Re: ocular rosacea - losing eye sight?

[Guest guest]

Hi,

What you are describing sounds like blepharitis (the crust around the lashes

and your eye lashes falling out) which is a pretty common condition. I have

it also. The recommended therapy is cleaning your eyelids and eyelashes with

diluted baby shampoo in water. Or you can try the commercial eyelid scrubs

like Ocusoft. Also what has helped me more than anything is hot compresses

to my eyes both in the morning and at night. Blepharitis has no cure so

ongoing treatment is important to keep it under control. Also, as far as

your dryess goes, I use Thera Tears which is an excellent eye drop. You may

also want to use eye gels before going to bed - Refresh PM is good. If those

don't help you may want to ask your eye dr about getting plugs put into your

tear ducts to help maintain moisture. I have blepharitis and Dry eye

syndrome caused by the ocular rosacea. I have done and continue to do all

of these and my condition has improved considerably. Of course, as with

anything, first and foremost you should go to your eye dr for a full examine

and see what he has to say. I'm just guessing this is what you have as it

sounds so similar to my own symtoms.

Good Luck,

Donna

[Guest guest]

<< I cannot work, read or sometime plain see. The eyes are very very red,

hurt

and do not open. >>

Been there, done that. Add the feeling of sand in your eyes and that is how

I was. I think I figured out what my problem was (they only hurt now when I

try to continue on with only 3 hours of sleep). Brace

yourself.....chocolate. I, am a chocoholic. It was extremely hard to quit

eating it. Before quitting, I would have to wear sunglasses when driving, AT

NIGHT. Sometimes I would have to pull over because the pain would get

unbearable and let me tell you, crying makes it worse! With pain like that,

you can quit anything.

I'm pretty sure chocolate was my problem. I can eat a small amount, like one

Hershey's kiss, and be OK. But, if I eat more than that, bam, the next day I

cannot see very good, bloodshot and BURNINIG. It takes 2 days for it to

settle down again. Occasionally I will give in (obviously) and eat too much,

telling myself it is worth it. It isn't.

Rene

[Guest guest]

Donna and anybody else who has an opinion,

As far as ocular rosacea goes, are itchy eyes a symptom? The insides of my

eyelids have itched on and off for years. To the point where I turn my lid

inside out and scratch it with my fingernail (yuck, gross). Or, I will

scratch and scratch my eyes with my fingers until they swell and I rub the

first protective layer off so that there is a film over my eye. (I look

lovely the next day after doing this). I associate this with " eye " allergies

b/c it gets worse when I'm around dust or i get into my winter clothes. I've

had this problem for 25 years or so. Now, I wonder if it's been ocular

rosacea all along. Anyone else have this symptom and know you have ocular

rosacea, or could it just be allergies?

Thanks for the time.

~~~Beth~~~

[Guest guest]

Hi .

May I tag along on your post? I have it too but not as bad as yours.

They just get so dry, mostly at night and when I wake up. They get a

small crust by the lashes sometimes and eyelashes fall out.

What I wanted to ask is if anyone in the UK knows of any drops that

are any good. I've tried some but they either burn or only help for

about 10 minutes.

I wish I had some news for you . My last eye doctor had never

heard of ocular rosacea.(!!!) Someone else told me to wipe them with

warm, salty water on a cotton ball.

Good luck to you and thanks for letting me share your question.

> Dear Group,

>

> We do not seem have as many posts on ocular rosacea as on other

subject, yet

> WHAT DO YOU DO?

>

> I cannot work, read or sometime plain see. The eyes are very very

read, hurt

> and do not open.

> I tried the old proven way of tea bags and Ciba Hypo eye drops but

all in

> vain. It is getting worse. I am not wearing any eye make up for

fear of

> exacerbating it. (Lavera is not water proof and is not visible on my

> eyelashes anyway)

>

> Please suggest SOMETING. I have a doctor's appointment, butat best

expect

> another medication.

> What triggers ocular rosacea? The same things as the usual one?

>

> Thanks

>

[Guest guest]

In a message dated 8/11/01 2:45:06 PM Central Daylight Time,

Begardella@... writes:

<< rosacea-support

>>

I used to teach college. My students 'loved' when my eyes filled with tears

with no reason and my nose would be running. 'We make you cry' was the joke

de jour.

Now the same thing is happening only for longer periods alternating with the

sand-in-the-eyes symptom. I have a feeling the last bout was triggered by

gluten free corn flakes I tried instead of usual rice cereal. But it

happened before as well. ALLERGIC type of ocular rosacea symptom?

Also, IS THERE AN HERBAL/VITAMIN REMEDY INSTEAD OF DRUGS TO REDUCE ALLERGIC

REACTIONS?

Thanks to all

[Guest guest]

Celtia,

Thanks for your input. I, too, have the itching around the tear duct. It's

not surface itching, but deeper. What I mean by that is; it doesn't help to

take my fingernail and gently scratch the tear duct area with it, but rather

my finger to push on the tear duct area and rub. Does this sound like your

problem to? Have you found anything that relieves the itching? I don't know

about you, but, I really try to fight the urge to scratch it, b/c once I do,

it's hard to stop. And then, my eye gets so swollen. The only thing that

gives me some relief is Opcon-A made by Bausch and lomb. It says on the

bottle that it is an eye allergy relief. Sometimes I question whether I

should be using it or not. Does it make things worse in the long run? You

never know with rosacea. But, like I said, it's the only thing that gives me

some relief. A suggestion to use pantenol drops has been made as well as

quercetin. I'm not sure what either of these are.

Also, the tops of my eyelids, every-now-and-then, start to itch, and if I

don't treat it, it gets red, stings, swollen, and flaky. The only thing that

helps is ~gasp!~ cortisone cream. Just a tiny bit maybe once for 2 days. I

know, I know! That's the worst thing for me to do, but, what else is going

to take it away when it gets so exacerbated like that?

I can't see that baby shampoo applied with a cotton ball is going to get

things under control when it gets out of control like that. What does

everybody else do?

~~~Beth~~~

[Guest guest]

I think it would be better to use warm compresses

with diluted baby shampoo.

I have never heard of anyone losing eyesight from Ocular cea.

<

>>

[Guest guest]

I think it would be better to use warm compresses

with diluted baby shampoo.

I have never heard of anyone losing eyesight from Ocular cea.

<

>>