soon as I requested it.

> >

> > I'd like to hear anyone's feedback on celiac blocks, again. If

> you

> > have had this done, was it effective, and for how long? I'm

> trying

> > to weigh the advantages/disadvantages of this option as

> > opposed to moving up to a longer acting medication. At this

> > point I'm leaning toward a stronger pain medication as a first

> > choice, but am wondering how much that will limit my activity,

> > since I am on my own raising a child much of the time and those

> > times I have to be able to function with little impairment.

> >

> > So any advice, experience or comments would be very welcome!

> > This group is the best sounding board ever. I know I can

> > research everything possible on the blocks, and the drugs, and I

> > will, but your personal experience with both would be helpful.

> >

> > With hope and prayers,

> > Heidi

> >

> >

> > Heidi H. Griffeth - SC

> > hhessgriffeth@...

> > Southeastern Representative

> > Pancreatitis Association, Intl.

> >

> >

> > PANCREATITIS Association, Intl.

> > Online e-mail group

> >

> > To reply to this message hit & quot;reply & quot; or send an

> e-mail

> to: Pancreatitis (AT) Yahoo

> >

> >

[Guest guest]

Please remove EduSeminar.org from your mailing list.

Thanks!

--- llakovo llakovo@...> wrote:

> Heidi,

> I am very happy that your cysts have decreased in size. I am also

> pleased

> that your doc was a willing particpant in your tretament plan. I

> can't tell

> you much about the blocks as I have not had one but I think Ellen

> and a few

> others have. I think that you may want to consider the long acting

> pills as

> they are mostly time released and don;t give you that buzzed,

> high or

> drowzy feeling. I imagin the pain doc will be able to help you with

> that

> info. I am just afraid of the blocks as they have side effects and

> not

> alwayseffective. I know somw have had good results and I would only

> have one

> done by a doc that has ton TONS of them and knows what they are

> doing. Pick

> their brains, then you will know what will work best for you. You

> may even

> want to consider going to more than one doc for a second opinion as

> well. Is

> MUSC a possibility ? I bet they have some pretty good pain docs

> ???????????

> Lily

> Good News From Doc? Celiac Block?

>

>

> > My GI called tonight for a long telephone appointment. He had

> > gotten the radiology report from Friday's CT-scan and wanted to

> > review that and talk to me about any health changes since

> > March. The good news was reassuring, my largest pseudocyst

> > has reduced to 3 cm. around from 3.6 cm. and the other two

> > smaller ones at the tail also showed " very significant "

> reduction!

> > He was optimistic, that with more time, total resolution may be

> > possible.

> >

> > I told him that my pain had been increasing in duration and

> > happening more frequently, and that the Percocet was not that

> > effective anymore, and that I wished the pain would resolve, too!

> > He sort of laughed and said that unfortunately, that wouldn't

> > happen, but that if this had become more of a problem it was

> > time for other options. He said he felt it was time to see an

> > anesthesia specialist with a pain mangement clinic to discuss

> > the options of a celiac block and/or longer acting pain meds. I

> > told him I knew of one in a neighboring town that was highly

> > recommended by my sister-in-law with lupus, and he said he

> > had no objections, I could go to that doctor, or there were two

> > others he could recommend. Whatever I wanted.

> >

> > Needless to say, I was floored! The long persuasive speech I'd

> > been memorizing for the last few weeks to discuss this very

> > subject was totally unnecessary. He said he'd be happy to work

> > with whomever I chose and would fax all my records to them as

> > soon as I requested it.

> >

> > I'd like to hear anyone's feedback on celiac blocks, again. If

> you

> > have had this done, was it effective, and for how long? I'm

> trying

> > to weigh the advantages/disadvantages of this option as

> > opposed to moving up to a longer acting medication. At this

> > point I'm leaning toward a stronger pain medication as a first

> > choice, but am wondering how much that will limit my activity,

> > since I am on my own raising a child much of the time and those

> > times I have to be able to function with little impairment.

> >

> > So any advice, experience or comments would be very welcome!

> > This group is the best sounding board ever. I know I can

> > research everything possible on the blocks, and the drugs, and I

> > will, but your personal experience with both would be helpful.

