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Hi rickys mom,

My name is and I'm also new to this group. One thing, I don't

understand why they didn't give your son a central line and put him

on TPN to help rest the pancreas. The purpose for not eating is to

let the pancreas help calm down. The more it has to work, the more

enzymes it produces. You said he was in UVA; which one? I spent 4

days in UVA in Charlottesville about 45 days ago. I was pretty well

pleased with the care I received there. All I got was stabilization

care though because they were a non-participator with my insurance.

The main doctor that saw me was a Dr. Nwakakwa. I have a friend who

works there in admissions and she has told me that the hospital there

has a pretty good reputation for treating pancreatitis and other GI

disorders.

I think most everyone else here will tell you about some things you

should do and have checked out. They are a whole lot more

knowledgeable about this than I am.

Good Luck to your son and you.

Keep the Faith,

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Hi rickys mom,

My name is and I'm also new to this group. One thing, I don't

understand why they didn't give your son a central line and put him

on TPN to help rest the pancreas. The purpose for not eating is to

let the pancreas help calm down. The more it has to work, the more

enzymes it produces. You said he was in UVA; which one? I spent 4

days in UVA in Charlottesville about 45 days ago. I was pretty well

pleased with the care I received there. All I got was stabilization

care though because they were a non-participator with my insurance.

The main doctor that saw me was a Dr. Nwakakwa. I have a friend who

works there in admissions and she has told me that the hospital there

has a pretty good reputation for treating pancreatitis and other GI

disorders.

I think most everyone else here will tell you about some things you

should do and have checked out. They are a whole lot more

knowledgeable about this than I am.

Good Luck to your son and you.

Keep the Faith,

Link to comment
Share on other sites

>

>Reply-To: pancreatitis

>To: pancreatitis

>Subject: help to understand

>Date: Mon, 19 Aug 2002 04:31:56 -0000

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>

>My 17 yearold son began with pain a week ago, anmitted to hosp. with

>acute pancreatitis high blood sugar, and very high triglycerides rea

>ding of over 5000. after 2 days was sent to the universary of

>vir.brought him home today after being there for a week hes so week

>not eating blood sugars still high with taking 4 shots of insulin a

>day plus metformin twice a day. the drs wanted to put a feeding tube

>in to give his stomach and pancreatis a rest but hes overweight and

>his abd. walls were to thick.he couldnt tolerate the tube down the

>nose his gag relux was overactive,so food was given with only a bite

>or two taken. my son looks so weak, no energy,not eating at all is

>drinking water.hes still having pain. his only test were 2 cat scans

>lots of blood work.Please if anyone else had sympomts like these

>orknow of someone please let me know. IMso afraid my son is going to

>die. i could never get a straight ans. from any dr. other than after

>his sugar and lipid levels come down that the pancreatis should start

>healing itself.he was transfered to the universary of vir. from our

>hosp in our hometown because they thought the blood supply was cut

>off from the pancreatis our hometown hosp. is where the 2 catscans

>were done please if anyone can give me hope or anything i will be so

>grateful. rickys mom

>

Rickys mom:

Wow, what a story. That is tough to go through. 1st. I hope he has an

enodcrinologist helping to control his diabetes. 4 shots of insulin sure is

alot. esp with all the new ones available. on top of the oral med. THe

doctors are right in that it would be best to totally rest the pancreas.

Unfortuanately I don't know how you are going to do it without a feeding

tube. I would not consider TPN an option with his blood sugars being so high

and his elevated triglycerides, it can cause both. It sounds to me like what

you really need is a specialist. a good GI, enodcrinologist and a dietician.

Just becasue you may have seen a gastroenterologist does not mean that they

are that knowledgeable about pancreatitis, esp. in a young person. good

diabetic teaching is also a must.

I don't know what part of the state you are in but maybe someone here can

help you with names of a good doctor to see. Honestly the only thing I know

about UVA is ther neurosurgery dept is tops.

THe best thing I would think now is to make sure he is on a strict low fat

diet, if they are wanting him on only clear liquids stick with it. If he is

eating, I have found that I can tolerate small meals during the day rather

than 2-3 large meals. Stay away from sport drinks they are full of sugar.

You may also want ot check out these sites for more information.

http://pancassociation.org/links.html

Sorry I couldn't be of more help.

