Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 In a message dated 4/12/01 8:02:20 AM Pacific Daylight Time, godave@... writes: << Is there actually a blood test for RP? >> Marilyn, not that I know of. I know that they always run a sed rate and CRP, but these aren't even conclusive. To Rita, if you know what test it was that they ran can you share it with us. Even my ear biopsy was inconclusive and the dx by symptoms. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 My doctor diagnosed it by my ears and very high ANA, (that's blood work) plus the joint pain, etc. Its a hit and miss type of thing. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 My doctor diagnosed it by my ears and very high ANA, (that's blood work) plus the joint pain, etc. Its a hit and miss type of thing. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 My doctor diagnosed it by my ears and very high ANA, (that's blood work) plus the joint pain, etc. Its a hit and miss type of thing. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 I had ear biopsy which said it was Chondrodermatitis nodularis helicis. I figure if the word ends in titis its associated. Also said tissue shows diffuse non-specific chronic inflammation.. Next wednesday I get the skin biopsied....lucky me...Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 I had ear biopsy which said it was Chondrodermatitis nodularis helicis. I figure if the word ends in titis its associated. Also said tissue shows diffuse non-specific chronic inflammation.. Next wednesday I get the skin biopsied....lucky me...Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 I had ear biopsy which said it was Chondrodermatitis nodularis helicis. I figure if the word ends in titis its associated. Also said tissue shows diffuse non-specific chronic inflammation.. Next wednesday I get the skin biopsied....lucky me...Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 Sorry to answer this but no there is no actually test fro RP. Lu << Is there actually a blood test for RP? >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 --- RCColloran@... wrote: > In a message dated 4/12/01 8:02:20 AM Pacific > Daylight Time, > godave@... writes: > > << Is there actually a blood test for RP? >> > > Marilyn, not that I know of. I know that they > always run a sed rate and CRP, > but these aren't even conclusive. To Rita, if you > know what test it was that > they ran can you share it with us. Even my ear > biopsy was inconclusive and > the dx by symptoms. > > : I am not sure the name of the test. He wants to do a biopsy when it flares up again. I will find out as soon as I can about the test. Rita > ===== Have a great day! Rita __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 --- RCColloran@... wrote: > In a message dated 4/12/01 8:02:20 AM Pacific > Daylight Time, > godave@... writes: > > << Is there actually a blood test for RP? >> > > Marilyn, not that I know of. I know that they > always run a sed rate and CRP, > but these aren't even conclusive. To Rita, if you > know what test it was that > they ran can you share it with us. Even my ear > biopsy was inconclusive and > the dx by symptoms. > > : I am not sure the name of the test. He wants to do a biopsy when it flares up again. I will find out as soon as I can about the test. Rita > ===== Have a great day! Rita __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 --- RCColloran@... wrote: > In a message dated 4/12/01 8:02:20 AM Pacific > Daylight Time, > godave@... writes: > > << Is there actually a blood test for RP? >> > > Marilyn, not that I know of. I know that they > always run a sed rate and CRP, > but these aren't even conclusive. To Rita, if you > know what test it was that > they ran can you share it with us. Even my ear > biopsy was inconclusive and > the dx by symptoms. > > : I am not sure the name of the test. He wants to do a biopsy when it flares up again. I will find out as soon as I can about the test. Rita > ===== Have a great day! Rita __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 --- grandm4@... wrote: > I had ear biopsy which said it was Chondrodermatitis > nodularis helicis. I > figure if the word ends in titis its associated. > Also said tissue shows > diffuse non-specific chronic inflammation.. Next > wednesday I get the skin > biopsied....lucky me...Sue Sue, Do you need to wait until the ear is inflamed to to the biopsy. We are waiting - should we? Rita in Montgomery > ===== Have a great day! Rita __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 --- grandm4@... wrote: > I had ear biopsy which said it was Chondrodermatitis > nodularis helicis. I > figure if the word ends in titis its associated. > Also said tissue shows > diffuse non-specific chronic inflammation.. Next > wednesday I get the skin > biopsied....lucky me...Sue Sue, Do you need to wait until the ear is inflamed to to the biopsy. We are waiting - should we? Rita in Montgomery > ===== Have a great day! Rita __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 --- grandm4@... wrote: > I had ear biopsy which said it was Chondrodermatitis > nodularis helicis. I > figure if the word ends in titis its associated. > Also said tissue shows > diffuse non-specific chronic inflammation.. Next > wednesday I get the skin > biopsied....lucky me...Sue Sue, Do you need to wait until the ear is inflamed to to the biopsy. We are waiting - should we? Rita in Montgomery > ===== Have a great day! Rita __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 Marilyn, My RP. was DX. by symptoms since my bloodwork is normal. Sandy > Is there actually a blood test for RP? Last year when I saw the > rhumatologist he did a huge battery of blood work, I can send the > list, but I always thought that RP was diagnosed by the symptoms that > a person had at the time