> >

> > With hope and prayers,

> > Heidi

> >

> >

> > Heidi H. Griffeth - SC

> > hhessgriffeth@...

> > Southeastern Representative

> > Pancreatitis Association, Intl.

> >

> >

> > PANCREATITIS Association, Intl.

> > Online e-mail group

> >

> > To reply to this message hit & quot;reply & quot; or send an

> e-mail

> to: Pancreatitis (AT) Yahoo

> >

> >

[Guest guest]

-Hi Heidi

I had a celiac block and it was very painful getting the needles in.

It only gave me a few hours of relief.

I then went and had my nerves cut and that didnt work either

Cheers

Debs

-- In pancreatitis@y..., " hhessgriffeth " wrote:

> My GI called tonight for a long telephone appointment. He had

> gotten the radiology report from Friday's CT-scan and wanted to

> review that and talk to me about any health changes since

> March. The good news was reassuring, my largest pseudocyst

> has reduced to 3 cm. around from 3.6 cm. and the other two

> smaller ones at the tail also showed " very significant "

reduction!

> He was optimistic, that with more time, total resolution may be

> possible.

>

> I told him that my pain had been increasing in duration and

> happening more frequently, and that the Percocet was not that

> effective anymore, and that I wished the pain would resolve, too!

> He sort of laughed and said that unfortunately, that wouldn't

> happen, but that if this had become more of a problem it was

> time for other options. He said he felt it was time to see an

> anesthesia specialist with a pain mangement clinic to discuss

> the options of a celiac block and/or longer acting pain meds. I

> told him I knew of one in a neighboring town that was highly

> recommended by my sister-in-law with lupus, and he said he

> had no objections, I could go to that doctor, or there were two

> others he could recommend. Whatever I wanted.

>

> Needless to say, I was floored! The long persuasive speech I'd

> been memorizing for the last few weeks to discuss this very

> subject was totally unnecessary. He said he'd be happy to work

> with whomever I chose and would fax all my records to them as

> soon as I requested it.

>

> I'd like to hear anyone's feedback on celiac blocks, again. If

you

> have had this done, was it effective, and for how long? I'm

trying

> to weigh the advantages/disadvantages of this option as

> opposed to moving up to a longer acting medication. At this

> point I'm leaning toward a stronger pain medication as a first

> choice, but am wondering how much that will limit my activity,

> since I am on my own raising a child much of the time and those

> times I have to be able to function with little impairment.

>

> So any advice, experience or comments would be very welcome!

> This group is the best sounding board ever. I know I can

> research everything possible on the blocks, and the drugs, and I

> will, but your personal experience with both would be helpful.

>

> With hope and prayers,

> Heidi

>

>

> Heidi H. Griffeth - SC

> hhessgriffeth@h...

> Southeastern Representative

> Pancreatitis Association, Intl.

[Guest guest]

-Hi Heidi

I had a celiac block and it was very painful getting the needles in.

It only gave me a few hours of relief.

I then went and had my nerves cut and that didnt work either

Cheers

Debs

-- In pancreatitis@y..., " hhessgriffeth " wrote:

> My GI called tonight for a long telephone appointment. He had

> gotten the radiology report from Friday's CT-scan and wanted to

> review that and talk to me about any health changes since

> March. The good news was reassuring, my largest pseudocyst

> has reduced to 3 cm. around from 3.6 cm. and the other two

> smaller ones at the tail also showed " very significant "

reduction!

> He was optimistic, that with more time, total resolution may be

> possible.

>

> I told him that my pain had been increasing in duration and

> happening more frequently, and that the Percocet was not that

> effective anymore, and that I wished the pain would resolve, too!

> He sort of laughed and said that unfortunately, that wouldn't

> happen, but that if this had become more of a problem it was

> time for other options. He said he felt it was time to see an

> anesthesia specialist with a pain mangement clinic to discuss

> the options of a celiac block and/or longer acting pain meds. I

> told him I knew of one in a neighboring town that was highly

> recommended by my sister-in-law with lupus, and he said he

> had no objections, I could go to that doctor, or there were two

> others he could recommend. Whatever I wanted.