Tuten

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

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>

>Reply-To: pancreatitis

>To: pancreatitis

>Subject: help to understand

>Date: Mon, 19 Aug 2002 04:31:56 -0000

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>

>My 17 yearold son began with pain a week ago, anmitted to hosp. with

>acute pancreatitis high blood sugar, and very high triglycerides rea

>ding of over 5000. after 2 days was sent to the universary of

>vir.brought him home today after being there for a week hes so week

>not eating blood sugars still high with taking 4 shots of insulin a

>day plus metformin twice a day. the drs wanted to put a feeding tube

>in to give his stomach and pancreatis a rest but hes overweight and

>his abd. walls were to thick.he couldnt tolerate the tube down the

>nose his gag relux was overactive,so food was given with only a bite

>or two taken. my son looks so weak, no energy,not eating at all is

>drinking water.hes still having pain. his only test were 2 cat scans

>lots of blood work.Please if anyone else had sympomts like these

>orknow of someone please let me know. IMso afraid my son is going to

>die. i could never get a straight ans. from any dr. other than after

>his sugar and lipid levels come down that the pancreatis should start

>healing itself.he was transfered to the universary of vir. from our

>hosp in our hometown because they thought the blood supply was cut

>off from the pancreatis our hometown hosp. is where the 2 catscans

>were done please if anyone can give me hope or anything i will be so

>grateful. rickys mom

>

Rickys mom:

Wow, what a story. That is tough to go through. 1st. I hope he has an

enodcrinologist helping to control his diabetes. 4 shots of insulin sure is

alot. esp with all the new ones available. on top of the oral med. THe

doctors are right in that it would be best to totally rest the pancreas.

Unfortuanately I don't know how you are going to do it without a feeding

tube. I would not consider TPN an option with his blood sugars being so high

and his elevated triglycerides, it can cause both. It sounds to me like what

you really need is a specialist. a good GI, enodcrinologist and a dietician.

Just becasue you may have seen a gastroenterologist does not mean that they

are that knowledgeable about pancreatitis, esp. in a young person. good

diabetic teaching is also a must.

I don't know what part of the state you are in but maybe someone here can

help you with names of a good doctor to see. Honestly the only thing I know

about UVA is ther neurosurgery dept is tops.

THe best thing I would think now is to make sure he is on a strict low fat

diet, if they are wanting him on only clear liquids stick with it. If he is

eating, I have found that I can tolerate small meals during the day rather

than 2-3 large meals. Stay away from sport drinks they are full of sugar.

You may also want ot check out these sites for more information.

http://pancassociation.org/links.html

Sorry I couldn't be of more help.

Tuten

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

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Also,

if you want to keep his electolyte balanced and want to

avoid sports drinks, try either pedialyte or Smart Water.

The pedialyte you can find in the baby food aisle. The Smart

Water is made by Glaceau and you can usually find it in

health food stores. I also recommend finding a GI

specialist in the pancreas as well as an Endocrinologist.

Try clear liquids and mushy foods, as low fat as you can

find: non fat broth, miso soup (find in little packets in

the asian aisle, get the one with the tofu - not the red

colored broth), sugar free jello, no sugar added applesause,

mashed potatoes - reduced fat or non fat mixes if you can

find them, nutritional substitutes - for diabetics try

Glucerna (same as Ensure and Boost) - no guarantee on taste

though. . Try and cut down on the carbohydrates you give him

as they will raise his trigylcerides even higher.

Keep us posted on how your son is doing.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest Representative

Pancreatitis Association, International

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Also,

if you want to keep his electolyte balanced and want to

avoid sports drinks, try either pedialyte or Smart Water.

The pedialyte you can find in the baby food aisle. The Smart

Water is made by Glaceau and you can usually find it in

health food stores. I also recommend finding a GI

specialist in the pancreas as well as an Endocrinologist.

Try clear liquids and mushy foods, as low fat as you can

find: non fat broth, miso soup (find in little packets in

the asian aisle, get the one with the tofu - not the red

colored broth), sugar free jello, no sugar added applesause,

mashed potatoes - reduced fat or non fat mixes if you can

find them, nutritional substitutes - for diabetics try

Glucerna (same as Ensure and Boost) - no guarantee on taste

though. . Try and cut down on the carbohydrates you give him

as they will raise his trigylcerides even higher.