of the flare up. Marilyn > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2001 Report Share Posted April 13, 2001 Marilyn, I was in the middle of a flare when they did an ear buipsy. Coupled with that, I also had Iritis. Nobody had any doubt! Unfortunately! Love,Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2001 Report Share Posted April 13, 2001 Sue, I wish I could tell you about something that will help. Are you flaring? If you are, they'll get a better result. Fortunately or unfortinately I was in a major flare, and already dx with Iritis. So between the symptoms and the results, there wasn't much doubt. The biopsy is not painful when the do it (too numb), you only feel the pressure. It';s when the meds wear off that it hurts. But hey, I survived it and I am a woos, so you'll be fine! Good luck and love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Kathy writes, > I have been taking paxil for some time now. Even with the > antidepressant I don't all the sudden have the energy to do what needs > to be done in my day. > > My doctor has put me on Adderall for fatigue and energy. It does help but > I still run out of both before the day is done. It is time released so it > is supposed to last longer but it doesn't. Take care, Irene Books may well be the only true magic Alice Hoffman. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Kathy writes, > I have been taking paxil for some time now. Even with the > antidepressant I don't all the sudden have the energy to do what needs > to be done in my day. > > My doctor has put me on Adderall for fatigue and energy. It does help but > I still run out of both before the day is done. It is time released so it > is supposed to last longer but it doesn't. Take care, Irene Books may well be the only true magic Alice Hoffman. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Hi I have been taking paxil for some time now. Even with the anti-depressant I don't all the sudden have the energy to do what needs to be done in my day. I deal with fibro-fog on a consistant basis and I can understand what your co-worker is saying about missing that spark. Because I am so tired and lacking energy the spark is missing but I'm not sure if it just isn't part of having fibro. I look for the moments in the day that bring me joy. I try not to expect the world from myself. I sometimes think that there are so many people out there ready to diagnose me or have some miracle vitamin that I should take to cure me. What I'd really like to say to them is why don't you come to my house and clean while I take a nap. Now that would really help me. Take care Kathy o, my question is, to those of you who are taking anti-depressants, have you found that they make you happy, or just not depressed? Did you rediscover some joy in living? If so, I think maybe I will ask for some anti-depressants when I go for my appointment at the pain clinic in a few weeks. Any input would be appreciated. Thanks for all your help. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Hi I have been taking paxil for some time now. Even with the anti-depressant I don't all the sudden have the energy to do what needs to be done in my day. I deal with fibro-fog on a consistant basis and I can understand what your co-worker is saying about missing that spark. Because I am so tired and lacking energy the spark is missing but I'm not sure if it just isn't part of having fibro. I look for the moments in the day that bring me joy. I try not to expect the world from myself. I sometimes think that there are so many people out there ready to diagnose me or have some miracle vitamin that I should take to cure me. What I'd really like to say to them is why don't you come to my house and clean while I take a nap. Now that would really help me. Take care Kathy o, my question is, to those of you who are taking anti-depressants, have you found that they make you happy, or just not depressed? Did you rediscover some joy in living? If so, I think maybe I will ask for some anti-depressants when I go for my appointment at the pain clinic in a few weeks. Any input would be appreciated. Thanks for all your help. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 I don't take anti-depressants cause they make me happy. I don't think any medication can make people happy. I take nortriptilyne (sp?). It helps me sleep at night and that is a huge help. They also seem to take the edge off of my gloom. I'm happier now because I'm sleeping at night. And because I have more energy now. re: Question for the group > Hi > > I have been taking paxil for some time now. Even with the > anti-depressant I don't all the sudden have the energy to do what needs > to be done in my day. I deal with fibro-fog on a consistant basis and I > can understand what your co-worker is saying about missing that spark. > Because I am so tired and lacking energy the spark is missing but I'm > not sure if it just isn't part of having fibro. I look for the moments > in the day that bring me joy. I try not to expect the world from > myself. I sometimes think that there are so many people out there ready > to diagnose me or have some miracle vitamin that I should take to cure > me. What I'd really like to say to them is why don't you come to my > house and clean while I take a nap. Now that would really help me. > > Take care > Kathy > > o, my question is, to those of you who are taking anti-depressants, > have you found that they make you happy, or just not depressed? Did > you rediscover some joy in living? If so, I think maybe I will ask > for some anti-depressants when I go for my appointment at the pain > clinic in a few weeks. > > Any input would be appreciated. Thanks for all your help. > > Take care, > > > > > > > > > SEND POST TO: fibromyalgia-cfs > > HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html > LIST OWNER: " Missy " Parrot004@...> > UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 I don't take anti-depressants cause they make me happy. I don't think any medication can make people happy. I take nortriptilyne (sp?). It helps me sleep at night and that is a huge help. They also seem to take the edge off of my gloom. I'm happier now because I'm sleeping at night. And because I have more energy now. re: Question for the group > Hi > > I have been taking paxil for some time now. Even with the > anti-depressant I don't all the sudden have the energy to do what needs > to be done in my day. I deal with fibro-fog on a consistant basis and I > can understand what your co-worker is saying about missing that spark. > Because I am so tired and lacking energy the spark is missing but I'm > not sure if it just isn't part of having fibro. I look for the moments > in the day that bring me joy. I try not to expect the world from > myself. I sometimes think that there are so many people out there ready > to diagnose me or have some miracle vitamin that I should take to cure > me. What I'd really like to say to them is why don't you come to my > house and clean while I take a nap. Now that would really help me. > > Take care > Kathy > > o, my question is, to those of you who are taking anti-depressants, > have you found that they make you happy, or just not depressed? Did > you rediscover some joy in living? If so, I think maybe I will ask > for some anti-depressants when I go for my appointment at the pain > clinic in a few weeks. > > Any input would be appreciated. Thanks for all your help. > > Take care, > > > > > > > > > SEND POST TO: fibromyalgia-cfs > > HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html > LIST OWNER: " Missy " Parrot004@...> > UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 Hello !!! I totally understand how you feel. i feel the same way. I always say I am not depressed, just pissed! I always wanted my doctors to fix the problems. Now, for me I have to tell you I was not taking anything for a few years. Now I have a much better understanding of anti-depressants. Selective Seratonin Reuptake inhibitors, like Prozac, Zoloft, Celexa, give the brain more seratonin, the chemical that does control moods as far as I know. There is a lot more to the chemistry, sorry, I don't remember it all. So, I had a concussion, maybe brain injury, and often that (and also plenty of other things, like pain) can cause the brain the use up the seratonin too fast, or maybe there is just not enough being made, so when you're out, the mood swings down. I don't feel severely depressed all the time. I am angry, frustrated, and want to get stuff done, not be in pain, I am sure you all know what I mean. Any of these feelings, not matter how much, can interfere with healing and feeling the best you can. Everything is connected, pain, stress, anxiety, fatigue, depression. I am taking Prozac right now, and it does not change how I feel. I am not blissfully happy all the sudden. But it does help. I need more patience, and I need to relax, slow down, settle down. I push myself, then I'm in pain, then I am dissapointed, then my muscles are tight, then I have more pain, then I get more frustrated, then I can't relax. I was so stressed that my doctor, who is great, but not touchy-feely, told me he wants me to see a neurologist and relax before any more treatment with him. Injections helped me a lot, but then I got stressed and it got worse. I use the Prozac to help my brain be more balanced. I don't feel any major changes in me, or in my behavior. The Prozac does not do anything stange, I feel totally like myself. But a better, calmer self. My boss commented this week this week that he could see how much I did better the last couple of weeks. He knows that I am working on my patience, and he noticed!! Also I am proud of myself that the other day I did not argue with my husband. I made my point and told him now is not the time to discuss this. I ended a fight. I never did this before. This sounds bad, I am not that bad of a person, really :-), but I tend to argue my point until the other person understands. (Yeah right) I always thought " he doesn't get what I'm saying, I need to say it again, differently " . The " fight " topic resolved itself by now. I know if I would have continued it would have escalated. I DID THE RIGHT THING, imagine that. I would say take advantage of any little advantage there is, no matter how. Taking Prozac will result in me having less stress, and less pain. I got there in a round-about way, but all the symptoms are in a vicious cycle and everything is connected. Also, I will get more and better specialized treatment for specific things, if I can now say that the fatigue does not come from depression. Because I tried it!! Because I am taking Prozac. I am also in Biofeedback counseling and cognative therapy right now. I am thrilled to get this help and to have these resources. I know I promised some material that i got, and I will still scan it everntually. I'm just slow. i also bought a couple of books, if I like them I'll let all you guys and gals know!! In summary: I am no nuts or typically depressed, but I benefit from Prozac!! And honestly if it would be Voodoo that could help me. I would try that too. :-) Sorry for all the typos, take care, In a message dated 4/19/2002 2:36:51 PM Mountain Standard Time, kithain@... writes: > > > Okay, I have a question for everyone. My coworker and I had it out > today, which was a good thing, because it cleared the air. Afterward, > we were talking, and she asked if I had considered taking anti- > depressants. To which I replied that I wasn't depressed. I was more > in need of anger management classes, than anything