>

> Needless to say, I was floored! The long persuasive speech I'd

> been memorizing for the last few weeks to discuss this very

> subject was totally unnecessary. He said he'd be happy to work

> with whomever I chose and would fax all my records to them as

> soon as I requested it.

>

> I'd like to hear anyone's feedback on celiac blocks, again. If

you

> have had this done, was it effective, and for how long? I'm

trying

> to weigh the advantages/disadvantages of this option as

> opposed to moving up to a longer acting medication. At this

> point I'm leaning toward a stronger pain medication as a first

> choice, but am wondering how much that will limit my activity,

> since I am on my own raising a child much of the time and those

> times I have to be able to function with little impairment.

>

> So any advice, experience or comments would be very welcome!

> This group is the best sounding board ever. I know I can

> research everything possible on the blocks, and the drugs, and I

> will, but your personal experience with both would be helpful.

>

> With hope and prayers,

> Heidi

>

>

> Heidi H. Griffeth - SC

> hhessgriffeth@h...

> Southeastern Representative

> Pancreatitis Association, Intl.

[Guest guest]

Heidi,

It was so kind of your doc to take the time to call you and want to help.

You should try the block, be be aware that they don't help everyone and

sometime it takes more that one try. I did have them tried on 2 separate

occassion, the first time was at Cleveland Clinic & the second time was at

Ohio State University in Columbus, OH.

At Osu the tried it 2 different times and neither time worked and then the

tried a temporary Pain Pump for one week to see if it would help, well I got

immediately releif, so after the week was up and I was continuing to get

releif they implanted a Pain Pump that would last 4-5 years before the

battery would stop working. Well, it been 4years & 5 monthes and mine is

still going stong and when it starts beeping because the battery is dying,

I'm definatel;y going to have it replaced. It is put out by medtronic and

it was developed for back pain and there isn't too much info on CP yet, but

it has definate help me with the pain. When I first had mine inplanted, I

needed it refill about every 3 months, but now a time has pasted and I have

gotten used to the morphine, it now need refilled once a month, but it's

worth it. I still have break thru pain the I have to take percocet for and

the pain is much worse when I'm having flare-ups, but overall on a daily

bases it does help alot with the everyday pain and well worth looking into

it the nerve blocks don't work for you. I keep you in my prayers that the

nerve block work well for you. Keep is posted on your progress. Hope your

feel better soon.

Take Care,

Louie in WV

Good News From Doc? Celiac Block?

> My GI called tonight for a long telephone appointment. He had

> gotten the radiology report from Friday's CT-scan and wanted to

> review that and talk to me about any health changes since

> March. The good news was reassuring, my largest pseudocyst

> has reduced to 3 cm. around from 3.6 cm. and the other two

> smaller ones at the tail also showed " very significant " reduction!

> He was optimistic, that with more time, total resolution may be

> possible.

>

> I told him that my pain had been increasing in duration and

> happening more frequently, and that the Percocet was not that

> effective anymore, and that I wished the pain would resolve, too!

> He sort of laughed and said that unfortunately, that wouldn't

> happen, but that if this had become more of a problem it was

> time for other options. He said he felt it was time to see an

> anesthesia specialist with a pain mangement clinic to discuss

> the options of a celiac block and/or longer acting pain meds. I

> told him I knew of one in a neighboring town that was highly

> recommended by my sister-in-law with lupus, and he said he

> had no objections, I could go to that doctor, or there were two

> others he could recommend. Whatever I wanted.

>

> Needless to say, I was floored! The long persuasive speech I'd

> been memorizing for the last few weeks to discuss this very

> subject was totally unnecessary. He said he'd be happy to work

> with whomever I chose and would fax all my records to them as

> soon as I requested it.

>

> I'd like to hear anyone's feedback on celiac blocks, again. If you

> have had this done, was it effective, and for how long? I'm trying

> to weigh the advantages/disadvantages of this option as

> opposed to moving up to a longer acting medication. At this

> point I'm leaning toward a stronger pain medication as a first

> choice, but am wondering how much that will limit my activity,

> since I am on my own raising a child much of the time and those

> times I have to be able to function with little impairment.

>

> So any advice, experience or comments would be very welcome!

> This group is the best sounding board ever. I know I can

> research everything possible on the blocks, and the drugs, and I

> will, but your personal experience with both would be helpful.

