Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 Hey Larry. If you would be so kind as to send me your story, I would be happy to make you famous....lol.....I will make a page for you on the top5plus5 webpage that has your story on it. That goes for anyone else. Remember all, I work with Karyn on these things, WE try to work together and I try to keep the top5plus5 pancreatitis library updated. Sometimes that is hard to do. but I just wanted everyone to know that I don't compete with Karyn for stories.....We share all that we have to help everyone that we can. If i can ever do anything to help you Larry, please let me know I hope this finds you and yours well BTW Larry. I have many of the same complications that you have Mark E. Armstrong NW Rep, PAI www.top5plus5.com casca@... Meds, symptoms > Hello everyone! > > Just thought that since I am sort of overwhelmed by all of the > information here that I would just share more about myself as opposed > to answering individual posts. If anyone wants to communicate with > me, it would be better to send me an email with " pancreatitis " as the > subject. > > I remember someone asking me about my meds for triglycerides. I > tried gemfibrozil and it seemed to help minimally. My doctor tried > tricor for over a year and that wasn't as helpful as the gemfibrozil, > so now I am back on the gemfibrozil. My triglycerides have not been > below 1200 since my first episode of pancreatitis almost 7 years > ago. They average about 2000 most of the time, although they have > been up to 7000. My doctor suggested that I take fish oil in > addition to the rx, but I couldn't stand the fish taste. I did some > research and started taking flax seed oil instead. I also try to > avoid carbs within reason as my doctor says that they contribute to > having high triglycerides. My doctor put the fear of the Lord into > me on my last visit, saying that I would die if I didn't get my > triglycerides down. Is that true? > > I have diabetes as a result of pancreatitis. I am currently on > Glucovance - four pills a day - plus avandia to treat this. The > gemfibrozil reduces the effectiveness of these drugs so I have a hard > time controling my glucose levels. > > I take creon when I really need it. Sometimes I don't have trouble > with digestion. Other times, I have severe indigestion. I have > daily nausea. > > I don't like taking meds at all. It makes me feel like my life is > abnormal, so I only take what I see as absolutely necessary. I do > not take pain meds because of this and I suffer through days of pain > sometimes. I have only taken pain meds during my 3 hospitalizations > for pancreatitis - IV demerol and phenegren. I feel like I will bear > the pain as long as I can before I start taking anything on any kind > of a regular basis. > > I noticed that some of the posts mentioned symptoms that I do not > have. Weight loss is one of these. Unfortunately, that is not my > case. I weigh 230 pounds and struggle to keep my weight there. My > doctor is always hounding me to lose 30 pounds. My appetite is > incredible. I feel hunger even after I have eaten. I even manage to > eat when I feel " woozy " . > > Another is that I have never vomited. Sometimes I feel like I am > going to (you know that funny feeling in your jaw), but I haven't so > far. > > I am often constipated. The first time I had pancreatitis, the > emergency room thought I was severely constipated and maybe had a > blocked bowel. They gave me citrus nitrate which gave me the runs so > bad that I was extremely dehydrated 3 days later when I was admitted > to Intensive Care. I was so dehydrated, in fact, that they had to > put in a central line to give me fluids. > > I guess that is enough for now, although there is plenty more to > tell. Please email me if anyone has any specific questions. > > Thanks, > Larry > > > > PANCREATITIS Association, Intl. > Online e-mail group > > To reply to this message hit " reply " or send an e-mail to: Pancreatitis (AT) Yahoo > > To subscribe to this e-mail group, simply send an e-mail to: Pancreatitis-subscribe (AT) Yahoo > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 > Hello everyone! > > Just thought that since I am sort of overwhelmed by all of the > information here that I would just share more about myself as opposed > to answering individual posts. > Larry Dear Larry, I wanted to welcome you to our support group and tell you that though the information can sometimes seem overwhelming, you'll find people here with a lot of experience with this disease and also members with pancreatic problems that are still searching for answers. It is by sharing our experience, and our inexperience, that we are able to learn from each other. Thank you for sharing your story with us. Discrimination in the work place due to personal medical conditions is a very serious offense. I do hope you plan to consider the advice of some of the earlier responses and hire yourself a good attorney to represent you, and continue to keep meticulous documentation of all management decisions and discussions, both privately and publicly, in regard to your employ. Should you move to another department, I would suggest you continue to keep these records. Whatever happens, I do hope you will not have to work in such a toxic environment any longer than necessary. Please continue to post and ask any questions you may have that you think one or more of us might have some experience with, or feel free to comment on the questions of others. We are here to help each other however we can in our struggles with chronic pancreatitis and it's many related medical problems. If there is anything I can help you with, please feel free to email me personally at any time, and I will do my best to follow up. With hope and prayers, Heidi Heidi H. Griffeth - SC hhessgriffeth@... Southeastern Representative Pancreatitis Association Intl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2002 Report Share Posted May 10, 2002 Dear Larry, In addition to the Gemfibrozil why don't you try fasting for 3 days a month. 