Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 In a message dated 8/30/2002 2:24:33 PM Eastern Daylight Time, tcrooke@... writes: > . Does > anyone else have children wcf and sinus problems? All 3 of mine have sinus involvement. One has had surgery to remove polps other 2 have polps - sinus invovlment is one of the most common things in people with CF.... Rosemary in New York with 3 children with CF - they are 12, 9.8, 5.9...I coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you ready for this - TOBI after their medication! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 How do you know whether to remove the polyp or just keep an eye on it. Collin's doc says if it isn't giving him any trouble to just leave it alone. Why did one children have it removed but not the others? Tina Tina Crooke Recreation Bookkeeper City of Rockville 111 land Ave Rockville, MD 20850 ROSEMARY3FOR3w CF@... To: cfparents cc: 08/30/2002 Subject: Re: New to group.... 03:53 PM Please respond to cfparents In a message dated 8/30/2002 2:24:33 PM Eastern Daylight Time, tcrooke@... writes: > . Does > anyone else have children wcf and sinus problems? All 3 of mine have sinus involvement. One has had surgery to remove polps other 2 have polps - sinus invovlment is one of the most common things in people with CF.... Rosemary in New York with 3 children with CF - they are 12, 9.8, 5.9...I coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you ready for this - TOBI after their medication! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2002 Report Share Posted August 31, 2002 Rosemary, Mandy seems to have alot of sinus issues, she just got over sinusitis again about a week ago, but I think she coming down with it again, she's 13 and is rather upset right now because just as they call to take out her picc line she gets sick again and it's right back to antibiotics. (Iowa) ROSEMARY3FOR3wCF@... wrote:In a message dated 8/30/2002 2:24:33 PM Eastern Daylight Time, tcrooke@... writes: > . Does > anyone else have children wcf and sinus problems? All 3 of mine have sinus involvement. One has had surgery to remove polps other 2 have polps - sinus invovlment is one of the most common things in people with CF.... Rosemary in New York with 3 children with CF - they are 12, 9.8, 5.9...I coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you ready for this - TOBI after their medication! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2002 Report Share Posted August 31, 2002 Has she had a cat scan of her sinus? Has she been seen by an ENT? Just thought I would through out those questions. I know sinus' are hard and almost impossible it seems to treat......patience........ Rosemary in New York with 3 children with CF - they are 12, 9.8, 5.9...I coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you ready for this - TOBI after their medication! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 Tina, I have three girls and two of my girls have CF and we found out about them having CF because my oldest had polyps in her nose to the point that they were hanging out of her nose. Our Doctor thought it was sinus infection. My husband try to clean her nose out with a Q-tip and released the stuff in her nose was hard after that our world was turn up side down. But at least now we know and they are getting the right treatments. We also have one rare mutation. We are in Iowa. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 Tina, I have three girls and two of my girls have CF and we found out about them having CF because my oldest had polyps in her nose to the point that they were hanging out of her nose. Our Doctor thought it was sinus infection. My husband try to clean her nose out with a Q-tip and released the stuff in her nose was hard after that our world was turn up side down. But at least now we know and they are getting the right treatments. We also have one rare mutation. We are in Iowa. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 Tina, I have three girls and two of my girls have CF and we found out about them having CF because my oldest had polyps in her nose to the point that they were hanging out of her nose. Our Doctor thought it was sinus infection. My husband try to clean her nose out with a Q-tip and released the stuff in her nose was hard after that our world was turn up side down. But at least now we know and they are getting the right treatments. We also have one rare mutation. We are in Iowa. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 Tina, Had so many polyps she could not breath out of her nose. So that is why we had them removed twice. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 Tina, Had so many polyps she could not breath out of her nose. So that is why we had them removed twice. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 Tina, Had so many polyps she could not breath out of her nose. So that is why we had them removed twice. Deb A Quote Link to comment Share on other sites More sharing options...
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