>

> With hope and prayers,

> Heidi

>

>

> Heidi H. Griffeth - SC

> hhessgriffeth@...

> Southeastern Representative

> Pancreatitis Association, Intl.

>

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit & quot;reply & quot; or send an e-mail

to: Pancreatitis (AT) Yahoo

>

>

[Guest guest]

Heidi,

It was so kind of your doc to take the time to call you and want to help.

You should try the block, be be aware that they don't help everyone and

sometime it takes more that one try. I did have them tried on 2 separate

occassion, the first time was at Cleveland Clinic & the second time was at

Ohio State University in Columbus, OH.

At Osu the tried it 2 different times and neither time worked and then the

tried a temporary Pain Pump for one week to see if it would help, well I got

immediately releif, so after the week was up and I was continuing to get

releif they implanted a Pain Pump that would last 4-5 years before the

battery would stop working. Well, it been 4years & 5 monthes and mine is

still going stong and when it starts beeping because the battery is dying,

I'm definatel;y going to have it replaced. It is put out by medtronic and

it was developed for back pain and there isn't too much info on CP yet, but

it has definate help me with the pain. When I first had mine inplanted, I

needed it refill about every 3 months, but now a time has pasted and I have

gotten used to the morphine, it now need refilled once a month, but it's

worth it. I still have break thru pain the I have to take percocet for and

the pain is much worse when I'm having flare-ups, but overall on a daily

bases it does help alot with the everyday pain and well worth looking into

it the nerve blocks don't work for you. I keep you in my prayers that the

nerve block work well for you. Keep is posted on your progress. Hope your

feel better soon.

Take Care,

Louie in WV

Good News From Doc? Celiac Block?

> My GI called tonight for a long telephone appointment. He had

> gotten the radiology report from Friday's CT-scan and wanted to

> review that and talk to me about any health changes since

> March. The good news was reassuring, my largest pseudocyst

> has reduced to 3 cm. around from 3.6 cm. and the other two

> smaller ones at the tail also showed " very significant " reduction!

> He was optimistic, that with more time, total resolution may be

> possible.

>

> I told him that my pain had been increasing in duration and

> happening more frequently, and that the Percocet was not that

> effective anymore, and that I wished the pain would resolve, too!

> He sort of laughed and said that unfortunately, that wouldn't

> happen, but that if this had become more of a problem it was

> time for other options. He said he felt it was time to see an

> anesthesia specialist with a pain mangement clinic to discuss

> the options of a celiac block and/or longer acting pain meds. I

> told him I knew of one in a neighboring town that was highly

> recommended by my sister-in-law with lupus, and he said he

> had no objections, I could go to that doctor, or there were two

> others he could recommend. Whatever I wanted.

>

> Needless to say, I was floored! The long persuasive speech I'd

> been memorizing for the last few weeks to discuss this very

> subject was totally unnecessary. He said he'd be happy to work

> with whomever I chose and would fax all my records to them as

> soon as I requested it.

>

> I'd like to hear anyone's feedback on celiac blocks, again. If you

> have had this done, was it effective, and for how long? I'm trying

> to weigh the advantages/disadvantages of this option as

> opposed to moving up to a longer acting medication. At this

> point I'm leaning toward a stronger pain medication as a first

> choice, but am wondering how much that will limit my activity,

> since I am on my own raising a child much of the time and those

> times I have to be able to function with little impairment.

>

> So any advice, experience or comments would be very welcome!

> This group is the best sounding board ever. I know I can

> research everything possible on the blocks, and the drugs, and I

> will, but your personal experience with both would be helpful.

>

> With hope and prayers,

> Heidi

>

>

> Heidi H. Griffeth - SC

> hhessgriffeth@...

> Southeastern Representative

> Pancreatitis Association, Intl.

>

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit & quot;reply & quot; or send an e-mail

to: Pancreatitis (AT) Yahoo

>

>

[Guest guest]

> > My GI called tonight for a long telephone appointment. He had

> > gotten the radiology report from Friday's CT-scan and wanted to

> > review that and talk to me about any health changes since

> > March. The good news was reassuring, my largest pseudocyst

> > has reduced to 3 cm. around from 3.6 cm. and the other two

> > smaller ones at the tail also showed " very significant "

> reduction!

