Guest guest Posted September 21, 2002 Report Share Posted September 21, 2002 I was wondering if anyone goes to The Children's Hospital of Michigan in Detroit or the U of M CF center in Ann Arbor.Right now we are going to Detroit but are thinking about switching. One of the reasons is that we always have to be " squeezed " in even if we make an appointment 2 months ahead of time. When we get there we usually wait an hour before we are seen. Once we get in we usually wait quite a while to see the doctor, nutritionist, etc. They are so busy and are always racing around. Is it like that everywhere else? Also, we don't have the feelings that we should have for our doctor. He is a nice guy but we wonder if there is another that would be more knowledgeable and helpful. I guess we wonder if he should be doing more for our daughter. I mean, I have read what other peoples' doctors do for them and he doesn't do those things. Such as throat cultures, what to do if she is sick, PFTs(maybe she is too young, 7 months) He is also introducing things to us slowly so that we don't get overwhelmed. Maybe he will eventually get those things. I don't know. What do you guys think? Holly (mother of Cheyenne, 4 years w/o CF and Kennedy, 7 months w/ CF) _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2002 Report Share Posted September 21, 2002 We go to Ann Arbor and yes, we also have to spend a good part of the day there to be seen by everyone needed. I have never taken my children to see anyone else. I guess I am afraid to in fear of having someone new. But we live in Upper Michigan and the long distance is stress in itself. Ask questions about anything that they do and don't do. They should give you a reason to hopefully put your mind at ease. Cindy D. mom of 3- 2w/cf Detroit or AnnArbor > > I was wondering if anyone goes to The Children's Hospital of Michigan in > Detroit or the U of M CF center in Ann Arbor.Right now we are going to > Detroit but are thinking about switching. One of the reasons is that we > always have to be " squeezed " in even if we make an appointment 2 months > ahead of time. When we get there we usually wait an hour before we are seen. > Once we get in we usually wait quite a while to see the doctor, > nutritionist, etc. They are so busy and are always racing around. Is it > like that everywhere else? Also, we don't have the feelings that we should > have for our doctor. He is a nice guy but we wonder if there is another that > would be more knowledgeable and helpful. I guess we wonder if he should be > doing more for our daughter. I mean, I have read what other peoples' doctors > do for them and he doesn't do those things. Such as throat cultures, what to > do if she is sick, PFTs(maybe she is too young, 7 months) He is also > introducing things to us slowly so that we don't get overwhelmed. Maybe he > will eventually get those things. I don't know. What do you guys think? > > > Holly (mother of Cheyenne, 4 years w/o CF and Kennedy, 7 months w/ CF) > > > _________________________________________________________________ > Send and receive Hotmail on your mobile device: http://mobile.msn.com > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2002 Report Share Posted September 21, 2002 We are in the Toronto area. We go to the CF clinic at Sick Kids hospital. They do a routine throat culture on our son every time we go. He was diagnosed at birth and has been on enzymes since his diagnosis. We do physio on him 2x/day. We were very overwhelmed at our very first clinic visit but they gave us all the info. that we needed to hear to help keep our son as healthy as possible. Touch wood, he has presented with nothing severe, he cultured staph at his visit in May so he is on antibiotics for that until he has two clear cultures afterwards. Hope this helps. Cheryl, mom to 3 boys, Zac 6 yrs. wocf, Jake 2 yrs. wocf, Matty 7 mo. wcf Detroit or AnnArbor I was wondering if anyone goes to The Children's Hospital of Michigan in Detroit or the U of M CF center in Ann Arbor.Right now we are going to Detroit but are thinking about switching. One of the reasons is that we always have to be " squeezed " in even if we make an appointment 2 months ahead of time. When we get there we usually wait an hour before we are seen. Once we get in we usually wait quite a while to see the doctor, nutritionist, etc. They are so busy and are always racing around. Is it like that everywhere else? Also, we don't have the feelings that we should have for our doctor. He is a nice guy but we wonder if there is another that would be more knowledgeable and helpful. I guess we wonder if he should be doing more for our daughter. I mean, I have read what other peoples' doctors do for them and he doesn't do those things. Such as throat cultures, what to do if she is sick, PFTs(maybe she is too young, 7 months) He is also introducing things to us slowly so that we don't get overwhelmed. Maybe he will eventually get those things. I don't know. What do you guys think? Holly (mother of Cheyenne, 4 years w/o CF and Kennedy, 7 months w/ CF) _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
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