Guest guest Posted May 11, 2002 Report Share Posted May 11, 2002 Hi, My 2 sense. After Di's last ERCP last week, her doctor did tell us that the pancreas will eventually burn itself out, but it would take a long time. We were a little stunned with this news since it was the first time we'd heard something like this. After the doc. left the room we were still talking about it when a nurse came in. She asked what we were talking about and when we told her, she said that she knew noone that ever had a burned out pancreas. and that the longest that she ever knew someone that had pancreatitis is 15 years, and that person didn't have burn out. I'm not saying it's not possible, but this is the info we got on the ERCP floor. Trish " While we have the gift of life, it seems to me the only tragedy is to allow a part of us to die - whether it be our spirit, our creativity, or our glorious uniqueness. " ~ Gilda Radner~ In a message dated 5/11/2002 9:51:48 AM Eastern Daylight Time, pancreatitis writes: > I, too, was told that once the pancreas burns out, the pain abates. > The physician also said that it takes about eight years for that to > happen. Well, here I am nine years into this horror!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2003 Report Share Posted February 9, 2003 Eddie, The burn out that your Doctor maybe speaking of is when your pancrease Calcifies and then begins to burn itself out... This happens from the years of pancreatitis... When I had the first surgery. My whipple. The Doctor told my parents that the head of my pancrease was severly burned out or calcified.. That is what they removed... He also said that the rest of my pancrease did not look good... Doctor Sutherland Told my mom that I was lucky that I had the surgery up there when I did b/c If I would have waited any longer it would have been twice as bad... The tail was calcified and beginning to become necrotic... So I was really lucky... This when the Doctors start to think that the pain goes away b/c you start to show normal levels of amalase and Lipase, but infact the pain continues as Doctor sutherland told me and my mom... New Orleans La Area Rep Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2003 Report Share Posted February 9, 2003 Eddie, The burn out that your Doctor maybe speaking of is when your pancrease Calcifies and then begins to burn itself out... This happens from the years of pancreatitis... When I had the first surgery. My whipple. The Doctor told my parents that the head of my pancrease was severly burned out or calcified.. That is what they removed... He also said that the rest of my pancrease did not look good... Doctor Sutherland Told my mom that I was lucky that I had the surgery up there when I did b/c If I would have waited any longer it would have been twice as bad... The tail was calcified and beginning to become necrotic... So I was really lucky... This when the Doctors start to think that the pain goes away b/c you start to show normal levels of amalase and Lipase, but infact the pain continues as Doctor sutherland told me and my mom... New Orleans La Area Rep Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2003 Report Share Posted February 10, 2003 I had a surgeon tell me the sme thing 7 and a half years ago . I have had it happen thats for sure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2003 Report Share Posted February 10, 2003 I had a surgeon tell me the sme thing 7 and a half years ago . I have had it happen thats for sure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2003 Report Share Posted February 10, 2003 I had a surgeon tell me the sme thing 7 and a half years ago . I have had it happen thats for sure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2003 Report Share Posted February 10, 2003 Eddie, my doctor says I'm in burn out (end-stage chronic pancreatitis), but I am still in pain. So 'burn out' doesn't necessarily mean know pain, just that your pancreas is no longer functioning by about 90%. I've heard of the theory that it means no pain, but my doctor discounts that theory and I have yet to hear from anyone who has experienced this. Kimber -- Kimber Vallejo, CA hominid2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2003 Report Share Posted February 10, 2003 Eddie, my doctor says I'm in burn out (end-stage chronic pancreatitis), but I am still in pain. So 'burn out' doesn't necessarily mean know pain, just that your pancreas is no longer functioning by about 90%. I've heard of the theory that it means no pain, but my doctor discounts that theory and I have yet to hear from anyone who has experienced this. Kimber -- Kimber Vallejo, CA hominid2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2003 Report Share Posted February 10, 2003 Eddie, my doctor says I'm in burn out (end-stage chronic pancreatitis), but I am still in pain. So 'burn out' doesn't necessarily mean know pain, just that your pancreas is no longer functioning by about 90%. I've heard of the theory that it means no pain, but my doctor discounts that theory and I have yet to hear from anyone who has experienced this. Kimber -- Kimber Vallejo, CA hominid2@... Quote Link to comment Share on other sites More sharing options...
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