> > He was optimistic, that with more time, total resolution may be

> > possible.

> >

> > I told him that my pain had been increasing in duration and

> > happening more frequently, and that the Percocet was not that

> > effective anymore, and that I wished the pain would resolve,

too!

> > He sort of laughed and said that unfortunately, that wouldn't

> > happen, but that if this had become more of a problem it was

> > time for other options. He said he felt it was time to see an

> > anesthesia specialist with a pain mangement clinic to discuss

> > the options of a celiac block and/or longer acting pain meds. I

> > told him I knew of one in a neighboring town that was highly

> > recommended by my sister-in-law with lupus, and he said he

> > had no objections, I could go to that doctor, or there were two

> > others he could recommend. Whatever I wanted.

> >

> > Needless to say, I was floored! The long persuasive speech I'd

> > been memorizing for the last few weeks to discuss this very

> > subject was totally unnecessary. He said he'd be happy to work

> > with whomever I chose and would fax all my records to them as

> > soon as I requested it.

> >

> > I'd like to hear anyone's feedback on celiac blocks, again. If

> you

> > have had this done, was it effective, and for how long? I'm

> trying

> > to weigh the advantages/disadvantages of this option as

> > opposed to moving up to a longer acting medication. At this

> > point I'm leaning toward a stronger pain medication as a first

> > choice, but am wondering how much that will limit my activity,

> > since I am on my own raising a child much of the time and those

> > times I have to be able to function with little impairment.

> >

> > So any advice, experience or comments would be very welcome!

> > This group is the best sounding board ever. I know I can

> > research everything possible on the blocks, and the drugs, and I

> > will, but your personal experience with both would be helpful.

> >

> > With hope and prayers,

> > Heidi

> >

> >

> > Heidi H. Griffeth - SC

> > hhessgriffeth@h...

> > Southeastern Representative

> > Pancreatitis Association, Intl.

[Guest guest]

> > My GI called tonight for a long telephone appointment. He had

> > gotten the radiology report from Friday's CT-scan and wanted to

> > review that and talk to me about any health changes since

> > March. The good news was reassuring, my largest pseudocyst

> > has reduced to 3 cm. around from 3.6 cm. and the other two

> > smaller ones at the tail also showed " very significant "

> reduction!

> > He was optimistic, that with more time, total resolution may be

> > possible.

> >

> > I told him that my pain had been increasing in duration and

> > happening more frequently, and that the Percocet was not that

> > effective anymore, and that I wished the pain would resolve,

too!

> > He sort of laughed and said that unfortunately, that wouldn't

> > happen, but that if this had become more of a problem it was

> > time for other options. He said he felt it was time to see an

> > anesthesia specialist with a pain mangement clinic to discuss

> > the options of a celiac block and/or longer acting pain meds. I

> > told him I knew of one in a neighboring town that was highly

> > recommended by my sister-in-law with lupus, and he said he

> > had no objections, I could go to that doctor, or there were two

> > others he could recommend. Whatever I wanted.

> >

> > Needless to say, I was floored! The long persuasive speech I'd

> > been memorizing for the last few weeks to discuss this very

> > subject was totally unnecessary. He said he'd be happy to work

> > with whomever I chose and would fax all my records to them as

> > soon as I requested it.

> >

> > I'd like to hear anyone's feedback on celiac blocks, again. If

> you

> > have had this done, was it effective, and for how long? I'm

> trying

> > to weigh the advantages/disadvantages of this option as

> > opposed to moving up to a longer acting medication. At this

> > point I'm leaning toward a stronger pain medication as a first

> > choice, but am wondering how much that will limit my activity,

> > since I am on my own raising a child much of the time and those

> > times I have to be able to function with little impairment.

> >

> > So any advice, experience or comments would be very welcome!

> > This group is the best sounding board ever. I know I can

> > research everything possible on the blocks, and the drugs, and I

> > will, but your personal experience with both would be helpful.

> >

> > With hope and prayers,

> > Heidi

> >

> >

> > Heidi H. Griffeth - SC

> > hhessgriffeth@h...

> > Southeastern Representative

> > Pancreatitis Association, Intl.