Keep us posted on how your son is doing.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest Representative

Pancreatitis Association, International

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Ricky's Mom

I also wanted to let you know that we're here to help

whenever we can.

It sometimes takes a while to get back on whole foods even

after being released from

the hospital. My last attack, I stayed on liquids (soup and

stuff0 for an additional two weeks,

because I just couldn't hand regular food Also, in addition

to the list I had earlier, baby food

(the deserts, fruits and oatmeals only) are also helpful too

(I know, no 17 year old wants to

be thought they eat babyfood, but with pancreatitis, you eat

what it feels you need to eat, not

what you want to eat - and yes I've sometimes reverted to

eating babyfood, even at work).

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest Representative

Pancreatitis Association, International

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Ricky's Mom

I also wanted to let you know that we're here to help

whenever we can.

It sometimes takes a while to get back on whole foods even

after being released from

the hospital. My last attack, I stayed on liquids (soup and

stuff0 for an additional two weeks,

because I just couldn't hand regular food Also, in addition

to the list I had earlier, baby food

(the deserts, fruits and oatmeals only) are also helpful too

(I know, no 17 year old wants to

be thought they eat babyfood, but with pancreatitis, you eat

what it feels you need to eat, not

what you want to eat - and yes I've sometimes reverted to

eating babyfood, even at work).

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest Representative

Pancreatitis Association, International

Link to comment
Share on other sites

Ricky Mom,

They are right in seeking the advies of a dietician. You shoould check out

in your area to see if they have a Diabetic Educator. We do here and she

has been very useful in helping me understand my diabetis, that is cause

from my pancreatits. The Educator has even giving more help, than the

dietician was able to. With you and you son working with both of these

people if you have them in your area, would be very educational for you

both.

Hope you son soon is able to get some releif from his pain.

Take Care,

Louie in WV

help to understand

> >Date: Mon, 19 Aug 2002 04:31:56 -0000

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> >X-OriginalArrivalTime: 19 Aug 2002 04:33:02.0813 (UTC)

> >FILETIME=[8151E0D0:01C24739]

> >

> >My 17 yearold son began with pain a week ago, anmitted to hosp. with

> >acute pancreatitis high blood sugar, and very high triglycerides rea

> >ding of over 5000. after 2 days was sent to the universary of

> >vir.brought him home today after being there for a week hes so week

> >not eating blood sugars still high with taking 4 shots of insulin a

> >day plus metformin twice a day. the drs wanted to put a feeding tube

> >in to give his stomach and pancreatis a rest but hes overweight and

> >his abd. walls were to thick.he couldnt tolerate the tube down the

> >nose his gag relux was overactive,so food was given with only a bite

> >or two taken. my son looks so weak, no energy,not eating at all is

> >drinking water.hes still having pain. his only test were 2 cat scans

> >lots of blood work.Please if anyone else had sympomts like these

> >orknow of someone please let me know. IMso afraid my son is going to

> >die. i could never get a straight ans. from any dr. other than after

> >his sugar and lipid levels come down that the pancreatis should start

> >healing itself.he was transfered to the universary of vir. from our

> >hosp in our hometown because they thought the blood supply was cut

> >off from the pancreatis our hometown hosp. is where the 2 catscans

> >were done please if anyone can give me hope or anything i will be so

> >grateful. rickys mom

> >

> Rickys mom:

> Wow, what a story. That is tough to go through. 1st. I hope he has an

> enodcrinologist helping to control his diabetes. 4 shots of insulin sure

is

> alot. esp with all the new ones available. on top of the oral med. THe

> doctors are right in that it would be best to totally rest the pancreas.

> Unfortuanately I don't know how you are going to do it without a feeding

> tube. I would not consider TPN an option with his blood sugars being so

high

> and his elevated triglycerides, it can cause both. It sounds to me like

what

> you really need is a specialist. a good GI, enodcrinologist and a

dietician.

> Just becasue you may have seen a gastroenterologist does not mean that

they

> are that knowledgeable about pancreatitis, esp. in a young person. good

> diabetic teaching is also a must.

> I don't know what part of the state you are in but maybe someone here can

> help you with names of a good doctor to see. Honestly the only thing I

know

> about UVA is ther neurosurgery dept is tops.