else. Well she > said, " You might not be depressed, but you're certainly not happy. > You don't have any of that spark that most people have. " Which made > me think. She's right, of course. I might not be going home and > crying every night, or feel like everything is hopless, but I can't > remember the last time I was actually really and truly happy. All my > energies go into keeping myself going and functioning. I don't have > anything left over for enjoyment. > > So, my question is, to those of you who are taking anti-depressants, > have you found that they make you happy, or just not depressed? Did > you rediscover some joy in living? If so, I think maybe I will ask > for some anti-depressants when I go for my appointment at the pain > clinic in a few weeks. > > Any input would be appreciated. Thanks for all your help. > > Take care, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 Hello !!! I totally understand how you feel. i feel the same way. I always say I am not depressed, just pissed! I always wanted my doctors to fix the problems. Now, for me I have to tell you I was not taking anything for a few years. Now I have a much better understanding of anti-depressants. Selective Seratonin Reuptake inhibitors, like Prozac, Zoloft, Celexa, give the brain more seratonin, the chemical that does control moods as far as I know. There is a lot more to the chemistry, sorry, I don't remember it all. So, I had a concussion, maybe brain injury, and often that (and also plenty of other things, like pain) can cause the brain the use up the seratonin too fast, or maybe there is just not enough being made, so when you're out, the mood swings down. I don't feel severely depressed all the time. I am angry, frustrated, and want to get stuff done, not be in pain, I am sure you all know what I mean. Any of these feelings, not matter how much, can interfere with healing and feeling the best you can. Everything is connected, pain, stress, anxiety, fatigue, depression. I am taking Prozac right now, and it does not change how I feel. I am not blissfully happy all the sudden. But it does help. I need more patience, and I need to relax, slow down, settle down. I push myself, then I'm in pain, then I am dissapointed, then my muscles are tight, then I have more pain, then I get more frustrated, then I can't relax. I was so stressed that my doctor, who is great, but not touchy-feely, told me he wants me to see a neurologist and relax before any more treatment with him. Injections helped me a lot, but then I got stressed and it got worse. I use the Prozac to help my brain be more balanced. I don't feel any major changes in me, or in my behavior. The Prozac does not do anything stange, I feel totally like myself. But a better, calmer self. My boss commented this week this week that he could see how much I did better the last couple of weeks. He knows that I am working on my patience, and he noticed!! Also I am proud of myself that the other day I did not argue with my husband. I made my point and told him now is not the time to discuss this. I ended a fight. I never did this before. This sounds bad, I am not that bad of a person, really :-), but I tend to argue my point until the other person understands. (Yeah right) I always thought " he doesn't get what I'm saying, I need to say it again, differently " . The " fight " topic resolved itself by now. I know if I would have continued it would have escalated. I DID THE RIGHT THING, imagine that. I would say take advantage of any little advantage there is, no matter how. Taking Prozac will result in me having less stress, and less pain. I got there in a round-about way, but all the symptoms are in a vicious cycle and everything is connected. Also, I will get more and better specialized treatment for specific things, if I can now say that the fatigue does not come from depression. Because I tried it!! Because I am taking Prozac. I am also in Biofeedback counseling and cognative therapy right now. I am thrilled to get this help and to have these resources. I know I promised some material that i got, and I will still scan it everntually. I'm just slow. i also bought a couple of books, if I like them I'll let all you guys and gals know!! In summary: I am no nuts or typically depressed, but I benefit from Prozac!! And honestly if it would be Voodoo that could help me. I would try that too. :-) Sorry for all the typos, take care, In a message dated 4/19/2002 2:36:51 PM Mountain Standard Time, kithain@... writes: > > > Okay, I have a question for everyone. My coworker and I had it out > today, which was a good thing, because it cleared the air. Afterward, > we were talking, and she asked if I had considered taking anti- > depressants. To which I replied that I wasn't depressed. I was more > in need of anger management classes, than anything else. Well she > said, " You might not be depressed, but you're certainly not happy. > You don't have any of that spark that most people have. " Which made > me think. She's right, of course. I might not be going home and > crying every night, or feel like everything is hopless, but I can't > remember the last time I was actually really and truly happy. All my > energies go into keeping myself going and functioning. I don't have > anything left over for enjoyment. > > So, my question is, to those of you who are taking anti-depressants, > have you found that they make you happy, or just not depressed? Did > you rediscover some joy in living? If so, I think maybe I will ask > for some anti-depressants when I go for my appointment at the pain > clinic in a few weeks. > > Any input would be appreciated. Thanks for all your help. > > Take care, > > > Quote Link to comment Share on other sites More sharing options...
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