3 days consecutively that is. That means no food whatsoever, Maybe a little grapefruit juice if you can tolerate it. Fasting will clean out your system and give your panc and other organs a rest. Many of us here fast involentarily sometimes because of the pain associated with eating. And find some stuff to raise your metabolism. My mother gave me a bottle of Metabolife evening formula and I stated feeling better overall within a couple of days. I'm headed up to the mall to see if GNC has the stuff at a better price than the grocery store. I think if you do this it will help you lose the weight you need to and give you a little more energy. If I find some other good stuff to raise your metabolism, I'll let you know. Take good care my friend. I have a high triglyceride to; and unfortunately your doctor isn't kidding, If you don't get your triglycerides down, your inviting acute panc attacks that will eventually kill you. Your Friend, Mark --- tuositoaz tuosito@...> wrote: > Hello everyone! > > Just thought that since I am sort of overwhelmed by > all of the > information here that I would just share more about > myself as opposed > to answering individual posts. If anyone wants to > communicate with > me, it would be better to send me an email with > " pancreatitis " as the > subject. > > I remember someone asking me about my meds for > triglycerides. I > tried gemfibrozil and it seemed to help minimally. > My doctor tried > tricor for over a year and that wasn't as helpful as > the gemfibrozil, > so now I am back on the gemfibrozil. My > triglycerides have not been > below 1200 since my first episode of pancreatitis > almost 7 years > ago. They average about 2000 most of the time, > although they have > been up to 7000. My doctor suggested that I take > fish oil in > addition to the rx, but I couldn't stand the fish > taste. I did some > research and started taking flax seed oil instead. > I also try to > avoid carbs within reason as my doctor says that > they contribute to > having high triglycerides. My doctor put the fear > of the Lord into > me on my last visit, saying that I would die if I > didn't get my > triglycerides down. Is that true? > > I have diabetes as a result of pancreatitis. I am > currently on > Glucovance - four pills a day - plus avandia to > treat this. The > gemfibrozil reduces the effectiveness of these drugs > so I have a hard > time controling my glucose levels. > > I take creon when I really need it. Sometimes I > don't have trouble > with digestion. Other times, I have severe > indigestion. I have > daily nausea. > > I don't like taking meds at all. It makes me feel > like my life is > abnormal, so I only take what I see as absolutely > necessary. I do > not take pain meds because of this and I suffer > through days of pain > sometimes. I have only taken pain meds during my 3 > hospitalizations > for pancreatitis - IV demerol and phenegren. I feel > like I will bear > the pain as long as I can before I start taking > anything on any kind > of a regular basis. > > I noticed that some of the posts mentioned symptoms > that I do not > have. Weight loss is one of these. Unfortunately, > that is not my > case. I weigh 230 pounds and struggle to keep my > weight there. My > doctor is always hounding me to lose 30 pounds. My > appetite is > incredible. I feel hunger even after I have eaten. > I even manage to > eat when I feel " woozy " . > > Another is that I have never vomited. Sometimes I > feel like I am > going to (you know that funny feeling in your jaw), > but I haven't so > far. > > I am often constipated. The first time I had > pancreatitis, the > emergency room thought I was severely constipated > and maybe had a > blocked bowel. They gave me citrus nitrate which > gave me the runs so > bad that I was extremely dehydrated 3 days later > when I was admitted > to Intensive Care. I was so dehydrated, in fact, > that they had to > put in a central line to give me fluids. > > I guess that is enough for now, although there is > plenty more to > tell. Please email me if anyone has any specific > questions. > > Thanks, > Larry > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2002 Report Share Posted May 10, 2002 Hi Mark, What is this Metabolife evening formula? What does it consist of and what is added to it? THanks, Jerry/NC +++++++++++++++++++++++ ----- Original Message ----- > My mother gave me a bottle of Metabolife evening formula > and I stated feeling better overall within a couple of > days. Quote Link to comment Share on other sites More sharing options...
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