> THe best thing I would think now is to make sure he is on a strict low

fat

> diet, if they are wanting him on only clear liquids stick with it. If he

is

> eating, I have found that I can tolerate small meals during the day rather

> than 2-3 large meals. Stay away from sport drinks they are full of sugar.

> You may also want ot check out these sites for more information.

> http://pancassociation.org/links.html

> Sorry I couldn't be of more help.

>

> Tuten

>

>

> _________________________________________________________________

> Chat with friends online, try MSN Messenger: http://messenger.msn.com

>

>

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit & quot;reply & quot; or send an e-mail

to: Pancreatitis (AT) Yahoo

>

>

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Ricky Mom,

They are right in seeking the advies of a dietician. You shoould check out

in your area to see if they have a Diabetic Educator. We do here and she

has been very useful in helping me understand my diabetis, that is cause

from my pancreatits. The Educator has even giving more help, than the

dietician was able to. With you and you son working with both of these

people if you have them in your area, would be very educational for you

both.

Hope you son soon is able to get some releif from his pain.

Take Care,

Louie in WV

help to understand

> >Date: Mon, 19 Aug 2002 04:31:56 -0000

> >MIME-Version: 1.0

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> >X-OriginalArrivalTime: 19 Aug 2002 04:33:02.0813 (UTC)

> >FILETIME=[8151E0D0:01C24739]

> >

> >My 17 yearold son began with pain a week ago, anmitted to hosp. with

> >acute pancreatitis high blood sugar, and very high triglycerides rea

> >ding of over 5000. after 2 days was sent to the universary of

> >vir.brought him home today after being there for a week hes so week

> >not eating blood sugars still high with taking 4 shots of insulin a

> >day plus metformin twice a day. the drs wanted to put a feeding tube

> >in to give his stomach and pancreatis a rest but hes overweight and

> >his abd. walls were to thick.he couldnt tolerate the tube down the

> >nose his gag relux was overactive,so food was given with only a bite

> >or two taken. my son looks so weak, no energy,not eating at all is

> >drinking water.hes still having pain. his only test were 2 cat scans

> >lots of blood work.Please if anyone else had sympomts like these

> >orknow of someone please let me know. IMso afraid my son is going to

> >die. i could never get a straight ans. from any dr. other than after

> >his sugar and lipid levels come down that the pancreatis should start

> >healing itself.he was transfered to the universary of vir. from our

> >hosp in our hometown because they thought the blood supply was cut

> >off from the pancreatis our hometown hosp. is where the 2 catscans

> >were done please if anyone can give me hope or anything i will be so

> >grateful. rickys mom

> >

> Rickys mom:

> Wow, what a story. That is tough to go through. 1st. I hope he has an

> enodcrinologist helping to control his diabetes. 4 shots of insulin sure

is

> alot. esp with all the new ones available. on top of the oral med. THe

> doctors are right in that it would be best to totally rest the pancreas.

> Unfortuanately I don't know how you are going to do it without a feeding

> tube. I would not consider TPN an option with his blood sugars being so

high

> and his elevated triglycerides, it can cause both. It sounds to me like

what

> you really need is a specialist. a good GI, enodcrinologist and a

dietician.

> Just becasue you may have seen a gastroenterologist does not mean that

they

> are that knowledgeable about pancreatitis, esp. in a young person. good

> diabetic teaching is also a must.

> I don't know what part of the state you are in but maybe someone here can

> help you with names of a good doctor to see. Honestly the only thing I

know

> about UVA is ther neurosurgery dept is tops.

> THe best thing I would think now is to make sure he is on a strict low

fat

> diet, if they are wanting him on only clear liquids stick with it. If he

is

> eating, I have found that I can tolerate small meals during the day rather

> than 2-3 large meals. Stay away from sport drinks they are full of sugar.

> You may also want ot check out these sites for more information.

> http://pancassociation.org/links.html

> Sorry I couldn't be of more help.

>

> Tuten

>

>

> _________________________________________________________________

> Chat with friends online, try MSN Messenger: http://messenger.msn.com

>

>

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit & quot;reply & quot; or send an e-mail

to: Pancreatitis (AT) Yahoo

>

>

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